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Milk(casein) intolerance

(9 Posts)
invicta Sun 14-Apr-13 19:16:44

Please can anyone give me advice on a milk-free diet. My son is intolerant to the casein element of milk. Thanks.

QuintessentialOHara Sun 14-Apr-13 22:52:56

no idea but bumping for you

Melanka Sun 14-Apr-13 22:53:09

Is the diet for you while breasfeeding or for your son
?

Happymonkeyboys Sun 14-Apr-13 23:17:11

How old is your DS? Are you looking for general advice on replacing milk with other products? I have lived without milk for 15 years and both DS1+2 have experienced tolerance problems. There's no reason for your DS to have a boring/limited diet.

Shattereddreams Sun 14-Apr-13 23:19:31

It's late and I'm knackered but will come back tomorrow with tips. My DD is milk protein intolerant, this is casein.
It gives her diarrhoea.

timidviper Sun 14-Apr-13 23:25:30

Please make sure you get this properly diagnosed or get advice and information. I work in the NHS and health visitors are reporting a trend of parents thinking children may be intolerant and using diets or specialist baby foods, sometimes inappropriately.

Shattereddreams Mon 15-Apr-13 13:35:42

There are two types of intolerance / allergy to Cows Milk Protein (casein).

Cow’s milk allergy (CMA) is often divided into cow’s milk protein allergy (CMPA) where there is clear evidence of involvement of the immune system, and cow’s milk protein intolerance (CMPI) where there is no involvement of the immune system.

Allergies to milk are broadly classified into immunoglobulin E (IgE)-mediated allergy, and non-IgE mediated allergy.

IgE-mediated allergy is commonly referred to as “immediate hypersensitivity” as the onset of symptoms occurs within minutes to an hour following exposure to the allergen (in this case protein).

Non-IgE-mediated CMA reactions are usually “delayed” with the onset of symptoms occurring from 1 hour to several days after ingestion of milk; hence it is often called a “delayed hypersensitivity”.
This excerpt taken from dairy council

My DD is non IgE intolerant of cows milk protein. Avoiding milk is fairly easy in food, less easy in desserts as most are made with butter and cream and milk chocolate. For treats and puddings, best advice is to cook your own using dairy free margarine and dark chocolate.

We use Oatly oat milk, I can cook with it perfectly normally. Vitalite margarine and when baking, I use Stork in the foil wrap. Apart from these substitutes and avoiding chocolate, cheese and yoghurt, ready meals and flavoured crisps, we eat pretty normally.

this website should help

Shattereddreams Mon 15-Apr-13 13:48:38

Good point timidviper

DD 5 was diagnosed by a pediatrician consultant at Kings Hospital London, however it is a seemingly non medical diagnosis. She was checked for Lactose Intolerance with a breath test. Her blood was tested for IgE allergy to milk which she wasn't and then she had to follow an exclusion diet for 6 weeks with no milk. We were seen by a dietician.

Basically her symptoms vaguely improved but were not great, so the dietician also removed Soya from her diet (its very similar in genetic make up to milk protein) and that's when we saw a dramatic improvement in her digestive and bowel movements. Following this the doctor diagnosed cows milk protein and soya intolerance.

The biggest concern was anemia as food simply passed through her too quickly. Now she has no milk in her diet, if some slips through (Grandma gave her yorkshire puddings), precisely two days later, she gets tummy ache and diarrhea. As a baby she was medicated for reflux - acid and vomiting. Despite being under a different pediatrician for this, it was only mothers instinct (and the fact her younger brother came along whose digestion was vastly different) that I persevered to get a diagnosis. She has been discharged from the consultants and asks for cheese and chocolate all the time! As she gets older, she can work out for herself if yoghurt or cheese is worth the discomfort. Ice cream is a killer and gives her diarrhea for a week!

Soya is actually much harder to avoid than milk.

invicta Mon 15-Apr-13 18:46:33

My son is 13 years old. We took him to be tested due to chronic nasal congestion, plus low immunity this winter and recurrent mild tonsillitis. The person immediately said lactose intolerant and asked about his bowel movement. I hadn't mentioned this but my son only 'goes' a couple of times a week and then can be on the toilet for ages. He never complains of tummy aches before, although we can usually tell he is duenas he ges short tempered more easily. we have been told that twice a week is normal for some people.

We were told that the milk intolerance ( casein) is literally clogging up his system causing his nasal congestion and constipation. Hopefully, excluding cows milk will see improvements in his health and general stamina.

Thank you for all your replies so far. Much appreciated.

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