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Am I over thinking this ?

9 replies

WorriedSM · 30/01/2012 11:36

I?m apologising in advance if this is going to be long ? But I prefer putting in as much information as possible!

I'm getting increasingly worried about my resident DSD11. I've been in her life since she was 5 and I had DD1 at the time so I had only infant experience as a parent and I wonder if I didn't completely missed the boat. Now, before I approach my DH and share my worries- I?d like some opinions. I love the girl to bits and would never forgive myself if we missed something and didn?t get her appropriate support.

Up until the end of primary school- I must say things were okay but never easy. She?d get along better with boys, didn?t master handwriting (to a standard neat level) until year 6 and would struggle with change. She had difficulty maintaining 1 friendship that meant a lot to her but sadly since her friend was put into another form group, it quickly faded.

She has been increasingly unhappy, grumpy & withdrawn since starting secondary school last September. I?ve always seen her as a creative, quirky and unique girl. She can also be quite challenging but it is only now that I am starting to put some of her behaviour together and wonder if we missed anything. I?ve started to notice more things as my DD8 is growing and becoming more independent.

She is a lovely girl - Loving with us, funny, sensible ( in terms of keeping herself safe, crossing roads on her own, understand what is wrong and right etc ) Amazingly talented artist, she draws beautiful pictures and portraits.

I?ll do a quick list of things that have been on my mind recently-

  • Obsessions- MI High, Tracy Beaker and will only play with her sisters if they are re-enacting episodes. With MI High it reached a peak last year, when she would only talk about spies and being a secret agent. This has gone quieter but she still carries her MI Book and Annual to bed with her each night.

  • Dolls-Always loved dolls. She?s obsessed with baby dolls and always wants us to buy her more ( she has about 10 already) Not really playing as such with them but dressing, undressing, changing and walking around with them. She still actively does that every day and needs to change her dolls before bed every night. It is the same with her Build a Bear. She has 6 of them and will dress them as well in the same ritual- she will get upset if a piece is missing.

  • She will spend ages setting up a game (ie dolls) but not play it. Will be very rigid in terms of what they have to wear and the situation. This provokes massive rows with her sisters when they are all playing together because if they don?t follow ??her script?? she gets really upset.

  • Avoiding eye contact when we talk or doing something else when we talk

  • She can come across as rude when she speaks to you but I don?t think she means it. She will just blurt out answers. She will not see how her demeanour and her way of talking to you is rude. She doesn?t see it like that.

  • Clothes- She is very picky with them and tends to wear the same thing day after day. This will lead to arguments when we want to wash the said clothes. We have struggled with School Uniform, especially this year, she gets upset if one shirt is dirty and has to wear another. It can take up to 45 minutes just to get dressed to come downstairs for breakfast. ( I?ve noticed this recently as DD8 gets dressed and is down in 10 minutes ) . For every day clothing she still favours boys? clothes or sports clothes as she finds them comfortable.

  • Once she is good at one thing, she will repeat it over and over. She has formidable talents for portraits, but tends to draw the same (imaginary brother) character over and over. In a sketch book of 25 pages, you will find 15 to 20 of the same subject. Other than that it will be the stuff she?s obsessed with, Characters from MI High and Tracy Beaker. This is becoming a problem in Art Lessons.

  • She says she always feels like the odd one out. She finds it hard to deal with girls her own age.

  • Getting organised for school and lessons is a real challenge. We have tried working with her school and organising a timetable for her homework but she will not do it independently. We have to supervise and make sure she actually does the work because she can get distracted so easily.

    Sorry about the novel and if you?ve made it this far- thank you.
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WorriedSM · 30/01/2012 11:43

Very sorry about all the ??? Confused

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TheLightPassenger · 30/01/2012 12:59

I'ld post this on the main SN:Children board, as it's a lot busier. Obviously noone would want to diagnose over the internet, but I can completely understand your concerns, it sounds like she may be having difficulties with the transition to high school. Could you chat to the class teacher/senco as first stage - they may run social skills type lunchtime groups that might help her. And you might also want to look for a paediatrician referral if you have concerns - I am guessing that you might be concerned about Aspergers Syndrome?

Transition to high school can be a difficult time for children with language/social problems who managed more or less OK in primary, as the work and environment place higher demands.

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WorriedSM · 30/01/2012 13:15

Thank you TLP- Yes- This is what I was thinking about. I'll repost in Children.

