PAINFUL periods

(61 Posts)
mumslife Tue 15-Mar-11 20:50:46

Hi Not sure if i am posting this in the correct place. My now 14 year old daughter started her periods a year ago and prettymuch from the word go they have been havy and she has been on her period for a good seven days and she usually goes about 25 days in between.

she currently has her period day 2 and I have spent all day in a and e with her due to her being in severe pain.

after many tests including bloods, urine, ulta scan etc etc they have come to the conclusion it is severe period pains and gave her 15 ml of morphine which didnt work but made her feel spaced out/ I gave her twp dpses of neurofen which didnt touch the pain.Then pain was so bad she was panting like she was in labour and practically hyperventilating due to the pain and she was feeling sick and dizzy.

they have now given me an ibroprofane based strong pain killer and another tablets to ease the cramping which then brings on the pain.

Has anyone else experienced anything like this either themself or their daughter.

I never knew period pains could be that bad???

to add nothing showed up on any of the tests and it is not appendicitus as already been there and had her appendix out.

I can only conclude it is what they say and period pains, but I truely have never experienced or witnessed the like of it before.

Anyone anything similar

woodland Tue 15-Mar-11 21:19:25

This was my experience of periods from my first period. I'm delighted that your daughter is being given serious pain killers. No one was so compassionate with me and so in my desperation to quell the pain, I overdosed on paracetemol and ibuprofen for years. Thankfully, I don't have any obvious side-effects. Over the years, as well as the pain, I would feel so ill. Then a few years on still, the pain improved a little but the sick feeling was just as debilitating. A few people suggested that after pregnancy my body might correct itself (?) but this hasn't happened. In my third decade of periods, I can finally say that my period is not as painful but I still feel sick and can get headaches. After endometriosis was ruled out, my doctor told me I had, "period pains without a cause" and that some people just get it. It doesn't seem to be genetic, no one else in my family has it. I feel desperately sorry for your daughter and hope you can get to the bottom of it. Personally, I am beginning to take diet and nutrition very seriously. I think it's probably the best thing I've ever tried. If you're interested, I'm finding Marilyn Glenville's writing very interesting. Finally, I have also found a tens machine extremely useful and probably healthier pain killers.

Copper Tue 15-Mar-11 21:32:40

We are just about to try buscopan for the cramps - as recommended on Mumsnet. My ds says the cramps are the worst and has sufferd for years. I've got my fingers crossed tight. You can get it over the counter and apparently they use it in Germany as the first treatment for period pain.

Very hard to get anyone to take period pain seriously, even with fainting, vomiting etc. Hope the new meds work for your DD

Albrecht Tue 15-Mar-11 21:44:03

I had this type of period pain but only for the first 24 hrs. I used to take Paracetamol and Codeine (ask at Pharmacy). As long as I took it as soon as I felt a twinge and kept it up every 4 hours (even at night) it was manageable. Sounds petty but I also had to wear especially comfy trousers.

Since having ds I have had very very little pain - not suggesting this as a solution for a 14 year old mind!

Hope you find something that works for her - I used to dread the end of the month.

foxinsocks Tue 15-Mar-11 21:47:05

ha! I always recommend buscopan to people.

it used to be a firstline treatment for period pain but they don't use it as much any more.

you take it when the cramps come on - it's an antispasmodic so it stops the cramps which normally stops the pain (as the pain comes from cramping) meaning you don't have to overload your body with painkillers

as the cramps are normally only painful for 1-2 days, you don't even need to take it that long

I still carry it around with, 26 years after starting my periods (!) just in case I get very bad cramps suddenly. I find it can take 30 mins - 1 hour to work in severe cramps.

I think it's now called Buscopan IBS but you can buy it on the shelf now in places like Sainsburys and Boots etc.

Scorpette Wed 16-Mar-11 02:01:03

I have severe period pains of the type you describe that your poor DD is having. I don't have endometriosis or any of the other things that can cause them - is just tough luck sad Mine often trigger uncontrollable projectile vomiting which land me in A&E requiring powerful anti-emetics, narcotic painkillers and saline (fun times!). Happily, I am 31 weeks pg, so have had a break for a while. Many Docs say that pregnancy is the only cure - I hope so! FWIW, I've been told that when there's no obvious cause, it's just that one or more sections of the uterus are working too hard to shed that month's womb lining - painful but harmless. I only get this agony on the left.

What worked for me was, yep, Buscopan. Take them with 2 paracetamol - on the continent, women get Buscopan and paracetamol combined in the same tablet for period pains. I also swear by those stick-on hot pads you can buy (some go on the skin but most go over clothes, so a pack of granny pants comes in handy). Most times, these 3 things combined (Buscopan, paracetamol and a hot pad) don't take away all the pain but make it tolerable.

