I've asked for your input here before and have found your advice very helpful so I'm back with a few more questions.
A litle background: DS1 is 3.5yrs and has been gluten-free since November last year and then dairy-free as well since April this year (due to weight loss, anaemia, no solid stools for months at a time, tummy aches etc..). His consultant now wants us to reintroduce gluten so that we can do the Coeliac screen again. It came back negative last year (when still on gluten) but he says children often get a false negative result.
If we (DS1) have symptoms, the consultant wants the blood test done and says he will then do a biopsy anyway, whether it is positive or negative, to see if they can find out what is going on. Obviously we hope that he will be symptom-free...
My questions:
- Do we reintroduce gluten gradually or from day 1 give him the required amount? (I've been told 4 slices of bread a day? The consultant is on holiday).
- My hunch is that he has an intolerance not an allergy. Would you put your LO through a biopsy in such circumstances if the blood test is negative? After all, he's symptom-free when on the gluten and dairy-free diet (which I know we want to get him off if we can).
- The consultant intends to have the blood test done first, then book a biopsy at BCH (which I think will take quite a while). Assuming that we go for this, can we not just go straight for the biopsy and have the bloods done while he is under anaesthetic (if the biopsy will be done no matter what the outcome)? Assuming that we are having symptoms, it seems silly to me to have to keep him on gluten longer than is necessary just to go through the diagnostic hoops.
Any experiences/advice gratefully received. Will try and check back tomorrow to see if any of you can help me get my thoughts straight. Thanks for reading ...