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Gastrostomy support thread no.2! Tubefed children support thread

(973 Posts)
Isitme1 Sun 25-Nov-12 14:44:35

Welcome to thread no.2!!!

Everyone sign in please so we all know who is here


Isitme1 Sun 25-Nov-12 14:48:44

old thread

For those who want to read the first thread

2old2beamum Sun 25-Nov-12 15:03:36

thanks grandaughter I can now rest in peace now I know a new thread has started.

Isitme1 Sun 25-Nov-12 15:36:52

Granny midwife

starfishmummy Sun 25-Nov-12 19:16:58


sneezecakesmum Sun 25-Nov-12 21:42:32

Hi all. DGS puking tonight, looks like a nursery bug. Tummy now empty so keeping water down via tube. Luckily he's built up a bit of immunity and its very minor, apart from the horrible smelly farts grin Think tomorrow with be OK smile

BeeMom Mon 26-Nov-12 15:17:07

I am still around, just busy as anything and trying to work as a "cyclops".

Bee and DS both have colds, I am seriously considering shrink-wrapping myself to keep from getting it.

sneezecakesmum Mon 26-Nov-12 16:15:27

Its definitely that time of year! Bugs galore! grin

Isitme1 Mon 26-Nov-12 17:03:45

Aww hope they get better soon

How is little bee?

Ive had an eventful day today. This morning I had blood when I wiped myself after a wee so I rand epu.The nurse was very nice and she said all my symptoms add up to ectopic pregnancy. (Pain in shoulder, diarrhoea, pain on one side same side as shoulder)The blood is literally streaks in mucus which to me seems to be urine infection as I suffer a lot with kidney disease. She couldn't explain bleeding or pain in shoulder. I see cm mw tomorrow will let her know too. I saw baby bean. Measuring 6weeks+ (few days ahead of what I thought) and a very big amniotic sac (if that's what you call it lol) Heartbeat going nice anf strong tooStill a bit uneasy though about this blood X

gallivantsaregood Tue 27-Nov-12 11:23:39

Isitme: So glad Baby Bean is where he/she is supposed to be...phew! Hope you can get all your other aches and pains sorted soon.

Sorry haven't been around. Quite busy here. In the process of matching with a LO who will hopefully become the 4th member of our lots of meetings etc. Please send positivity and keep everything crossed he can come smile We are so nervous and excited too. He is only ickle and so cute smile xx

2old2beamum Tue 27-Nov-12 14:47:45

Galli my thoughts are with you, very exciting but nervewracking time.Sending very positive vibes and hope all goes well. Let us know more when you can smile
I am afraid our front door is now locked and have changed the key!!

DGS hope you are ok and DGGS is "behaving" himself

Isitme1 Tue 27-Nov-12 16:00:48

sending positive thoughts and loving vibes your way
Im sure they realise how much of a good mum you are!!!

How is everyone!
Ive got horrible heartburn!!! Just want to cry. It's disgusting!
I had ice cream 20 mins ago and it soothed it a little but it's back worse than before x

gallivantsaregood Tue 27-Nov-12 17:35:27

Isitme : YUK!! Not as tasty but iced water is much better. Afraid the fat in the ice cream makes your tum produce more acid!! Same goes for milk etc.... Give it a go. Hugs

Thanks for the well wishes. Very nerve racking. We have been in this position befor eand it didn't work out ( nothing to do with us. High heid yin who made a big blunder!!) so still not certain that it's certain. He does have additioinal needs (but no tube). IF he comes then he'll be here 'forever' smile So excited, nervous and anxious all at the same time............Meeting with current carers very soon too, which will be more nerve racking than meeting the SWs tbh....just hope they like us

sneezecakesmum Tue 27-Nov-12 21:59:17

galli. All fingers x for your little cutiepie to be in your arms soon. Very nerve wracking for you.

Isitme. DD commiserates with you. She feels a lot better now its the 2nd trimester.

DGS now happy to sleep in his cot. Stick him in, say goodnight and off like a light with never a murmur! DD kicking herself for not trying it sooner!

gallivantsaregood Tue 27-Nov-12 22:47:43

Sneeze that's great re DGS sleeping :-D

Isitme1 Tue 27-Nov-12 22:56:47

Thanks will try that
Aww thats brill he sleeps like that. Seems like you've copied me lol
We kind of use the same approach lol

Sneeze I feel like ughhh
Just tired and poo
Ive got to bloody cope with ds going into hospital on Friday too!!
Dh is staying 2 nights with us which is brilliant


sneezecakesmum Wed 28-Nov-12 12:16:14

Having horrible problems with constipation. DGS has had vomiting problems for the past year. Paed did nothing to help except dietician who said reflux. Duh!!!

Anyway in the process of switching to BD which has been well tolerated and we were steadily learning about how and what works.

Anyway on Sunday he had a vomiting bug (pretty sure it was that as bit too violent for normal reflux) And since then vomiting loads of his overnight formula. Kept down 100 mls of chicken dinner BD last night. Then puked at midnight. Was very constipated (not gone in a week). Now just delivered a baby! After lactulose and a suppository, just as DD went out and spent over £7 on movicol! Typical.

What should we do. Give the movicol? No formula overnight? No food only water? Continue on only BD? We are so confused. The vomiting is not continuous and SHOULD get better now he's not constipated. Can't see the wood for the trees at the moment,!!!

Isitme1 Wed 28-Nov-12 14:40:51

I would be tempted to try little amounts but more frequently if that makes sense.

Im sure everyone else will be here to help soon x

Isitme1 Wed 28-Nov-12 14:42:04

Ooo yh paed told us that he will be sick if hes constipated as its almost like its the only way for the food to go if theres a massive block of crap down there.

gallivantsaregood Wed 28-Nov-12 14:44:33

Oh Sneeze. Poor DGS. Why dud DD have to pay for movicol? Get it on prescription here. Cant buy the paediatric one, prescription only.

Now he has moved, his about 24 hrs if dioralyte and plenty of it to flush him out ( only is blood sugar and fluids aren't an issue.

If you are continuing with BD you are in a great position to use food instead of ends to keep him going. 5g of flax seed in a blend is enough to get DS going.or pure orange juice.

You can make some of his fluids fruit juice, use prune juice if needed ext. I'd suggest giving one of the above on the 1st day he doesn't go. There's less likely to be a huge build up then. We do this and have no probs at all any more.

If it continues to be a problem naybe add a little flax seed each day. Alternatively you could try Benefiber which is a soluble pure fibre powder? No need to worry about blending the seeds then which can be tricky if you don't have a Vitamix.

Previously DS' gut was so weak that although his poo was like water (chronic diarrhea) without sennokot his bowels didn't move at all!!

Hope that helps xx

sneezecakesmum Wed 28-Nov-12 17:03:01

She bought the paed one from Lloyds over the counter. While she was out buying it he poo'd!!! She was getting so stressed couldnt be waiting for an appt so paid up!

Isitme. We have finally worked out that being constipated makes him more pukey and it was a week this time and the one before sad

galli I dont think DGS has any intrinsic bowel problems or even slow digestion, its just getting the volumes and the vedge/fruit right. We are also at the testing for allergies stage and did put a drop of flax oil on his tongue today and he didnt react. Very cautious as his lips swell up with white fish (or even chips fried with white fish!) So thats slowing it all down too. I'm convinced its the formulas that dont agree with him much so v anxious to get going with the BD and minimise the formula use.