I also had acupuncture for my terrible cramps and whilst it didn't sort them out totally, it took them from 'unbearable' to simply 'bad' and made my 3-pronged approach much more efficacious.

I hope some of our suggestions work for her - good luck!

woodland Wed 16-Mar-11 07:21:43

To clarify, by 'overdose' I meant that I took a few extra tablets over the course of a day above what was recommended. It was the only way I could manage the pain. I was not habitually attempting suicide.

Regarding pain management, I agree with other posters that medicating before it becomes full blown is key. At the first hint of cramps, do something.

mumslife Wed 16-Mar-11 08:08:09

Thank you all very much. How lucky I've been I didnt realise that you could get pains like this with periods. The most I have ever had is a dull ache.

We were given Buscapan 10 mg 3xday yesterday at hospital.

I was told she can take parocetomal as wll.

She was also prescribed Mefenamic acid 5 ml 3x day which I think is ibuprofene based. I have also been putting a hot pad on it.

She is still sleeping but I think it must haave eased slightly because yesterday she couldnt even sleep at night the pain was so bad.

Thanks for the tip about stating the meds at the first signs will do so next month if the same thing happens again.

What i cant understand is she hasnt had a problem before?????

What about the contraceptive pill? Does that work? If so what one?

As she is only 14 she is a long way from having ababy lol fingers crossed. Was told yesterday though by one of the drs once she has had a baby things may change but after reading on here not so sure.

Strangely enough my daughter seemed to only get the agony on the left as well.

Rather bizarely the dr eventualy came to check her for appendicitus which incidentally is on the right but even more bizrely I had told each dr we saw that it couldnt be that as she had already had her appendix out!!!!!!

She is only 14 but was amazing, coping with the pain better than many adults would.

All she kept saying was sorry mum sorry mum bless

samoa Wed 16-Mar-11 09:01:58

I am sorry to hear that your daughter is going through so much pain.

I also have extremely painful periods. Did all the tests etc and was told that I had sever Dysmenorrhea. I tried all painkillers and even ended up in A&E because the pain was so severe. But none of the painkillers have worked. everything would basically start 2 weeks before the period, with severe PMS and confusion and then the pains, then 2 days in bed spaced out with painkillers. But as I said the painkillers never worked, they just made me feel spaced out and then I developed a serious allergy to them.

I started my period when I was 9 but the pain only came on when I was 12 years old.

The only thing I do now to help me is to take the pill non-stop in phases of 3 months so that I do not have periods. Then on my month where I stop the pill and I have my period I use TENS machine, which helps quite a lot.

It is very difficult because many people, even gyneacologists, think that you are exaggerating. It even took my mother quite a bit of time to understand the amount of pain I was in.

Having a baby has not helped with the pain. But really the TENS machine was great help for me, does not take the pain away but takes the edge of it.

NightLark Wed 16-Mar-11 09:14:11

I'm really glad your daughter is getting help.

On the flip side, I'm always astonished when people don't get / only get very mild period pains, as my experience was of vomiting & having diarrhoea, crawling to and from the bathroom and just curling up and weeping because of the amount of pain I was in every month from the age of 11. Also had heavy (7-8 day) and regular periods from the beginning. I did't get any sympathy - my mum didn't like to talk about 'women's things', so good on you for being there to help.

I was eventually prescribed something called Ponstan by my GP, and also used to take medication to stop my periods entirely when I had exams - IIRC, you could take it for 3 months at a time.

Going on the pill helped a bit, and after my first child I have been pretty much pain free (and labour wasn't that much of a shockgrin).

Think carefully before you ask about the pill. I was put on Dianette at 14 for painful periods, and took it for years..only prob is that at 19 I developed depression and have had it on and off since....drs now believe there is a link between teenage use of certain Pills and depression.
A hot water bottle or two can also help the spasms along with pain killers. Codeine pain killers are good, but they can also slow up the gut making pain sometimes worse I found. Dr prescribed me 20mg of Buscopan for the cramps as well as ibuprofen type pain killer...so if the 10 mg doesn't help her, they may be able to invcease her dose. A tens machine is also good. Period pain unfortunately for some doenst go away with one tablet, it needs a few different things used at the same time to help...tens at her back, hot water bottle at front, Buscopan, paracetamol, ibuprofen and a big hug! X

samoa Wed 16-Mar-11 09:33:06

actually i also found that Osteotherapy has helped me a lot recently. I would go for one or two sessions before starting my period and I did notice a great difference.

Scorpette Wed 16-Mar-11 12:00:48

Mumslife, be reassured that her having the pain on the left only doesn't mean there's a problem there - as I said, I've only ever had period pains on the left (and funnily enough, only had pregnancy stretching pains on the left too!), but it's only because the left hand side of my womb is more muscular/sensitive.

