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anaphylaxis campaign one-day conference.

(15 Posts)
eragon Sun 21-Oct-12 22:00:33

I went on friday to this event.
A very informative day, however, two speaches I really related to, one from Sue Clarke, Nurse advisor to campaign 'facing the challenges of severe food allergies' and 'living with allergy' with Louise Bramley, a parent of an allergic child.
both talks were from parents who have a allergic child, Sue's son is now an adult, Louise's child is only 7, but I could relate to everything they said, as our son is a teen. Certainly Louise's story brought back many memories of our sons early years and the ongoing impact multiple severe allergies have on the quality of life our children have.
i felt that this was one of the most valuable stories the school nurses and other professionals could of heard.
I can not praise the work of the Anaphylaxis campaign highly enough or the volunteers, like louise who step up and though their courage improve the knowledge and care of the medical professionals that have responsibility for our childrens health.

ggirl Mon 22-Oct-12 07:54:02

sounds good, where was it?

would have like hearing those speeches

ds 10yrs reaching that age of letting go ..eeeeeek

freefrommum Mon 22-Oct-12 09:08:33

Does sound really interesting. I'm going to an Anaphylaxis Campaign allergy workshop this Wednesday in Cardiff. Really looking forward to is as they don't come to Wales very often. I've been on one of their parents' workshops a few years ago but this is a more general one for adults with allergies and parents of children with allergies plus they're going to do a refresher on using epi-pens.

DavanB Mon 22-Oct-12 15:23:45

Hello, I work at the Anaphylaxis Campaign. Eragon, We are so glad you were able to attend and thank you for your kind words. smile For those who were unable to attend this conference, we are already planning the next one, so stay tuned for details! All of our upcoming events can be found here: http://www.anaphylaxis.org.uk/events. Also lots of information and support is available on our website www.anaphylaxis.org.uk

DavanB Mon 22-Oct-12 15:24:48

Also freefrommum we look forward to meeting you in Cardiff

babybarrister Mon 22-Oct-12 17:09:20

Message withdrawn at poster's request.

freefrommum Tue 23-Oct-12 08:56:06

Thanks DavanB. I really appreciate the work of AC (just renewed my membership grin)

mumat39 Fri 26-Oct-12 00:13:10

Hello DavanB.

Are there any plans to make these talks available on the Internet? I'd be really interested in both.

Many thanks.

babybarrister Fri 26-Oct-12 05:56:07

Message withdrawn at poster's request.

freefrommum Fri 26-Oct-12 09:26:32

The workshop in Cardiff was really useful too. It was the first time they had run this sort of workshop and I really enjoyed it. Was also impressed that the first one was in Wales and not London grin. Thanks AC.

CouthyMowEatingBraiiiiinz Fri 26-Oct-12 10:02:50

Does the anaphylaxis campaign have anyone you can talk to in the telephone. I am feeling a bit overwhelmed by the continuing severity of my 21mo DS3's allergies. And am having problems as I have been told to have a CMP, nut free house when I have three much older DC's, one if whom is on another restricted diet due to coeliac, and the other two have sensory issues with food due to Autism, and therefore already have limited diets.

The problem isn't so much nuts as CMP. I can't cut out dairy from the diet of the other 3, as one already has a limited diet due to being GF (and the ONLY thing he doesn't eat is tomatoes, which means a LOT of dairy based sauces), and the other two who have autism practically live off cheese and yoghurts (!)

I need some help. Or two kitchens & dining rooms. I don't even have one dining room - my table is in the living room.

freefrommum Fri 26-Oct-12 10:05:15

Yes they have a helpline. The number is in the top right of their homepage www.anaphylaxis.org.uk.

freefrommum Fri 26-Oct-12 10:06:22

I'd also recommend becoming a member as they run workshops for parents and families.

ClaireOB Fri 26-Oct-12 10:06:36

The Anaphylaxis Campaign Helpline number is at the top right of this link. Open 9-5 weekdays.

sariom Fri 26-Oct-12 13:04:48

The Anaphylaxis Campaign is heading up to Liverpool today for the Allergy and Free From Show North which is taking place tomorrow and Sunday. We're looking forward to meeting any of our members who are visiting the show!

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