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At my wits end with kidney pain - don't know what to do anymore.

(97 Posts)
ShalomToYouJackie Mon 02-Nov-20 20:32:58

I'm 13+5 weeks pregnant, I've had blood in my urine on and off for 6-7 weeks now. GP tested for infection and it was negative. A few weeks later I had a dull ache in my lower back on the right hand side which got increasingly worse until I couldn't stand. I was throwing up from the pain and went to a+e. Pain suddenly completely stopped. My urine and bloods came back fine. They suspected kidney stones but an ultrasound scan didn't pick any up. Same thing happened a week later and they sent me home and said everything was fine and to drink water and and take paracetamol.

Last week I started weeing blood again but this time there were small blood clots in my urine too. I also constantly felt like I needed a wee. I spoke to my GP who did another urine sample which again came back negative for infection. They called the urology department at my hospital and I was seen the next day. Blood and urine came back clear again. Had another US of kidneys which showed no stones and that my kidney was draining fine and looked fine. Told to drink water and take paracetamol and they'll do a CT scan in June after the baby has been born. They give me antiobiotics just incase it was an infection which I've been taking.

I've now had worsening pain for nearly 48 hours in the same area and again am at the point where I can hardly walk, I'm retching from the pain. Paracetamol and hot water bottle are doing nothing. I'm drinking about 3 litres or more of water a day. It's really unbearable and I don't know what to do, I keep just getting told I'm fine and to drink water. What would you do in this situation?

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ShalomToYouJackie Mon 02-Nov-20 20:34:34

That had paragraphs when I typed it - sorry!

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JoJoSM2 Mon 02-Nov-20 20:38:50

I’d just go to A&E. It sounds v bad.

stairgates Mon 02-Nov-20 20:40:04

Have you tried a lemon and olive oil.flush, dont know how safe it is in pregnancy ut it kind of softens and slides the gristle out, might be worth a google.

enelcielo Mon 02-Nov-20 20:48:18

I'd go to A&E too.

I had a horrendous kidney infection years ago, that ate away at my kidney and reduced its function. I could barely walk and was seized up in pain.

It could be that if you have an infection, it's not responding to the particular type of antibiotic you've been prescribed.

ShalomToYouJackie Mon 02-Nov-20 21:36:31

Thank you, in A+E now and been taken to majors. Just hope they don't send me away with crap advice again

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ClarkGriswoldsChristmastree19 Mon 02-Nov-20 21:56:53

@ShalomToYouJackie I am not pregnant but the exact same symptoms happened to me a couple of weeks ago! Horrific, worrying and told it was most likely Kidney Stones. I'm not so sure! Get well soon, and keep on at them to get answers, it's not right whatever it is! I'm sure A&E will take care of you!

NotTheToothFairy22 Mon 02-Nov-20 23:09:05

That sounds horrible OP, I really hope A&E figure it out for you. I've had ongoing kidney pain but no known cause either even though I've had a few urine tests come back with issues even though at those times I've not had any UTI symptoms! You would think with you being pregnant they'd have a bit more sympathy and try to get to the bottom of it for you. Is your A&E very busy?

Fittata Mon 02-Nov-20 23:13:30

Urine tests aren't great at picking up infections. My consultant told me they probably only catch about 50%. Hope they give you different antibiotics and this sorts it out.

Weenurse Mon 02-Nov-20 23:13:54

Sounds like a stone, some stones don’t show up on ultrasound.
Good luck

coronafiona Mon 02-Nov-20 23:21:46

Just a suggestion - it couldn't be muscular back pain could it? That happened to me and after all the same investigations eventually I went to a chiropractor who helped

Haggisfish Mon 02-Nov-20 23:24:37

Poor you op. I had leaky kidneys in pg in terms of glucose. Yours sound horrendous. Hope you get some relief

ShalomToYouJackie Mon 02-Nov-20 23:37:57

Thank you everyone smile my A+E is heaving, apparently much busier than usual. One of the nurses reckons people are turning up to get minor things dealt with before the stricter lockdown!