I also found one lying down position helpful - lay fairly flat and put your legs in the same kind of position you adopt when having a smear - feet together and let your legs flop to the side. This stretches the pelvic muscles and can force cramping ones to relax a bit.

I took the pill at 18 for a few years and it did help but it messed my general health up and made me put weight on (although that was a long time ago, so I hope/presume they've improved them now).

I feel quite lucky now, reading some of the experiences here. I only get the pains for 1 day (rarely 2) and I have light periods - which has always confused Docs, as severe cramps plus light bleeding doesn't seem logical. The 'wonders' of the human body, eh?! hmm

mumslife Wed 16-Mar-11 20:26:57

thanks again everyone some really helpful tips here.

I think we are going to go with the pain relief option and hot water bottle for now and see how we go for a few months before exploring the pill option.

I hired a tens machine when I was having her as she is also complaining about pains in her back and side I think a tens machine would be a good thing to try.

What concerns me the most is she starts her gcse in september and she cant keep missing school.

As for today this morning she was okay. I just gave her the ibuprofane and then this afternoon it started to come on stronger but not as bad as yesterday.

So started to give her the buscapan and the ibuprofene and the paracetemal spacing it out but I am not sure how much good it did to be honest. She still had a fair amount of pain and the thing that soothed it a bit was a hot water bottle.

Someone mentioned ponstan to me today so will look into that one and lots of people have been saying about the mini pill.

I will also try the smear position so thanks for that tip.

Funnily enough I said to her yesterday dont ever be worried about having a baby because the way she was describing the pains to me it was like labour pains. Have to say she was amazing though just breathing it through, I almost wanted to give her gas and air lol!!! I have to say that I feel for all of you that are having or have had such painful periods and I feel kind of quite ashamed that I never knew what some people go through and I realise now how lucky I have been.

She also keeps complaining she feels sick and dizzy and is off her foood and is unbelievably tired even today I suppose yesterday could have been the morphene. She slept from 5 last night until 9 this morning and is back in bed and sound asleep now.

Its interesting reading everyones different experiences. She started her periods a year ago and was always I felt heavy and on for at least the full seven days and goes about 23 or 24 days in between but until now she has only had a slight pain never anything like this, I just wonder if this will happen every month now?

Thanks again for all you advice much appreciated

amyamyamy Wed 16-Mar-11 20:43:41

I sympathise - also VERY painful periods when I was younger...also ending up in A and E on occasion. Labour was NO worse grin My period pains indeed got loads better after childbirth. I have since discovered that I have a bleeding disorder that affects about 1% of women:

http://en.wikipedia.org/wiki/Von_Willebrand_disease

Apparently the high level of blood loss is what can cause the uterine contractions if the blood cannot flow out quickly enough (ie with a tight cervix pre-childbirth) so if you can stem the blood flow the pain goes. This is EASILY done with a nasal spray.

Why, oh why, did that take 25 years for someone to tell me this? Answer: you need to see a haemotologist and not an obstetrician. Staggering really but a simply blood test will tell you if this is the problem. I wish more people knew about it. Do ask your GP for a referral for the test and then you might be able to dispense with the painkillers AND your daughter would be less likely to get anaemic through blood loss. Also, she could avoid a post partum haemorrhage on childbirth (how my blood disorder was finally noticed)

frazmum Thu 17-Mar-11 20:49:39

My DD suffers the same as your daughter. She is now almost 17 and at 14 had the same pain levels. Sounds like you're on some good meds - sympathetic GP makes a big difference. For the nausea we have tablets from the GP, also you can buy Ginger and Lemon syrup which is good hot or cold (good for a drink bottle for school) and stock up on whatever she is able to eat to keep her metabolism up.

Things are now a lot better, though still has the odd bad months and relies each month on the Mefenamic Acid. With the pain, watch out for fainting. Also we found we could sometimes take her in later to school so she didn't miss too much. Lots of sympathy from all the family (DH has spent hours sitting by her bed holding her hand).

amyamyamy Fri 18-Mar-11 12:07:16

Seriously, please get your daughters a blood test for Von Willebrands.......I would have had 15 years less pain had someone given me that at 14 and it is NOT uncommon and it is wildly underdiagnosed. There is nothing to lose, and all to gain. ASK your GP and they might say "oh, yes, that's a good idea." Please.

Meantime, make sure your daughter has plentiful Vitamin K as this reduces menstrual bleeding:

http://www.ctds.info/vitamink.html

I found that bananas really helped with cramping too (like tennis players use them for tennis cramp).

Avoid parsley which causes uterine contractions (some people eat it to induce childbirth).

