Hello again
As promised I am updating on the STOP Study. DD went along to Addenbrookes again this week and her dose has been upped to 400mg of peanut protein which is the final step before her nut challenge on the 28th September when she will have her first taste of peanut butter in over 8 years.
To recap for any new people not following my previous threads, DD2 is 10 and on an immunotherapy course for peanut anaphylaxis. She was diagnosed at 18 months and has carried EpiPens ever since. We joined the STOP Study in February and she has been having ever increasing doses of peanut ever since.
Now, finally we are on the home straight!
Had a scare on Sunday whilst still on the 200mg but nothing too serious and she took it all in her stride. We had gone swimming in the morning and then come back for lunch which I stupidly mixed Tuna and Cherry Tomatoes - lets just load those allergens eh? She had her 'dose' at 4pm as normal but then had a Wii Fit marathon session with her sister when she should have been sitting down quietly for an hour. DP and I had taken the baby to the park for a short while so had not policed her properly. Doh! Anyhow, a few hours later she had a face/mouth rash but no breathing trouble so no EpiPen. I was told by Dr Gideon Lack once that if an anaphylactic child ingests a small amounnt of allergen and then goes and runs around it can double, treble, quadruple the effect of the allergen due to the body metabolising faster when active. Our mistake, however she is fine.
So, the countdown is on and the nerves are getting a little frayed to say the least!!
Hope everyone with anaphylactic children are well and no nasty attacks have come to haunt this week.
Watch this space for the 28th Sept!!
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Allergies and intolerances
Peanut Allergy (Anaphylactic) - life changing study taking place and DD is about to eat a peanut- UPDATE!
18 replies
BlueBumedFly · 19/09/2008 12:48
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