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d-dimers always raised.

(16 Posts)
kimlo Fri 11-Sep-20 21:13:23

I've had these tested twoce. Once was random when I wanted to change pill because I have a family history of blood clots. That time they said I had raised d-dimers and fibrin.

The second time I had to have a ct scan to check for blood clots.

Nobody seems bothered by it, but what could it be?

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Pacif1cDogwood Fri 11-Sep-20 21:19:13

Where in the world are you based?
That seems complete diagnostic overkill tbh.
But I'm in the UK/NHS where evidence based medicine is practice, not profit based.

kimlo Fri 11-Sep-20 21:20:40

I'm in the uk.

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ChristmasSnowball Fri 11-Sep-20 21:20:59

Im the same, In the UK, NHS...

No idea why... Same as you, once had to have a scan to rule it out

kimlo Fri 11-Sep-20 21:21:58

the forst time they wouldn't change my pill from the mini pill due to the family history of blood clots, the second I had chest pains.

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ChristmasSnowball Fri 11-Sep-20 21:22:06

This is very often tested in 'normal' practice @Pacif1cDogwood

kimlo Fri 11-Sep-20 21:23:05

so just one of those odd things?

Thats really strange.

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Ohthereyouarepeter Fri 11-Sep-20 21:25:35

A negative d-dimer can be used to exclude a DVT or VTE, a positive result does not mean that you have a clot, it means further investigation is required (doppler US) to exclude a clot.
A raised fibrinogen is seen in inflammation/infection.

Pacif1cDogwood Fri 11-Sep-20 21:26:46

I was under the impression that 'random' D-dimer testing is pretty non-specific?
I suppose a higher level may inform a decision whether to take the risk of a combination pill, but D-dimer can be raised for all sorts of reasons.

Pacif1cDogwood Fri 11-Sep-20 21:28:55

Here is an example of very specific indications for carrying out D-dime test in an English NHS trust

kimlo Fri 11-Sep-20 21:29:02

Infection would explain the last one, since the chest pains were caused by a chest infection.

OP’s posts: |
Ohthereyouarepeter Fri 11-Sep-20 21:32:03

NHS Scotland here but I have never carried out a random d-dinner test in the lab, only ever for exclusion of clots or to we have added it on as a test to aid diagnosis of DIC. I’m not sure what the acceptable range would be for deciding on whether a pill is ok or not.

Pacif1cDogwood Fri 11-Sep-20 21:44:25

kimlo, I've just reread your first post.
Surely you must have a haematologist who could explain all of this to you?

I am not an expert.
D-dimer can be raised for many reasons, as can fibrinogen.
Infection/inflammation are common causes.
I expect yours may have been done in the context of looking for a familial or inherited clotting disorder?
It gets v complex there, and you best address your (v valid) questions to an expert in the field.

What I meant with 'diagnosic overkill' (I like a bit of hyperbole and flippancy, me blush) is that IME it would not be used to inform that change of a pill or used as a 'routine' blood test. There's usually a very specific indication.

kimlo Fri 11-Sep-20 22:17:05

no I don't have a heamotologist. It was the gp for the pill and she seemed fine with it, but did say I was at risk from blood clots.

Then that was that, nothing more done.

The hospital did the test when a different gp refered me for chest pains, did a ct scan and sent me off with antibiotics.

No one seems bothered by it. I'm just wondering what it is.

OP’s posts: |
DrFoxtrot Fri 11-Sep-20 22:25:27

I've never ordered this test for someone starting the pill confused - if there were risks, I'd be following guidelines for less risky options.

My local area works similar to what @Pacif1cDogwood suggests, using the test only as a diagnostic aid in specific circumstances.

You might have a minor underlying clotting problem which is of little consequence in day to day life, but the only way you'd know is for a haematologist to assess you and even then you might not get a definite answer.

GrumpyHoonMain Fri 11-Sep-20 22:28:53

Raised fibrin can be seen with pcos too which is why fertility clinics often offer to test for clotting disorders - because raised fribrin with certain clotting disorder mutations and pregnancy can be a nightmare.

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