But mainly, get that test.

mumslife Fri 18-Mar-11 13:51:12

yep she keeps complaining of feeling sick and feeling faint. I feel bad because I sent her to school today because the pain was bearable but she said she felt sick and the meds are making her so tired. I will def get the blood test done and look into vitamin k thanks everyone for all your advise.

Fell a bit like bad mum today, hope she is okay did tell her to go to the office if she felt ill but she said because so many people pretend they send you back too class, I suggested that she ask them to ring me first

mumslife

Its all too easy to be fobbed off and I write from bitter experience.

I was eventually at 31 diagnosed with endometriosis and my symptoms were extremely similar to your DDs when I was 14. Any pain that is cyclical in nature and that gets worse up to and during menses should be investigated further to see if endometriosis is present.

It is very much under diagnosed; it can take a highy experienced gynae cons to spot it in a lap type operation as such lesions are not always typical in appearance.

A & E certainly have their place but this type of issue is truly not their specialty. Your DD would be better off instead seeing a gynaecologist following on from a GP referral. Do not take no for an answer!. Something is causing this and it is in your interests to determine why.

I would certainly mention her previous appendix op to the gynae too; any type of stomach surgery can cause adhesions to arise and these sticky strands can tether organs together and cause pain.

It may be endometriosis that is the root cause here of her painful periods. Endo as well would not show up on any blood test or ultrasound scan as the endometriosis deposits are very small. It is usually only diagnosed through a keyhole surgery op called a laparoscopy.

Mefanemic acid and the like is a short term solution to a long term problem. You need to determine the CAUSE of it and not just treat the symptoms as they arise.

It is also the second most common gyane condition seen in women after fibroids so a specialist referral is needed here.

mumslife,

Your DD may well have had the vitamin K injection done at hospital when she was a newborn.

The underlying causes of endometriosis are still not fully understood.

Have the blood test done by all means but if it comes back negative for Von Willibrands then you need to start looking more closely at endometriosis here being a possible underlying cause.

She ought to at that stage see a gynae specialist as well.

hermioneweasley Sun 20-Mar-11 09:46:23

i am going to sound completely 'woo', but i had painful (though not as painful as your DD) periods, but they were incredibly heavy. Periods lasted for 10 days on a 21 day cycle so i spent half my life bleeding and cramping. GP could only suggest the pill which i wasn't keen on. eventually went for acupuncture, and the difference after one session was amazing. had it for a while and it really sorted my cycle out.

purepurple Sun 20-Mar-11 09:46:52

I had painful periods when i was a teenager and missed lots of school.
I also had a baby with no pain relief and the pain was no worse in labour than I had experienced during my periods, that's haow bad it can be.
I used to get dizzy, pass out, throw up, the lot.
It only got better when I started on the pill, but had to stop taking it after several years as my blood pressure was raised.
The painful periods returned several years ago, and I now have the mirena coil which means I don't have periods at all.
Have you considered the pill?

mumslife Sun 20-Mar-11 09:59:51

Hi
Thanks for allyour advice. She still is experiencing pain though not all the time and not as strong as it was when she went to hospitalbut strong enough for her to ask ne for the mefaranic acid.

The worrying thing is she finisher her period on Friday????? Should she still have pain now. ???

To be honest I have decided that if she still is saying she has pains by wednesday I am taking her to the gp and insisting on a referral to a gynacologist for a scan to see what is going on.

She has never had pains like this before and started her periods a year ago.

The mini pill is something we would consider but I want to check out what is happening first.

I though about endriomentrosis and also gall stones and or gall bladder though I am guessing it is related to her periods but why would she still have the pain now albeit not so bad. It woke her up this morning though it has now gone off.

Yes she did have the vitamin k injection as a baby.

Will def mention the scar tissue from the appendix as a possibility, thanks Attila, Do you post on the special needs board as well as you seem familiar ifyswim. I post on the special needs board as my son has mild aspergers.

Oh well all in a days work as a parent lol

Would suggest a pain/symptom diary is kept by her until the time she sees a gynae re this issue. You could record appearance of blood (in terms of colour/clots), record pain levels from 1-10, what was taken to alleviate pain.

Pill will alleviate symptoms if this is endo causing it but will only mask any endo if it is there. It certainly won't get rid of it.

Scan may not show anything untoward, this does not mean that endometriosis is not there however. Endometriosis deposits are not normally seen on an ultrasound scan.

Yes, am on that board too.