I was seen by a lovely Dr straight away, I've been given more paracetamol but he is getting me a pregnancy safe stronger painkiller. I had my bladder contents measured then went to the loo and had it measured again and only passed 30ml so now I get a catheter whilst I wait for the Dr to come back. He really listened to me and said he doesn't think it is a stone or UTI and thinks perhaps a blood clot is stuck somewhere which is causing the occasional blood or small clot in urine.

Very glad I made this thread or I wouldn't have come.

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ShalomToYouJackie Mon 02-Nov-20 23:39:45

@coronafiona I did consider that it was my back rather than kidney and DP thought the same but because of the blood in my urine and not being able to wee very much I do think it's more likely to be my kidney. I'll see what they say tonight and if they can't find a cause I'll definitely contact a chiropractor.

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Weenurse Tue 03-Nov-20 06:33:08

Could be clot colic, which feels like a kidney stone as it does the same thing by blocking the ureter.
Having the clots in the first place and not being able to pee is something else.
How much was left in your bladder?

jess3817 Tue 03-Nov-20 08:25:35

How are you today - hope you're okay?

ShalomToYouJackie Tue 03-Nov-20 10:56:01

@weenurse that's good to know thank you, I'll look it up. There was still 267ml left

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ShalomToYouJackie Tue 03-Nov-20 11:00:08

@jess3817 thank you for asking, I had an Ultrasound scan done by a registrar which showed my right kidney was a bit dilated although the Dr looked at it and said he thought it was normal. I was in until 3am and then sent home and came back at 9am for an appointment with urology again at the surgical admissions unit.

A medical student has just taken very detailed notes of everything that's going on and is going to pass it on to a Dr and I'll see what they say. The student did say they might be hesitant to do anything due to being pregnant but I'm wondering what the risks are to the baby of whatever it is they want to do vs the risk to me if this is left for another 6 months (I know that sounds really selfish but I am in agony! )

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jess3817 Tue 03-Nov-20 14:09:30

Hope they manage to find out what's wrong and are able to help reduce the pain you're in. X

ClarkGriswoldsChristmastree19 Tue 03-Nov-20 21:37:25

How are you feeling now @ShalomToYouJackie ? Did they manage to decide ona plan going forward?

ClarkGriswoldsChristmastree19 Tue 03-Nov-20 21:37:59

*on a

WorkingItOutAsIGo Tue 03-Nov-20 21:42:43

Are you sure it’s not an ectopic pregnancy?

ShalomToYouJackie Wed 04-Nov-20 09:30:53

@WorkingItOutAsIGo Very sure, I'm 14 weeks today and have had my 12 week scan and a private scan too

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ShalomToYouJackie Wed 04-Nov-20 09:39:16

@ClarkGriswoldsChristmastree19 @jess3817 Thank you both - I was seen by a urologist yesterday afternoon who says she doesn't think it's kidney stones as my kidney function is showing up fine in blood tests and she actually think it's gallstones. Doesn't explain the blood in my urine though.

I've got a ultrasound scan tomorrow morning of my gallbladder then to see a consultant after to discuss. Pain is still there but has moved to my side now, I can't walk properly. I wasn't given any painkillers so still relying on paracetamol. I have co-codamol in the house but not sure if it's safe in pregnancy. It doesn't say anything on the leaflet just not to take if breastfeeding.

Really glad I went back to a+e and hope they get to the bottom of it as I'm in agony sad

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Menomosso Wed 04-Nov-20 13:20:28

Sounds awful, as if pregnancy wasn’t scary enough to start with. I know you shouldn’t take advice from internet randoms but my GP has given me the ok to take co-codamol in pregnancy as I suffer from migraines. It’s at the end of pregnancy that you shouldn’t take it as it causes breathing problems during birth.

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