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Hand holding needed...

(29 Posts)
CouthySaysEatChoccyEggs Tue 23-Apr-13 14:52:48

DS1 was taken to hospital this morning. He had a seizure that lasted over 10 mins, had to call an ambulance out.

He had been unresponsive for about an hour before, we couldn't wake him up, just thought he was overtired and really deeply asleep.

Was getting frustrated as he would be late for school, so I popped downstairs to grab a drink.

Heard a massive this, three myself up the stairs 5 steps at a time, found him on floor breathing bit quite right & still unresponsive.

Called ex up as he's first aid trained, as he came up the stairs, DS1 started twitching - not jerking but obvious twitching. Still unresponsive. He was breathing really slowly and shallowly too.

So I went to call NHS direct but by the time I told them I was in England ex shouted that I needed to ring for ambulance.

DS1 fine now laughing and joking but massive headache and achy limbs.

They are sending him to the 'first fit' clinic for an EEG & MRI.

He's never shown any signs before but he had just hit puberty, even though he's only just 11 his voice has started going weird the last two weeks etc.

I feel so guilty this is all MY fault if I didn't have stupid bastard epilepsy he'd have not had this, I bet.

I just hope it never happens again.

Sorry I'm garbled just really stressed.

OneInEight Tue 23-Apr-13 15:02:40

Holding out a hand. Hope he's O.K. and no it's not your fault!

Badvoc Tue 23-Apr-13 15:03:13

<Grabs hand>
God, how scary for you!
Am so sorry couthy sad
It may never happen again - I hope not.
X

BeeMom Tue 23-Apr-13 15:04:17

Hand holding from here. I have often thought that seizures are as tough if not tougher on the family/friends as they are on the individual experiencing them.

Been through it from both sides of the equation, and even though Bee's seizures occur daily, they are "mild" - I still have flashbacks to the bad convulsive ones she has had before. Those are things that you can't erase from your memory.

Don't blame yourself - it is not like you willingly made a choice to have this happen. Hopefully, it is just a "one-off".

zzzzz Tue 23-Apr-13 15:15:34

I don't have the stupid bastard epilepsy and dd3 does. Do you blame your dp for your epilepsy? Forget the guilt. It's not your fault.

Poor ds and poor you and thank God for the NHS.

Honk honk honk honk

Badvoc Tue 23-Apr-13 15:35:38

I vividly remember holding dn as he had a grand mal seizure.
As you say, not something you can erase from your memory sad

Ineedmorepatience Tue 23-Apr-13 15:42:09

Honking for you couthy, hope he is ok sad

CouthySaysEatChoccyEggs Tue 23-Apr-13 16:56:35

He is fine now. I'm not!!

zzzzz Tue 23-Apr-13 17:00:07

Of course you're not. Dd's last prolonged seizure was 16 months ago, I am still not OK. I'm not OK, how could I be?

Flapping along next to you. Honk honk honk

CouthySaysEatChoccyEggs Tue 23-Apr-13 17:05:51

Didn't need this two days before the TAC/TAFamily meeting either!! Especially when it's been called because DS1's father made malicious allegations that I'm 'making medical stuff up about all my DC's'...

OK, the fact that DS1 was non-responsive and twitching was seen and noted by the ambulance crew, but still, monumentally BAD timing - the hospital have had to inform the SW's of what's happened too.

CouthySaysEatChoccyEggs Tue 23-Apr-13 17:07:56

And I feel worse because I didn't call sooner, when he was unresponsive when me & my ex were trying to wake him up, because although I was concerned about his unresponsive red after a while, I didn't trust my instincts to call an ambulance then, before he had the sz, because I don't trust my judgment any more because of this SS stuff.

MareeyaDolores Tue 23-Apr-13 17:10:01

Couthy, you both witnessed this, right? And your older dc dad has been calling SS and claiming you make up illnesses. So is there any chance you can send his dad to the fit clinic rather than you? Might not hurt to have one letter in the file without, 'mum says, history from mum was' etc.

zzzzz Tue 23-Apr-13 17:11:32

You did your best.

You will call faster next time.

"He is fine now"

Your ex sounds difficult, but is nothing to do with this.

CouthySaysEatChoccyEggs Tue 23-Apr-13 17:12:06

I've invited him to come when we get the appointment...it wasn't DS1's dad that witnessed this though, if never have him stay in my house! It was DS2 & DS3's dad that witnessed this, along with the ambulance crew.

