Here some suggested organisations that offer expert advice on SN.

The one and only Friday Night Fred.

(34 Posts)
EllenJaneisstillnotmyname Fri 01-Feb-13 17:10:39

Which is apt, as my friend, Fred, is due to arrive shortly for the weekend.

How are you all doing? It's been pretty quiet here. I've been doing housework (urgh) in honour of my friend and the boys are with their D for the weekend.

I've been crocheting Little Hugs which has eaten into my MNing time and read the book from my book club. Looking forward to a curry this evening.

Ilisten2theradio Fri 01-Feb-13 17:20:05

Only one today? I don't think I'll ever dare start one again, having been beaten to it by 20 secs last weeksmile.

I hope this week has been a bit better for you all as there seem to have been some bad weekends for some last week. I hope everyone is out of hospital.

We have had a very grumpy DS this week as all the extra school musical rehearsals in the day and after school have messed with his routine, but we did manage to buy his costume last weekend in 10 mins in Sports direct. Result or what? He hates shopping so much you can imagine how relieved I was.

Other than that it has been pretty quiet other than me running around organising childminders before I start a new job on Monday ( worried and excited at the same time)

Will go and chill the wine, but on a diet so no chocolates or snacks to hand out unless you want a low carb one?

bigbluebus Fri 01-Feb-13 17:20:57

Sounds like you're going to have a relaxing evening Ellen.
DD has been off sick today & had to take her to GP to get more anti biotics for what is probably a chest infection. I dodn't get much sleep last night due to her coughing.
Our shower broke this morning too so had to use the ine in DSs bathroom which didn't go down well. Haven't told him yet that the chap who came this afternoon couldn't fix it, so we will all be invading his bathroom for the foreseeable future - not looking forward to next week - it will be a bad start to the school day!
And the Social Worker who was due to come today so we can move forward with all the outstanding issues of DDs transition to adult social care, cancelled the appointment !!!!

EllenJaneisstillnotmyname Fri 01-Feb-13 17:27:11

There ended up being 3 last week! shock

Good luck for your new job, IListen.

Hope your DD is better soon, bigblue, and you both get some more sleep. sad How old is she, 16? Transition to adult services sounds scary.

Ilisten2theradio Fri 01-Feb-13 17:32:01

Big Blue - I hope your DD improves soon. There are so many coughs and infections going around at the moment. I hope you can get the shower sorted soon. I would be lost without mine.
Ellen - enjoy the weekend

PolterGoose Fri 01-Feb-13 17:57:28

Very good luck with the new job Ilisten thanks I too will stay away from Friday Fred starting after last weeks debacle grin

bigblue hope you get your shower fixed soon, we are down to one shower room as our plumber's dad died one day away from completing our main bathroom re-fit, I know it is a luxury having 2 but ds is really missing having baths and they are such a useful time for winding down.

Ds has had a shitty week, but I have my very own thread for that! Today was a lot better as he was allowed to stay in at playtimes and do a project with his 2 best friends. I think they are planning a competition for their year group, with posters and stuff, which to me sounds like a perfect social skills exercise. He's been having problems with maths and he worked out all by himself that it is because it is straight after playtime so he is all stressy and angry. If a 9yo can work that out why on earth can't a teacher? angry

bigbluebus Fri 01-Feb-13 17:57:53

Ellen DD is 18. She is still at SN School, so haven't had to make any changes there yet, thank goodness - she has another year there after this one.
It is Social Care and Health services that have all changed, so our respite has changed and we now come under the District Nursing team instead of Community Children's Nurses. SHe can no longer go on the children's ward if admitted to hospital either so I am desparate to keep her out of hospital, as adult health services are just not set up to cater for people like DD. Have already had to threaten Social Care with raising a formal complaint and taking legal advice - she only turned 18 3 months ago!!!
Ilisten I can't believe how pathetic the shower in DSs bathroom is - now at least I know why he spends 15 minutes in there each morning! I want my power shower back!!!

moosemama Fri 01-Feb-13 18:07:44

Good luck with the new job IListen

Bigblue, sorry Dd is still poorly. Hope these antibiotics kick in quickly and you manage get a better night's sleep tonight.

I'm popping in early, as It's looking like I'm going to be in bed before the dcs tonight. I've been so ridiculously drained this week, feels suspiciously like when I had anaemia, but not sure if it's just more of my as yet un-dx health crap. Have started back on high strength supplements and am hoping that will help. Can't be arsed with the hassle of trying to get a GP appointment. I've done nothing all week, bar rest and drag myself back and forth on 3 school runs every day. I feel like such a wimp.

Ds1 has had an ok week, in as much as nothing new or worse happened.

