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Starlights bad day...

(49 Posts)

Not really on the scale but in one day:

a) Hospital have cancelled ds grommets appointment for Monday (postponed for 2 weeks) which we have been preparing him for, my Aunt has come down from Lancashire to hold breastfed baby in the waiting room, and my Mum has come down from Cumbria to look after dd and take her to nursery etc.

b) Estate agents have told us that our Landlords are puting up our already extortionate rent.

So, I'm very shouty.......

Agh - got worse. HV wants to come round for a 'chat'.

porridgeLover Wed 30-Jan-13 13:18:40

I'm sorry starlight....what a pain. Knocks always seem to come in groups.

Crawling Wed 30-Jan-13 13:20:13

So sorry you are having a bad day hope tomorrow is better.

Grrrr. So HV no longer is coming for a chat. She apparently wanted to know if we needed any 'help'. I told her she could call the landlord and tell them to stop being greedy, and call the hospital and tell them to reinstate ds' cancelled hospital appointment.

She confirmed that these were not services that she could offer so I told her that was a shame because that was what I needed and my current priorities, so I really don't need an appointment about anything else right now whilst I address them.

She was okay about it actually. She'll probably call again in a few months. She does that.

SallyBear Wed 30-Jan-13 13:29:15

Why was it cancelled?

Unforeseen circumstances

Which probably means the consultant is on the holiday he has had booked for over a year.

Ah well. Good news is the house is tidy. It always gets tidy when I'm in a rage.

Dev9aug Wed 30-Jan-13 13:31:37

Oh dear, rent going up already, didn't you just move in like, yesterday?

SallyBear Wed 30-Jan-13 13:32:00

When are they rescheduling it for then. I take it you explained that the quicker the better as a) DS is anxious about it, b) his hearing and school work are suffering because of constant delays.

lougle Wed 30-Jan-13 13:32:26

Poor you. You still have 11½ hours for it to improve though <hopeful>

Just under 9 months ago I think.

They're holding us to randsom over school placements I think. They know our daughter is catchment age.

For 2 weeks SB, but I won't have any childcare then. My aunt and mum haven't passed on the costs of their train tickets to us, but they run into well over £100 each. I couldn't ask them to do it again in two weeks. Apart from anything else they have lives.

But, I haven't got so far without always having a plan B and C, so I just have to figure them out.

Plan B is of course reasoning then writing then shouting - lol, to both hospital and landlord.

Plan C is erm, in the planning.

PolterGoose Wed 30-Jan-13 14:14:21

Oh Star, it is shit isn't it sad and angry

Honk and thanks

Ah, thanks for listening you lot. It's really not the worst we've been through.

In some ways I feel sorry now for the people who have to deal with me because I much more focussed and determined than I used to be and with much less patient. I also now know (and I really didn't before) that all kinds of things can happen with a bit of challenge, and that many decisions are just made for absolutely no reason, so I am currently expecting:

1)hospital appointment to be reinstated
2)landlord to keep the rent as it is

lol. I'll let you know how it goes.

imogengladhart Wed 30-Jan-13 14:38:27

Message withdrawn at poster's request.

Lougle That 11 hours will almost definately include wine.....

I'm a bit 'meh' about the rent tbh.

I know people get attached to their 'home' but I'm not. Why would I be? Moving schools, houses, mountains. Tis what I do!!!!! grin

So I guess we'll just live somewhere else. may as well give the landlord the opportunity to change their minds first though.

Right. Surgery reinstated.

On a different list apparently, whatever that means. Think it is just nonsense for some kind of justification/explanation.

zzzzz Wed 30-Jan-13 15:31:41

"Surgery reinstated" star you are a legend. grin

I'm not going to be surprised if rent is reduced now .

HONK

lougle Wed 30-Jan-13 15:48:54

Well done Star.

It's all such a struggle isn't it?

Yes Lougle DS knows the date on his calendar, things are in place. His school OT is on standby after surgery in case his new hearing ability affects his sensory balance. My family have made sacrifices to help out. Due to ds' ASD I don't have much in the way of friends who I know well enough to be able to step in with childcare.

I'm more bothered by the surgery move than the rent thing tbh, and out outgoings are already exceeding income as it is.

Zzzzz, yes. Reduced to less than we are currently paying would be good.

inappropriatelyemployed Wed 30-Jan-13 16:18:05

You go Star! What a pain to chase these things - our lives seem to be full of this kind of crap sometimes but I know precisely what you mean about being focussed and determined about everything now! Pity the poor people we meet

Yes, although I think to an extent I upset less people than I used to as I simply go to the top and insist on talking to the decision makers from the outset.

