The Brain Doctors BBC2

(66 Posts)
difficultpickle Wed 06-Feb-13 21:34:02

Amazing but hard viewing.

difficultpickle Wed 06-Feb-13 21:47:21

Only me watching?

Lilka Wed 06-Feb-13 21:49:52

Completely agree

It's so amazing what they can do

MousyMouse Wed 06-Feb-13 21:55:54

amazing and fascinating but also so sad!

HomeEcoGnomist Wed 06-Feb-13 21:57:42

Imagine having that responsibility. Totally puts my job into perspective...

I really hope I, or anyone I know, never have to go to NICU

The poor lady in the car crash...

ohmeohmy Wed 06-Feb-13 22:02:47

It's making me want to cry. My ds has had brain surgery twice and might well need it again in the future. Bless these amazing drs.

zookeeper Wed 06-Feb-13 22:02:58

what happened to the fireman 's wife?

difficultpickle Wed 06-Feb-13 22:04:26

Incredible responsibility but the surgeon wore it very easily. I thought the registrar (one with the glasses who spoke about being hated) was a bit of an arse. Nursing staff were brilliant. Reminded me of when ds was a newborn in paediatric NICU and not well at all. It was the nursing staff who kept me going and helped me through such a horrible time.

I had hoped they were going to update her story with something positive, but I think they left it at the point where she was being moved off ICU without any realistic prospect of further improvement. sad

keveljay Wed 06-Feb-13 22:11:39

Truly fabulous people. But don't you think this world is a##e about face when premiership footballers get paid roughly 2x these brilliant surgeons annual wages each week. I truly despair

magimedi Wed 06-Feb-13 22:46:15


Having watched that I really feel for you & your DS.

Very un - mumsnet hugs from me to you.

OpheliaBumps Wed 06-Feb-13 22:54:18

I couldn't watch it, lost my beloved sis to a brain tumour 2 years ago, she had some pretty serious surgery so this was just too much for me to watch.

ohme wishing your ds all the best and hoping he doesn't need more surgery, it's just so invasive isn't it <hug>

I watched it. They are an amazing team my DS was operated on there in november for craniosynostosis (episode on the condition coming up in a couple of weeks) I cannot praise them highly enough grin

Popes rogue grin there, sorry!

Oh ffs oops stupid auto correct

ohmeohmy Thu 07-Feb-13 08:08:55

Thank you magimedi that's very kind. Luckily he didn't have a shunt put in or we would have had many more problems. Bizarrely I often think of his neurosurgeon when if I do the hoovering!

DebbiesDoubleDees Thu 07-Feb-13 22:10:40

Amazing programme but scary stuff. Those Drs and nurses are worth their weight in gold. Truly amazing people.

lelose Fri 08-Feb-13 16:31:08

Tracey the one in the car accident went home eventually. She is in a wheelchair and can't care for herself. She can't really talk. My husband was in the show.....those doctors are amazing and all the staff for the most part at John Radcliffe! What a great place to be if you're going to super sick!!

lelose Fri 08-Feb-13 16:32:10

And no we wasn't a surgeon, he was one of the patients. It was a horrible time 9 months ago, but that's all behind us...just about! :-)

chocolatespiders Fri 08-Feb-13 16:34:00

May have to catch up with this on the Iplayer... also would like to watch the probation one.

lelose Fri 08-Feb-13 16:34:10

OOPS...we = he. Sorry!

lelose Fri 08-Feb-13 16:37:20

Here is the link if you missed the first episode.

chocolatespiders Fri 08-Feb-13 16:38:53

Thanks lelose- I hope your DH has made a good recovery smile

lelose Fri 08-Feb-13 16:43:34

Thanks Chocolatespiders. He did. We ended the show and it's a lovely ending! It was a scary time though. They said in the reviews that he had a flu-like virus. He did not. He had virus the week before that caused his immune system to get confused, which in turn made his immune system attack the white matter in his brain. It left him paralyzed and in a coma. He came out of he coma over 7 days later and was paralyzed. He went to rehab this summer and is miraculously walking with only a few major problems as a result. The auto immune disease is called ADEM (Acute Disseminated Echephalmyalitis). It's a children's disease, or more common in children, yet very rare. I would never wish it on any child! x

lelose Fri 08-Feb-13 16:45:31

My favourite part of the show was surgeon Jay for sure! He is a father of 3 and after he did the surgery on dwarf Charlie, he said to wash her hair. That was the father in him coming out. I love how he jams out to tunes on the surgery! Amazing job!

ohmeohmy Fri 08-Feb-13 17:03:47

Thanks for dropping in Lelose and pleased to hear the update. hope he continues to progress. What a lot for you to deal with.

