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Is Irlen syndrome a widely recognised condition, or is it something a paed would raise their eyebrow at?

(12 Posts)
WaveorCheer Fri 11-Apr-14 20:11:13

Just wondering whether to mention that my DSis is considering being tested for this at DS1's paed appt next week. She fits a lot of the description and has used coloured lenses for several years. DS is being assessed for an ASD.

Also, I strongly suspect that I would have fit the criteria for some kind of dx had I been going through the school system now. Quite what, I'm not sure but I have some processing difficulties (can't follow any sequence of steps - a dance, a recipe, setting up my work laptop - without constant reference to instructions being the main one). Is it worth mentioning this?

MariaNearlyEaster Fri 11-Apr-14 23:03:53

Eyebrows if you call it a syndrome. Polite shrug or mild approval if you say 'the optician found that slightly tinted lenses made reading more comfortable for him'

WaveorCheer Sat 12-Apr-14 14:36:39

I thought as much. What about people on here, do you know?

Nennypops Sat 12-Apr-14 18:12:02

So far as I know it's pretty widely recognised, particularly in relation to children with dyslexia.

zzzzz Sat 12-Apr-14 20:29:27

Visual processing disorders are surely as likely as auditory processing problems?

Certainly for us irlens lenses helped but didn't cure.

WaveorCheer Sat 12-Apr-14 20:47:51

Oh zzzzz I completely agree, but I wasn't sure if it was a mainstream diagnosis or not. DS has a huge visual 'thing' (technical term) going on - arm spinning, looking out the corner of his eye, love of fans and trains, running alongside walls and fences etc.

All this stuff is connected, isn't it. Even my migraines - what's an extreme whole system pain response to certain smells, visual triggers, foods but a processing disorder?

zzzzz Sat 12-Apr-14 21:39:36

For ds2 it is more about glare (I think) and colour contrast. He is colour blind so that adds to the mix. I think he has tracking problems too.

To be honest we are just trudging on and he is making steady progress. It's a bit heart breaking to see how hard he has to work, but he is a brave little boy so I think he has a good chance.

dolfrog Sun 13-Apr-14 16:03:25

Irlen syndrome is better known in research terms as Scotopic Sensitivity Syndrome which can be part of visual processing issues.

We have included a few links to Irlen information on the APDUK "Auditory and Visual Dyslexia" web page which may be useful

childrendriveumad Mon 14-Apr-14 21:54:56

As someone who works for a behavioural optometrist, I can concur that the lenses do work for many people, but they are by no means a cure. If there are other visual processing issues going on then an assessment will determine the best course of action be it coloured lenses or vision therapy (exercises) or a combination of the above. PM me if you would like more info x

tacal Tue 15-Apr-14 18:45:12

Hi Waveor I have only recently found out about this syndrome and I am totally amazed by what I have found out. I took my ds to see Ian Jordan, an optician, who specialises in this.

One of his clients told me how she could not see peoples faces without the coloured lenses. She also does not feel pain without them. The coloured lenses change all her senses. Ian told me that channel 4 are in the early stages of making a programme about it.

When I mentioned to ds' school that I was thinking there could be some sort of vision problem because he is finding reading very tiring and difficult, I got the raised eyebrows look.

WaveorCheep Tue 15-Apr-14 19:45:22

Thanks everyone. I will look at some of those articles dolfrog (though I must admit they're largely beyond my limited understanding!). Do you have a DC with Irlens?

MariscallRoad Sun 18-May-14 13:30:12

many thanks ‘dolfrog’ for the link . expert advice is the best thing if one is concerned and that reading about the issue from reliable sources is important. In our case we were recommended by educational psychologist to see specialists at Optometrist Institute for eye / Irlen - visual stress tests. Several checks are done at the specialist which are not done at opticians shops. Every person is different; in our case tinted lenses made a difference You will find the visit to an expert is different procedure that to an optician and money is spent in different ways.

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