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Threads started in this topic after 9th November 2018 will no longer be removed after 90 days. A new topic called 90 Days Only can be found in the Other Stuff category of Talk.

Ugh! My autistic child is still awake so am I

(33 Posts)
RoseMartha Fri 10-Aug-18 00:53:00

I really want to sleep but i cant go to sleep until she has gone to sleep!! This is the second night in a row it will be after 1am. And then she will get me up in the morning about 6.
The melatonin clearly did not do its job . Not helped by thunderstorm when she was dropping off about an hour and a half ago. She is anxious because she cant sleep, so i am in and out her room like a yoyo. 😕 i have sat with her, had cuddles with her talked about worries with her given her two back massages. I suggested reading but as she doesn't like that it was a no. 😕😕

PickAChew Fri 10-Aug-18 00:57:35

Thunderstorms suck at the best of times.

AveAtqueVale Fri 10-Aug-18 01:10:30

I feel your pain. My possibly-autistic DS’s melatonin worked brilliantly. Then he vomited it up about two hours later and we’re still awake. Was kind of expecting it as I had the bug yesterday, and DS2 has had it all day today, but I was living in hope DS1 might escape. DS2 is over the worst I think and now starfishing in the middle of my bed while DS1 and I watch Netflix on the sofa. Don’t really know what to do as he’s wide awake, don’t particularly want to put him in my bed and risk him vomiting everywhere and waking DS2, but I can’t send him back to bed all by himself and go to sleep when he feels like this. And DH is on a night shift so there is no respite on the horizon, even in the morning sad.

IsTheRainEverComingBack Fri 10-Aug-18 01:12:19

I have no solutions but wanted to show solidarity flowers cake

Ivalueloyaltyaboveallelse Fri 10-Aug-18 01:13:09

Same here but no thunderstorm. You’re not alone. flowers

RoseMartha Fri 10-Aug-18 01:18:32

Hope we all manage a bit of sleep tonight. Glad i am not alone thanks for your replies, makes it easier to get through the night .

@PickAChew hope you all feel better soon.

RoseMartha Fri 10-Aug-18 01:19:23

@AveAtqueVale sorry i meant i hope you all feel better soon. Its because i am tired

GrabbyMcGrabby Fri 10-Aug-18 01:24:11

An annoying teacher of mine once said, so long as you are in bed (and no tech on, so avoiding blue light, which stimulates), then you are resting, and it is second best to sleeping.

Does red light work? Guided meditations?

MyShinyWhiteTeeth Fri 10-Aug-18 01:26:18

We are trying weighted blankets next. I've no idea how effective they are - they need to be 1/10 of the body weight apparently.

MyShinyWhiteTeeth Fri 10-Aug-18 01:27:52

Baths too late were stimulating.

We removed lots of clutter from surfaces but that made no difference for us.

Ivalueloyaltyaboveallelse Fri 10-Aug-18 01:29:00

@GrabbyMc My son also has a sensory processing disorder and we were given this advice by a sleep specialist.

Rebecca36 Fri 10-Aug-18 01:30:10

How old is your daughter? I ask because, if she is over the age of 12 or so, she might be able to occupy herself in her room on her own while you sleep. Things like writing a computer program, researching or designing something.

Ivalueloyaltyaboveallelse Fri 10-Aug-18 01:30:23

Same here @MyShiny

Want2bSupermum Fri 10-Aug-18 01:30:30

It's the worst when they won't sleep. Jazz music sends my son off. Doctor said to try it because the music has a peculiar pattern so engages the brain as they follow it in their head.

DD otoh won't sleep without tranquilizers. It's awful when you are tired. Will you be able to get some sleep tomorrow?

Ivalueloyaltyaboveallelse Fri 10-Aug-18 01:36:37

Anyone tried the Safespace beds?

SusanWalker Fri 10-Aug-18 01:41:17

I feel your pain. I have had one night this week where he didn't sleep at all and two other nights where he was feeling suicidal and finally calmed down enough to sleep at three ish.

DS has a fan which he has on while he's falling asleep. Partly because he gets too hot really easily and partly because the white noise is soothing.

We had a heavy blanket and he liked it for a while but he's grown now so it's not heavy enough and it also didn't help with the heat.

IceBearRocks Fri 10-Aug-18 01:47:59

I have no sympathy for you all...DS9 is severely autistic DS11 is high functioning Autistic. Neither sleep...infact DS 9 sleeps with melatonin from 9-12 and then that is it...that's if the melatonin works....it's Bern like this for 9 years and despite screaming and shouting social services have finally granted me 2 overnight respite per month....so now for 2 nights out of 31 we may get some sleep......as long as DS11 sleeps. My DH has MS and I have EDS....life is fucking hell and we've not had a good night's sleep for 11 years!
Just saying !

SusanWalker Fri 10-Aug-18 01:55:03

Ice bear flowers for you. That is utterly shit and pisspoor of social services.

hellokittymania Fri 10-Aug-18 01:57:31

I am up to, every single night for about 10 days now, I have been up the whole night. Plus I have a headache. I can't stand thunderstorms. I didn't hear any today in London, but the rain was torrential.

BitOfFun Fri 10-Aug-18 02:01:51

I've got a safespace for my autistic daughter. Hasn't stopped her coming downstairs and waking up the puppy in his crate grin. I guess I'll be up until gone 2am again like last night, and end up taking him up to bed with me because he's howling and disturbing the neighbours...SIGH

Ivalueloyaltyaboveallelse Fri 10-Aug-18 02:02:23

Hope you manage some sleep soon @hellokitty

Ivalueloyaltyaboveallelse Fri 10-Aug-18 02:04:10

Thanks @Bitof I just wondered if it was worth a try

hellokittymania Fri 10-Aug-18 02:10:09

Thank you I value. Some people have suggested I try melatonin as well.

IceBearRocks Fri 10-Aug-18 02:13:54

We have a kinderkey bed which is wonderful and no escaping...but ...he will just scream so loudly and kick and shout in his non verbal manner that no one else in the house sleeps!!!!!! Our lives are fucking torture. Please scream and shout now...don't be as nice and accommodating as us!!!!!! It's Bern a whole year since we've got to the point that we could give DS up for respite..... We've been in the emergency list for 2 weeks but now have another week to wait ...3/4 of a month!!!! If only people understood how 2 hours owr night for 9 years felt !!!! Arseholes

Want2bSupermum Fri 10-Aug-18 02:15:22

Melatonin has been wonderful for Dd but you have to get the slow release. I recommend you start off on a small dose. We started on 0.5mg and worked up to 1.5mg. She had a massive growth spurt about 3 months ago and needed a higher dose. We upped it to 3.5mg. Works a charm.

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