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CMP Allergy? Reflux Symptoms...

(8 Posts)
Clio197 Thu 17-Jul-08 13:46:04

I'll try and keep this short and to the point. Any advice is much appreciated!!

My LO, from birth projectile vomited up any milk that he has, my milk or formula. So I changed to C&G comfort, this helped greatly with the vomiting, but he still crys and screams ALL the time, no exhaduration, since the day he was born hes cryed 90% of the time, its heartbreaking. Anyways, he was starting to really refuse feeds, usual arching back, hiccups.. took him to the GP at 4 weeks, he was not interested as LO was putting on weight. At 9 weeks we ended up at A&E as I coudnt get him to take anything, and he was dehydrated etc. Prescribed Domperidone and Ranitidine for silent reflux - excelent I thought, finally he will not be in pain poor lil thing.

Two weeks and three days later - No change, if anything hes worse than when he was not on these meds.

Any ideas?? Has this happened to anyone here?

Hypoalergenic milk worth a go? Does it sound like he could have an alergy, would the ranitidine work if it was an alergy?

Many Many Thanks in advance for any replies!!

desperatehousewifetoo Thu 17-Jul-08 14:06:43

You know your baby and I think your instincts sound correct. I would agree that this definitely needs further investigation. I would go back to the gp. Is there another one in the practice you could go to? There could be a feeding clinic he could be referred to. These often have a team including paediatrician, slt, dietician.

I'm sure there are people on here who know about milk substitute formulas and whether these have to be prescribed.

I used to be a slt feeding specialist when I worked and when both my two had reflux it was very stressful- even with background knowledge! They were just about controlled by gaviscon and no allergy was involved at that time (ds has other allergies now).

I wish your ds well and hope you get all this sorted out asap.

CantSleepWontSleep Thu 17-Jul-08 14:23:31

Is there a reason that you've started this thread again Clio, rather than continuing on the one that it was already being discussed on?

Turniphead1 Thu 17-Jul-08 14:28:13

Hi Clio

Ranitidine would not do anything for cow's milk allergy, no. It sounds as if there is something else going on, as you suspect. Ranitidine should really have alleviated the reflux if that's all it was.

I have two - one who had reflux and one who had an allergy to cow's milk. With the milk allergy, it often causes reflux-like symptoms, lots of sickiness, arching of back and also loose bowel movements. My DD also had excema, which can be a sign.

Milk allergy could be a possibility. You need to demand a referral to the paediatric consultant. My DD "thrived" - she was putting on weight - but I "knew" something wasn't right - and I was correct, she did have a strong milk allergy. Unfortunately they can't accurately test for allergies til over 12 months. So its a question of milk change and seeing if that works.

Ask the consultant (or try a different GP at your practice??) to give you a two week trial on a hydrologised milk formula (it is totally hypo-allergenic), push for Neocate rather than Nutramigen (the latter is really stinky). You will get it on presciption. Your DD may not like the taste as first so you may have to mix it with his normal formula at first. His poos will change too!

Stamp your feet and demand, and you will get. Don't be fobbed off. If he doesn't settle after a few weeks on the hypo formula, it's something else.

best of luck and hope you are getting plenty of family support with a very tough situtation,

Clio197 Thu 17-Jul-08 14:29:48

Only as I was told to ask over here!

And have already got a useful response (thank you) that was not offered on the other thread, the more info I can get my hands on the better!!

Clio197 Thu 17-Jul-08 14:30:44

Make that two awsome replies that were not offered in the other room....

CantSleepWontSleep Thu 17-Jul-08 14:36:30

But you already have an appointment to go back there tomorrow for testing for CMP allergy, and I already suggested the hypo-allergenic milks on the other thread!

For info, I think it would be classed as an intolerance rather than an allergy. My dd had the same symptoms (except that she still fed) and it was classed as an intolerance, which there aren't conclusive tests for. The paed should suspect this is the case just from your description, and prescribe the formula to try.

desperatehousewifetoo Fri 18-Jul-08 19:48:41

Clio, how did your appt go today. Hope you got some answers?

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