PigeonPie Fri 08-Feb-13 17:14:34

I thought it was an amazing programme. I haven't had experience of the JR neuro department (mine was in Southampton more than 30 years ago) but I have had cause to be very grateful that the JR is our local hospital.

notyummy Sat 09-Feb-13 22:56:57

Just watched this. Amazing stuff and great work by these people that we are lucky to have.

misssunshine1983 Mon 11-Feb-13 16:29:50

I watched this programme and it really troubled me my twin had a car accident and spent time in intensive car with almost identical injuries to Tracey the Midwife - It was a miracle that my sister made a 99% recovery after 3months in a coma! If anyne has any more information on Traceys recovery I would be really interested to know, also Lelose I am so glad your husband has made a recorvery seems we are both extremly lucky! x

difficultpickle Wed 13-Feb-13 21:25:25

I thought last week's was difficult viewing but tonight's is almost too hard to watch sad

Meglet Wed 13-Feb-13 21:38:15

I thought that was a doll. It's baby Jensen.

difficultpickle Wed 13-Feb-13 21:47:12

Raj's parents have such a hard decision to make.

Meglet Wed 13-Feb-13 21:50:58

Dr Jay has balls of steel to do that job. Very good with the parents.

ggirl Wed 13-Feb-13 21:57:08

god how heartbreaking

herhonesty Wed 13-Feb-13 21:57:10

Amazing clinicians, awesome programme.

sas2013 Wed 13-Feb-13 22:00:19

Message deleted by Mumsnet for breaking our Talk Guidelines. Replies may also be deleted.

difficultpickle Wed 13-Feb-13 22:03:45

sas2013 you are of course entitled to your opinion but unless you have been in that position yourself you really don't know what decision you would make. Saying things in the abstract is pretty meaningless.

ggirl Wed 13-Feb-13 22:06:53

Lovely to see little Raj running around again!

Meglet Wed 13-Feb-13 22:11:28

The doctors looked very young for what I assume is such a specialist area of medicine. Was it 16yrs training or something?

I suppose they benefit from still having the stamina to cope with such intense surgery all day.

gwenniebee Wed 13-Feb-13 22:20:07

I didn't see last week's episode, but was very pleased to catch it tonight. I remember watching the series about cranio-facial surgery a few years ago and I think Jay was one of the surgeons featured there. They are amazing people.

sas2013 my husband and I were saying similar things watching footage of that young man, but we were also saying that when your baby is 30 weeks gestation, you have been able to feel them move inside you for weeks, they have become a real little person to you. To choose to terminate that life would be an incredibly hard decision. I'm not sure I could bring myself to do it. I agree with bisjo that you don't know how you would react until you have actually experienced it.

MsFlippingHeck Wed 13-Feb-13 22:29:39

Amazing programme. Really puts things into perspective.

Lelose I think you and your family was amazing last week. You were so warm and loving your son and Dh are v lucky.

sas2013 sadly doctors can't say with 100% certainty what level of disability a child will be born with from scans. If you thought the child you were carrying had a chance of a happy life wouldn't you find it hard to terminate. I think your 'black and white' attitude is simplistic and unkind.

difficultpickle Wed 13-Feb-13 22:31:28

Ds was born early and when he was a week old I was told that the doctors didn't expect him to live. He had a lumbar puncture and was put on a ventilator and I sat there helpless sobbing silently and praying he would survive. He didn't have to have any major operations but I had to make lots of different decisions regarding his treatment. If you had told me beforehand that was what would happen I would have said I couldn't do that and wouldn't be able to cope. It is amazing what you can do when you have to. I have no idea how I would make the decision that Raj's parents were faced with.

hazeyjane Wed 13-Feb-13 22:54:36

Sas, it is very rarely as simplistic a choice as you imply, you talk about no quality of life, but you are basing this judgement on a few snippets on a tv documentary.

PariahHairy Fri 15-Feb-13 01:39:19

Just watched the second episode of this, really brilliant prog. Raj's parent's were in such a horrible situation, so lovely to see that he at least had a chance and has use of his limbs, wonder why they didn't confirm which tumour it turned out to be, although if he was having chemo then hopefully it was the less aggressive type.

I can gather what sas's comment was, Jensens Mum already said in the programme that terminating or miscarrying a later term baby was her worst nightmare, so on balance they couldn't possibly say that her child would have an awful life, I can fully understand why she chose to continue. I would think that I would do the same tbh, not sure though never been in that situation.

Dr Jay was brilliant, also his reg I think it was, he is certainly the type to inspire confidence in his abilities.

recall Fri 15-Feb-13 03:40:17

Lelose The devotion you showed to your husband was inspiring.

Rajmum Fri 15-Feb-13 17:26:38

Hi all,
My son Raj who was in the 2nd episode and is doing well. It was a very hard decision but one I am so glad we made, because without the surgery Raj wouldn't be here now.

notyummy Fri 15-Feb-13 19:08:25

Oh rajmum I am so glad to hear that! What a dreadful decision to face. I hope he continues to do well. He is such a beautiful little boy.