Do keep us updated.

mumslife Sun 20-Mar-11 18:51:08

good idea Atilla - thanks

ChishAndFips Sun 20-Mar-11 19:09:22

DD1 has very painful periods too, it was horrible to see her in so much pain, mine were never that bad nor DD2. She was told by the GP to keep a symptom chart like Attila suggests, the GP gave her one specifically for the purpose. She recorded bleeding, spotting and pain on it. She takes mefenamic acid which takes the edge off but the Pill is what really helps her. I think you are right to wait a bit before considering it though, just something to bear in mind. DD takes the pill called Yasmin, which apparently works really well for teenagers (DD is 19, has been on Pill since 16, though painful periods right from day 1 at 12 years old). She takes paracetamol too. Even with the drugs though, she would still suffer really badly without the coping strategies she has - she has timed her Pill-free week so that AF starts on a Sunday so she can spend the day in bed, she takes the mefenamic acid a few days before period starts as GP says it works by accumulating in the body, so it is working at full strength by the time period actually comes, and 20 mins before she gets out of bed in the morning.

ChishAndFips Sun 20-Mar-11 19:10:06

Meant to add, good luck and I hope you can get it all under control soon.

amyamyamy Sun 20-Mar-11 20:55:38

Going on the pill around puberty can reduce final height by 2 cm or so (and is prescribed for some girls for this express purpose) so it might be worth holding off if your DD is still growing.

I second the poster above about the Mirena Coil. A joy!!! A life blissfully free from periods and period pain. Not suitable (I guess) for a teen though.

Yes, Vit K is given to newborns (to reduce risk of haemorrhage) and it is the same action (reducing bleeding) that makes it effective for period pain if that is caused by sheer flow of blood BUT it is irrelevant whether or not your DD has the injection as a baby for this (I am lost on endometriosis), just important that she eats it NOW.

I agree you should insist on a referral to gynae (who will check for endometriosis) but also TELL them to check for the bleeding disorder as, incredibly, many don't as this is not their area.

Chishandfips

Has your DD seen a gynae to date?.

All that you have written re your DD sounds horribly familiar. Pill in my case also keeps the endo in abeyance (I have been officially diagnosed with this) .

Again she should have a blood test to see if Von Willibrands disease is present but if it comes back negative I would hazard a guess that endometriosis is likely to be the root cause of her period pains. Infact severe pain is one of endo's main symptoms and I note its been going on since she started menstruation. It seems to be certainly now affecting her day to day life as well.

She needs to also note the appearance of her period blood as this will also give the gynae clues. If her menses are brown (this is old blood), stringey like clots or clots itself this can be indicators of endo as well.

Endo as well is the second most common gynae problem seen in women after fibroids yet remains very much underdiagnosed. Another problem with endometriosis is that it is usually only diagnosed through a keyhole type op called a laparoscopy.

www.endo.org.uk is a good website.

Any symptoms that are cyclical in nature and that get worse up to and including menses should be investigated further by a gynae to see if endometriosis is the underlying cause. Such problems too are outside a GPs remit so you need a referral. GP should refer as a matter of course if this has not already been done.

Treating the symptoms is all well and good but you need to determine the cause!. I would not want other women to suffer as I did with bad period pains from the age of 14 on starting menses and taking ages to get a diagnosis.

And yes, I was diagnosed with endo at the age of 31!!.

GetOrfMoiLand Mon 21-Mar-11 08:58:07

My daughtr had hideously painful periods from the age of 12, also very heavy. The blood loss had an effect on her schooling, she fainted a lot at school and was ill for 1 week out of 4. It was vile. The mefenamic acid helped, however the best thing I did was put DD on the pill at 14, the periods went down to 2 days a month, a lot lighter and no pain. The first pill she tried (microgynon) gave her spots, so we were eventually put on Yasmin.

It is well worth a try.

ChishAndFips Mon 21-Mar-11 11:56:47

Oh no now I am worried GP has never suggested referring her to a gynae. I just thought it was painful periods but I see now that that could be an indication of endometriosis in itself. I asked her what the blood was like, she went 'MUUUU-UUUM! blush but she did say that is bright, sometimes dark, red, some clots in it, but I don't know if that is normal clots or not...I mean it's not exactly free flowing but is anyone's? My niece has endo and had surgery but DD has never suffered as bad as her, though I suppose like with any illness there will be varying levels of severity of it. I have suggested she goes to her GP (she's at uni now, far away ) but she is worried she (the GP) will just say painful periods are normal and fob her off.

Her periods used to be (pre Pill) very heavy and lasted 6-8 days, do you know if that makes it more likely to be endo? I would google but I am a bit scared to.

Chishandfips

Tell her that painful periods are not normal and she should not have to put up with it.

Your daughter must not allow herself to be fobbed off; some but not all GPs are ignorant (had one tell me that endo is not common, soon put him right however!) when it comes to endo and it is certainly in her interests to determine the underlying cause. Endometriosis can also cause heavy bleeding to arise in some cases.