DGS is smelling of ketones so burning off his (minimal) body fat atm. which also stresses us out! Hes had orange juice and been OK. Think I am being impatient and just want to go full on BD and fatten him up but have to take it slow because a) tummy is still fragile and b) need to test for allergies <sigh>

DD Has bought a Villaware jug blender and it is fabulous!!!! Whisked up banana, stewed pear and apple and baby rice thin enough to suck into syringe. Brilliant. I've also got an unused coffee grinder which can grind nuts into powder she can have so we are panicking less now smile thanks girlsxxx

gallivantsaregood Wed 28-Nov-12 20:07:03

Sneeze: if ged burning off ketones can you up his carb intake if 'safe' carbs like potatoes, rice etc?

Good news is tgatcwill if it is intolerances he gas they may get better with BD. Luuk was intolerant to LOADS if things bad we are /2yrs later) his being able ti slowly reintroduce things which previously bade him really ill, like honey and eggs... :-D

Have heard good things about the villaware. Might invest in one for MILs house in Holland

gallivantsaregood Wed 28-Nov-12 20:09:33

Re the movicol ( and similar meds etc). Here in Scotland we have a system where chikdrrb ( and people on certain benefits) can get thus kind of stuff prescribed by pharmacist so it is free. Called Minor ailments system.....

2old2beamum Wed 28-Nov-12 21:01:41

Re movicol I find it quicker and easier to pay up and get it quicker via the pharmacy. My logic mentally is I do not pay for his food!! And GP system not up to speed with my "odd" DC's

Galli I understand where you are coming from re fostercarers 2 of ours could have caused a placement breakdown one because we were not christians and another they wanted to keep him but did not want to adopt him?????
My thoughts are with you xx

Oldsneeze Sorry you are having problems, hope DD is not too stressed Old fart is snoring on sofa wink hope you understand

DGS hope all is well with you I think of you often

sneezecakesmum Thu 29-Nov-12 20:06:39

galli. thanks DGS puked again this morning once. DD tipped out the overnight formula and put boiled cooled water, but puked after his breakfast blend, banana apple porridge, not all of it. Tolerated boiled blended potato (yuk) but the nanahead gave him milk formula which he puked. <shakes head in disbelief> He pukes the formula even when well.....obviously baby brain! to be fair she has also got the bug in a minor way (churning gut!) so not thinking straight. Definitely get a villaware, we were so impressed. Not dehydrated as soggy nappies but looking very skinny...arghhh!

Giving one movicol sachet a day till the BD can take over, but we have to wait for the tummy to settle. We wont carry on paying but get a px if it needs to carry on, but hoping it can be stopped. So frustrating as we are sure this BD is the answer and we are raring to go with the food preparation now we have the tools grin Tested flax oil and peanut butter and was fine smile

Adoptions are seriously stressful situations. Hope it all goes smoothly. Unbelievable that someone would block an adoption cos they wanted to continue to foster. Then what chuck him out when he got to big, like an unwanted christmas puppy?

Old fart here is just a pain in the bum as he doesnt know what a duster is!

gallivantsaregood Thu 29-Nov-12 22:55:32

Sneeze: poor DGS. Us he naybe having a wee struggle with dairy? Oats are also common for intolerances..... D S didn't manage anything oat related for a long time.

The LO who will hopefully be coming to join our family will be coming on a permanent fostering basis. With his additional needs it means he is more likely to get access ti services he needs and support will be on hand for us too if we need it. However although he will technically still be fostered he will become our 4th family member and will be cared for and loved just like DS and we'll be there for him ALWAYS x

sneezecakesmum Fri 30-Nov-12 09:46:29

Hope it goes smoothly and the little one comes to you soon. I hope he has had good experiences so far with his caregivers as attachment difficulties can be problematic. DDs friend is trying to adopt too as she can't have children. Single FT worker so may be difficult but also finding it stressful.

Hope today is the turning point with DGS. We'll go easy on the dairy and see what happens. He did initially with the PEG tolerate all the formulas and put on weight. So confusing smile

Isitme1 Sat 01-Dec-12 20:56:37

Hope everyone is doing well.
How are things gali?
Ds was in hosp as daycase yesterday.
Hes had it changed back to peg and endoscopy done plus 24hr ph too
(Sent us home with it)

He was given a paste called orabase to try and sort the leak plus antibiotics just in case. The dr said 'his insides were pristine'.
Leakage due to weight loss and if the paste and reducing his feeds volume but making them more frequent doesnt work then observations in hospital plus the tpn for a few days to give stomach a break to let it heal a bit. Hes had the paste on 3 time today and its still leaked.

sneezecakesmum Sun 02-Dec-12 11:58:03

O dear isitme. Doesn't sound top clever. Weight loss also not too good. Do hope it improves and no TPN needed. It's been a real struggle for little DS.

2old2beamum Sun 02-Dec-12 15:27:19

Grandaughter sorry about DGGS but short term TPN can be a solution DD4 was threatened with it post colostomy but it obviously scared the pants off her!! Love to DGGS hope DH is behaving grin Hope nausea is no worse. BTW how is your DM

Life somehat hectic here appts 4x this week and next week DD4 needs an IGGU infusion and a trip to GOSH Thurs appt @10.30 and if we are late we stand the risk of losing our slot! Have booked train tickets GUESS WHAT only 1st class available with wheelchair space (smoke ears) and we live an hour from station. As we are on highest CTC am wondering if we can get help.

Galli I admire you I am afraid we couldn't foster too much of a control freak but you are right you should get better support and he will always be yours.

love to you all xx

2old2beamum Sun 02-Dec-12 15:32:32

Oldsneeze did not mean to omit you but "old fart" is snoring next to me a bit distracting hoping all is going well with BD it always worked in the past smile

sneezecakesmum Sun 02-Dec-12 16:36:57

Hi 2old and all. Bloody appointments!! Bet you have a awful hectic week. DD has one on tomorrow for a scan and I am having to go as her DH went 2 weeks ago. This is a private one looking at her notches! She is going to ask the sex. I've got to go and not looking forward to it as these scans weird me out. Nooo desire to look at pictures of developing foetuses at all! Sorry its just a peculiarity of mine blush

Hope everyones elses week is fine and the trip to GOSH not too stressful. Hate trains too, all that crisscrossing platforms and panicking about missing the connection (I have issues!) grin

Isitme1 Mon 03-Dec-12 17:55:31

Oooooo sneeze what did they say about dd??
Fx everything is well

Hope everything is well granny and everyone else

Has anyone seen tooloud lately? ??

sneezecakesmum Mon 03-Dec-12 20:46:10

Hi. The scan went really well, baby is perfect size and the blood supply to the placenta is good still on asprin because of the notches (which have now gone). She asked about the sex of the baby and didnt get the answer we all wanted. Sorry for being down about it...horribly shallow I know. It will only last a day or two and then the joy of having a healthy baby (so far) will kick in. I think its just too similar to the first time as well.

No one is to mention this shock please in RL or I will be a gonner grin

Hope young isitme is putting on a bit of weight so his peg fits better and you are well and coping with the pg smile sickness is horrible. xx

Isitme1 Mon 03-Dec-12 20:52:26

I think im having a girl just because with with ds I had loadsa acne and I loved food but now I eat set meals. Hardly any snacks. Atm im hungry but don't fancy food confused

sneezecakesmum Tue 04-Dec-12 12:35:26

DD said this pg is totally different and lots of sickness etc so convinced a girl but def not. He's got all the equipment. Lol. We're all fine with it now as long as he's healthy xx

Isitme1 Tue 04-Dec-12 14:59:08

Awww bless. Hope they are both doing well x
Dont mind either way as long as they are healthy.
I hope I can (and baby) can breastfeed this time. I tried with ds but he kept coming out in a rash after feeds so I went for a bottle. I felt such a failure with him.
But now I've got a bit more experience so hopefully should be fine x

gallivantsaregood Tue 04-Dec-12 19:02:55

Hope everyone is well.......moan alert I'm afraid!