I'm looking for opinions of parents who would have more experience than I do on this subject.

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WorriedSM · 30/01/2012 13:24

Have reposted here

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cornishsue · 30/01/2012 23:09

Hi Worried!

All I can say is almost all of these routines and 'obsessions', plus the lack of eye contact and disorganisation, is very similar to two of my children within the autism spectrum - particularly aspergers or mild autism. One of my children could manage perfectly well in primary school, but it was only after transferring to senior school that it became clear there was a problem. And I have to say that those problems were just as you described. Of course other conditions in the autism spectrum overlap in terms of signs and symptoms, or maybe it is none of these.

However I agree the school should be your first port of call, to see if they have concerns. But I would recommend not JUST going through the educational system but also have a chat with a friendly GP who could possibly refer to a specialist. I know so well how the senior school years pass in a flash, so it would be good to put any help in place as soon as is possible.

Good luck - what a lovely SM you are!

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WorriedSM · 31/01/2012 09:47

Hi Cornish- Thank you very much for posting. This is my view too- Y7 would be ideal to work on any issue she may have as I don't want to to be miserable for the next 7 years!

I have had a chat with DH last night- Not an easy one because mainly he's in denial - he can recognise these traits and says we have to help her manage but doesn't really want to see that there might be an underlying reason for all of them.

However, I was able to get accross to him when I mentioned I was very worried about her stress levels and that we need to address any issues- whatever they may be. I've requested a meeting with her Head of Year next week to discuss.

I've ordered her stretch cotton school shirts yesterday and see if that helps her. She does get herself very wound up when she gets ready for school, poor love.

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cornishsue · 31/01/2012 12:17

Hi Worried,

That's good news - please let us know how the meeting with the Head of Year goes. I hope it goes well - with 5 children I have faced both excellent and useless Heads (if yours is in the useless catageory, do take it further!).

I know it is politically correct not to have labels on children and I guess the thought of an autism/aspbergers/dyspraxia one is partically worrying for your DH. But in my experience it has been so useful to have that label, otherwise you cannot get the help your child so needs and deserves. I have 2 adopted boys with varying special needs. One son was diagnosed with autism and able to get help throughout his school years, and also able to get help and support as a young adult. Another son whose needs were far more severe did not have a definite diagnosis. It was classed as a bague 'learning difficulties'. He was not able to get as much help, either during his years as school or afterwards. He missed out on so much because we could not place a tick in the box. Now as an adult he finds life particually difficult as he cannot fit into the world society demands. Thankfully we pushed and he has now been diagnosed (and have label) of autism, and can now assess all the help he had previously missed out on. It has completely changed everything. So please tell your DH not to be overwhelmed because honestly, in my experience, a definite diagnosis would benefit your daughter enormously.

I'm in no way an expert, but if I can help in any way, please do contact me. You are so right when you say about your DSD's stress levels, although the most valuable thing to help is your understanding. I have learnt when my sons are unable to see the same world as we do, we have to step inside theirs...though you already seem to be able to do that.

Your DSD sounds so lovely, and as I was telling one of my son's yesterday, he also has great gifts and talents - as your DSD has in her artistic pursuits.

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WorriedSM · 06/02/2012 10:34

DH finally started to accept that there might be something more than quirkiness under all this.

DSD's friends's mum came in for a coffee Saturday when picking her up and we discussed how the girls were doing when she told us that DSD's friend has recently been diagnosed with AS.

As we talked about it further and asked questions, you could see DH was taking it all in and starting to tick boxes in his head. I couldn't help myself and read a few articles about AS and Girls and I have to say she seems to present an awful lot of the traits. I also wondered, is there a possibility that an AS girl get along better with another AS girl ?

We had a very good meeting this with DSD's Head of Year. We have voiced our concerns ( mainly about stress levels and anxiety) and asked for an assessment and she agreed it was the best way forward. We discussed about the referral to CAMHS and whether it would be quicker via the school or the GP. They will get back to me on that today.

So here we are now, on the road to diagnosis.

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TheLightPassenger · 06/02/2012 10:58

glad that school are being supportive and you are getting somewhere. In answer to your question - yes a boy or girl with AS is likely to find it easier to get on with someone with AS or AS traits or sometimes slightly different in another way - e.g recent immigrant.

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