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lactose intolerance soya intolerance and protean deficiency

(33 Posts)
shugs2k8 Tue 18-Mar-14 21:39:54

Hi my daughter has lactose intolerance soya intolerance and protean deficiency. I am have trouble feeding her am getting no help from doctor hospital or health visitor can any body help me out on what I can give her to eat please Thanks

ilovepowerhoop Tue 18-Mar-14 21:58:58

what age is ahe?

ItStillLooksLikeRainDear Tue 18-Mar-14 22:03:39

Has she been prescribed any milk substitute such as neocate?

shugs2k8 Tue 18-Mar-14 22:06:45

She has been put on to nutramigen

shugs2k8 Tue 18-Mar-14 22:07:30

She is 11 months

dairyfreebabyandme Wed 19-Mar-14 09:11:16

Ha! My Dr and HV were useless! What you need is to ask for a referral to a dietitian to monitor and advise, however, these are variable too! Have you tried her with things like scrambled egg? Eggy bread? Omelette? When my LO was little she was very picky but ate these endlessly (won't now, LOL). Obviously meat/fish/eggs contain a lot of protein. Lots of legumes contain protein, so if only soya, have you tried chickpeas/lentils, things like that? Also make custards etc. with her formula. Nutramigen have a weaning book with lots of recipes. Have you seen it? www.nutramigen.co.uk/files/pdf-downloads/Weaning_and_up_to_1_year_hcp.pdf

Also do you know about cheese and yoghurt substitutes that are made with pea protein? Some have more additional calcium than others, but they'll add additional protein. There's loads on Vegan sites like Alternative Stores, see here: www.alternativestores.com/ethical-shop/veganic-vegan-cheese/brand_57.html

www.alternativestores.com/ethical-shop/Food-and-Grocery/Vegan-Jelly-and-Desserts/Wot-No-Dairy-Strawberry-Yoghurt/prod_4074.html

When we were going through that stage we only ate foods that were suitable for our LO in front of her - everything was dairy free. We went for a baby led weaning approach - anything of ours she saw that she wanted we let her try. It's meant to make them less fussy. She is still fussy, to some extent, but has never had a problem with her milestones - in fact she is on the 91st centile for both height and weight!

Hope this all helps xx

HerGraciousMajTheBeardedPotato Wed 19-Mar-14 09:21:55

Depending on the degree of lactose intolerance, she may still be able to eat yogurt (bio-live only) and hard cheeses (eg cheddar, not cottage). This is because the fermentation that turns milk into yogurt and hard cheese breaks down most if the lactose. I am lactose intolerant and am fine with them, whereas milk gives me dreadful tummy ache and supersonic squits.

The obvious sources of protein are meat, fish and eggs. Are you veggie?

shugs2k8 Wed 19-Mar-14 11:36:38

Hi thanks for the links I have got a dietician but no help at all cant fined anything with no soya and no dairy products.

A we hint of dairy n soya near hir food she is realy ill

zirca Wed 19-Mar-14 11:50:33

Fish is amazing for babies. Nice and soft, easy to eat. My DS enjoyed Salmon, Trout and white fish. Meat can be tough but if you blend it then it's fine. We made lasagne etc with the pasta sheets in, but blended up the meat sauce so it was smooth. He LOVED it! Equally, make bolognese and puree the sauce, so you give the baby pasta spirals covered in a smooth sauce. Yum! Chicken thighs are quite easy to eat when teething too.

HerGraciousMajTheBeardedPotato Wed 19-Mar-14 12:43:25

OK, then cheese and yogurt are definitely out.

What sort of things does she like to eat, what do you like to eat, what do you like/feel comfortable preparing? Maybe we can tweak some recipes for you.

BTW please don't worry, dealing with allergies and intolerances can seem overwhelming at first, but you get used to it and it soon becomes second nature.

Auntierosemary Wed 19-Mar-14 13:04:04

We are off dairy and soya too. Daughters 16 months and 3 years. This week's dinners (none of which take longer than 20 mins to make):

One pot rice with chicken, coconut cream, mushrooms, carrots, onions and almonds
Fish pie made with sauce made from stock and oatly cream
Pasta with smoked fish, peas, oatly cream and mustard
Homemade pizza with ham and olives (no cheese obv) - base made from flour, water and yeast
Rice cooked in tinned coconut milk and stock with smoked salmon and tin of sweetcorn
Roast chicken with chips and roast carrots and parsnips

Their lunches have included:
Ham sandwiches
Jam sandwiches
Tin of Heinz peppa pig or miss kitty pasta
Heinz toddler meals - they have about 3 kinds we can eat
Pasta with tinned salmon (loads of calcium) and olive oil

Have also just discovered tesco does free-from coconut and fruit smoothies in sachets that have added calcium - similar fat and calcium content to yoghurt, so a great replacement. And they are only about 40p each.

