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To expect not to be told to stop breastfeeding in order to take a drug that has been classified as SAFE for breastfeeding

(216 Posts)

I have a rheum appt coming up and am psyching myself up for it. I have psoriatic arthritis and need to start DMARDs asap, however consultant refuses to prescribe them while I am breastfeeding. The paperwork I was given by the hospital says sulfasalazine is safe for BF, directly contradicting the consultant!

DS2 is 15m and on one feed a day now. I'm half tempted to say I've stopped, I won't as I don't tell lies to HCPs, but IABU to think the consultant is BU? I went in last time saying "but it says its safe" and was told I was wrong hmm

And, what do I do? If it were a GP, I could get a second opinion easily, yes? How do I do that with an NHS specialist?

neunundneunzigluftballons Mon 22-Jul-13 19:51:48

Posted to soon Op can you ask for a second opinion

MrButtercat Mon 22-Jul-13 19:52:24

Science changes all the time.Exposing babies and toddlers to any drug when you don't have to is foolish.

maja00 Mon 22-Jul-13 19:53:52

Vivienne, if there's no evidence of risk, it is officially considered safe and even the hospital is saying it's safe, why would you listen to the opinion of one man over all that?
What if the consultant told you paracetamol wasn't safe in pregnancy/breastfeeding, despite all evidence to the contrary - would you listen only to his opinion then too?

Viviennemary Mon 22-Jul-13 19:55:48

No drug is without side effects. And nobody can guarantee any drug 100% of the time for 100% of people. But I agree with making an informed choice and weighing up the pro's and cons. I wonder why this particular consultant is so against you b/f with this particular drug. Maybe he is frightened of being sued in future. That is a serious statement.

MrButtercat Mon 22-Jul-13 19:55:50

Evidence for now,drug advice can change any time.

Errr why not just give him cows milk?

neunundneunzigluftballons Mon 22-Jul-13 19:55:59

Yes and the solution of hcp is often formula because that carries no risk.

McNewPants2013 Mon 22-Jul-13 19:56:26

MrButtercat, every drug is tested and it only once it been approved then it can be prescribed. Part of the way drugs are approved is to work out who can and can't take the drugs.

it must be approved by National Institute for Clinical Excellence. if they have deemed a drug to be safe for breastfeeding they know alot better than a consultant.

Viviennemary Mon 22-Jul-13 19:56:42

Cross post sorry.

neunundneunzigluftballons Mon 22-Jul-13 19:57:51

There are absolutely no immunological benefits in cows milk for human toddlers not like breast milk it is not just food

MrButtercat Mon 22-Jul-13 19:58:33

McNew but science can change things at any time,you don't need to take that risk at 15 months.

MrButtercat Mon 22-Jul-13 20:00:00

They don't need immune benefits at 15 months.1 feed a day would give vey little benefit.

TrinityRhino Mon 22-Jul-13 20:00:14

I had to stop breast feeding to take anti depressants and then found out theat I didn't need to

was very sad

Pozzled Mon 22-Jul-13 20:01:07

MrButtercup I assume you have DCs? Do you ever take them in a car, cross roads with them, go swimming, allow them to go on a climbing frame or play sports? I do all of those things with my DDs because (although there are risks involved) they are all have huge benefits.

Bfing a toddler is also beneficial. The OP has done her research and it seems that the risks (if there are any) are tiny compared to the benefits.

OP in your situation I would try presenting the facts to the doctor concerned, and if that didn't work I would probably lie.

maja00 Mon 22-Jul-13 20:02:32

Cow's milk isn't as good for toddler as human milk.

Human milk, even when the mother takes a drug that is safe for breastfeeding and has minimal if any impact on the infant, is still better than cow's milk.

mrstigs Mon 22-Jul-13 20:02:38

There is no exposure.
The drug is safe to use whilst bfing.
How do you think they decide this? Just pump a load into mum, whack the babe on the boob, then if said babe doesn't grow another head go 'oh yeah, that'll do'? It's been properly tested and it doesn't affect the bm therefore it's safe.

I'd print off as much official information as possible then go in armed, and if he still refuses ask for a second opinion. And also ask for his source of information stating it isn't safe, helps to know who you are up against. Hope it goes well for you.

MrButtercat Mon 22-Jul-13 20:03:08

But sorry I know risks of climbing frames(practically zero with my 3), nobody can foresee the future re drugs and future research.

corkgirlindublin Mon 22-Jul-13 20:03:31

I would mail Wendy at the breast feeding network. She's wonderful and will give you loads of evidence based information on any drug you are interested in.

Mrbuttercat, a child's immune system isn't developed until they are 2. That's one reason to keep feeding but there are many more. You seem woefully ignorant of breastfeeding past the newborn stage

MrButtercat Mon 22-Jul-13 20:04:55

Maj a they don't even need cows milk in liquid form at that age if they eat cheese and yog which most toddlers do.

RunnerHasbeen Mon 22-Jul-13 20:05:14

Sulphasalazine can take a couple of months to kick in properly, are you sure he isn't giving you something else to deal with the pain in the meantime and that might be the problem?

AngryGnome Mon 22-Jul-13 20:05:15

I think apt of HCPs are very prone to erring on the side of caution when prescribing medication for breastfeeding women. I suspect it is a symptom of increasing litigation. However, where there is evidence that a drug is safe to use, sticking their heads in the sand and saying 'no,no,no' is a failure to treat their patient appropriately. You can request a second opinion if you want to OP - PALS will be able to support you with this.

HoneyDragon Mon 22-Jul-13 20:05:49

This isn't about breast feeding toddlers, it's about adaquate information on drugs prescribed being utilised rather taking the easy option.

maja00 Mon 22-Jul-13 20:06:09

Don't understand your point MrButtercat. Toddlers don't need to eat vegetables either, but they are healthier if they do.

MrButtercat Mon 22-Jul-13 20:07:48

Nope not ignorant just not prone to sticking my head in the sand.Would never expose my dc to anything I wouldn't choose to pour on their cereal whatever the immune benefits at 15 months.15 months is a world way from 6 months or even a year.

Sorry, I dont understand what you mean runner?

MrButtercat, to use your own argument, we don't know what future science will tell us, it may say that BFing to 2 is always best, irregardless of drugs in BM? If I had a crystal ball, I'd make a decision based on future research, but I don't, so have to work with what I have.

MrButtercat Mon 22-Jul-13 20:08:56

Maj a 1 feed a day aint going to make any child vastly healthier and certainly isn't worth the risk of future adverse drug research.

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