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To growl at anyone who suggests a woo-woo cure for my incurable condition?

(189 Posts)
crashdoll Fri 24-May-13 11:07:56

I'm not again complimentary therapies. I think they play a role alongside conventional medicine but I am sick to the back teeth of people who suggest ridiculous cures for my Rheumatoid Arthritis and another rare autoimmune condition. It's severe - I have joint damage, I am disabled by it and I need strong drugs to get it under control so I can have some sort of life. It may go into remission, it can be controlled but it's unlikely to be cured at this point in time.

I have no problem with people who say "my auntie has this and recommends ice packs and gentle swimming once a week". But I am getting fed up of "20 minutes of standing naked in the rain and you'll be cured".

I've done the nodding and smiling crap but it's not working. I don't want to be rude or swear because I know people are genuinely trying to help but I'm not a fan of woo 'treatments' and people just are not getting the message. AIBU to bare my teeth and growl a bit?

AtYourCervix Fri 24-May-13 11:16:59

Have you tried chating under a new moon?

KeepYerTitsIn Fri 24-May-13 11:19:07

YANBU. I was once advised by a woman I worked with that to overcome my crippling endometriosis pain, I should put lavender oil in my bath. I nearly decked her.

I think you should not only growl and snarl, but perhaps issue an air snap near the suggesting person's face.

noblegiraffe Fri 24-May-13 11:20:10

Have you tried ginger biscuits?

No, hang on, that's morning sickness.

DIYapprentice Fri 24-May-13 11:22:00

Rheumatoid Arthritis is crap - my DM has it badly. She's on the experimental drugs, most of them cancer ones, it's so bad.

I have to listen to 'friends' who have taken it upon themselves to 'pray for her healing' and they genuinely believe that she will be miraculously cured of it. hmm I'm a Christian too, and I get the impression they believe I'm not a 'true' Christian because I don't believe she will be 'healed'. I pointed out to them that actually, in my opinion the miracle is far more likely to be the medical researcher who stumbles upon a new drug which will help with the disease, not her waking up one morning with her hands and feet no longer twisted and in pain.

I did refrain from growling..... just.

Binkyridesagain Fri 24-May-13 11:22:01

Don't worry too much OP, maybe you'll 'grow' out if it.
smile

YANBU

tiggytape Fri 24-May-13 11:22:11

YANBU

DS has a mobility condition. The number of people who tell me their nephew (who it normally turns out doesn’t even have the same condition) got given a course of steroids last year. “Of course they didn’t do a thing but what really helped was wearing blue gloves / having a head massage / the power of positive thought and he was better within the week.” So nothing to do with a whacking great course of steroids then? No!

But not as bad as the ones who don’t believe in any illness at all. Both DCs have some things that they cannot do at all or find hard. Again physical things that they cannot do due to physical medical conditions. Some people look thoughtful about this and then ask if I’ve tried a star chart.
Like stubbornness or lack of motivation might be the problem rather than a medical diagnosis!

MooncupGoddess Fri 24-May-13 11:24:43

Oh God, this sort of thing is infuriating and massively insensitive.

You could try replying, 'Oh, that's interesting, do you have any links to peer-reviewed research?'

SPsCliffingAllOverMN Fri 24-May-13 11:26:41

YABU.

Standing on your head while singing 'Come on Eileen' with dandelions in a circle around you cures everything!

ChewingOnLifesGristle Fri 24-May-13 11:26:49

sad Must be hard enough to manage without all the unhelpful helpful suggestions. It's funny how people think you can be living with a condition and yet they think they're telling you stuff you've never ever considered before when you probably know more about it than mosthmm

On a much more minor scale I remember horrendous morning (yeah right, all day more like) sickness. I felt like wearing a Tshirt with a picture of a ginger nut biscuit on it bearing the legend 'Tried it thanks, now excuse me while I barf on your shoes'. Everyone imparted the ginger biscuit advice in hushed tones as though it was the answer to life the universe and everything and it DOESN'T WORKgrin

Startail Fri 24-May-13 11:27:08

YANBU Mumbo jumbo when you're in pain must make swearing feel far more appropriate than smiling and nodding.

