Threads in this topic are removed from the site 90 days after the thread was started. Our SN area is not a substitute for expert advice. Here some suggested organisations that offer expert advice on SN.

What do you do when your child needs SEN school and none will take him?

(26 Posts)
BluebellBean Thu 31-Jul-14 20:29:52

Ds2 has extremely rare chromosome disorder. All the schools seem to look after kids in a certain "category" - autism, severe LD etc. Ds2 doesn't fall into any of them.

School after school have said they can't meet his needs. I've looked within a one hour radius of home.

He's only 5 and I'm all upset cos I feel like nobody wants him (I know, I know)

At a loss. Casework officer says I may need to have him taught at home. I'm a working single mother. WTF?

PolterGoose Thu 31-Jul-14 20:39:51

What are the effects of his condition Bluebell? There are lots of posters on these boards with children in special schools, with a wide range of disabilities, who might be able to help if they know a bit about him.

BluebellBean Thu 31-Jul-14 21:21:24

He has an extremely rare chromosome condition and displays autistic-type traits and difficulties in the areas of behaviour and attention. He does not have a diagnosis of Autism but that he responds to those approaches . i.e. multi-sensory experiences, visual resources, low stimulus environment etc. He has developmental delay, difficulties with social communication skills and behaviour difficulties.

He's very verbal and physically able.

BluebellBean Thu 31-Jul-14 21:21:59

Thanks for the reply Poltergoose

Piratejones Thu 31-Jul-14 21:25:30

Out of curiosity why can't an autism centred school take him?

PolterGoose Thu 31-Jul-14 21:26:55

Ok, so I'm surmising that although a school for kids with autism probably has the best chance of meeting his needs they won't take him as he doesn't have an autism diagnosis?

Does he have learning difficulties/disability?

Sounds really hard. Have you spoken to IPSEA for advice?

BloodyNaffedOff Thu 31-Jul-14 21:27:00

Hey Bluebell smile If a school can include a child with autism I'm not sure why they can't accommodate your ds? I thought a school had to accept a pupil if they had room, you caseworker sounds a bit rubbish tbh.

I hope someone with more experience can come along and help you xx

BluebellBean Thu 31-Jul-14 21:28:05

The autism based schools are saying no because (a) he doesn't have a Dx and (b) he is verbal at NT level

BluebellBean Thu 31-Jul-14 21:28:48

Haven't spoken to ipsea as thought they were just there for the legal side-used them when he kept getting excluded from mainstream.

BluebellBean Thu 31-Jul-14 21:30:04

Thanks bloodynaffedoff - it's a living nightmare. Poor boy

ouryve Thu 31-Jul-14 21:31:59

Would he be capable of mainstream with support, or is too much of a sensory assault on him?

I'm assuming he has a statement? If not, then you need to get onto the pathway (whatever it's called this week) for a EHCP. Since he doesn't fit into a neat diagnostic pigeon hole, this would outline his actual needs and how these needs must be met. If that meant x street special school, 3 miles away, then x special school would have to provide a pretty concrete reason why they couldn't meet his needs or find a space for him.

ouryve Thu 31-Jul-14 21:37:21

x-posted - that's the reason for mainstream being a no go, then.

Both of the local special schools would take a child with his profile. One I wouldn't touch with a bargepole, but the other had classes for kids with ASD who did have LD and/or language disorder as well as general classes, which appeared to be aimed at MLD, with extra support for children who were more able or had it specified in their statement.

What sort of things was he excluded for? I'm guessing that whatever it was indicated that his needs weren't met in some way.

BluebellBean Thu 31-Jul-14 21:37:52

Hi ouryve

His statement is being finalised as we speak. It simple states "special school". He also has a ECHP as we were on pilot school for our area.

MS is too much. He really can't cope. Has lots of support and struggled massively. I'm so frustrated. Caseworker keeps pushing for being taught at home - he's 5! He's so sociable. He needs friends not isolation. And I'd have to give up work.

BluebellBean Thu 31-Jul-14 21:40:18

He was decided for hurting staff. He's obsessed with electric (sigh) and they pointed out new lights then wouldn't let him near them. He kicked off and bit. Unfortunately when he's very anxious and upset, he gets violent. He very rarely cries even when hurt. It's like he doesn't know how to deal with pain - just gets angry

BluebellBean Thu 31-Jul-14 21:40:42

Excluded - not decided!

