I have been diagnosed with hypermobility spectrum disorder (used to be called joint hypermobility syndrome). Every so often I will have a proper "flare up" where I am exhausted, stiff, brain-fogged and need to take painkillers/do lots of physio exercises in order to function. It will go on for weeks sometimes and then one day it will suddenly lift. By this point I will have lost all my previous level of strength/fitness, and am then left with having to build myself back up from ground zero.
In between flares, once I have built myself back up I feel pretty well, and can do near-normal levels of exercise without a problem. I wish I could find some way of avoiding the flares/crashes as they are really debilitating and turn me into a near-invalid.
Does this sound familiar to anyone with hypermobility?
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If you have hypermobility / Ehlers Danlos, do you have flares?
12 replies
BestWatcherInTheUnit · 15/11/2020 19:08
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