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Parent and Family Support Meetings for Anaphylaxis Sufferers

(6 Posts)
babybarrister Thu 14-Nov-13 15:39:49

Message withdrawn at poster's request.

Naturally2806 Thu 14-Nov-13 20:34:38

Will check it out. My son just failed his nut challenge today at Guys hospital. Gutted. After having a negative blood test we were really hopeful.

shelsco Thu 14-Nov-13 22:33:11

It is worth getting in contact with the AC and asking about them too. I was struggling to get to my nearest one as it is about 200 miles away so I emailed them the person who is listed as their contact for their workshops and she told my about one being run in a city only an hour away. It was eventually cancelled due to lack of interest, but I get the impression that a lot of people don't know about them. Apparently they send info to hospitals, but the hospitals don't always pass it on to patients. the workshops are meant to be really useful from what I've heard.

babybarrister Fri 15-Nov-13 11:35:29

Message withdrawn at poster's request.

rosehb Fri 15-Nov-13 13:13:15

I'm going to the parent workshop on Sunday. Any tips from those that have been before? I shall report back after...

babybarrister Fri 15-Nov-13 20:06:52

Message withdrawn at poster's request.

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