I have hypermobility in my shoulders but this is actually just due to not having strong enough muscles in certain parts of my shoulder to prevent the joint from moving too far. Physio has helped with this to develop the muscles which counterbalance the movement.
I was diagnosed with EDS at 54. It helped to put a name to the cause of so much pain and many injuries. I wish I had known earlier as it might have made me more cautious about certain things and I possibly would have avoided life changing injuries.
I have EDS hyper mobility type. I think it helps to have a formal diagnosis so you can get specialist physio when you have injuries. Also useful for anyone treating you to Know as it can be taken into account when giving local anaesthetics, sorting out pain relief, stitching after any surgery etc. A physio and also occupational health can advise on joint protection, what exercise is advisable/inadvisable etc. If you are able to get to London, the National Orthopaedic Hospital have really great rheumatologists who can diagnose EDS or hypermobility spectrum disorder as well as having a hypermobility clinic, physio, occupational therapy, hyrdrotherapy. The most important thing is to know how to protect your joints, strengthen muscles to support wibbly joints and prevent future injury by overuse or incorrect use of movement and exercise
There is absolutely a point to knowing you are hypermobile - you can avoid joint damage and understand what can happen if you don't. I'm now arthritic in several joints (feet, hands, hips and shoulders) and whilst I can't put it all down to hypermobility, some joints are definitely damaged because I didn't know and didn't protect them.
EDS would explain scar tissue as well. My ds gets spectacular scars from injuries that were so minor he hardly noticed them at the time. Dd gets covered in bruises from the most everyday activities. She showed me a pic of her legs with black marks of her hands from a simple clapping game she had been doing at her drama school; looked as if someone had been abusing her.