Well DS is pooing blood ...AGAIN! He did this last month after a course of co-amoxiclav. I though C-dif, did mention to the docs ( Luuk's own conultant was off on holiday) and I was assured that his samples were all clear. Well it seems they didn't test for C-dif, just other bugs! Just had Trimethoprim for possible UTI and bleeding again! Also blood in his gastric juices ( combination of old and new and not very much). Consultant has now requested C-Dif test and and a sample to test for inflammation of the gut ( colitis I assume?). No idea what is going on with this boy!. In the past when he was really unwell he had LOADS of really toxic antibiotics without any of this. And now, his gut is, as far as we can tell, much healthier but now doing this......Grrrrr! Thankfully he is not really unwell with it. Just a bit worrying as there should not be blood/mucus coming from his bottom at all!

Anyone know if it could be a reaction to something he's not tolerating? Previously if he didn't tolerate something he would vomit it straight away. Wondering if it could be a sign of intolerance. Have given him both egg and honey fairly recently which he used to vomit but now appears to tolerate......maybe just affecting lower gut now?

Any ideas ladies ??


sneezecakesmum Tue 04-Dec-12 20:15:16

Ulcerative colitis. Auto immune disease. ? None really only sympathy sad
After the experts have ragged him around, maybe back to the simplest foods, baby rice, porridge, easily digestible stuff to rest his bowel. ?

sneezecakesmum Tue 04-Dec-12 20:16:50

Looking forward to little baby boykin....what a difference a day makes smile

Isitme1 Tue 04-Dec-12 21:48:07

Have no advice to offer sorry gali just some virtual hand holding and positive vibes coming your way.

Sneeze im very happy for you.
X x
I think end of the day as long as the child is healthy all is well
maybe a girl next time lol wink


gallivantsaregood Wed 05-Dec-12 07:14:05

Thanks folks. Congratulations Sneeze......once you meet him you'll be so glad he's a he x

Isitme: how are you feeling? How is DS? X

2old2beamum Thu 06-Dec-12 21:23:50

Hope all is well with you and all your Scallywags. Life is hard sometimes but we have no choice.

Oldsneeze hope you are all still OK and if DDGC is another boy so what (I am a boy's mum SHHH I love my girls to bits)

Galli sorry you are having problems with DS's guts we have had problems with DD's bowels for 3 years constant diarrhoea mucus etc, For over 2 yrs I have been banging on about her immune system, Went into hosp October for colostomy oh dearie me she has a primary immune problems, Off to GOSH next week to be taught how to give gammaglobulin infusions weekly. Don't stop nagging 'til you get an answer. Sorry if I am teaching my grandmother to suck eggs HA HA, How is your placement going?

DGD I have not forgotten you how could I smile How is my beautiful DGGS and my DGGC hope you are OK please let us know

Sleep well alll you little scallywags grin XXX

gallivantsaregood Fri 07-Dec-12 11:39:05

Thanks 2old: When DS was on formula tube feed his guts were exactly the same.Even tested +ve for A1 antitrypsin in his poo! Malabsorbtion issues and was clinically malnourished. Chronic diarrhea but still needed sennokot or his gut just didn't work at all. Everything just stayed inside but because it wasn't a solid mass he wasn't clinically 'consitpated'!! He was still in pull ups when he started school because of it. He just couldn't control it. After a couple of weeks on BD his diarrhea and other associated problems vanished!!

How is everyone else doing? xx

sneezecakesmum Fri 07-Dec-12 18:28:03

It's really weird how well tolerated the BD is for DGS compared to fresbini on its own. He doesn't bat an eyelid when we put 100 mls down the tube. The puking has mostly stopped. It's just feeling our way slowly but the aim is to give him more energy than he has at the moment. Stopping the afternoon sleep as it may help with the night waking. He had 3 huge poos in one day so I'm sure he was bunged up and the movicol worked really well! There's no reason the BD couldn't get rid of the need for movicol. Light at the end of the tunnel I hope smile

gallivantsaregood Sat 08-Dec-12 09:16:28

Yip, we can use food for luuk if hr is a bit backed up. I day of no poo results in a pukefest! We use orange juice or flaxseed/linseed and they work fab for Luuk :-D

Glad the puking has all but stopped. That alone makes a huge difference for everyone!

sneezecakesmum Sat 08-Dec-12 12:17:06

Dd has flax seed oil and fresh orange juice and I am going to make a prune purée too just in case!

Poor DD is sick with worry (me too) she was exposed to cytomegalovirus at work and has no immunity to it and it can cause serious disabilities in newborns and lifelong disabilities epilepsy etc. She is 23weeks pg now. We know all the stats and how rare it is but we knew someone who's little boy had a severe infection at birth and is also disabled. When you are pg common sense goes out of the window and she's got a sore throat and headache so will get tested in a week or so. Sure it's jut a cold but sick with worry and fed up with feeling so anxious with this pg sad. .... Just having a moan so ignore me...

gallivantsaregood Sat 08-Dec-12 15:37:21

Oh Sneeze, how worrying for you all. Everything crossed that baby is completely unaffected by it.

Hugs xxx

P.s. Flaxseed oil won't have the same ' keep bowels moving effects' as the actual seed cod all the fibre is removed xx

sneezecakesmum Sat 08-Dec-12 16:45:09

Thanks galli. I know it's a remote risk so just totally neurotic, but I know everyone on the SN site shares similar neuroses grin comes with the territory. Anxiety levels high til the next blood test. Want to put DD in a glass box til babe is csectioned out.

Ta re flax seed. I had a Krupp coffee grinder for years which was brilliant for grinding anything to a powder. Thought I'd clean it by filling it with hot water blush yep..dumb! Anyway will have to buy a new one. Dd is thrilled with the villaware blender, does a cracking job smile

gallivantsaregood Sat 08-Dec-12 17:40:05

Sneeze would prob get away with throwing some seeds in then. ........ I don't grind anything first. We have a VM but others do nuts and seeds in Villaware. Could do a little and push some through an extension set to check? 5g is usually enough to get Luuk going. Xx

gallivantsaregood Sat 08-Dec-12 17:40:44

Neurotic..... Yip I can keep you company with that :-D x

2old2beamum Sat 08-Dec-12 19:23:24

Oldsneeze why do some people have it so hard I really hope DD is ok and doesn't have too many more problems.
Went to a party this afternoon re-met a lady who has a beautiful little DD with rare chromosome disorder oxygen dependant and poorly. Stupidly asked were there any siblings No my DH was killed 2 months before DD was born SO I am going to count my blessings all 5 of them


sneezecakesmum Sat 08-Dec-12 20:54:01

shock. That poor woman. Heavens we are lucky in comparison.

I'm pretty sure all will be well. It's just worry DD doesn't need. Gone are the days when all was carefree. Just want to get to the end and have a healthy little boy. He'll need to be healthy cos he's going to thump anyone who teases DGS grin. dGS isn't severely affected with his CP so it's a big blessing.

She's having monthly scans so CMV anomalies will most likely show on those. Fingers and toes crossed xxx

Isitme1 Sun 09-Dec-12 08:58:08

I hope dd is well and baba too.
Its horrible when something like that happens.
I agree that we're all neurotic lol.
I was told to have the mmr jab after having ds as I didn't have it when I was younger due to health problems and I forgot until this pregnancy.
A few relatives kids are ill with measles so trying to stay away from them.

