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Help please DS nut allergy anaphylaxis.

(23 Posts)
Nuttyprofessor Sat 19-May-12 15:53:54

My DS suffered severe anaphylaxis from a suspected nut allergy, I had no idea of this before yesterday.

I was at the hospital as they fought to save him. It was horrendous I am still in shock.

I suffer from anxiety anyway, I just don't know how I am going to cope with this.

Any advise greatly received.

trixymalixy Sat 19-May-12 15:57:38

Oh you poor thing and your poor DS. I hope he is ok.

My DS has multiple food allergies including nuts and we carry an epipen. It is hard to deal with at first, but it eventually just becomes just part of everyday life.

The thing about nut allergies is that people do take them very seriously, much more so than any allergy, so it is relatively easy to deal with when eating out etc.

ggirl Sat 19-May-12 15:57:48

oh you poor thing how traumatic

how old is your ds?

is he ok now?

ggirl Sat 19-May-12 15:59:45

It's truly terrifying to think about it all at first.but you do gradually come to terms with it..honest.

amillionyears Sat 19-May-12 16:00:54

put in nut allergy anaphylaxis into the search at the top of the page.
There are a number of us on MN with children and young people with this condition.
There was also a recent thread on here about 2 weeks ago which I and several others were on.I will find the name of it for you shortly.

Is he Ok now?
I would have thought they will give you information about this,as well as maybe pills, and definitely epipens.
How old is your DS?

Nuttyprofessor Sat 19-May-12 16:03:12

Thanks both, he is 11.

The school phoned me and told me he had a tummy ache. When I got there he was swollen up like a balloon, he had been sitting in the medical room for 40 minutes or more. I said he is swelling up, and they said yes we thought that.

I can't get over the fact they were doing nothing when any idiot could see he needed immediate treatment. I just don't feel safe sending him to school.

Nuttyprofessor Sat 19-May-12 16:13:24

Thanks will look at old threads, wasn't told anything just told to get referal from GP, which is being arranged.

amillionyears Sat 19-May-12 16:14:51

School has to be informed immediately.
My doctor kindly made a protocol for my DS.
It went into great detail about what people were to do if my DS had an anaphylactic shock.
It gave anybody who read it, about a 12 point plan, including what medicines he needed to take immediately, how much, how to give the epipen injection,6 ways in which he may react to different nuts, etc etc.
I photocopied it many times, and gave it to many people, such as immediate relatives.
Ask the hospital or GP to see if they will give you one.

amillionyears Sat 19-May-12 16:20:09

You do need to inform his friends parents as well, as in my experience,that is one of the main problem areas., as you will soon start to get the hang of reading food labels.
The hospital really should have given you information.
Has your DS had nuts before?Not sure it matters.Im pretty sure mine did.His nut allergy started when he was 8.

Nuttyprofessor Sat 19-May-12 16:29:50

Thanks, sure I will get my head around it. DS has some autistic traits is very controlled and doesn't like change. I have had terrible trouble introducing new foods as he won't even try them.

There was a Greek food tasting at school, he ate the food as he couldn't do the work if he didn't.

I am lucky I suppose, that he likes rules and order and can be very disciplined.

Nuttyprofessor Sat 19-May-12 16:31:41

This probably sounds like a crazy question but here goes. If you have medication can you deal with a reaction or prevent one or is it just gaining time to get medical attention?

amillionyears Sat 19-May-12 16:42:01

aw, poor chap being rather forced to eat the food, and then had an anaphylactic shock.
I dont want to alarm you,but the GP should tell you this anyway.Time is very important.He should be given the medication immediately, I think it is pills first and then epipen.They will tell you.[I need to look it up myself now that DS lives away from home most of the time.]At the same time, someone should have rung 999.
He is then sent to hospital immediately.

So the answer is
if he has a reaction, he should have medication with him at all times, and I mean all times.He takes it himself, or if he is unable, someone else gives it to him.Then he goes to hospital.

Dont be too alarmed.Like a poster said, it is something you get used to living with.And it does get easier.

trixymalixy Sat 19-May-12 16:53:05

Nuttyprofessor, I'm not 100% certain, but I think an adrenaline injection would be the treatment anyway for anaphylaxis, if rushed to A&E, followed by another if necessary. The epipen is just an easy delivery system for the non medically trained.

Nuttyprofessor Sat 19-May-12 17:05:34

Thanks everyone do you manage to avoid the foods most of the time, have you experienced a reaction once a month, year?

amillionyears Sat 19-May-12 17:15:45

My DS.1st shock, didnt know if it was caused by nuts, as the product he had eaten we werent sure if it had nuts in,and also back in the day, not so many people got nut allergies, so we left it.
2nd shock, 3 months later, at his friends house, and he had definitely eaten a nut, a different sort of nut, and had a different sort of reaction.
Took him to GP and got him sorted out with medicines etc.
3rd shock happened about 6 years later.
Again he was out with friends, ate an ice cream,felt funny,again we were not sure at the time if he had eaten nuts or not.He had.
He has had no further shocks in the last few years.He is not the most adventorous of eaters, which does somewhat help.

Nuttyprofessor Sat 19-May-12 17:20:02

Thank you so much. Starting tomthinkmhis weird eating habits might be a bonus, never thought I would say that.

amillionyears Sat 19-May-12 17:24:11

I know.Its odd what can sometimes turn out to be a bit helpful.

babybarrister Sat 19-May-12 21:50:12

Have a look at the anaphylaxis campaign website www.anaphylaxis.org.uk - it has just been redesigned and is much more user friendly. They have lots of info and a v good and kind helpline as well. Good luck and make sure you get the appropriate long term care as well - there are NICE guidelines which mean your DS should now be tested for lots of things and giving specialised medical advice. Make sure you get it - the anaphylaxis campaign has a list of specialist paediatric allergy units around the UK

neolara Sat 19-May-12 23:37:48

It sounds like you have had a completely shocking day. I hope both you and your ds start to feel better soon.

My dd was diagnosed with a peanut allergy last year. At the time it seemed a huge deal but 6 months on and it seems much more manageable. To be honest, pretty much the only things I do differently now is that I check ingredients religiously and we carry piraton and and epipen around with us everywhere we go. So far this has been enough to ensure that we have managed her reactions.

I think getting your ds tested so that you are completely sure what he is, and isn't allergic to, will go some way to putting your mind at rest. And then you need to make sure that you have a very clear management plan about how to avoid nuts and also what to do if your ds inadvertently eats some.

alison222 Fri 25-May-12 12:30:55

Definitely go straight to the GP.
Get prescribed liquid antihistamine as well as tablets. Often in anaphylactic reactions the throat swells and it can be difficult to swallow a tablet. With the liquid it should always go down ( advice from a nurse).

Depends on your GP if they will prescribe the epe-pens before the allergy testings - definitely get the GP to refer you for that!

In the meantime I guess it would be sensible to avoid all nuts - so you will have to read the ingredients on everything. It might also be worth contacting school to find out what he did eat. I am thinking perhaps hummus - which is made with sesame is another possible culprit( very common to be allergic to sesame) and is typically Greek - unless your DS eats it regularly at home?

Nuttyprofessor Fri 25-May-12 23:22:24

Thanks, seen GP and got jext pens. He ate a Greek cake called baklava containing 5 different nuts, nut sugar and nut oil.

KimberleyTin Fri 29-Jan-16 18:17:34

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

trixymalixy Fri 29-Jan-16 18:18:27

Kimberley why are you commenting on old threads? This is the 2nd one I've seen.

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