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Can anyone help me with my sons blood test results?

(15 Posts)
OHforDUCKScake Thu 18-Oct-12 15:53:21

Milk - 14.8 (as far as we've experienced milk is his worst, anaphylactic)
Egg white - 2.88
Soya bean - 21.8 (he's had occasional very mild reactions to soya)

They couldnt do the nuts because they didnt have enough blood.

Over all ige 904.0

This seems weird, high number for soya which is mild, medium number for milk which he had nasty reactions to? Can anyone tell me their childs results for comparisson?

Consultant calling me next week.

OHforDUCKScake Thu 18-Oct-12 16:13:31

In fact he had soya in his lunch and he had no reaction whatsoever. hmm

casabevron Thu 18-Oct-12 16:32:03

As far as I understand it, each food tested for has a different level at which an allergy is indicated, so a 14.8 for milk can't be compared to a 21.8 for soya, as the allergy kicks in at a different number, iyswim? I found a link somewhere, I'll see if I can track it down...

casabevron Thu 18-Oct-12 16:40:07

here

The relevant bit is at the bottom of the page. It may help you get your head around it a bit better. FWIW, we were told by our GP that ds was allergic to wheat (this was pre-weaning) because his score was slightly over the threshold, but his spt was negative and he tolerates wheat fine. We were then told by the allergy nurse at hospital that if you have eczema, and your overall igE score is high - as your ds's is - that it is perfectly possible to have a relatively high score to a food and still be able to tolerate it. It's all relative to your individual situation, that's why you need someone who knows what they're talking about to translate the scores for you!

mmmmsleep Thu 18-Oct-12 17:29:09

High total ige makes the rest of results more tricky to interpret. Skin prick tests are more useful but not used if anaphylaxis or severe eczema. You might be offered spt for egg and soya if no reactions clinically before. This is important because if not allergic to soya that massively increases your options . You haven't said how old your son is. get referred to a dietician if you haven't been already...can take a long time on nhs.
I guess i'm saying beware of reading too much into the blood tests if no real life symptoms...our son was told allergic to wheat egg and milk from bloods which is a faff to exclude. Spt showed just egg and dairy which was what we had seen him react to and although still restrictive seems much easier than all 3. Check that the person you are seeing has an intetrst in food allergies...i first saw a dermatologist privately. Wish i hadn't bothered as inappropriate tests done and guidelines not followed. Nhs allergy consultant much better and my own gp happily referred to dietician. Long wait for allergy consultants but most hospitals have paediatrician interested in allergies. Hope that helps. Good luck

OHforDUCKScake Thu 18-Oct-12 18:36:33

Thank you.

He's been referred to Guy and Thomas in London nlw so hopefully we'll get some more perspective then.

freefrommum Thu 18-Oct-12 20:28:15

Some good advice on this thread already. Allergy tests, both blood & skin prick, only provide an indication of a person's likelihood to react to something - they are not definitive in any way. I would definitely ask for skin prick tests to be done at least for soya as this might give a better picture. As for comparing results, the problem is I don't think they are always provided in the same format. For example, my DS's results are in kU/l (whatever that means) so milk was over 100 (equivalent to level 6, extremely high), wheat 63.5 (level 5 very high), egg 73.9 (level 5) and peanuts 1.29 (level 2 moderate). His overall IgE was 3000kU/l shock but he does have severe eczema so that's a contributing factor.
Here's the scale:
<0.35 KU/L : ALLERGEN LEVEL 0 - ABSENT OR UNDETECTABLE ALLERGEN SPECIFIC IgE
0.35 - 0.69 : ALLERGEN LEVEL 1 - LOW OF ALLERGEN SPECIFIC IgE
0.70 - 3.49 : ALLERGEN LEVEL 2 - MODERATE LEVEL OF ALLERGEN SPECIFIC IgE
3.50 - 17.49 : ALLERGEN LEVEL 3 - HIGH LEVEL OF ALLERGEN SPECIFIC IgE
17.50 - 49.99 : ALLERGEN LEVEL 4 - VERY HIGH LEVEL OF ALLERGEN SPECIFIC IgE
50.0 - 100.00 : ALLERGEN LEVEL 5 - VERY HIGH LEVEL OF ALLERGEN SPECIFIC IgE
> 100.00 : ALLERGEN LEVEL 6 - EXTREMELY HIGH LEVEL OF ALLERGEN SPECIFIC IgE

mmmmsleep Thu 18-Oct-12 22:32:34

St thomas' unit are leaders for food allergy. You'll be fine! Good news is they normally grow out of milk allergies

girlsyearapart Thu 18-Oct-12 22:38:26

We also were referred to guys it was fine very efficient and they did more skin pricks.
Back there beg nov.

OHforDUCKScake Fri 19-Oct-12 10:44:53

Yes thats why we asked for a referral there.

He cant have skin prick tests as hes very atopic.

girlsyearapart Fri 19-Oct-12 20:47:10

How old is he?
My dd is four now and grew out of her milk allergy at around 2.5 still highly allergic to egg sesame nuts and various other known & unknown.

She had truly awful excema until she was around 18 months but now looks pretty much clear except for her hands and backs of knees

OHforDUCKScake Sat 20-Oct-12 11:15:04

He is 17 months. He has constant eczema. It gets better with cream but then he develops an allergy to the cream. We're currently on no creams because we've run out of options.

girlsyearapart Sat 20-Oct-12 14:24:39

Yep we had that too. Have you done wet wrapping yet? That really saved us as she didn't sleep for itching.
Feel free to pm me as I know just how awful it is. Once we determined that a lot of it was allergy related she improved dramatically. Tbh the creams didn't do an awful lot.

OHforDUCKScake Sun 21-Oct-12 20:55:17

We have done wet wrapping when things are bad.

Thanks girlsyearsapart

girlsyearapart Sun 21-Oct-12 21:23:32

No worries

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