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Initial diagnosis feeling lost

(5 Posts)
superbaghag Sat 07-Sep-13 22:43:53

My child is almost 6. We were told this week he has ASD traits, ADHD traits, dyslexic traits and dyspraxia. Also something else that escapes me right now.

What the fuck do we do now.
We feel lost and overwhelmed

Levantine Sun 08-Sep-13 07:20:28

(((((hugs))))

My six year old has a similair profile. My experience is that there isn't much available in the way of support from external agencies but there is some.

Are his main issues at school or at home - or both? Is his school helpful? I would hope that having a diagnosis would give you ammunition to get them to access more support from outside agencies, if they are not supporting him adequately. Eg autism outreach, OT, SALT.

In my area there are various parent support groups that I havent managed to get to but the most useful thing for me has been a friend of a friend who has an son with ASD. I think finding someone locally who gets it can be a real life saver.

If your Ds gets frustrated then the book that has really helped me a lot and that I was recommended in here is The Explosive Child, by Ross Greene.

PolterGoose Sun 08-Sep-13 09:08:15

Hi super flowers

Can I ask who suggested he has those traits?

superbaghag Sun 08-Sep-13 18:09:25

We haven't approached school yet as we don't have our written report. Verbal overview was given to us by our assessment team at BIBIC. We live in Somerset and have no idea where we start on what looks to be a long road.

Feel numb and tearful at times. Lost

PolterGoose Sun 08-Sep-13 18:29:10

Oh right, I'm in Somerset too smile

Did Bibic make any suggestions on what you should do next?

My ds was referred to a developmental paed by the GP. He had an initial assessment with the paed's registrar and was referred to SALT and OT, then we saw the paed herself and she completed the assessment and dx him. I don't know which bit of Somerset you're in and you can PM me if you want, but our OT team have been fantastic, if you're in same area as me then OT wise you've hit the jackpot!

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