LEA contacted us to ask us to confirm in writing that we want the out of area indie school named on his statement and to say they've sent the paperwork asking the school if they will in theory take him. Deadline for naming is two weeks today, so dh and I are a bit stressy. Hate to be so suspicious, but I can't believe they are just going to place him in an out of area indie without a fight, even if it is one that already has several similarly dxd children from our area attending. <wibble>

School is still not doing any of the things they agreed to (and which are in his statement) at the meeting with us and the LA in December. Dh and I had decided we weren't going to fight it, especially when everyone actually knows they are lying - but we have gradually become more and more angry at them getting away with bare faced lying and letting vulnerable children down. We had planned to just concentrate on getting his secondary placement right and supporting him through the next 6 months - but we just can't do it - so are working on a plan. We feel like if we let them get away with it with us, the other children/families coming up through the school don't stand a chance. I know most of them and there's no way they are prepared for dealing with this kind of manipulative, underhanded crap. angry

If I don't make it back online, hope everyone has a good weekend.

Ooh, lots of luck wishing here!!!!

Week okay. Giggled at MN Campaign thread version of Welcome to Holland.

Having a bit of a communication breakdown with ds' school but they 'appear' to be keen to meet with me to sort it so that's good. DS' behaviour there is deteriorating too.

MareeyaDolores Fri 01-Feb-13 18:34:34

Bigblue, having spoken to high-ups might make you feel better about the hospital. Print this and contact your hospital's PALS to ask them for the local version.... then request to speak to a manager about 'pre-admission discharge planning'. Mention the huge expense of even a few days of bed-blocking / poorly planned care, given she'll probably have several admissions before they get it right through trial and error alone.

MareeyaDolores Fri 01-Feb-13 18:36:07

Hi to star, moose, polter, ilisten & Ellen. Ds2 howling, hopefully will be back with wine later.

signandsmile Fri 01-Feb-13 18:55:08

Hi all, quick pop in, as am still planning tomorrows lesson, blush (new group of SW students)

well ds went to the school disco last night and I did not stay, (and he coped fabbily) so chuffed. (he was absolute ratbag this morning though...so grumpy and noise sensitve and so cross and grumpy on the way home that he bit a lampost... hmm confused however at least it was not himself or anyone else, so that was kind of ok,

and he also managed to go for tea at a friends house this week and managed really well. So all in all a good week...

right... should head back to lesson planning. ah the joys of powerpoint... grin

PolterGoose Fri 01-Feb-13 18:59:46

signandsmile well done your ds, I know I shouldn't but I did do grin at biting a lamppost

bigbluebus Fri 01-Feb-13 18:59:54

That makes very interesting reading mareeya. I wouldn't mind betting that no such policy exists in our local hospital trust. They couldn't even make a decision about what age in-patient transition would occur at until I pushed them for a decision. It is all further complicated by the fact that DD stays with her Community Paediatrician until she leaves school, so has no Adult Physician at the hospital and has been discharged by the acute Paediatricians. We have not been transferred to any other specialist adult services either ie dietician, epilepsy nurse, just 'let go' by the children's ones. I think a conversation with PALS is an excellent idea. Thank You.

zzzzz Fri 01-Feb-13 19:07:56

Hi all,
Horrid week here. First senco meeting for ds2 which has left me totally confused. Then dd3 sent home looking a bit seizure ish. She's been fine, but I am back to not sleeping much and feeling really really down.

I'm sorry I don't have the brain power to do individuals. I've been much buoyed this week by lougles decisiveness and polts rapid fire letter writing. Well done both of you, you are setting a rather high bar for us all to reach. As for stars NHS butt woopin....don't mess with the geese this week eh?

Hi to all respondents of the friday night fred..

Received this week the choice of options letter for Y9 in preparation for the next two years GCSE courses. He would like to do History, Tech and French (I can help him with that language). I just hope that school agree, already had a run in with them last year over their decision to pull him out of both languages without consulting me beforehand!. Not one of their better decisions as they discovered when I challenged it (and won).

A friend of mine has had the "if in doubt blame the parents" spiel from a school. Why do they do this and seemingly take great delight in doing so?.

I chatted to a mum with her delightful one year old today and it made me think where did all those years go eh with regards to my now teenager son?.

hazeyjane Fri 01-Feb-13 19:34:59

Thankyou everyone for holding my hand in hospital with ds this week, it really does help to know there are geese flapping along gently behind you.

Ds has impoved, but is still pretty poorly, his gp has emailed all the other gp's in the surgery to emphasise the importance of treating any suspicious symptoms aggressively, to get us up ti the children's ward if there is any doubt,and in big letters at the bottom she wrote, 'LISTEN TO DS'S PARENTS' - I love our gp.

Ineedmorepatience Fri 01-Feb-13 19:38:55

I have had a scary week Tbh, I heard of 2 autistic children in 2 schools very local to me who have been excluded this week.