Things been hectic here we've bought a new tv and sky are coming during the week to install everything.
Hormones have me feeling pretty sh1t at times.

On a plus note ive managed to get ds to drink from a bottle. Which is massive for him.
I keep his sterile water in his old milk bottle one of them mam ones. He saw it one morning and was interested so I took the lid of and he let me put it in his mouth.
So he kept it with him and drank out of it in the morning.
Then I put some pepsi in as he likes it and I wanted to build his confidence and he loved it. However hes not touched it today. Ive stuck some tea in which he loves too but nope.


Isitme1 Sun 09-Dec-12 08:58:47

Hope everyone else is well
Granny,gali, sneeze x

sneezecakesmum Sun 09-Dec-12 11:09:05

DD is well sure it is just when something bad has happened once you go from thinking it will never happen to me to it will ALWAYS happen to me!! So not good for neurotic folk like us! Think we have got it in proportion now but will be glad when it is all over. Hope you are ok for measles and rubella. It's a worry. Has DS had his mmr? If so and the other children you meet are immunised it will reduce your risk. Don't see much rubella around these days.

Good to hear DS is taking an interest in drinking without the teat on. Try to ignore him if you make a fuss he is bound to stop doing it! DGS also loves tea without sugar. hmm

Isitme1 Sun 09-Dec-12 14:18:13

He has the teat on. Like a proper babies bottle.
Hes drinking volvic fruit water in it right now.
Ds is up to date with immunisations so if I remember correctly that includes mmr.

I think I will feel better once ive had my first hospital appointment next week so I can tell them about this niggling pain.
Ive got kidney problems and it feels like ive got a hell of a lot more pressure on my kidneys thats resulting in pain.
Normal dipstick tests dont pick up any bug its got to be sent straight to lab.

1st community mw appointment that I had a few weeks ago was pathetic. The mw forgot to do bp even though I told her I was told to keep eye on it due to kidney problems which increases risk of pre eclampsia. She said right you can go now I said errm no, arent you supposed to do my bp. Her response ooh yes. She messed up and she had trainee with her.
Silly cow.

Rant over

sneezecakesmum Mon 10-Dec-12 21:15:29

Sounds awful when you are having to tell the mw to do her job! I think sometimes they get a bit blasé and don't take into account individual mums! DD (and I now I am hard up :-). ) paid for a private scan to check for risk of pre eclampsia which showed notches in the artery signals so she was put on aspirin and the notches are gone now so risk is now lower we hope. No more children as the worry is ridiculous grin

2old2beamum Mon 10-Dec-12 22:12:23

So knackered and busy will write soon. IV gammaglobulin inusion tomorrow all day. Weds Nativity at school another day gone. Thursday GOSH one more day lost Friday meeting at hosp yet another day lost.*Sorry not moaning* but I feel sorry for my 3 Downs but bless them they just accept it. BIG GUILT

Hope all is well with you and all your little scallywags grin

Dev9aug Tue 11-Dec-12 00:35:14

Hope you don't mind me asking here, what is BD? Ds1 suffers from chronic constipation and we are not having much luck with it even with lactulose and movicol, so any advice would be appreciated.

BeeMom Tue 11-Dec-12 01:11:40

Dev BD is Blended Diet... essentially "real" food blended to a super fine puree and thinned then tube fed. MANY kids really thrive on it.

Isitme1 Tue 11-Dec-12 15:35:09

Dev whAT beemom said

Hope everything went well today

Had another bleed yesterday. Much more than before. It was like I was in middle of a period then voila no blood at all.
Went to epu and got a scan
Mini me was happy. Nice strong heartbeat so dont know why that happened
How is everyone x

sneezecakesmum Tue 11-Dec-12 22:35:48

Isitme. How scary for you. Main thing is its stopped, just try to take things easy though!

Facebook page on 'Blended Diet UK' Also is very supportive and lots of info. We think it has helped DGS turn the corner (hopefully) but we are still beginners smile

2old. Christmas is stress enough for any mum but when you add all your SN darlings you are in need of a brew ...I'm teetotal grin

We're all OK at the mo and chilling.

Dev9aug Tue 11-Dec-12 23:38:25

We have only just got him to eat lumps in his food, so probably not the best idea to reintroduce puréed food, even though I think it might help him. Thanks, I will definitely have a look at flaxseed oil as I hate giving him movicol and lactulose everyday.

gallivantsaregood Wed 12-Dec-12 19:37:34

Dev; The BD is blended food but given via peg/button and sometimes even via the ng tube.

If your lo has started having lumps and maybe the amount he eats isn't enough then you could possibly blend up whatever he leaves from each meal, so it is smooth, and give it to him thoughts tube?

Isitme: Huge hugs. What a worry that must have been but great that baby is happy :-D

Hello and hugs to all xx

Isitme1 Fri 14-Dec-12 10:18:06

How is everyone?
Granny hows it going x

sneezecakesmum Fri 14-Dec-12 11:05:54

DD looks like she's caught a cold from her DH and DGS is coughing so we'll be back on the vomiting trail! He's been really well cold wise recently despite nursery. O well it's normal this time of year so just snuggle down with honey and lemon drinks grin. My nose a bit runny too so looks like a family affair. That's life but hope everyone else stays healthy.

DGS said his name twice yesterday. Not clear but shows he can do it smile

sneezecakesmum Fri 14-Dec-12 20:07:19

BD is working in the bowel department. No need for movicol for a couple of days....and we havent even brought out the big pureed prunes and orange juice! grin

gallivantsaregood Fri 14-Dec-12 22:53:41

Sneeze : yay!!

Things here not great. DS' wee msn is sore (red, inflamed), sore throat, eyes been bothering him, button is hurting on inside but looks clean and well..... GP thinks maybe he has something affecting all his mucus membranes!!!! Seeing consultant next week! It's a mystery

sneezecakesmum Sat 15-Dec-12 10:54:41

Doesn't sound good at all. I know DS is a unique kiddie and just hope the consultant has a few ideas. I suppose as DS was right before they may be able to get him back on track and try to avoid this again. Bit of a nightmare just when everyone is looking forward to Christmas. Xx

Isitme1 Tue 18-Dec-12 16:09:19

Seems like everyone is busy with Christmas prep.

Where is everyone x

gallivantsaregood Tue 18-Dec-12 19:14:15

I was thinking that too? How are you and DS?

Things hectic here. Lots of appts, seeing consultanttomo about Luuk's various maladies. Mum awaiting biosynthesis results on Thursday with high probability she has breast cancer...... Good news though is we go to matching panel early Jan and our new addition should be with us fairly soon after. Xx

2old2beamum Tue 18-Dec-12 20:47:03

Just to let you know I am not dead just clapped out. Be patient more to come.

galli so sorry to hear of your mum's breast cancer. Please tell her i had it when I was 48+ (20 years ago) Hope all goes well with Luuk these kids are like a minefield. Good luck with matching panel. One trick I kept up my sleeve when they would say " well we have another couple interested" my answer would be "there is another authority interested" Mind you it was for adoption but it worked!!

Grandaughter how are you my lovely hope pregnancy is now going OK. How is my DGGS send him my love and xxxxes

Life is chaotic here (message for oldsneeze old fart is being brilliant)
Briefly took DD5 to GOSH last week 3rd gammaglobulin infusion given I did it. Friday I am doing it all at school under watchful eye smile
Changing DS4 anticonvulsants which is always fraught
Older DC's partying non stop TAXI SERVICE a la ma/pa
Me I have a neck scan on Thursday (nought serious)

2old2beamum Tue 18-Dec-12 20:50:15

PS still have all xmas pressies to wrap------any offers BLOODY COMPUTER will speak again soon.
Love to all xx

gallivantsaregood Tue 18-Dec-12 22:33:52

2old: Thanks for that. Nice to know you are fighting fit 20 years after:-Dafter. Re matching panel..... We are the only ones so hopefully shouldn't need to use your advice, but will def bear it in mind.