She needs to see a gynae and preferably a gynae with a specialist interest in endometriosis as well.
Again do not take no for an answer!.

No googling!. However, the www.endo.org.uk website is informative.

Deliainthemaking Mon 21-Mar-11 14:40:04

Poly cystic ovaries?

my sister has this, can be in a lot of pain that time of the month

PCO would not however, cause such painful periods.

ChishAndFips Mon 21-Mar-11 19:35:37

Thank you so much Attila I will talk to her tonight and tell her what you have said. Thanks for the link, will look at that and tell her to. I suspect she has already googled it, she is a medical student so hopefully won't be too shocked by terrifying stories and will be able to find the good sites. She told me she read an article in a magazine the other day about endo and wondered about it, I am glad this thread was started now!

amyamyamy Mon 21-Mar-11 19:46:04

Please look at this too (Women Bleed Too) and remember that Gynaes are not always alert to bleeding disorders:

http://www.womenbleedtoo.org.uk/index.php?pub_content_id=3

http://www.womenbleedtoo.org.uk/index.php?pub_content_id=4

Here is a quote:

Menstrual bleeding – how heavy is too heavy?

Because bleeding disorders like VWD are mainly inherited conditions, several members of the same family may be affected. Certain symptoms, such as heavy menstrual bleeding, can therefore seem normal within a family and may not have been investigated before.
Because every woman is different, there is no definitive model of a “normal” period. Statistically, the average blood loss from a single menstrual period is 30 - 40ml. Blood loss of 80ml or above is considered heavy.

Heavy periods can be very difficult to measure but there is a tool used by doctors called the Pictorial Bleeding Checklist. By completing this chart over the course of your period and adding up your score, you can assess whether or not your periods may be classed as heavy. Please note this tool is only a guide and if you are experiencing problems with your periods you should always consult your GP.

ChishAndFips Mon 21-Mar-11 20:04:42

Thank you amy have passed it on to DD.

Deliainthemaking Mon 21-Mar-11 23:48:20

It can cause sever pain in periods my sister has had to go to A&e sometimes to be put ion morphine, but shes very severe.

razors Mon 21-Mar-11 23:56:53

Another advocate for the PILL from me too. My PP were frightful - vomiting, fainting awful awful pains. I was missing lots of time from school and coming up to exam time had to do something. I went on the pill and never looked back! It gave me my life back. Every month I had pain, heavy periods left me tired out and miserable. Look in to it - it was the only thing that helped me and I had been on loads of different painkillers from my GP.

mumslife Tue 22-Mar-11 07:37:00

Some excellent advice here. I have PCOS BUT HAVE NEVER HAD PAINFUL PERIODS????

The good news here is the tummy ache has now gone finally bu I will def be keeping a symptoms diary and will see what next month brings and take it from there.

Just as a thought she also has incredibly bad headaches for the whole week before her period, anyone else had this?

OrangeBernard Tue 22-Mar-11 07:44:10

I suffered for years then when I went on the pill that sorted everything out and changed my.life. make sure she's on multi vitamins and iron.

purepurple Tue 22-Mar-11 07:45:55

Yes, I had headaches too before my periods, almost like migraines. I also got them when I was pregnant and suffered from hyperemesis too, both pregnancies.
It could all be hormone related.

mumslife Tue 22-Mar-11 21:54:06

yep hers are like migranes too. They start off slight and get worst and worst throughout the day. The dr reckoned that they are stress related but she seems to get them the week beofr eher period so I dont think so. She has also been tested for anemia but it has come back clear but my friend who is a sister reckons although they say clear sometimes its only just on the score of normal ifyswim

EpEm Fri 25-Mar-11 22:55:19

This sounds similar to my experience and I have some things you might want to consider:

- For me buscopan/paracetamol+codeine did help, but only to a certain extent. The thing that really made the difference was the contraceptive pill, which I was prescribed at 15 (Dianette in the end but had to go through a good few others first to get the progesterone/oestrogen balance right). My doctor also tried me on Metformin which personally didn't have any effect but has been known to help with these symtoms

- try and get a referral for an endocrinologist (hormone specialist) rather than a gynae. This could just be the result of personal experience but it was only when I began seeing an endocrinologist that I was diagnosed with PCOS - polycystic ovary syndrome, which can result in painful periods among other things. An endocrinologist will also be able to give advice in the long term when it comes to things like pregnancy hormones.

- have a test for PCOS. If your daughter is a virgin they can be done through the stomach in a similar way to pregnancy scans so are minimally invasive and can result in a diagnosis. When I spoke to my friends at school about periods none of them seemed to be having such a hard time of it, which can lead to a lot of insecurity issues and having a concrete, labelled diagnosis can relieve the pressure of conformity.

