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We've reached the end of our dairy desensitisation programme!

(14 Posts)
Weta Fri 22-Feb-13 11:44:11

First, can I just say that any such programmes should only be done under close medical supervision... also, we're in Luxembourg so what is offered here is different to the UK.

So... after 3 years of gradually increasing milk doses, today we are seeing the specialist because we have reached the end of the programme. DS1 (now 9) has 250 ml of straight cow's milk every day, having previously been anaphylactic.

The next step is apparently yoghurt and cheese and, shock horror, NORMAL FOOD!!!, and then we will have to calculate how much his milk intake has been each day and make it up to the 250 ml, in order to keep the tolerance.

It feels like such a momentous step, and I am so grateful to our specialist that I almost want to cry. DS1 started off below the threshold for reintroduction (he was reacting at a cumulative dose of 0.75 ml) but she thought we should try anyway and take it very slowly.

It has already changed our lives, as we have been able to loosen up a bit in the last couple of months and he was able to share our Christmas dessert and eat a few chocolates, and we're rediscovering the joys of cooking with butter - I was amazed to discover it has comparatively low levels of protein compared to milk, whereas yoghurt is a lot higher and cheese through the roof. Previously even small amounts would have sent DS1 to hospital.

Best of luck to everyone else facing allergies - and fingers crossed that such programmes will become more widespread.

freefrommum Fri 22-Feb-13 16:26:32

Thanks for sharing such wonderful, inspirational news Weta! It really is life-changing by the sounds of it. I live in hope that one day I'll be able to share a similar happy story...

hwhite6 Fri 22-Feb-13 18:01:02

That's fantastic Weta & DS1! You both must be thrilled, it's always great news to be able to permenantly reintroduce a once "forbidden" food smile

ProlificWillyBreeder Fri 22-Feb-13 18:07:59

Oh go your DS and you and family!
Brilliant news!
We are back on the dairy free band wagon sadly after our initial programme, poor DS couldn't handle it. Though not as serious a reaction as before so there is hope!

babybarrister Fri 22-Feb-13 22:16:36

Message withdrawn at poster's request.

OrangeforDd Fri 22-Feb-13 22:22:24

What fantastic news! Amazing for you and your Ds, and it gives a lot of hope to people like me and my Ds. Well done! smile

Weta Sat 23-Feb-13 07:59:53

ProlificWillyBreeder sorry to hear your programme didn't work out this time, hopefully at some point in the future you can try again? where were you doing it and how old is your DS?

The doctor was so lovely, she was really excited about our success story. We can now diversify the foods he eats but she thinks it's worth pushing on to 500 ml if we can...

We went out for a fantastic Indian meal as a family last night, it was absolutely incredible to be able to share that with DS1 and allow him to try everything on the table.

MerryCouthyMows Sun 24-Feb-13 11:21:32

This gives me hope for DS3! He is so severely anaphylactic to dairy that he goes into anaphylaxis if a pinhead sized crumb of chocolate or cheese will put him into anaphylaxis, and ditto for yoghurt or milk just touching his skin.

If he could eat even some dairy, or would make thins so mum

BlueBumedFly Sun 24-Feb-13 22:00:25

Wonderful news Weta!! I remember talking to you at the start of the programme when my SDD had had success with the nut progrmme and you were worried but determined to continue.

Well done to your and your brave brave DS xxx

Weta Mon 25-Feb-13 09:45:31

MCM will keep my fingers crossed that they'll make this kind of thing more widespread.

BBF thanks, I remember you too, in fact I noted down your email address but then things went quite smoothly after that! we had the best weekend - pizza on Saturday (though we still have to be a bit careful about the quantity of cheese as it's really concentrated) and then croissants and toasted cheese sandwiches on Sunday. Lucky he's so very skinny! To be honest, I can hardly believe it's happening and I just sit there watching him eat this forbidden food and can't stop smiling...

BlueBumedFly Mon 25-Feb-13 11:03:09

Weta - we know how you feel. Freedom tastes pretty darn good. In fact, we were at a holiday venue that we hadn't been to since SDD was still on a nut-ban, we had not realised but she mentioned it straight away, and we all had to agree life is so much better, the hard work is all worth it.


mumat39 Mon 25-Feb-13 18:31:34

Weta, huge congratulations to your DS, you and your whole family!

What an amazing result at the end of such a long process. I'm so happy for you!

How is your son about trying new foods? Hope he's enjoying all the new flavours and textures.

It's so good to hear good stories so thank you for sharing.

Take care xxx

trixymalixy Sat 02-Mar-13 20:21:24

That's absolutely fantastic!! Gives me some hope for DS.

mintyneb Wed 06-Mar-13 13:52:31

that is fantastic news!!!! Well done you and your DS for persevering in what has seemed to have been a monumental challenge.

I can't imagine how wonderful it must have been to all sit down to a family meal and not have that shadow of doubt and worry lurking behind you.

A consultant who we see for DD's CF also runs an allergy clinic and he is planning on looking into desensitisation programmes. Let's hope he's a quick learner and that there could be something to help her before too long :-)

congrats again!

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