So, I just sent an email to the Chief Exec's secretary asking what account had been taken of ds' ASD when they cancelled his appointment.

Got a call from an admin person a couple of hours later saying that it was now going ahead as was planned but with ds on a 'different' list. Whatever that means!?

No response to the ACTUAL question I asked though. But not bothered now obviously. And absolutely no shouting.

Might do the same to the Estate Agents. Ask them what account has been taken of the fact that we are good tennants who look after the property and pay on time, when setting the rent, and also what account has been taken of the fact that there are similar properties in the area charging less.

No shouting.

PolterGoose Wed 30-Jan-13 17:10:00

Starlight one of my clients really impressed me when his landlord attempted to put the rent up. He worked out the exact costs for the extra rental for a year versus the costs of re-marketing the property and loss of rent which would be incurred in the process of getting new tenant in etc. he presented it all to the landlord and the rent didn't go up for a year.

Ah yes, - and what account has been taken of the fact that it will cost them more than the increase in rent to market it and get in new people particularly as the landlords want it back in a year so might not be able to fill a 9 months contract.....

Thanks smile

ArthurPewty Wed 30-Jan-13 17:43:14

Message withdrawn at poster's request.

I have wine! grin

DS and DD are plugged into electronic babysitters and baby is asleep in the conservatory.

Bluebirdonmyshoulder Wed 30-Jan-13 18:41:33

Good for you, I'm bloody impressed!

I know I'm new here and I do love the geese analogy but I think that whilst collectively we're geese, individually we're mummy bears / lionesses/ dragons!

Badvoc Wed 30-Jan-13 18:43:51

I pity them in a way star smile
You rock! X

Thanks Bad. There are no winners though. They also said that they have had to cancel someone else. I don't want that. It makes me feel flippin awful.

But then if their stupid systems allow this to happen then it is THEM wot needs to deal with the grief, not ds. I am consoled only that the re-appointment was for a day in half-term, which I suspect is largely preferred, so perhaps postponed child's parents are happy. I hope so.

bialystockandbloom Wed 30-Jan-13 21:14:23

Star, if you're (ever) stuck for childcare let me know - ds and dd are welcome over in this corner of London, and one or other of our ABA tutors are here three days a week so can look after them play with them wink

Looking after the baby might be a bit too terrifying much though

AtoZandbackagain Wed 30-Jan-13 21:37:03

I had an op cancelled at very short notice due to 'non-clinical' reasons i.e. the operating theatre had run out of sterilised tools!

The NHS guidance states that they must offer an appointment within 28 days or they have to pay for treatment at a hospital and time of your choice (including private).

www.nhs.uk/chq/Pages/2563.aspx?CategoryID=68&SubCategoryID=162

porridgeLover Wed 30-Jan-13 21:38:31

Star I havent been back on since lunch and I see that at 14.44 the surgery was still cancelled.
By 15.11, you had got it sorted and were back on to say surgery re-instated.
grin grin grin
Clearly, there needs to be a 'newly diagnosed' workshop for parents run by starlight; up and down the country.
Well done.

Bluebirdonmyshoulder Wed 30-Jan-13 22:07:01

Well we already have Moondog's ABA workshop to look forward to so let's organise Star's 'How to Kick Ass and Influence People' course!

WarmAndFuzzy Wed 30-Jan-13 22:18:26

Sorry, I've come on a bit late but glad it's looking a bit more manageable now!

Guess what? smile

PolterGoose Thu 31-Jan-13 11:32:50

Go on then...

PolterGoose Thu 31-Jan-13 11:39:57

Sorry, that may have come across a bit rude, it was meant in an eagerly anticipating sort of tone grin

lol. - Rent's staying the same.

<off to buy a lottery ticket>

Dev9aug Thu 31-Jan-13 12:03:20

You won the lotto last night...grin

Dev9aug Thu 31-Jan-13 12:03:56

gringrin cross posts... grin

PolterGoose Thu 31-Jan-13 12:07:25

Well done

starfishmummy Thu 31-Jan-13 12:18:28

Well done Star!!

Thanks for that link AtoZ. DS is listed for an operation that is notorious for being cancelled at the last minute because there are no critical care beds available; nice to know that is included.

Oh yes. Thanks AtoZ. Completely missed your post. Very helpful for the future.

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