I slink away from dyslexia threads when they start talking Woo Hoo.

StuntGirl Fri 24-May-13 11:27:56

YANBU, and I love your description of 'woo woo cures' grin

TeWiSavesTheDay Fri 24-May-13 11:28:03

I am really shock at some of these.

I vote growling.

Or do the whisper Echo thing that Brick does on The Middle."Don't be such a twat. Twat."

Ilikethebreeze Fri 24-May-13 11:28:27

Are they random strangers who say it, or people in your life that you cannot escape from?

ChewingOnLifesGristle Fri 24-May-13 11:28:28

Aargh just spotted nobelgiraffe's postgrin

ThingummyBob Fri 24-May-13 11:29:18

Ha ha Crashdoll, I totally agree.

I've had magnetic bracelets twice as gifts from well meaning family hmm

And don't get me started on how how much I'll growl if one more person says "oh yes, I have a bit of arthritis in my knee/finger/ankle"

RA is a disease, pervasive and painful. There is no bit of about it.

RunnerHasbeen Fri 24-May-13 11:30:15

I think the trick is to try and find them amusing (I am in the same boat as you, RA with extras). I tend to say that I've tried all kinds of crazy shit, to make my dad feel better as he'll believe anything, then list the craziest things. No-one I know is that zealous about alternative medicine though, just trying to help in a clumsy way. I don't know how I'd handle the hardcore herbalists.

ParsingFancy Fri 24-May-13 11:30:33

Ooh, I'm so with you, OP.

Being ill is like being pregnant: your body becomes public property of everyone with an opinion regardless of whether they have a brain too.

I got my first lesson in this as a youngster with a bust knee. A total stranger buttonholed me (sagging on my crutches and desperate to escape) to explain that vegetables cured parts of the body they looked like, and my knee would be fixed by eating cauliflower. He'd written a book and everything.

These days, I'd suggest which vegetables he might find a use for...

VenusUprising Fri 24-May-13 11:30:36

I suppose they want to help!

But it's a bit insensitive isn't it?

Maybe say: I tried that years ago, and it didn't work then....

Hugs your way!

Binkyridesagain Fri 24-May-13 11:32:11

Have you tried wrapping your left leg behind your head, singing rule Britannia whilst gargling salt water and then eating the blue belly button fluff, there's no peer reviewed research for this but I know it works because my second cousin 3 times removed aunty fanny knew a man with only one arm who's uncle Albert had a mate in the war that swore blind it saved his grandma.

VenusUprising Fri 24-May-13 11:32:46

Oh parsing, vegetables that look like organs, how hilarious!?
Esther Ranzen was on to something after all smile

But I thought that went out with the Black Death.... (Aubergine, and purple sprouting broccoli)

AlistairSim Fri 24-May-13 11:34:42

Start carrying a dirty great hammer with you.
When they say anything, shatter a kneecap.
Wait for the whimpering to die down and then offer them some lavander oil.

Job done.

BookieMonster Fri 24-May-13 11:35:30

YANBU, not even a little bit. As a mum of 3 kids with ADHD, I get highly pissed off with people telling me to give them fish oil which will, apparently, sort it all out. It's a bit like telling someone to treat epilepsy with evening primrose oil. hmm

LRDtheFeministDragon Fri 24-May-13 11:35:55

Oh, don't be silly OP, that doesn't sound like rhumatoid arthritis to me. My auntie's cousin's dog had a similar complaint and her neighbour's mum confounded all the doctors by looking up the symptoms on the internet and discovering it was just a touch of flu and all she needed was antibiotics.

You should pop off down the GP right now, don't thank me. smile

Sorry. Yes, YANBU.

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