New voices, big names and the best writing around

'This Is My Child' Round-up

This Is My Child

Welcome to our second #ThisIsMyChild round-up!

Back in August, Mumsnet launched its awareness-raising campaign: This Is My Child. The aim of this campaign is to support the parents of children with additional needs by busting a few unhelpful myths - and to open up a conversation about how we can all act together to make day-to-day life a bit easier for these families.

We have a wide range of bloggers on our network who are parents of children with additional needs, all of them writing with powerful honesty about the joys and challenges of life with their children. So, we thought it was high time we launched a regular #ThisIsMyChild round-up.

Last time, the lovely Tania Tirraro, writer and activist from Special Needs Jungle rounded up a range of brilliant posts (please do hop over and have a read) – this time, we've handed over the reins to the marvellous Hayley Goleniowska from Downs Side Up.

Hayley set up her blog as a resource and source of positivity for new parents to children with Down’s Syndrome, and she blogs regularly about the way her youngest daughter’s condition has enriched their family’s life. She also has a string of blogging awards under her belt, as well as extensive work as a Mencap Mumbassador to boot! Now, over to our guest ed…
 

There’s nothing cosier than snuggling up on a cold Winter’s day under a blanket and indulging yourself with a hot choc and a pile of your favourite blogs to read through. And how much more wonderful was it that I was actually commanded <wink> to do this for Mumsnet. Totally guilt free blog heaven.

Thank you to everyone who took the time to link to November’s This Is My Child. The posts were all extraordinary, and I dearly wished I could give you a précis of each and every lovingly written one. I read at times with a smile plastered on my face, then a frown of concern or a flicker of a memory of part of our journey with Natty shared. Yes, there were also tears.

I am very proud to be a part of such a wonderful community and even more honoured to have been welcomed into all your families and hearts via these posts.

Rosy BoRosy and Bo, who you may know because she has started a lovely online gift store for children with special needs, has written a beautiful piece - not least because of its simplicity. In the end all our children need is love and trust in equal measure. With that, everything else slides into place. Read The truth is, I treasure trust.

 

PremmeditationsI love Premmeditations, a well-respected blog about life with a Premmie who has a degree of Cerebral Palsy. For World CP Day 2013, please read this informative post on the different types of CP, and how the symptoms manifest themselves. It certainly busts some myths about the condition.

 

Orli, Just BreatheOrli, Just Breathe is a blog I have just got to know recently. It has taught me quite literally everything I know about ocular albinism. This fabulous post is quick to digest and lists some really helpful and practical tips about partially sighted children that you may not have considered before. 

 

The Name of the RoseThe Name of the Rose, about life with Rose, a teenager with Aspergers, is another new blog for me. This beautiful post about an amazing loving mother allowing her daughter to find her feet as a woman, whilst at the same time supporting her in the way that she needs to flourish, left a lump in my throat. It made me determined to be equally understanding of my girls’ individual needs as they become independent and spread their wings.

Jo Worgan

Jo Worgan explains perfectly why a campaign such as This Is My Child is still necessary in today’s society, with her stomach-churning post about an unspeakable bigot on a bus. I wanted to stand up on that bus and shout words of support for her when I read Ignorance is not Bliss.

 

Thoughts from the kitchen sink

 

Thoughts from the Kitchen Sink also sets straight a few myths about autism - no, it is not an excuse for naughtiness. Read My Son, Autism and Me.  

 

Steph's Two GirlsSteph’s 2 Girls explains how life is with her beautiful daughters, one of whom has a type of autism called Pathalogical Demand Avoidance (PDA), and the other who is, in her words, ‘Neuro Typical’. She describes each sibling’s different needs with love and affection. I’m sure you too will enjoy These are my Children.

 

Raising JonahRaising Jonah’s When Life Doesn’t go According to Plan is a post that will boost new parents feeling lost and desperate as they begin their SEN journey. Reprobatemum looks back on her fears for her autistic son, and a time when she felt her life was broken. Now, she says, it is mended and better than ever before.

 

Emma 4 FacsEmma4facs campaigns tirelessly to raise awareness about FACS , a developmental delay caused by Epilim, an anti-convulsant drug. Do read if you know anyone of child-bearing age taking this medication. My Children and I will explain all you need to know.

 

My Son IisacFinally, I leave you with two posts that made me smile on a cold Autumn day. The first is from father Matt Davis, who blogs at My Son Isaac. This beautiful post is about his autistic son and the gentle, loving relationship he is developing with his new baby sister. 

 

This Is My Child

And, last but not least, The Diary of the Evans-Crittens brings you This is Danny - an inspiration indeed and a lesson that leaflets, statistics and doctors aren’t always right. This post will restore your faith in human nature.

Thanks for having me! 

Hayley x

@DownsSideUp

 

Last updated: 28-Nov-2013 at 4:21 PM