DD is 8.
this time last year the school put in some referrals because they were concerned about her organisation, reading etc. We've attended umpteen appointments, been to OT's and SALT and all sorts and now we have some diagnosises in place. She's dylexic, presenting with DCD (dyspraxia) and the icing on the cake came on Monday when we were told she's also short sighted and will need glasses. I think the glasses thing hit me hardest. I'm as blind as a bat (even lazers won't fix my eyes) and I just really didn't want her to go through the same as me. She's upset about the glasses as well. I was taken a back as we had her eyes tested 18m ago and were told they were fine. We then went to an optromonist on the recommendation of the school thinking it would be more about coloured overlays etc. but it was clear from the start of the test it was her actual vision that needs attention first.
So the past 12 weeks have been pretty full on, appointments, tests ect. I'm really glad we now have a handle on everything that is going on and we can now start to get all the support in place and help her the best we can. I've bought everything thats been recommended to us from weighted cushions, sit and move cushions, pencil grips, putty, books etc. I've been doing all the extra ex recommended, the reading from the school etc. I'm totally on top of this, supporting DD.
I just wish none of this was there. I feel so sad for her. I know in the grand scheme of things it isn't that bad, there are a lot of people coping with things that are a lot worse but I'm just sad for her. Does that make sense? She's very bright, scored higher than average in all the actual intelligence aspects of the dyslexia tests, just needs help getting it all out. She flaps her hands when she's worried, excited etc, her movements become very exaggerated.
It's not dissapointment, I love her and every aspect of her personality, she is perfect. I'm just struggling to come to terms with it all.
I feel bad as she's sat in on so many appointments with me, listening to me talking about her and her issues that she wasn't even aware off. I've explained to her that all these people are just here to help her be the best she can and she might hear mummy telling them things about her but it's just so they've got all the information they need to help us.
She cried and cried about the glasses last night. I held her close, and cried a few tears too. I don't want to make this all about me, I know it isn't about me and she hasn't seen me upset. My DH has been there every step of the way as well, he just seems to deal with things better. He's dyslexic too and doesn't really see it as a big deal, and I know it's not. She's not doing things wrong, just differently.
Anyway, last night I called my mother to tell her all this and I got upset on the phone. She told me to get a grip (I've had such a grip on it all, I just let it slip last night) and that it wasn't about me, basically that I have no right to be upset about it.
AIBU to feel like this? My head is bursting with infomation, suggestions and details I just don't know what to do with it all.
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AIBU?
to think I'm not being selfish, I know it's not about me but I can still be upset?
34 replies
ParadiseChick · 27/03/2013 09:08
OP posts:
MaryRobinson ·
27/03/2013 10:03
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tiggytape ·
27/03/2013 10:10
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