- I would recommend trying acupuncture. Depends how you feel about the whole alternative scene, but for me it has been a bit of a miracle cure.

bellaella16 Sat 26-Mar-11 23:59:51

I had the same experience all my life since starting. It was sometimes made worse as I was met with disbelief from some friends and various GP's who thought it was 'just period pains' and I was making a fuss. I fainted many times with the pain, could not walk, threw up and had to write off at least 3 days a month staying in bed for at least 2. It was also NOT related to heavy periods, the two don't always go together as assumed and this was another reason it wasn't taken seriously. Also the pains did not stop when I had a child, another myth in my case.

The pains were similar to initial labour pains, I was so used to this level of pain that my midwife told me I could not be in labour the morning I gave birth as 'I would be in more pain'. Please be aware that it can come and go, and when its this bad exercise doesn't help at all, would just make it worse if she could move.

bellaella16 Sun 27-Mar-11 00:01:04

oh and yes the pill was the only thing that helped

avsbavs Sat 14-May-11 14:45:25

i suffered from pains like this occasionally. when i started, the first two days were excruciatingly painful and occasionally time in bed and missing school. this continued for two years every three weeks for 7 days. in my third year the pain eased off almost instantly, i still get cramps worse than my friends but nothing in comparision. feminax is amazing and specifically for cramps so give it a go. otherwise i dont no what advise to give apart from do alot of exercise and grip and bear it for another year :/

hope this helps

foxinsocks Sat 14-May-11 14:53:32

You need to take the buscopan at the first sign of the first cramp. I definitely find them less effective the later I take them.

Yes I ended up on the pill at 14 too because of dreadfully painful periods. Was the only thing that worked. Problem now is that nearing 40, I still cannot manage without it (still have ludicrously painful and heavy periods - in fact they have got worse with age).

One thing I will say, though it will be no consolation to your dds at their age, was that 9 months of pregnancy was a god send (no periods) and although labour was painful, having suffered excruciating pain month after month with horrid periods, it put it all in perspective!

CatAndFiddle Sat 14-May-11 15:16:18

Hi mumslife. Your daughter sounds just like I did when I was her age. My extremely heavy and EXTREMELY painful periods started when I was 13. When I was 15, during a very very heavy period which had been going on for about 8 days, I collapsed and spent several days in intensive care. I was given a blood transfusion and some huge tablets which would stop the uterine contractions. All tests came back clear, and heavy/painful periods were the only identifiable cause. I was put on the pill and left to it. 11 years later, I came off the pill to TTC, and my 'true' periods returned with a vengance. (I also now have violent episodes of vomiting too, just to top it off). I also find mefenamic acid works well (PONSTAN is just a trade name for this, by the way), but is definitely best if you can start taking it a couple of days before the pains are due.

As I am having trouble TTC, I have had the full battery of tests again in the past couple of years....and again everything has been ruled out (including endometriosis). I am sorry your daughter is going through this, it can be so dreadful. I know others have raised concerns, but personally, if I wasn't trying TTC, I would be back on the pill ASAP.

myfriendflicka Sat 14-May-11 19:14:32

Just come to back up amyamyamy re von willebrand disorder. I was diagnosed with this in my late thirties in between my two children and my daughter also has it.

It can cause a lot of suffering if not diagnosed because of problems with periods and other bleeding issues, including surgery and giving birth. Once you are diagnosed it can be treated with drugs (tranexamic acid and DDAVP).

It is common, 1 percent of women suffer from it and GPs really should be much more aware than they are. I had never heard of it before I was diagnosed and in spite of many bleeding issues over the years it was never flagged up by doctors until I was nearly 40!

virginiasmonalogue Sat 14-May-11 19:21:13

I can empathise with your daughter. From the age of 15 I had severe pain and passed heavy clots and thick blood for about 4 days then about 2 more days of lighter bleeding. On a few occasions I vomited through sheer pain and a couple of times passed out in the shopping centre when my unsympathetic mother forced me to leave the house.

The pains I felt were on a par to the start of full on labour.

The doctor gave me Mefanamic (sp?) acid which on the odd occasion helped, though if I didn't take it before the pain started, it had no effect.

At 18 I went on the pill Dianette... what a relief. It changed my life (and cleared my acne too!).

| hope you find something to ease your daughters suffering.

Mrsfluff Sat 14-May-11 21:49:26

You have my every sympathy Mumslife - my daughter is going through similar. Se started hers in September, 2 mths after her 10th birthday and from day 1 they have been regular, heavy and very painful. She has been sent home from school numerous times as she often feels sick, faint and dizzy. She has been on something to reduce the flow since Jan, but it's not made much difference. She's now been prescribed Mefanamic for the pain & flow. Dr has also asked to see her again after her next period, so seems to be taking it all seriously. I just hope things are sorted for September, as I don't want her to be suffering like this when she starts senior school.

