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Our SN area is not a substitute for expert advice. While many Mumsnetters have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help - some suggestions are listed here. If you've come across an organisation that you've found helpful, please tell us. Go to Special needs chat, Parents with disabilities, SN teens, SN legal, SN education, SN children.

Parents need to live Forever

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VK3QQ Mon 27-Feb-12 21:38:08

One of the major problems for parents of an adult family member with an intellectual disability (learning disability) here in Australia, is departing this world, or being too old to continue providing 24/7 care in the family home, and leaving their very vulnerable son or daughter to an uncertain future - The potential for questionable quality and level of care, especially quality of life care.

Most care services here are 'charity based hand-out', rather than ‘entitlement’, and provided mainly by government direct service, or government funded group home supported accommodation, or similar.

We are interested to know if UK parents feel comfortable about similar care services operated/organised by UK local authorities, and such organisations as MENCAP, NAS, etc, etc.

Just how easy is it for UK aging parents to get support services for their adult family member, and are these services an entitlement in a similar way to medical and dental services are an entitlement under the NHS.

Heather & Tony Tregale
Melbourne, Australia

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