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Dairy free formula crew please help!

(23 Posts)
Puddlelane Mon 18-Mar-13 21:22:33

Ds3 is like the other 2 dairy free.
He is 4 months old and has Nutramigen Lipil 1 formula. We are under consultant care and was seen last week.
She said he is fine, thriving (I agree) and not to worry about the gagging cough and mucus in his throat. He rattles with it bless him. He gets ever so upset about gagging and rarely brings anything up ever. I can see the mucus in his throat when he is coughing and gagging.
Consultant doesn't seem bothered.
I have tried saline nasal spray at feeds, doesn't work.

Any thoughts on what this could be. It's not a cold or bug this is persistent and he has been seen by several doctors and all say he is fine. I don't think he is.
Any kind words?

freefrommum Mon 18-Mar-13 22:40:32

Babies with allergies do tend to be very mucousy (something to do with irritation of the oesphagus I believe) and while my DS didn't have the cough you describe, he did always 'rattle' or sound like a loud cat purring. He also used to vomit a lot, even after we'd eliminated all the foods he's allergic to from his diet. This went on until he was at least 2.5 and was due to a combination of delayed reflux and mucous (both linked to his allergies). It was very distressing as I'd spend ages getting him to eat his food only for him to throw the whole lot back up, usually just as he'd had the last mouthful. However, none of the medical professionals were ever interested in these symptoms because he was otherwise well and his chest always sounded clear according to them. These symptoms did gradually improve over time and he's now a very healthy happy 5 year old.

Of course, your DS's symptoms do sound a bit different to mine and if you're still worried then don't give up, keep on at the doctors until someone takes it seriously and investigates further. Mums know their children best and there's a lot to be said for mother's instinct smile

Pobblewhohasnotoes Tue 19-Mar-13 07:21:02

Has he got reflux? That was my first thought.

r3dsquirrel Tue 19-Mar-13 07:26:07

Id second the reflux question. There's a strong link between allergies and reflux.

Puddlelane Tue 19-Mar-13 08:24:43

He is never sick or cries during or after feeds.
It's just this blinking stuck mucus!
Is this a symptom then?

Puddlelane Tue 19-Mar-13 08:26:53

Have just read a bit more on reflux. I would say not reflux.

Puddlelane Tue 19-Mar-13 09:08:05

Have emailed consultant and we are trying gaviscon. It's at that 'let's eliminate everything' stage. Poor DS.
I had no idea reflux could present itself like this.
Not sure consultant is convinced but hard to read between the lines.

freefrommum Tue 19-Mar-13 09:08:08

Milk allergy can cause an increase in mucus production so as long as you're sure he's 100% dairy free then maybe it just needs time to settle down?

Puddlelane Tue 19-Mar-13 09:57:28

He is only 4 months old and never had any dairy at all.
This is why I'm confused by the mucus production.
I've seen countless doctors and consultant doctors but no one can give me any answers. He isn't ill so to speak so I'm just left to deal with a baby who wakes up gagging and coughing all the time.

r3dsquirrel Wed 20-Mar-13 07:32:18

Theres a condition called silent reflux where babies don't vomit but exhibit other symptoms. The only symptom my baby had was coughing during feeds. It settled completely on medication for reflux. Constant acid reflux can irritate the oesophagus and cause excess mucous production as a protective response by the body.

Puddlelane Wed 20-Mar-13 08:00:54

Ah I see. Well hopefully we will have the meds today and we shall give it a go.
He coughs and gags all the time and has a horrible sounding rattle. It's just in his throat though.

freefrommum Wed 20-Mar-13 10:23:46

Have to say, it does sound like silent reflux so hopefully the gaviscon will help. Good luck

Puddlelane Wed 20-Mar-13 21:02:31

Me too. Still no meds here so hopefully tomorrow.
I just want him to stop sounding like he is on 60 a day and gagging when he lies down.
Luckily it only seems to bother us not him.

Will update.
Will results be immediate after a few feeds?

freefrommum Thu 21-Mar-13 09:48:15

Wish I could say results would be immediate but in our case it took a long time. I think others had quicker results but still think it took at least a week.

Puddlelane Thu 21-Mar-13 10:56:29

I thought as much. Will stick with it and give it a go for a couple of weeks and see how he goes.
Thank you

Notquiteinsane Thu 21-Mar-13 20:43:34

Another little point to add....Nutramigen although it is very broken down, is still cows milk based. My DS eventually moved on to Neocate and finally stuff started clearing up. (Having said that, is currently drowning in mucous...but he DOES have silent reflux that is a definite contributing factor)

freefrommum Thu 21-Mar-13 22:27:44

My DS also had to switch from Nutramigen to Neocate

Puddlelane Sat 23-Mar-13 18:21:57

Hmm I think I will make a doctors appointment. The coughing fits has stopped but the noisy rattle is still there and now we have constipation.
I will ask to try neocate, wonder how hard I will have to fight for that, I know it's expensive.

Thanks all

Notquiteinsane Sat 23-Mar-13 21:37:08

If they won't prescribe it, then ask for (demand) a referral to gastro paed! Bit of a bargaining tool and either way, you should end up with the answers. Downside to referral is the wait, BUT you then have specialist advice.
Good luck!

Puddlelane Sat 23-Mar-13 22:06:08

Thank you, we already see an allergy paed but tbh I really question her advice.

Puddlelane Sat 23-Mar-13 22:06:52

Posted too soon!
I will demand a referral if I don't get the milk. I'm hoping we will. Even just one tin to see if it makes any difference.

Puddlelane Wed 27-Mar-13 08:38:42

Spoke to the paed consultant yesterday and have a prescription for Nutramigen AA to try. No fuss and she could have not been more helpful smile

Puddlelane Wed 27-Mar-13 08:39:31

(Am also looking into re lactation as I'm dairy free anyhow, looks a long road but something to think about)

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