My sister is in her mid 40s and was diagnosed coeliac after chronic severe anemia at about age 30. However she then went on to become a volunteer and worked in a number of countries, moved around a lot and is currently a mature student (ie not much money). The crucial part of her doctors' notes which confirm the coeliac tests are lost and so her diagnosis is considered 'unofficial' (though she had endoscopy etc) and she doesn't get any prescriptions or anything. She is always generally chronically unwell when in this country - much healthier when in Eastern countries (eg China) where diet isn't wheat based - and I think she is really irresponsible about her diet. She doesn't eat any actual wheat and if she occasionally does (someone fed her wheat noodles recently as they thought it was all in her mind) she has severe vomiting and diarrhea. However she eats ordinary oats (not gluten free) ALL THE TIME - every day she has big bowls of porridge - she also eats any old flapjack and eats gravy and also has sausages which are not gluten free, because she loves sausages. She says she can't afford gluten free sausages, I say she can't afford not to! She has a scaly rash on her elbows which I think is dermatitis herpetawhatever it is, but the doctors (because they think she is gluten free) think is something else. She also has chronic inflammation, gets frequent chest infections, and has severely aching joints and bones especially in Winter. Could constant low level contamination cause these kind of symptoms? She thinks because she isn't actually vomiting she has it 'under control'. She also has chronic anemia, milder than when she was eating a normal diet. I am worried she is going to die young because she is too stubborn to properly research her condition and the risks of minor exposure to low levels of gluten. Am I being overprotective?
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Allergies and intolerances
Worried and frustrated by coeliac sister
9 replies
clairewitchproject · 22/12/2014 23:32
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