Hope your scan goes ok and well done for learning to do the ivs. Will make life less complicated hopefully. How old are your 5?!! How do you do it? Do you live on red bull?

Hugs to everyone and happy healthy holiday vibes.... Xxx

P.S: I haven't wrapped a single present yet either. All bought though

sneezecakesmum Wed 19-Dec-12 15:31:32

We are still here. DD, her DH and me have have horrible cold and feel like death warmed up. She had to struggle into work 2 days for 12 hour shifts as NHS sacking people who go off sick too much sad Good news is that DGS (in the eye of the storm) got nothing!!! Full of beans and us dragging our sorry carcases around unable to do anything with him - thank heavens for DVDs!

Hope your mum is OK galli. BC is very treatable nowadays, expecially if you are a bit older, but she must be worried sick, all not nice at all. Hope your new baby helps her through this...I am sure he will arrive and be a lovely christmas present for everyone.

2old. Hope the IVs are helping little DD. Do you have to continue doing them for a set period or intermittantly. Does she have a portacath (or whatever they use) now? Like galli, I dont know how you cope shock

isitme. Hope pg is going well and little DS is perking up again. Seems such a problem his digestion, even after it was all supposed to be helped by the PEG.

We are off to the comm paed and are going to say he's on BD so get stuffed with your scummy formula!!! grin

Isitme1 Wed 19-Dec-12 17:10:12

Gali a very close family friend had bc and thankfully she is 100% cancer free now after all her surgeries and treatment.
Hope she is ok though
Granny well done doing it yourself.
We're at Sheffield tomorrow with ds. Grr long day.
I could do it before pg but right now body and baba needs calories every hour or so so I dont feel sick. Thats the only thing that works!

Sneeze hope dd is better soon. Has she had the flu jab??

sneezecakesmum Wed 19-Dec-12 17:40:59

Yes, DD and DGS had the flu jab. They wouldnt do me as Im too young grin Did the old fart though!!! DD is also going to have the whooping cough jab later on...what will you do?

Will you be getting to sheffield by car this time. Trains are too stressful this time of year...everyone going to meadowhall! Good luck anyway, bet you are sick to death with all the problems with DSs insides! We are starting to crack it with the blended diet. Gently increasing the volumes. It is brilliant in the bowel department. He was almost impacted on formula now going most days with no slides out....hope you are not about to eat grin

DD has just phoned to say that DGS just did a commando crawl!!!. Only one little go till he got his ball but he has NEVER got anywhere near it. Think it may be a combination of better nutrition, his new lycra vest and HOURS of physio work by us. Its a vital developmental phase and he probably wont do it again for weeks but its amazing for a child who has ZERO coordination to achieve this. This is the best Christmas present I could wish for smile

Isitme1 Fri 21-Dec-12 12:43:23

Awww. Its amazing when dc treat us like that and go forward rather than back.

Im going to have the flu jab once I stop feeling shit. And the whooping cough one too.

We went by train and it sounds like it was one of his last appointments there.
Hes been transferred to Manchester and we have appointment here in January.

Ds hasn't put weight on but hes eating a bit more orally which is brilliant.
Hes also trying very hard to talk!!
Hes was trying to tell me last night (on a double decker bus) that his cousin was upstairs asleep lol. Mixture of sign and language.

His gastric dr said that the chance that the next baba having problems like ds was higher than normal but he said we know what thw signs are and when/if ds1 needs his help again all I need to is ring him.

I've got kidney infection and antibiotics im on arent working and all the gp could say was drop another sample off in 2 weeks.

sneezecakesmum Fri 21-Dec-12 18:41:09

sad. It's not good to have kidney infections and be pregnant. Change your GP as he sounds useless. So pleased your DS is making progress and starting to talk. DGS makes a variety of sounds and points but its all a bit hit and miss with communicating. He saw a different comm paed who was very supportive of the BD which is a relief after Dr No! He has lost 1 Kg in a few months....we think from all the formula vomiting and a vomiting bug, so we are yet again on the trail of building him back up.

DD has SPD and having physio and has a belly band grin. Hope she doesn't need a corset, but she thinks that because she has such a huge c-section scar from the crash section (DGS was out in 3 minutes!) her abdo muscles are weaker. Can't see her managing to carry on working til the usual time.

starfishmummy Fri 21-Dec-12 20:31:22

Hi all, I've been lurking but not posting recently. We all had horrible cold/virus bugs (not flu as we've been jabbed) but are on the mend now and just about ready for xmas!

Isitme1 Sat 22-Dec-12 10:30:27

I had spd with ds and have been getting niggly pains here n therr. Mw did give me the physio no. But not rang them yet.

Ds is doing ok eating about half the time which is better than before.

Hope your all recovered in time for Christmas! ! Starfish x

2old2beamum Sat 22-Dec-12 17:12:49

Hi all what a week am glad all DC's are now on holiday
Gave DD her infusion (sub-cut not IV needs doing weekly but not so invasive) yesterday
My neck scan Thursday.
Gastro appt Wednesday
Dentist Tuesday X 6 me and DC's
Saturday I am Knackered

Hope you are all well and are ready for the old bloke in a red coat!!
Grandaughter SPD I gather is awful How many weeks are you now? Is my DGGS ok send him Big hugs
Oldsneeze hope you and all yours are well including Old Fart, mine has a b'day tomorrow so DGC's are coming over for a "party" hmm
Galli and Star hope all is well with you both

sneezecakesmum Sat 22-Dec-12 17:25:05


We have also been cold ridden so Xmas is all behind, not even bought food or presents for DD. on the mend but hey ho! Do I care!

2old .....appointments, flipping heck! But do enjoy your party xx

sneezecakesmum Sun 23-Dec-12 21:31:34

Food bought, presents bought and wrapped....done and dusted in 2 hours grin

gallivantsaregood Mon 24-Dec-12 08:28:34

Sorry I haven't been around. Healthy, happy Christmas wishes to you all.

Mum does have breast cancer. Will find out treatment plan on Thursday. I'm sure she'll be fine.

2 weeks to panel....... Exciting!!

DS is super excited am expecting a huge pukefest today and tomo. It's a wee shame. While everyone else over eats at Christmas poor DS ends up on dioralyte usually..... Lol. Xx

Isitme1 Wed 26-Dec-12 14:22:40

Merry Christmas everyone x
Hope you all had a good one!!
I blended Christmas dinner yesterday
(Turkey, sprouts, cauliflower, broccoli and gravy)

I did the same today at 12 and then at 1 I offered him some salmon and he ate most of it!!

He wae constipated and this has helped him go

starfishmummy Wed 26-Dec-12 14:33:14

Hope everyone had a good day yesterday!
DH was wide awake at 1am on xmas morning and was worried that santa hadn't been.
I resorted to setting my alarm for 2am when luckily he was asleep and I crept in and left his stocking stuff by his bed as I didn't dare try to reach for and fill the stocking!
He woke at 2.15 and that was it, he was awake for the day!.
Stockings downstairs next year!!

sneezecakesmum Wed 26-Dec-12 19:48:11

Galli. best wishes to your mum. Its very curable nowadays, but still awful I know. Fingers x for baby arriving. That makes three of you expecting!

