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Living with Autism

(4 Posts)
A2ndVoice Sat 15-Sep-12 09:57:08

Do you feel that not enough is being done for children and adults on the autistic spectrum? My son is 9 years old, but the challenges I find is that when it comes to being in the public, his behaviour is seen as naughty and I am a bad parent. His sisters are fine, but for him. His sensories is a problem, that causes total confusion and misunderstanding. Does your family and friends give support and understand your child or adults.. Hidden condition?

GoldPedanticPanda Sat 15-Sep-12 22:45:52

No I have no family support, infact my family don't believe it despite a dx from CAMHS and numerous letters from paed, HT, EP, all agreeing. My ex was the icing on the cake though, he reported me to SS saying I had munchausen by proxi syndrome for even suggesting my son was on the spectrum - even though his brother is severely autistic and his cousin is also on the spectrum, so autism is quite prevalent on his side!

redwhiteandblueeyedsusan Wed 19-Sep-12 22:54:16

h thinks it is a load of rubbish himself. he can not see ds's behaviours... probably because he does not live here anymore. he has not gone sos far as to suggest munchausens though shock

we are going through the diagnostic process, he got the hump because I did not let him help fill in the cars form... he can not see anything wrong so would have ticked no problem... despite having to go back to the kitchen to fill ds's bowl to the correct level of milk, or juice. it ould be less lonely if he could see a problem and suppot the process

I am worried that the school think there is not a problem because ds is not overtly badly behaved at school, but he is withdrawn and does not communicate his needs. (speech therapist observation)

I have to take him to the supermarket sometimes. it can be a nightmare.

DrCoconut Sat 13-Apr-13 20:06:28

DS1 is 14 and we are on the verge of a diagnosis from CAMHS. Finally everything makes sense and I can stop blaming myself. Part of me is relieved because despite it being a disability we now have a reason for his odd behaviour and can hopefully explain it rather than face judgement over it.

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