CouthySaysEatChoccyEggs Tue 23-Apr-13 17:13:07

But at least if I have offered DS1's dad to the appointments, he can hear what's being said. He won't go though. I can almost guarantee it.

zzzzz Tue 23-Apr-13 17:16:52

I shouldn't worry at all if the ambulance crew saw it.

Bloody hell, couthy. It might be a one off. I really hope it is. My DS2 had a shorter seizure 18 months ago (aged 12 at the time, he has ASD) and they told me 10% of the population have one seizure in their lives.

The epilepsy and autism specialist paed didn't bother with an EEG because his brain patterns would be likely to be abnormal anyway due to his autism, apparently. Hope you get some answers. (((Hugs)))

No point doing the guilt thing, ok? He's fine. <stern>

MareeyaDolores Tue 23-Apr-13 17:18:42

In fact, even if he's not attending the TAC meeting in person, he can speak to someone who will be eg Ds's teacher / the GP/ SW / family worker

MareeyaDolores Tue 23-Apr-13 17:19:41

He could go with you anyway. He's basically his step-dad.

MareeyaDolores Tue 23-Apr-13 17:27:36

Sorry cross posted.

Was mixed up, thought allegation-man was just your big dd's father blush.

Agree that Ds1-dad and younger-dc-dad arguing over whether a fit is a fit (in the hospital appointment shock) might get a bit Jeremy Kyle grin. On the other hand, it would clearly show you didn't invent the story, and your ds1's dad would either be reasonable, or demonstrate clear oddness to the doctor (both good outcomes).

CouthySaysEatChoccyEggs Tue 23-Apr-13 17:34:05

Ah, would be unlikely to take both, it would end up a bit Jeremy Kyle-ish!!

coff33pot Tue 23-Apr-13 17:38:37

This is not your fault. You called NHS direct you were following what any other parent would do as you had concerns and dealt with it the right way.

Your ex was medically trained you are not and he spotted the need for an ambulance. NHS direct would I have no doubt told you to do the same. smile

LeonieDelt Tue 23-Apr-13 18:09:27

gracious me! sad

moosemama Tue 23-Apr-13 18:26:38

Couthy, you poor thing. Of course you're not ok. ((hugs))

Agree with coff33pot, it's absolutely not your fault and you have nothing to feel guilty about. You did act quickly, you called someone who was medically trained to observe him while you called the NHS for advice. No other parent could have done more.

NoHaudinMaWheest Tue 23-Apr-13 19:40:16

So sorry this happened Couthy. Don't worry about how you handled it, you definitely did the best you could at the time.

magso Wed 24-Apr-13 08:42:23

You did your best. I find it hard to think clearly when its my own child (Ds had a couple of long seizures together some years back and someone else rang the ambulance whilst I tipped water over him thinking it was the heat!)- you reacted fine. Don't blame yourself! Hope you stop shaking soon. Honks

troutsprout Wed 24-Apr-13 09:40:18

Sorry didn't see this yesterday Couthy
<< grabs hand>>... Scary

CouthySaysEatChoccyEggs Wed 24-Apr-13 13:10:15

DS1 seemed ok this morning, quite achy, but I know myself that that is quite 'normal' after a sz.

He went to school, and I haven't had a call yet...

<<Touches wood>>

He seemed a lot more calm and less verbally aggressive this morning, and got up nicely and got ready really well.

I'm wondering if his terrible attitude d rudeness is somehow connected, as he seems a lot more the DS1 he usually is than he has been for the last couple of weeks.

I'm going to watch him like a hawk if his behaviour starts to deteriorate again!

I'm ok now too, hoping it was a one-off, if not, we will cross that bridge when we come to it,

Had a busy day already today, 2 hr allergist appointment for DS3 at the Hospital, I have a Y6 residential trip and SATS meeting at the school at 3pm for DS1, and then straight back to...the Hospital...for DS2's Hydrotherapy.

I will have spent more time in the Hospital in the last 48 hrs than I have at home!!

And all 3 DS's will have been there in the last 2 days. All of them.

Bleurgh.

NoHaudinMaWheest Wed 24-Apr-13 15:30:04

Glad Ds and you are feeling better today.
Maybe ask for a camp bed at the hospital grin

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