Starfish, is your hubby a big kid at heart waiting for santa to arrive??!!! I know, but it painted a gloriously absurd picture of DH in his jim jams listening for the sleigh bells! grin

Merry Christmas too. I also blended the christmas dinner but not given as they didnt turn up to visit as it was getting late. Not our turn for The Dinner this year. Will inflict it on him tomorrow, as, tbh, looks and smells a bit vile..sure its the sprouts! Good for the bowels though as you say isitme grin

gallivantsaregood Wed 26-Dec-12 20:44:53

Merry Christmas everyone. Thanks sneeze. Things a bit overwrought as sis insisting on going to hosp with mum even thought SDad is going. She cant understand mum may need some privacy to just be her and not mum, gran etc!!! Of course I am the bad one!? Tried explaining how hard it is to ask people who are trying to give you support to let you have done space/privacy. Been there and wasn't able to send folk away which justmade things worse but she just seen it as me making it about me..... Not about me trying to show her (sis) a different perspective. She wants to be thee for mum and so do I, but I think we need to respect that she may need some space too!!Grrrrr why are families so difficult? Been crying much of the day, not about the cancer but that Sis sees me as selfish. Am I?

Poor DS didn't have Christmas dinner. Gagging and retching galore due to excitement so had little good and much dioralyte!!! Lol!

Hope the world is well with you all. Xxxxx

sneezecakesmum Fri 28-Dec-12 20:00:35

families can be extremely difficult at times but sometimes the best support ever! Its just a bit hit and miss. DDs DH is having a similar thing going on with his sis as their dad is also ill. Major stress all round sad

DGS pooing for england at the moment, must be all the fibre blended in the foods.

Had a quiet xmas and just hope next year is better than the last.Don't you just wish you could sail into quieter waters and just lead a boring normal life?

gallivantsaregood Fri 28-Dec-12 23:51:03

Sneeze: Boring is definitely gois! Lets hope we all have a boring 2013, although some gois excitement is also welcome. X

Isitme1 Sun 30-Dec-12 09:02:21

Thats families for you gali
Atm I've had enough of mine here.
Ive been up in tears this morning as the eldest has tried to keep the bread away from us and ds and dh wanted breakfast and I couldn't give it them.
We live in an awkard little setting and he locked us out of the main part on purpose so I couldn't get to some fresh bread.
Bastard he is.
Hes put me off breakfast.

I hope we all have a nice, safe healthy year ahead of us.
Im very much looking forward to meeting the new baby. I cant wait to feed him/her as I had no luck with ds. Im anxious about having the same problem but I hope everything is well.

Isitme1 Tue 01-Jan-13 09:20:54

Happy New year everyone x

2old2beamum Tue 01-Jan-13 21:08:15

First let me wish you all a very peaceful 2013
Galli hope all goes well with matching panel, I remember our 1st 30yrs ago I was in theatre assisting (only in a nursing capacity I might add) when 'phone call came through HE WAS OURS!! How different it is now.
Oldsneeze glad Xmas was ok sorry about family problems. I am ?lucky apart from my own I have no one I came from a disfunctional family (SW talk!!)
Grandaughter how are you my lovely and my DGGC Just ignore your family if they are stressing you out you don't need it Love to you all.
Life here rumbles on. Xmas exhausting. All home growns arrived. The others all behaved themselves for once.
Have now become adept at doing DD's infusions just need GOSH to watch me and then I am away YIPEEE
Forgot exploding colostomy bag shock

starfishmummy Wed 02-Jan-13 11:45:09

Happy new year everyone.

And yes, I did mean ds was waiting up for Santa, not dh! oops (too much sherry!!)

DS had a hospital appointment on sat 29th and we now have end of march/start of april penciled in for his spinal op............

Isitme1 Wed 02-Jan-13 16:13:09

That did make me giggle.
Dh waiting for santa

Ds has been pretty constipated.
Hes had some movicol but nothing has happened yet.
Going to give another sachet soon.

Hes been granted 2yr nursery funding which is going to hopefully help his oral intake.

I've been working out dates and I will hopefully find out what im having close to my birthday.
Can't think of a better 21st birthday present smile

sneezecakesmum Thu 03-Jan-13 19:15:43

Isitme. good news on the nursery funding. It will be interesting to see if he copies the others eating normally, brilliant if he does. Blended diet works really well to get some pooing going, DGS had a really good clear out before christmas!

Starfish. Is it an op the straighten his spine. Have seen it done and its a big job, but very safe and amazing results. Remember a nice looking pleasant man who had a very severe deformity and tbh you only saw the hunchback look. When he walked out all I could see was an absolute hunk who was very self effacing as he'd never had his head turned by adoring girls!

2old Do try to get a rest! You must be exhausted. Good thing DDs infusions can be done by you. Hope it means less traipsing up to hospitals and faffing around.

Isitme1 Sat 05-Jan-13 14:52:55

I think everyone is still trying to recover from the party season.
Come baaack!!
Its been a horrible few days here as apparently im wrong.
Its kicked off here again over how the kids are treated. Ds is treated like the runt of the litter compared to the other grandkidswhich pisses me off
I told m sstraight that its not fair. Ds hasnt Done anything wrong and dh has backed me all the way. He normally says don't stress your parents out its not worth it.

Ds was at the hospital yesterday and hes been put on erythromycin to help his gastric problems and should help with constipation too.
Im 12 weeks woop. 2nd trimester here we come smile

Granny you need to rest a little too.

Sneeze hows you and dd and dgs??

Gali?? Hows everything going?

2old2beamum Sat 05-Jan-13 15:52:56

Hi all my friends its about time we put the festive season behind us for 9 months grin How are you all?

Galli not long now I am sure it is only a formality, is it a local placement?

Oldsneeze hope all is well with you and all the little sneezes, hope DD's pregnancy is now running smoothly and you can all relax for a while.

Well Grandaughter 12 weeks hopefully you can now start to enjoy your pregnancy. How is my little man (DGS not your DH wink)
Please don't let your parents get you down, they are being awful. My evil stepmother always pointed out "they are adopted you know nothing to do with us" angry DH's family are brilliant and treat them even better than their own!!

We are fine here am getting crack hot at weekly infusions just wish the little madam would sleep more than 4 hrs. DS is ok but bloody seizures problematic. Older DC's now back at Day Services, bowling at present

All of you take care xx

sneezecakesmum Sat 05-Jan-13 20:00:44

Isitme. Do you still live with your parents? If so look to get somewhere you can have a bit of peace and quiet. Some families are just not nice and treating grandchildren unequally is just not on! Have you looked into blended diet (real food down the tube?). Its helped big time with DGS constipation and vomiting issues. We are very pleased and if the dietician objects she can get knotted!

Wonder if gali's baby boy has arrived yet....def like christmas!

2old fits sad what more can I say. Lack of sleep sad what more can I say again!

We are praying (and I'm not a very religious person) for DDs friend who has a toddler with a genetic syndrome and whose new babys being investigated for epilepsy. Cant see an obvious connection between the two totally different things but we dont know how she will cope if its the dreaded early onset epilepsy iykwim.

DD is fine and blooming euphemism for fat (I like to wind her up) She is 28 wks and has at last gone off sick with back and SPD. Got so bad she was washing her hands unecessarily just to lean on the sink for a minute or two to ease the back pain! Doesnt help having to carry a 4 year old around at home, but at least she can rest more. DGS has learned to blow a flute to try to make a thomas the tank engine (good incentive) noise (not play, just blow!) its good though for future speech smile

sneezecakesmum Sat 05-Jan-13 20:01:56

euphemism for fat was meant to be euphemism for fat Im really in trouble grin

Isitme1 Sat 05-Jan-13 20:41:08

Granny they just don't want us there.