BloodyNaffedOff Thu 31-Jul-14 23:00:26

My ds go to a huge primary school with a special needs department, they have lots of kids who access the mainstream part of the school for part of the day and then other part the rest .. It works well and your ds sounds like lots of the children there

magso Thu 31-Jul-14 23:24:10

Well if none of the local authority schools are suitable, you may need to look at getting them to find somewhere independent that can meet his needs (ie ask the LA to pay for a place at an independent specialist school). That might get the LA to sit up and be a bit more helpful!
Our son (who has ASD with ADHD and LD) was turned down from the special school we thought would be most suitable for his needs and I felt the same as you and feared I would have to home ed - something I knew I could not survive - but the school fortunately accepted him in the end. I think extra resources were put in place. (Turning him down was their way of getting those extra resources). Ds could be rather feral when panicked and very confused and upset, but settled somewhat once in a specialist setting that understood his needs. I appreciate that it is harder to find the right setting for an academically able child with differing needs to most children. By the way ds ASD was diagnosed after his statement but the school he eventually got a place in was almost exclusively ASD with LD ( but not designated as ASD), but it was the best match.

BigBird69 Fri 01-Aug-14 11:37:51

Have you viewed any schools and discussed or have they just said no based on paper? The LEA have to meet his needs by law and if you don't feel that him being home educated does that you have the parental right to say no. It may well be their cheaper option which is why they're pushing it! There must be a school that has the experience to deal with his needs. A friend of mine has an AS son with very high IQ, excellent academic ability but very severe social and sensory issues, he attends a generic special school where he is supported really well but she had to find it, the local authority made no effort.

tiredgranny Fri 01-Aug-14 15:10:09

out of interest what area you in as I notice you already have ehcp in place not many doing till sept

MeirEyaNewAlibi Mon 04-Aug-14 20:50:51

If he has all the same issues as a dc with ASD, needs what a dc with ASD gets, has a chromosome disorder which gives ASD-type symptoms, I would wonder why he couldn't have an ASD diagnosis along with his more formal genetic-disorder description.

If lack of an ASD diagnosis is the one thing stopping him having an otherwise suitable special school place, I would go back to the paediatrician, point this out in no uncertain terms, and refuse to leave their office until they agree to do a formal autism diagnostic assessment. In the very near future.

At the same time, no harm in contacting IPSEA, SOS-SEN or even the NAS educational helpline. They see 'oh, sorry, but it's slightly the wrong label to expect any help round here, get lost' cases all the time.

In my own (admittedly cynical and probably biased) view, it's why so many of us have ended up at tribunal appealing the blinking obvious.

MeirEyaNewAlibi Mon 04-Aug-14 21:16:11

Some potential issues with the new system
and more

However, for any requests for statement made before 1 Sept 2014 (ie now) the old law applies. It works like this

As far as I can see (the helplines at IPSEA SOSSEN & NAS will know for sure) even if a pilot EHCP is already written, until & unless it's re-issued after 1 September, it's a non-statutory advice document only- there's no legal obligation do do what it says. Which isn't very reassuring

tiredgranny Mon 04-Aug-14 21:59:20

our local authority is a pathfinder for ehcp. while waiting for it to b processed our co-ordinator got him emergency placement at special school.

the school did own assessment and said the school was suitable which helped with echp

he now has a permanent place at the school and will be reviewed yearly.

he has no diagnosis the community paediatric Dr is crap, but school have their own Dr's

BluebellBean Tue 19-Aug-14 09:41:54

Thanks for all the replies. Statement now finalised together with ECHP (although agree that's not official atm). Parent Partnership from council now involved and are being very helpful. Have suggested three schools out of area that are MS but with enhanced provision for behaviour/communication. No idea yet if they will be suitable but at least they're being proactive. Plan to visit ASAP once they reopen, plus a SEN school I've found which is 30 mins away that's generic.

Short term plan is that he's going to have a teacher come to our home to teach him - his dad will arrange yep days off in the week so I can go to work but I will still have to drop a day's work every week until this is sorted.

I'm hoping my employers will be supportive....they don't know yet.

Have issues with childcare now too. Mum has said she can't cope with him. Sis has her own illness and a baby so can't help. His paternal family do nothing. I'm ringing work shortly to give them the good news. Hard times.

Flappingandflying Wed 20-Aug-14 09:17:58

If you are anywhere within striking distance of Chessington, then Linden Bridge School would meet his needs. I think you are going to have to look at indie ss. Mention that to the LEA and you might find a place suddenly comes available....

Icimoi Sat 23-Aug-14 17:45:43

The LA is not entitled to assume that you will make your home available. They have a duty to arrange to provide full time education and, once he has a statement, they have a duty to ensure he gets all the help set out in the statement. If they can't sort out a school place, then they need to arrange tuition somewhere else, e.g in a library, but that can only be short term. Contact SOS SEN as soon as their helplines reopen.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now