Deaddei Sun 15-May-11 10:06:31

Interesting thread. DD who is 14, started last July and has had progressively heavier painful periods, and frequent.
She has OCD and it gets worse just before her period.
We are going to the dr this week having discussed the pill...dr feels it's the best move and will at least give her some quality of life.

foxinsocks Sun 15-May-11 10:35:44

It gave me back my life deadei. I am absolutely dreading going off it. I still remember the name of the doctor who put me on it - at the time, it felt like he had saved my life.

Deaddei Sun 15-May-11 17:08:20

I am on HRT which makes me human.

twistnshout72 Fri 17-Jun-11 02:20:41

I had very painful, heavy periods, right from the start (involving a couple of hours of vomiting in the nurse's office at school) and didn't see a doctor until I was around 14 (three years later). The GP was very unsympathetic (one later suggested I was exaggerating the pain to get the pill for contraceptive purposes) but I was prescribed Mefenamic acid and codeine to alternate. I found these relatively unhelpful, and the nausea, vomiting, dizziness and pain did not even dissipate mildly. When this started affecting my work at 15, and my sleep as I ended taking hot baths - the only thing that worked - in the early hours of the morning, I went back to the doctor and was put on the pill, Microgynon, which from discussing with friends, seems to be the most common first type. This really helped with the period pain, making it lighter and much less painful, which in turn helped with the other problems. I have since changed to Yasmin, which suits me better, but I have generally found the pill to be very effective for treating my very similar period pain and I'm not sure I could ever be persuaded off it!

mumslife Sat 18-Jun-11 22:07:37

hi all

just poping on to say not much has changed regarding my daughter and her periods. The thing that worksbest is heat and laying out flat, impossible if you are at school. She now wears heat pads to school which works out mega expensive and takes co - codamel when it is quite bad which takes the edge off the pain.
when it is at its worse days 1-4 of her period the chool regularly ring me to fetch her home as she is gasping with pain. In fact I speak regularly to the lady in the medical room!!!
I would say there is probably about three days out of her whole monthly cycle when she is reasonably well. the rest of the days she is either in pain (on those days she copes with the heatpad) or in extreme pain and she has to miss school.

She has her appointment with a gnaecologist in two weeks so will update then.
Sorry for all those of you who are suffering or your daughters are suffering - there is a name for it - DSYMENORRHEA - which I found out by googling. It can be primary ie no reason for it or secondary ie something is causing it like for example endementrosis

mumslife,

I winced when I read your recent post re your DD; the same happened to me as a teen. In my case the underlying cause of all these agonies was endometriosis. This is a very much underdiagnosed disease.

Can you not ask the GP to refer your DD to a gynae?. Your DD should not have to put up with this every time.

I would put money on it that her painful periods has a cause; one possible one here is indeed endometriosis.

Great news re your DD seeing a gynae in two weeks (missed that bit, sorry).

I would ask this person straight out whether he feels that endo is a possible cause for her agonies.

TheProvincialLady Tue 21-Jun-11 14:27:29

I am so full of sympathy for your DD. I suffered in exactly the same way but my mum was unable to empathise as she never suffered from painful periods and thought I was making a fuss about nothinghmm Now she is going through the menopause she is getting period pain and has apologised to me for not having ever really understood. Your DD is lucky to have you.

What is your DD's weight like? I suffered very badly until my weight finally reached 7.5 stones (I am 5'2") in my mid 30s, at which point my periods got a lot better. Several people have told me that there is a link between low weight/body fat and period troubles.

Some of the things that helped me through those times were very hot - almost scalding - baths with lavender essential oil in. And massages using lavender oil. There are several oils that are recommended for period pains but that is the one that helped me the most. The massage technique came from a book - I am happy to photcopy it for you if you would like to try it. DH used to do it for me and it made a big difference (on top of the painkillers etc). And finally, paying attention to diet - avoiding caffeine, especially around the time of my period, and eating and drinking hot things during my period instead of cold ones. I am not at all a woo person but these things genuinely helped me.

Childbirth has cured me and getting fatter praise the skies! It truly is a curse. I hope you get sensible answers soon.

dionkelly Thu 28-Feb-13 11:22:51

my daughter suffers really bad with period pain . I have taken her 2 my gp and she has put her on Mefenamic acid 250mg but the pain is still really bad she is 14 and started her periods when she was 12 .Each month the pain is getting worse . she has to have time off school each month but the teachers do not like this i dont know how to help her any more can any one help me please thankyou

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