Sneeze its almost like we're in a 1 bedroom flat and we go to theres during the day.
There will be no more of that then.
We went food shopping so weve got more In.
I made some delicious rice today so very proud of myself smile

Ds had the most poo!!
Almost normal! !
But sadly still refluxing

2old2beamum Sat 05-Jan-13 21:18:07

Grandaughter I had no idea you lived withyour parents am I right? Are you on housing list. I really don't now how you manage, you make me feel guilty as we have 8 bedrooms.. Everything nowadays seems to be stacked against young people. Sorry Little Man is still suffering with reflux DS has now got a jejunal tube which does help but still needs Omeprazole,
Tell me to piss off but was Little Man ok prior to meningitis? DS was absolutely fine until then Delighted about poo

Pleased I was pose 100

Oldsneeze religion passed me by at 18

Isitme1 Sun 06-Jan-13 08:51:30

We've decided to stay here away from them. Even though a few of them come up here to use the rooms.
They keep saying im wrong hmm
A mother will not stand by and watch her child be treat like shit.

The reflux is silent reflux and you can hear him be sick but swallow it God knows how many times a day.

Ds was 9weeks old when he had meningitis.
5 days prior he was diagnosed with reflux. It was horrible. I was tired and I he got up and I put him on my chest to lie down and he was hot amd grunting. I didn't think anything of it and his dad was with my dad at work at 6am.
I thought he was constipated and thats why he was grunting but took him to gp amd he prescribed antibiotics just in case and said if he was no better by 4pm go hosp.
We went hosp and he perked up. So we were told its just viral.
Next day he wasnt too bad but when it got to 8pm je deteriorated very quickly.
He was floppy and had high temp and lathergic and would cry at times.
We went back to a n e and he was seen straight away. They canulated him and gave him antibiotics iv and then he was transferred via ambulance to a different hospital.
The consultant there said we have to do lumber puncture to rule it out but it wont be that.
Then when the results came in at 2am he was surprised as ds was ill but not omg ill at that time. They started treatment amd gave him a brain scan a few days later.

I had a horrible dream the other day that I had a prem little girl and then ds got meningitis again.

Granny I dont think we can get council housing due to dh as his visa conditions are that he has no access to public funds amd council houses are I think.
I might just ask the immigration solicitor.


sneezecakesmum Sun 06-Jan-13 20:29:20

Poor you and little DS. I know exactly what you mean about desperate illness etc with your LO. It felt to me like I was sleepwalking through some nightmare with DD not to good after crash c section, and DGS fitting and being on NICU. Every bloody day barely getting through and just wanting it all to go away like a bad dream. Around you life is just going on, normal babies everywhere, happy parents and you are just in this bubble of despair and FEAR. The bad dream you had sounds a bit like PTSD lingering. It gets better with time but being pregnant again, for you and my DD just brings it back again sad [def no xmas hat]!

Have you thought of renting? It is expensive but the peace and quiet of your own space and no interference from family is very precious! live in a mansion?!!! grin

2old2beamum Mon 07-Jan-13 21:11:17

No oldsneeze I do not live in a mansion just a tatty Victorian Terraced House 1874 like a lot of seaside town houses very close to the seaenvy Financially more draining than a truculant teenager!! but I love it Am known round here as the batty woman that buys/drags old furniture etc home. House so full (but I am organised) that I now only collect small bits.
Hope you are all well Little DC's school tomorrow Support staff never seem to use common sense over drugs etc health and bloody safety The drug regime always seem to change over holidays and then they are off to respite gringrin on Wednesday but hosp appt on Thursday for DS and Friday in to school for infusion. Both appts 60 mile round trip!! Some respite

Grandaughter hope you are all ok (I am in moan mood)

Isitme1 Tue 08-Jan-13 08:42:07

Moan away then granny.
Today and yesterday was better.
Ds had his meeting with nursery amd he loved it. Hes going for an hour today and starts on Monday. So me n dh get to see dc2 on the scan next week peacefully rather than worrying about ds kicking up a fuss in the hospital lol so he will be at nursery.

Sneeze it is horrible and yhh being pg brings it all back but we will get a little baby out of it so it's worth it x

sneezecakesmum Tue 08-Jan-13 22:05:39

2old. What you describe re the school and the med regimes etc is scary. We are worried about DGSs blended diet when he starts school in September. Can see DD having to go in 2-3 times to feed his tube sad Really can't see dietitian doing a u turn on feeding. Bugger just when we are getting to grips with it all.

Isitme. It's worrying about getting a little babe out safely which is giving us nightmares as all DGSs problems started at the birth. Glad DS like nursery. Lovely to get someone to take over for a bit. DGS loves nursery too which is nice.
Night all xxx

Isitme1 Wed 09-Jan-13 11:15:37

So is dd going for csection?
My problem was I couldn't dilate properly and I was in labour for 5 days (and they left me that long while I was waiting to be induced) and then I tore and insides came out with ds and had to have emergency surgery. So this time round im thinking is it safer to go straight for section or do I say after waters have gone if within 2/3 hours nothing has changed to go for section? ?
Seeing consultant on Monday so will know then x

2old2beamum Wed 09-Jan-13 17:34:02

Oldsneeze regarding feeding, I agree without dietician on board there will be trouble ahead. Do you think he may be taking more diet orally you can but hope.
Somewhat annoyed with school they refused to give DD's tablets as they had no expirey date on bottle- the bloody things were only dispensed on Friday
Talk about covering their backsides before the health of the child angry Both in respite until Monday SLEEEEEEEEP

Grandaughter (midwifes nightmare) if you were my patient with what you have said I think a c-section would be my choice. But I haven't seen your notes. Hope DGS is ok XX

Galli have you been to panel yet.

sneezecakesmum Wed 09-Jan-13 21:08:22

DD is having another c section. Not going to risk same thing happening (placental abruption at home shock) If I were you isitme I would go straight for a section, not risk tears and other stuff going wrong again. If you wait til labour starts there may be someone else in theatre etc. planned is my bet. I dont go with all this earth mother, natural labour malarky. Its painful, frightening and dangerous! (but thats just me). Now attachment mothering? I did it before it even had a name...grin

No expiry date on the label!!!! So let the kid get sick??? words fail me.

Hopefully DGS is eating well by september but DD is prepared to go into school to feed tube. Me too. Can always tube breakfast and evening meal regardless. Dietitian wont get on board as real food causes tubes to disintigrate as we put battery acid in the feed dont ya know? hmm

sneezecakesmum Wed 09-Jan-13 21:10:58

2old. Whenever DD mentions silent placental abruption at home to the docs and gasmen she works with (in ICU) she gets gasps of horror! As a mw you know it doesnt get much worse than that!

2old2beamum Wed 09-Jan-13 22:41:25

Oldsneeze didn't realise she was a placental abruption (can you hear the gasps of horror from Norfolk) Although I did my midwifery I shot to NICU at the 1st opportunity much more my scene. Is your DD going to stop work @ 28/weeks Also I agree with you about this modern fandangled motherhood. All I care about is a live healthy mother and baby!
goodnight all you scallywags xx

Isitme1 Thu 10-Jan-13 07:48:36

I bet you heard my gasp too.
Bloody hell.
How was dd after the section?
When could she get up and actually do something? Thats what im worried aboutas dh works and wont be able to get that mumuch time off work and I have ds.

