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Hyper Mobility?

(18 Posts)
picklemepopcorn Tue 12-Jun-18 13:47:29

Hi, can any hyper mobile folk help with this?

I have quite a few hypermobile joints, though no diagnosis- just a succession of slightly unlikely injuries.

I have been having a regular sports massage to unknot my neck and back after an accident/years of stress.

She thinks my upper arms are full of scar tissue- it's not knotty that she can work out, but lumpy and extremely sore.

I'm wondering if this is related to hyper mobility, have I just damaged my biceps from carrying overly heavy bags? There was no single injury as such.

She recommended going to an osteopath, but in the meantime does this resonate with anyone?

Anditstartsagain Tue 12-Jun-18 13:50:58

I have joint hypermobility syndrome ask to be refered to a rhumetoid specialist they can diagnose you and refer you for physio to manage the condition if you have it.

AvocadosBeforeMortgages Tue 12-Jun-18 14:28:43

I'm hypermobile but unaffected on a day to day basis - I just have some contortionist party tricks available!

I suspect that there's as such a wide range of these things - some people are in a wheelchair - it's unlikely you'll get much useful info here, but I'm very prepared OP be proved wrong!

WiseOldElfIsNick Tue 12-Jun-18 14:31:56

I have hypermobility in my shoulders but this is actually just due to not having strong enough muscles in certain parts of my shoulder to prevent the joint from moving too far. Physio has helped with this to develop the muscles which counterbalance the movement.

TheGonnagle Tue 12-Jun-18 14:36:03

I have hypermobility as part of a larger picture. Read up on Ehlers Danlos Syndrome and see if any of it resonates with you.

picklemepopcorn Tue 12-Jun-18 16:03:34

I don't feel I'm affected enough to ask for medical attention- though next time I have an unexpected injury I"ll be mentioning it!

I thought other people may have similar experience of muscle damage for no good reason.

I'm slowly learning that just because I can, doesn't mean I should! I think I over stretch muscles and joints by ignoring discomfort and powering through.

picklemepopcorn Tue 12-Jun-18 16:13:41

Reynaud's, achenbach syndrome, fragile skin, hypermobile joints, tendency to injuries, resistant to local anaesthetic, varicose veins, tendency to bruise...

All irritating, but not life threatening.

TheGonnagle Wed 13-Jun-18 21:31:18

Did you read up on EDS?
You sound like a zebra to me x

picklemepopcorn Wed 13-Jun-18 21:54:25

As in 'when you hear hoofbeats, look for horses not zebras'?

The EDS page is where I got that list from. The list is all the conditions that i already know i have.

Is there any point in knowing it is EDS? Is there anything I can do?

Lunde Wed 13-Jun-18 21:59:03

I was diagnosed with EDS at 54. It helped to put a name to the cause of so much pain and many injuries. I wish I had known earlier as it might have made me more cautious about certain things and I possibly would have avoided life changing injuries.

Sortofcool Wed 13-Jun-18 22:04:06

I have EDS hyper mobility type. I think it helps to have a formal diagnosis so you can get specialist physio when you have injuries. Also useful for anyone treating you to
Know as it can be taken into account when giving local anaesthetics, sorting out pain relief, stitching after any surgery etc.
A physio and also occupational health can advise on joint protection, what exercise is advisable/inadvisable etc. If you are able to get to London, the National Orthopaedic Hospital have really great rheumatologists who can diagnose EDS or hypermobility spectrum disorder as well as having a hypermobility clinic, physio, occupational therapy, hyrdrotherapy. The most important thing is to know how to protect your joints, strengthen muscles to support wibbly joints and prevent future injury by overuse or incorrect use of movement and exercise

mineofuselessinformation Wed 13-Jun-18 22:06:36

There is absolutely a point to knowing you are hypermobile - you can avoid joint damage and understand what can happen if you don't.
I'm now arthritic in several joints (feet, hands, hips and shoulders) and whilst I can't put it all down to hypermobility, some joints are definitely damaged because I didn't know and didn't protect them.

mineofuselessinformation Wed 13-Jun-18 22:07:30

Several x-posts which illustrate what I said....
You need to see a rheumatologist.

picklemepopcorn Wed 13-Jun-18 22:08:14

I agree with that! I wish I'd known to protect my back.

Also I've had to learn not to overstretch my joints. I just didn't realise I was doing it.

I'm going to need to build up strength as well.

picklemepopcorn Wed 13-Jun-18 22:08:40

Gosh, yes, sorry didn't see all those!

Gertrudethestag Wed 13-Jun-18 22:10:08

I'm hypermobile EDS too. I highly recommend hydrotherapy smile

SomeoneAteMyStrudel Wed 13-Jun-18 22:38:22

Hypermobile EDS here too with 2 very physical jobs.

My OH says I'm only fit for the glue factory grin

This is fair enough given how much I injure myself. I need to get a desk job. One day...

corythatwas Wed 13-Jun-18 22:42:18

EDS would explain scar tissue as well. My ds gets spectacular scars from injuries that were so minor he hardly noticed them at the time. Dd gets covered in bruises from the most everyday activities. She showed me a pic of her legs with black marks of her hands from a simple clapping game she had been doing at her drama school; looked as if someone had been abusing her.

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