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Reflux & possible CMPA/Lactose intolerance

(2 Posts)
CarlyBarly22 Sun 18-Sep-16 19:06:33


My baby is 9 weeks old and what a difficult 9 weeks it's been! He has been formula fed since 1 week old and has suffered with reflux since 2 weeks. Wanting him on an organic milk, I chose Hipp Organic first infant milk and it took me until he was 4 weeks to realise his constant sick wasn't right. He was diagnosed with reflux so I immediately switched him to Hipp's anti reflux milk. There was an immediate improvement and I was over the moon to see the sick greatly reduced! He did well on this milk for about 2 weeks but by the time he was 6 weeks I noticed that he was having digestion difficulties. I found that his tummy would swell so much and go rock solid and he was very windy. I saw that Hipp did a comfort milk to help with digestion issues so I put him on this but his reflux and his sick was awful. He lasted a couple of days before i put him back on the anti reflux. For the last 3 weeks my poor baby has had the most explosive diarrhoea approx 6 times a day. To the point that it would shoot across the room if his nappy was off and leak out of his nappy ruining his clothes. After his poos, his tummy would immediately become smaller and softer and he'd be happy and settled until his next feed where the discomfort would start again. His reflux also started to get worse so on Friday I took him to the GP.

I should also say at this point that he has tried infacol, colief drops, gripe water and infant gaviscon. None of these things have worked.

Having spent hours reading up, I think my baby either has a cows milk protein allergy or he is lactose intolerant. He definitely has reflux but Im not sure whether this is a separate issue or a symptom.

After our appt with the gp 2 days ago, a stool sample has been sent off to check if he is lactose intolerant. And yesterday he started his new prescription formula called Neocate which is for babies with CMPA.

I know it's only been a day but I am so worried! His reflux is worse than it's ever been and he hasn't had a poo in 24 hours (although his tummy looks fine). He seems very agitated, cries a lot, is often kicking his legs and most concerning of all he has developed swollen puffy eyes!! Neocate is hypoallergenic so I just can't understand it. I know I need to give Neocate 2 weeks but it's soul destroying to see your baby so unsettled and unhappy sad

Has anyone else been through anything like this who can offer some advice please??

frangipani13 Sun 18-Sep-16 19:27:27

My LO is almost one and was diagnosed with CMPA at 6 weeks and had the most awful reflux. There are a number og things you could try. My daughter is on Nutramigen and has been great with this it tastes vile but neocate made her far too constipated which makes reflux worse.

Omaprozole worked wonders as it's a drug that reduces the acid in their tummies. We eventually also added domperidone which helps the milk move through them quicker and that helped lots. (This is restricted now as there has been research done which suggests it may affect people with an existing heart condition however our paediatrician was very happy for her to be on it).

I could write reams on this so if you'd like to private message me I am happy to chat.

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