What I found particularly upsetting was that neither of the children had been violent and both are having significant difficulties remaining in the classroom and the school management teams answer to that was to send them home!

I do not understand how sending them home is supposed to help them access the curriculum or stay in the classroom.

Sorry to be glum but one of the schools concerned is the secondary where Dd3 is/was heading.sad

zzzzz Fri 01-Feb-13 20:02:37

hazey I'm so glad you're home. GP sounds very sensible.

imogengladhart Fri 01-Feb-13 20:04:35

Message withdrawn at poster's request.

AuntStressie Fri 01-Feb-13 20:05:48

Evening all smile
Moose good luck with the school choice - I think they'll agree to it. Let me know what your 'plan' is for school. I have had very similar experiences and am getting my revenge as we speak wink
Ineed - that is a worry. Are they permanent or temporary exclusions? My ds was excluded and I know it was just to give the school a 'break' but they don't think about the consequences for the child and family sad

imogengladhart Fri 01-Feb-13 20:06:30

Message withdrawn at poster's request.

AuntStressie Fri 01-Feb-13 20:06:54

Evening all smile
Moose good luck with the school choice - I think they'll agree to it. Let me know what your 'plan' is for school. I have had very similar experiences and am getting my revenge as we speak wink
Ineed - that is a worry. Are they permanent or temporary exclusions? My ds was excluded and I know it was just to give the school a 'break' but they don't think about the consequences for the child and family sad

AuntStressie Fri 01-Feb-13 20:07:19

Oops twin posts blush

ouryve Fri 01-Feb-13 20:08:22

Apart from DS1 developing a habit of deliberately wading though all the dogshit that accumulated in the 2 weeks there was snow on the ground, it's been a relatively quiet, sane week chez Yve. (For a given value of quiet)

Had contact from parent partnership and we're going to visit a local SS I didn't get round to visiting when I was doing the rounds, last year. It's not for over a month, but we've plenty of time while the Ed Psych does her stuff - she's planning on visiting the boys on several occasions. She said that, given DS1's circumstances (she's spoken to the EP about him) this school and the one I've seen should be enough to build a case for him transferring to the out of area non-maintained special school we have in mind for him.

lougle Fri 01-Feb-13 20:11:46

What a week.

So tired now, but dd2's in a place where she seems happy and we might even be able to work out whether her behaviours are due to environment or really do need pursuing.

Ineedmorepatience Fri 01-Feb-13 20:37:06

They were temp exclusions thank goodness but just sending completely the wrong message. Imho of course.

NoHaudinMaWheest Fri 01-Feb-13 21:06:05

Hi to all.
Well done and good luck to those fight for provision.
Good Ds is out of hospital Hazey. What a fantastic GP!
Sign disco and a friend's house wow!
Bigblue it is scary that transition to adult service is so disorganised. My Ds's needs are nothing like as complex as your Dd's but I have been told already that he can stay with children's service for up to 3 months after his 18th birthday to help smooth transition.
We had a meeting with the SENCO at the school we hope Ds will transfer to for 6th form. It seemed to go well, just hope all the promises will materialise.
I haven't been having a good week healthwise. Had to spend most of Monday horizontal but feel a bit better today.

PolterGoose Fri 01-Feb-13 21:24:07

Sorry you've not had a good week NoHaudin but glad it went well at new school and hope they do deliver what ds needs.

FightingForSurvival Fri 01-Feb-13 21:55:40

An uneventful week and then today, a five minute phone call with confirmation that we will get ASD dx at our appt next week. Been strangely calm all day. Broke news to hub tonight, he seems okay too. Had Chinese food and now I am going to watch the telly without my mind whirring round is he/isn't he. Apparently he is. And the last two years make more sense.

Aw Fighting! This bit is the worst you know. Then you'll learn and fill the void of dread with knowledge and it will be better, not necessarily easy, but definately better.

BeeMom Fri 01-Feb-13 22:16:46

This week could definitely have been better... next week will be worse.

I will be going hammer and tongs against the school regarding their declaration for next year... and am bringing a secret weapon grin

I have invited the home care case manager - you see, the school has broadly declared Bee will be fine, as she will have her regular nurse with her. They said this without even speaking to the case manager... who would have told her that the company the nurse works for does not go to the school they have named, and there is no guarantee that she will even have nursing. This might be interesting, indeed.

PolterGoose Fri 01-Feb-13 22:41:24

Good luck BeeMom

Evening all! Does anyone know any good websites, or which section on here I'd need, to gauge interest in a potential business venture?

I'm so fed up of jobseeking with my stupid eyesight, I'm tempted to start my photography business - but it'd be quite a niche and I need to gauge the interest in my region...

Other than that, I'm alright, starting with the Prince's Trust in 2 weeks, on their Team programme, and very much looking forward to it smile

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