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Gluten intolerance?

(12 Posts)
clarella Tue 21-Oct-14 21:50:33

I've been struggling with fatigue and joint pains for around a year.

It got very bad recently, I was loosing muscle and very weak.its possible that I've been underreplaced with thyroxine for hypothyroidism for the last year however one symptom has been extreme joint 'flares'
Yesterday I had a lot of toast and bread and noticed a severe joint and back flare during the early evening and night.

I just wondered if anyone has experienced this sort of thing with imtolerac

clarella Tue 21-Oct-14 21:52:01

Sorry this app is rubbish.

With gluten intolerance ? I've been tested for coeliac and its negative. I've got autoimmune thyroiditis. No gut issues though.


RibbonJar Tue 21-Oct-14 21:59:26

Sounds very like gluten intolerance/sensitivity. You could try the 30 day challenge i.e. no gluten for 30 days, monitor how you feel, then reintroduce gluten & see if your symptoms return.
Do you get any other symptoms like recurrent mouth ulcers, rashes, brain fog?

cosysocks Tue 21-Oct-14 22:13:26

Have you read 'wheat belly'? I read it and it started off my curiosity as to what wheat was doing to my body. I've since been diagnosed with ibs and now am wheat free and I feel all the better for it.

clarella Wed 22-Oct-14 08:56:06

I get occasional mouth ulcers when running low,nothing major, no rashes but brain fog, however I've always linked that to thyroid. At least, I'm prone to fog if my thyroid levels are not at the most optimal hard to judge on that one.

It was the way that I noticed an extreme 'attack' on my joints following the toast binge!

RibbonJar Wed 22-Oct-14 09:19:22

I get one of these attacks on my joints if I accidentally eat something containing gluten. Feels like burning acid in my joints about an hour after I've eaten followed by aching for hours. Also get overwhelming exhaustion, bit like having flu.
I haven't bothered with getting a gluten sensitivity test as there is quite a high false negative result with them, plus you have to eat gluten for six weeks before and I don't want to go back to feeling so ill just to have a fairly inaccurate test done. I know myself that if I eat gluten I feel ill and if I stay off it I'm full of energy and don't have any joint pain, mouth ulcers or brain fog. I didn't really get any gut issues either apart from feeling very full after eating pasta. I used to put that down to eating too much!
Hope you find out what is causing your symptoms.

clarella Wed 22-Oct-14 09:35:42

That's interesting ribbon.

Tbh the only answer is to try it for 4-6 weeks and then test it out. What might complicate things is that I'm currently putting up thyroxine and lowering antidepressant which could be to blame, however an awful lot of
people do say that gluten free helps auto immune thyroid stuff too.

Tiny001 Sat 25-Oct-14 09:19:14

Just saw this post so thought I would reply...

I've been experiencing severe bloating for the past year and I've not had the test done as I'm aware that it's not accurate enough. I only discovered I was intolerant to wheat and corn because I stopped eating both of them, I was fine after the first day and then I ate wheat the next day and all the symptoms came back.

What also helped is a veg juice of fennel, mint, celery, cucumber, lime, ginger and apple (I got the recipe from this site

Hope this helps

clarella Tue 28-Oct-14 21:07:43

Thanks tiny - it's currently really hard to tell what's triggering it all as it could literally be chronic fatigue due to a combo of things and so being sensitive to over exertion. I'm currently away visiting family and so eating gluten and had (what to me appears to be but not to others) a busy day yesterday and so I'm
now suffering, though what's triggered it I don't know. Joints hurt but the dizziness and fatigue is worse today. I really didn't think about what I ate yesterday nor how much I did. I've eaten lots of gluten today but will attempt to avoid for the rest of the trip (tricky in the usa!) and then do a proper elimination diet.

Interesting to hear your issues happen and fade so suddenly. Has this come on / worsened recently? I seem to have been especially bad post baby.

clarella Tue 28-Oct-14 21:09:07

The veg juice sounds divine! Will try it just cos I'd love that- any health benefit will be a bonus!

Tiny001 Thu 30-Oct-14 16:40:40

You have my sympathy - it's difficult to socialise and keep gluten free. Hope you haven't suffered much.

It's definitely stress related for me. I've also read something about eating whole food because it may not always be a gluten intolerance. So, I'm basically trying everything. I still want to go and see a herbalist as I have already been to the GP with no success.

The veg juice is divine - very refreshing

MumOf2Amber Tue 25-Nov-14 10:37:54

Have you heard of juiceplus? The plan is completely gluten free and is great for people with intolerances etc. I have a friend who follows the plan she has ulcerative colitis and another friend who has a wheat intolerance & it's worked wonders for them. They take the capsules which increase energy, give added nutrients & basically help to bridge the gap of nutrients u may be missing x

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