Hope that helps!

shugs2k8 Wed 19-Mar-14 13:08:36

Have not gave her anything because all I can fined is dairy free but with soya and Soya free with dairy getting no help off any medical profession

Auntierosemary Wed 19-Mar-14 13:09:35

Ps when you are buying bread, most brands have soya flour - so look for own brand seeded loaves which are the only type that seem not to have it. Tesco do a nice oat cob and some other types too. Sainsburys don't seem to have any we can eat, morrisson's own seeded loaves, like pumpkin and sunflower ones are ok. Special free from ones cost a fortune and always seem to be really dry. Oh, also bake at home baguettes and rolls are often soya and dairy free, and v cheap.

shugs2k8 Wed 19-Mar-14 13:12:11

Thanks very much it does

AllergyMums Wed 19-Mar-14 13:50:08

Go for Co Yo yoghurt - made with coconut milk so safe for milk/soya allergies.
You can get it, and lots of other stuff, at Goodness Direct.
www.allergymums.co.uk/custom/goodnessdirect.png

AllergyMums Wed 19-Mar-14 13:52:13

sorry - hit the wrong button!

Also go for Oately cream (made with oats...) which is good and Rice Dream with added calcium for cooking/drinking/porridge etc.

ilovepowerhoop Wed 19-Mar-14 14:06:20

although rice milk isnt advised under the age of 5 due to arsenic levels

Auntierosemary Wed 19-Mar-14 14:06:34

Ooh hadn't heard of the coyo yoghurts, thanks allergy mums will look that up.

Just watch with rice milk - we have been advised to stay off it cos it has traces of arsenic! Minute amounts but if child was drinking lots of it apparently it could harm them, according to our dietician.

Just remembered while thinking of tea for tonight - fish fingers, baked beans, spaghetti hoops all ok too. Think there may be a couple of brands of fish fingers that have milk but most, incl Birdseye, ok.

Auntierosemary Wed 19-Mar-14 14:11:08

Wow. Coyo yoghurts are £2 each!

Btw op, you can get oatly cream in holland and Barrett and it is buy one get one half price. About a pound a carton.

AllergyMums Wed 19-Mar-14 15:06:43

Allergy food isn't cheap...but so far Coyo are the only yoghurts DD can eat. We don't order lots you understand.

Arsenic??? Nobody ever mentioned that. Oh....

HerGraciousMajTheBeardedPotato Wed 19-Mar-14 18:27:42

You can make decent yogurt from Oatly 'cream'. Takes about 10min to prepare, 24h to ferment, and 3-5 days to mature in the fridge.

Auntierosemary Wed 19-Mar-14 20:22:31

Beardedpotato lady, I'd love instructions on yoghurt making if you have time. Coconut yoghurt only one my dd can have too cos even the pea protein one triggers her eczema. Do u think the bacteria bit is worth it, cos we can get the other fat and calcium from tesco's coconut smoothies? I'm willing to be persuaded...

Superworm Wed 19-Mar-14 22:08:10

Ds is dairy /soy allergic too. It can be hard but you get used to it.

When you say you've had no help from professionals, who diagnosed her? Did you not offer ongoing support for you?

HerGraciousMajTheBeardedPotato Wed 19-Mar-14 23:16:02

Not convinced it's worth the effort TBH. You can always sprinkle probiotics on their food or mix into a little juice. And eventually give them capsules to swallow.

I wanted yogurt for a recipe- a biscuity pastry made with yogurt - so I experimented!

Recipe:

Reserve a tablespoon of Oatly cream, and heat the rest to 42C. I use my digital meat thermometer.
Mix the contents of 1-2 acidophilus probiotic capsules with the reserved Oatly, then pour the heated Oatly on to it and mix well.

Put the mixture in a sealable pot or two, in an insulated container. I put a warm hot water bottle in a picnic bag, and put the yogurt inside the bag in a nest of scrunched-up newspaper, You could use a yogurt maker, I'm sure, or put it somewhere warm like the airing cupboard.

Leave undisturbed for 24h, then transfer to the fridge and leave for another 3 days or so. It thickens up and develops a yogurty lavour. It keeps really well, a couple of weeks in the fridge.

I've never flavoured the yogurts, but I'm sure you could do that adding jam/honey/chocolate powder/anything either at the very beginning when you mix it up, or at the very end when you serve it up.

Auntierosemary Thu 20-Mar-14 13:25:30

Thanks, potato. I'm going to keep those instructions, def useful to have. Whether I ever get round to it is another matter! But thanks.

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