Just that really. I am affected by one or both of these (haven't had biopsy yet because the renal facility is closed due to COVID-19. But symptoms of both and they seem in lots of ways to be one and the same thing
). I've had this illness for about two years and a relapse put me in hospital about a month ago, I'm now back home but have another relapse starting (big rash down my leg).
Both things are so rare that outside of my consultant, I can't really talk to anybody about it. I figured there might be others in my position so perhaps we could congregate here?
One thing that really bothers me is the lack of info online. All the HSP info and research is weighted towards childhood HSP, which isn't as severe and doesn't have the same prognosis/implications. I don't know of one single other adult with it.
So yeah! Anybody out there?
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Anybody on here have kidney/auto immune diseases like HSP or IGA Nephropathy?
72 replies
HeIsAVeryBadBoy · 04/07/2020 14:21
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