Can I share my joy?

(95 Posts)
QueenPaws Fri 06-Nov-20 12:05:11

I've suffered from hives/urticaria for the past 23 years, and been unable to exercise/walk/get my HR up/wear a coat(!) for the past few years they've been so bad
Today I got approved for a medication which has a great success rate but is expensive to the NHS, hard to get and not commonly used
I am so so happy gringringrin

OP’s posts: |
CloudyVanilla Fri 06-Nov-20 12:06:13

Oh my goodness this made me tear up, I'm so happy for you flowers

What a difference this will make to your quality of life!!

QuestionableMouse Fri 06-Nov-20 12:06:26

Excellent news! I really hope it works for you!

QueenPaws Fri 06-Nov-20 12:08:56

This is from just driving to the supermarket

OP’s posts: |
Pavlova31 Fri 06-Nov-20 12:15:52

So glad you are getting the treatment smile

ImaSababa Fri 06-Nov-20 12:17:52

This is fantastic, OP. So happy for you! daffodil

Defiantly41 Fri 06-Nov-20 12:18:35

star great news Queen

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Thisisnotnormal69 Fri 06-Nov-20 12:19:29

Well done!

Do you know what causes it?

QueenPaws Fri 06-Nov-20 12:21:38

@Thisisnotnormal69 heat basically. So stress, HR increase, exercise, warm showers, being slightly warm, feeling self conscious because of the hives means it's also a vicious circle as that makes you hotter

OP’s posts: |
Thisisnotnormal69 Fri 06-Nov-20 12:38:33

What a nightmare, I really really hope this is some resolution for you!

I had some problems with recurrent hives some time ago and still do now sometimes, includes a numb and tingling face too which is horrible! Doctors concluded probably stress.

lazylump72 Fri 06-Nov-20 17:51:30

I m so pleased for you...I wish you well going forward ...lovely news x

altiara Fri 06-Nov-20 17:52:37

Great news!

Katinski Fri 06-Nov-20 18:45:30

Brilliant news,OPsmile

mogloveseggs Fri 06-Nov-20 18:46:39

That's wonderful for you! smile

2monkeysinmyhouse Fri 06-Nov-20 18:56:30

I suffer from urticaria too so massively happy for you getting approved! If it's Xolair it's a game changer, I'm now only occasionally having a flare as opposed to daily. Good for you and enjoy the relief the meds will bring smile

QueenPaws Fri 06-Nov-20 19:28:33

@2monkeysinmyhouse yes, Xolair!

OP’s posts: |
Chimchar Fri 06-Nov-20 19:30:56

Hooray! That's really great news. I hope it works for you. Thanks for sharing your good news. It's nice to hear some! smilebrewthankscake

2monkeysinmyhouse Fri 06-Nov-20 19:32:19

@QueenPaws I found month three my symptoms started to ease, I hope it's quicker for you having suffered 23 years. Fingers crossed and share your news with anyone who you see - it's joyous!

QueenPaws Fri 06-Nov-20 19:35:47

@2monkeysinmyhouse I'm praying it does, I have hives every day, multiple times sad and the itching is insane. Tried everything apart from Xolair

OP’s posts: |
QueenPaws Wed 16-Dec-20 16:34:00

Update - my first dose is tomorrow!being admitted at 8am for it then 2hrs observation
So excited and also nervous

OP’s posts: |
Holothane Wed 16-Dec-20 16:47:02

Delighted for you I really am.

Nerve Wed 16-Dec-20 17:11:55

Excellent news! Happy for you (:

Can I ask why you have to be observed? Is it for side effects or a bad reaction?

QueenPaws Wed 16-Dec-20 17:35:44

@Nerve there's a fairly decent risk of anaphylaxis so first monitoring is 2hrs. It says can occur at any time even days after the injection and apparently it has a black box warning in America hmmshock

OP’s posts: |
PaperMonster Wed 16-Dec-20 19:03:53

Great news for you. Hope all goes well and it does the trick! X

bumhead Wed 16-Dec-20 21:03:30

Good luck for tomorrow going smoothly!
It's so lovely to read good news and I hope the Xolair works out for you smile

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