DS (3.10) has had a positive result from his blood tests - TTG(?) levels of 128 when in a normal person they would be under 10. We're now waiting for an appointment for a biopsy - although the paed is 110% convinced it's coealiacs with a reading like that.
Has anyone's child had the biopsy/endoscopy? What can we expect? Do they knock the child out? What's the difference between general anaesthetic and sedation? How would a 3 yr old react to that? I'd really value hearing others' experiences, I'm dreading it on behalf of poor DS.
He'll be starting school in Sept and before then goes to day nursery and pre-school. Does anyone have experience of discussing coeliacs with schools/nurseries and how helpful were they (although I imagine it varies from place to place... just grasping at straws here).
I've ordered some booklets from Coeliac UK website - are there any other good website/forums I should be looking at?
Any advice/comments would be really gratefully received. Thanks.
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Allergies and intolerances
Positive coeliac test - what can we expect now? (Loads of questions - sorry!)
96 replies
Wordsmith · 17/02/2008 21:48
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