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Mumsnet has not checked the qualifications of anyone posting here. If you have any medical concerns we suggest you consult your GP.

I'd better stop hogging AIBU and move in here methinks (possible/probable milk protein issues)

(15 Posts)
MiaowTheCat Tue 21-May-13 08:58:19

Message withdrawn at poster's request.

OHforDUCKScake Tue 21-May-13 09:50:56

Before you start panicking about negative blood results, you really need to find out if its even possible to test a child that young for individual allergies.

My son was 5 months, and the results came back that he was too young. And that was an allergy specialist that sent off for that test. So if she was too incompetant to know that, then Im guessing the norotiously uneducated (on allergies) GP would be too.

Because your daughter is getting urticaria reactions during and after her feeds, that means a skin prick test would show up on her.

This may go againstnthe grain but do you know what I would do? Id get some cows milk and touch it on the small of her back, photo the before, during and after photo because there's bound to be a reaction. And take that to the doctor. Or failing that, do it while you are there. It'll take less than 5 minutes to show a reaction.

Do you have any photos of the reaction rash during feeds?

Can you speak to the practice manager? I feel you need to to someone better or higher than your GP.

The blood results may be a pointless and moot point, not because of the risk of them being negative, but the risk that it might come back with no result at all. And then it drags on longer.

You need to start fighting today, here and now, despite the blood test not happening yet.

Hoophopes Tue 21-May-13 12:38:52

Ask for referral to a paediatrician who can then refer you to a dietitian for support. Can be hard, in my experience to get allergy testing, as where I am they do it by elimination. I got so frustrated that despite breastfeeding my dc I gave him a bottle of normal formula an hour before we saw the paed. Cue prescription for nutramigem formula for us for cereal etc and I was told to cut out dairy if I breastfed Which I promptly did. You need the referral so they can advise on reintroducing dairy, what foods to avoid if still allergic when eating solids etc etc.

MiaowTheCat Tue 21-May-13 12:49:58

Message withdrawn at poster's request.

Hoophopes Tue 21-May-13 13:15:48

Ask gp to refer to a paed. HV does not need to be doing that, you need your child to be seen!! Often cannot see a dietitian unless a paed referred you. Once you have things on paper from a paed then people take more notice! My HV told me for ages what I needed to do when struggling with ds, but not until diagnosed and treated by a paed for reflux and CMPA did they realised it was medical!!! Now never see HV as they not interested.

If they offering support and you want it, take it. If you do not want it then tell them why not and what you doing instead (eg getting children not sleep routine at home, going to play groups etc etc of your choosing!!!)

Hoophopes Tue 21-May-13 13:17:22

Oh the professor of paed here said the gold standard testing is in his opinion eliminating dairy and then trying it again!! Every area different. Others test. Problem is can still react but not show up on blood RAST tests so need to see a paed in my opinion.

OHforDUCKScake Tue 21-May-13 13:28:54

Miaow people ate advising you but you're not listening. I mean that in a sensitive way, I know this is a stressful time. People made suggestions on the AIBU thread, I PM'dyou and more suggestions have been madeon here but you dont seem to be willing to do it.

Sorry if Im wrong, perhaps Im reading your posts wrong.

It is really stressful but it doesnt need to stay that way, nor get worse. You can get somewhere.

What is it that you want? From the NHS I mean? You tell us what you want and we'll help you get there.

Hoophopes Tue 21-May-13 13:34:56

Why not book an appointment with a gp as HV cannot refer to dietitian and they need to see the baby to diagnose.

OHforDUCKScake Tue 21-May-13 13:37:53

-book appt with GP
- ask for paed referral
- ask for dietician referral
- ask if they can do SPT
- take any photos of rash if available
- touch with milk, take before, durimg and after pic
- find out if the RAST test they want to do is even possible for a 9 week old
- write down any questions you have and ask the GP
- figure out what it is you want out of this.

Hoophopes Tue 21-May-13 14:37:32

Yes we took lots of photos and printed out as evidence!

freefrommum Tue 21-May-13 14:53:08

Sadly Miaow your story is very common. In fact, it's virtually identical to our story with DS2 (now nearly 6) who has life-threatening allergies to milk, wheat, eggs and nuts. There are NICE guidelines on diagnosing and treating allergies in children and I often recommend waving them in the faces of health professionals (eg GPs, HVs etc): publications.nice.org.uk/food-allergy-in-children-and-young-people-cg116/guidance

It shouldn't be a battle but iin my experience you have to fight every step of the way to ensure your child gets the right care and treatment. GPs hate prescribing Neocate because it's so expensive and ours would only do it once the consultant wrote and told him to. Don't be fobbed off, get that referral. If you can, try to keep a diary of symptoms to take with you along with the photographic evidence. Most specialists these days will diagnose on the basis of history rather than specific tests as none of them are definitive anyway, especially in babies.

Good luck!

MiaowTheCat Tue 21-May-13 15:23:27

Message withdrawn at poster's request.

OHforDUCKScake Tue 21-May-13 15:57:34

I absolutely did not blast you OP. In fact Im very upset that you think that.

It broke my heart reading your AIBU thread, I made a huge effort to help you on there, I PM'd you with further advice and offered to send you opened milk to help you out, which I understand costs £30 a pot? Which went unrecognised anyway, but I assume your stress and worry over saw my offer.

Then I try and help you on here, more than once.

And instead I get accused of blasting you.

I will very much backing out of this thread, cant believe how much this has bothered me.

OHforDUCKScake Tue 21-May-13 16:00:00

*unopened milk

babybarrister Tue 21-May-13 22:53:08

Message withdrawn at poster's request.

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