Vexedbybook Fri 15-Feb-13 19:17:34

Rajmum Raj is gorgeous, I love his laugh smile I thought you and your husband were amazing the way you kept it together for Raj on his way to theatre.
I wish all the best to your family and please give Raj a big kiss!

ggirl Fri 15-Feb-13 19:21:05

Rajmum -so glad he's doing well. He came across as a lovely spirited wee boy.x

Raj was lovely - I was so happy to hear at the end of the programme that he was doing well.

Stinkyfeet Fri 15-Feb-13 19:29:26

Rajmum - I agree with other comments -Raj is just gorgeous! I don't know where he is in his treatment plan, but if you're in need of any support there's a lovely thread on here called Children with Cancer, in the Children's Health section. Lots of mums with children going through treatment for various cancers, all happy to share experiences and offer support.

I hope Raj is coping with his treatment well and things are looking positive for you all.

pooka Fri 15-Feb-13 19:36:33

I watched oth episodes on I player last night.

My mother told me I just had to and she was right.

Raj's mum - I found your composure awe inspiring. I spent much of the second programme in tears myself, imagining (and completely failing) how on earth I would cope if I had to make a similar decision re my dcs. I wish you and your family all the very best.

Lelose - loved it when they turned your dh's voice on, and the ending. Must have been terrifying for you. Amazing place and amazing staff.

I think the programme reminds me of the great Ormond street one - fascinating, awe inspiring, uplifting and desperately sad all rolled into one.

scottishmummy Fri 15-Feb-13 19:44:25

glad your wee boy raj is doing well rajmum
it is moving programme and gives overview of v hard work staff undertake
and the harrowing ups and downs parents deal with

Mrsaurtherpendragon Fri 15-Feb-13 22:07:00

Rajmum-so glad raj is doing well. Watching that episode was heart breaking, you held it together so well, me and DH watched together and were in awe of your bravery and wondering how we would cope in a situation like that. Keep us posted on how he's doing. He is a gorgeous little boy with an infectious laugh, to see him running around at the end made us smile. smile Xx

Ps sorry for essay, but sometimes as humans we really don't know how much of an impact we have on others.

Defo going now...

I couldn't bring myself to watch this yet - dh had brain surgery last year and it's still a bit raw for me.
I'm glad it was an amazing show though and really showed what amazing people the surgeons and other staff are.
I can't thank them enough for saving my dh, he is everything to me.
I only hope we never have to see them ever again.

Rajmum Sat 16-Feb-13 12:25:46

Thanks for all the comments about Raj. He is coping well with treatment, we were going through 3 cycles of chemo. Just about to start the 3rd, hoping the last one ever. Fingers crossed! X

Rajmum Sat 16-Feb-13 12:28:06

Thanks StinkyFeet I will look up the other threads. X

difficultpickle Sat 16-Feb-13 14:16:55

I'm completely in awe of how brave you were in making such an impossible decision Rajmum. Fingers crossed for a continued positive outcome. Your little boy is adorable.

So pleased to hear Raj is doing well rajmum. My son has been treated by the JR team too so I know how brilliant they are but I was in awe at how you kept everything together. Fx for his third round of chemo and I hope he continues to go from strength to strength thanks

Mrsaurtherpendragon Wed 20-Feb-13 21:14:00

Poor Cerys, hard viewing....

GrannyRatOnAScooter Wed 20-Feb-13 21:19:07

This is heartbreaking

Fivemoreminutesmummy Wed 20-Feb-13 21:22:55

That poor poor lady and her little girl. I'm in tears, how heartbreaking.

gwenniebee Wed 20-Feb-13 22:12:40

Rajmum that is so lovely to hear smile Best of luck to you and your gorgeous boy!

Tonight's episode had me in floods again... it's inspiring and encouraging watching these amazing, dedicated people at work, but, in the nicest possible way, I hope I never have to meet any of them.

difficultpickle Wed 20-Feb-13 22:34:13

It has been a fab series and really puts life in perspective.

MrsPoglesWood Fri 22-Feb-13 20:39:38

I thought it was brilliant and very informative.

But I was a little puzzled as to how the Mum of the little girl with the brain tumour wasn't adequately warned that the tumour was most likely malignant beforehand. It looked like medulloblastoma from the scan to me and I'm just a Mum who's DS had it and survived. I can't believe that the neuro docs didn't know what it most probably was and didn't tell her. We were left in no doubt.

DS's tumour was also tested by the path lab part way through his surgery and they knew 100% before the op progressed as to what they were dealing with and what they needed to do. No 3 week waiting period. This was back in 1995. I can't believe that the John Radcliffe would be that far behind.

But we did love watching Dr Jay operating and swearing like a trooper and wanting Nirvana played at full blast whilst he was carrying out the most delicate of surgeries. He came across as a very lovely bloke with the best interests of his patients at heart.

Only just watched the final episode of this last night as I found the one before so hard to watch.

Lovely to hear Raj is doing so well - his story made me cry ALOT - what a gorgeous little boy you have.

I was absolutely bawling at that little girls mums response to the news. Of course it's what you'd expect, but it was so hard to watch.

I love Doctor Jay though.

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