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Can I share my joy?

94 replies

QueenPaws · 06/11/2020 12:05

I've suffered from hives/urticaria for the past 23 years, and been unable to exercise/walk/get my HR up/wear a coat(!) for the past few years they've been so bad
Today I got approved for a medication which has a great success rate but is expensive to the NHS, hard to get and not commonly used
I am so so happy GrinGrinGrin

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CloudyVanilla · 06/11/2020 12:06

Oh my goodness this made me tear up, I'm so happy for you Flowers

What a difference this will make to your quality of life!!

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QuestionableMouse · 06/11/2020 12:06

Excellent news! I really hope it works for you!

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QueenPaws · 06/11/2020 12:08

This is from just driving to the supermarket

Can I share my joy?
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Pavlova31 · 06/11/2020 12:15

So glad you are getting the treatment Smile

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ImaSababa · 06/11/2020 12:17

This is fantastic, OP. So happy for you! Daffodil

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Defiantly41 · 06/11/2020 12:18

Star great news Queen

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Thisisnotnormal69 · 06/11/2020 12:19

Well done!

Do you know what causes it?

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QueenPaws · 06/11/2020 12:21

@Thisisnotnormal69 heat basically. So stress, HR increase, exercise, warm showers, being slightly warm, feeling self conscious because of the hives means it's also a vicious circle as that makes you hotter

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Thisisnotnormal69 · 06/11/2020 12:38

What a nightmare, I really really hope this is some resolution for you!

I had some problems with recurrent hives some time ago and still do now sometimes, includes a numb and tingling face too which is horrible! Doctors concluded probably stress.

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lazylump72 · 06/11/2020 17:51

I m so pleased for you...I wish you well going forward ...lovely news x

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altiara · 06/11/2020 17:52

Great news!

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Katinski · 06/11/2020 18:45

Brilliant news,OPSmile

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mogloveseggs · 06/11/2020 18:46

That's wonderful for you! Smile

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2monkeysinmyhouse · 06/11/2020 18:56

I suffer from urticaria too so massively happy for you getting approved! If it's Xolair it's a game changer, I'm now only occasionally having a flare as opposed to daily. Good for you and enjoy the relief the meds will bring Smile

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QueenPaws · 06/11/2020 19:28

@2monkeysinmyhouse yes, Xolair!

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Chimchar · 06/11/2020 19:30

Hooray! That's really great news. I hope it works for you. Thanks for sharing your good news. It's nice to hear some! SmileBrewThanksCake

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2monkeysinmyhouse · 06/11/2020 19:32

@QueenPaws I found month three my symptoms started to ease, I hope it's quicker for you having suffered 23 years. Fingers crossed and share your news with anyone who you see - it's joyous!

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QueenPaws · 06/11/2020 19:35

@2monkeysinmyhouse I'm praying it does, I have hives every day, multiple times Sad and the itching is insane. Tried everything apart from Xolair

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QueenPaws · 16/12/2020 16:34

Update - my first dose is tomorrow!being admitted at 8am for it then 2hrs observation
So excited and also nervous

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Holothane · 16/12/2020 16:47

Delighted for you I really am.

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Nerve · 16/12/2020 17:11

Excellent news! Happy for you (:

Can I ask why you have to be observed? Is it for side effects or a bad reaction?

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QueenPaws · 16/12/2020 17:35

@Nerve there's a fairly decent risk of anaphylaxis so first monitoring is 2hrs. It says can occur at any time even days after the injection and apparently it has a black box warning in America HmmShock

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PaperMonster · 16/12/2020 19:03

Great news for you. Hope all goes well and it does the trick! X

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bumhead · 16/12/2020 21:03

Good luck for tomorrow going smoothly!
It's so lovely to read good news and I hope the Xolair works out for you Smile

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Nerve · 16/12/2020 21:56

Oh, that is quite the side effect. If it helps cure something you have been suffering with for 23 years though it's definitely worth it. Good luck for tomorrow and let us know how you get on!

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