Granny thats what I thought should of happened.
The mw that I had was such a bitch she said I will make sure you dont get induced first and swore at mum!!

sneezecakesmum Thu 10-Jan-13 21:25:07

I can hear the gasps of horror! Was everyones worse nightmare, but DGS is here, he has his problems but he is gorgeous! DD has now stopped work (sigh of relief) SPD, back and pelvis giving up the ghost. Scan today was spot on. she's having monthly scans because of the previous problems.

isitme. DD was up and showering (complete with catheter bag) the next morning. DGS born at 22.20 the night before. She just seemed in a daze, carting the catheter around, never moaned, despite huge scar (DGS out in 3 minutes I believe..scalpel to skin it says!). She only had thoughts for the wee mite clinging to life NEVER said a word about herself (love that girl smile)

fathers get parental leave you know. Think its 3 weeks but not really sure. shock at MW behaving like that. They were all lovely to DD, and way back in the mists of time my MW was lovely too. Hope you have better luck this time.
night all x

Giddypants Fri 11-Jan-13 19:20:05

Just to correct mum
DS was born in 7 seconds from scalpal to skin, 27 seconds from me being intubated to El coming out. Not 3 minutes.

Just checking how many times shes called me fat, it's ok I call her old grin
<bows out>
Aka sneezecake xx

2old2beamum Fri 11-Jan-13 21:29:50

Don't worry Giddypants we know oldsneeze is slightly potty and to be honest I can't recall her calling you fat. BUT she does call your Dad "the old fart" Hope you are OK and you are putting your feet up. ITU not the best place for "ladies in waiting"
HAHA oldsneeze I've dropped you in it gringrin

Grandaughter XXX

Isitme1 Sat 12-Jan-13 09:25:22

Sneeze your extremely lucky to have a mum thats supportive.
Hope you and ds and baba are well

Granny enjoy your time off x

Giddypants Sat 12-Jan-13 10:50:15

She is fabulous I must admit, think I would have been sent to the loony bin without her! She was telling me how when I was a few days old and smiling at her, I've always been a mummy's girl grin

Dad is definitely an old fart, I'm sure he was born that way too!
Work is on hold for the next year now, even management are in agreement that I had to go and take things easy for a while before ds2 arrives.

Mum is having Internet difficulty so may be away for a while but she thinks about you often.


Isitme1 Sat 12-Jan-13 11:10:26

Glad your taking it 'easy' (what ever that means lol)
How are you finding things?

Hows the bd going? ?
Aww we'll miss here over the next few days

sneezecakesmum Sat 12-Jan-13 11:31:48

Flaming Internet. Comes and goes all the time, talktalk threatening to send expensive engineer out.....just send me a new flaming router first.

As mums go I'm not bad grin


Isitme1 Sat 12-Jan-13 12:51:29

Ive just seen the typo
Im sure you all know I meant miss her.

Stupid Internet people.


Giddypants Sat 12-Jan-13 14:36:13

Pregnancy wise, I'm ok I have the odd moment when I think OMG what have I done one is enough, and then gooey moments, like yesterday when I saw my friends 4 month old, she gave me a load of tiny vests, and I think it's not too bad.
Mobility is my biggest issue seeing my physio on Monday think she will give me one of those girdle things to hold my pelvis in place, lifting DS doesn't help, but what am I supposed to do?

The bd is going really well, he's a different child, loads more energy, (even at night angry ) bowels open every or every other day, vomiting stopped, nothing but positives, except the time spent making the blends, but even then we just make more dinner (which we eat) and just blend the remaining up, adding some oil or cream to increase the calories. DH is quite enthusiastic about it too, I think he just likes playing with the blender.
And mum does a lot of the blends and freezes then so couldn't be easier than to just take a tub or two out the night before.

DS has managed 200ml at lunch time, which is a record!!

Isitme1 Sat 12-Jan-13 14:49:27

O wow. Thats brilliant hes doing well.

I had spd 1st time round and from what ive heard its supposed to kick in earlier 2nd time round so not looking forward to it.
Can I ask you how you got on after csection (if you don't mind, if you do just tell me shut up lol)
the only thing that keeps ds regular is the erthorymicin

Giddypants Sat 12-Jan-13 15:50:53

I can't really remember too much about it, I had a general anaesthetic so no epidural for pain relief, I was given 10mg of IV morphine post op, but then it was just paracetamol, i think they said it was because. I was breast feeding, that they couldn't give me anything stronger.

I think the first 3 days were painful, going over speed bumps were the worst, kept shouting at DH to go slower!
I couldn't walk (due to pain) the first morning approx 6hours post op when I persuaded mum to wheel me down to NICU to see DS.
The catheter was nothing to worry about, just don't do what I did and leave it attached to the bed and walk off blush I didn't get far!

Having said all that my friend had an EMCS and her recovery has been ok, she had an epidural so pain relief was much better, she still couldn't get up for 12 hours or so.

I'm just not looking forward to the needles in the back, having assisted and witnessed my fair share of them I know the process which isn't always a good thing!

2old2beamum Sat 12-Jan-13 16:11:27

For an elective CS I would go for an epidural (no good for an emergency CS)
The mums seemed to get better much quicker and it appeared the babies fared better

Having had an epidural after seeing so many like giddypants I was terrified, hand on heart it was a doddle and I am a big wuss.

Isitme1 Sat 12-Jan-13 17:36:50

I had epidural for when I went down for emergency surgery after having ds and I kept thinking right if I move they will get the wrong thing and then im f*****.

Ive had some pretty bad tummy pain. I've had to lie down. Ds is in high chair and got pump on. He wont eat his tea and had very little dinner.

Dh has got no tea yet as im in pain but irs tough. Once it gets better I will cook x

sneezecakesmum Sat 12-Jan-13 19:48:03

Internet seems to be working temporarily after headache inducing phone calls to talktalk. fingers x.

take it easy isitme. I'm sure DH is capable of feeding himself grin If not thats what take takeaways are for!

Think DD should go for the epidural tbh. As she knows most of the anaesthetists she can tell them to b off if they are a bit naff!

DGS doing so well on his BD. Tolerating ever increasing amounts smile

Giddypants Sat 12-Jan-13 20:46:42

There is only 1 anaesthetist who I really don't want that's rotating onto obs in feb, he's a bit of a slime, so will be ordering him out!

I'm a big wuss when it comes to pain, I can't even do headaches without complaining to someone!
I've got some hypnobirthing CDs which I found helpful last time to help me zone out whilst the chaos was going on around me, going to order the cesarean one to listen to later.

2old I think that I'm stressing myself out with the medical knowledge I have. Ignorance is bliss sometimes!
I think that looking after the really poorly patients brings home how fragile life is, maybe time for another profession?

2old2beamum Sat 12-Jan-13 21:01:56

Tell DD the old mum"old fart" in Cromer agrees with her old mum it will be nothing like an emergency CS scarey.
Glad DGS is tolerating BD. Wouldn't dare try it on DS jej fed and DD has constant diarrhoea.

Grandaughter x hope DH enjoyed his own cooked meal and you enjoyed yours
DH and I take it in turns

Isitme1 Sat 12-Jan-13 21:17:45

I managed to borrow some curry lol and got some naan bread from the shop.
Pain has settled but it scared me a hell of a lot!!

2old2beamum Sat 12-Jan-13 21:35:21

Giddypants NO we chose the best job in the world. What other job could you get up in the morning/night and not know what was going to slap you in the face. You will never forget the buzz, that is why we chose ITU/NICU.
Mind you is this why we chose to adopt DC's with disability that was our choice Your beautiful DS was not your choice but I know he is so loved and he couldn't be loved more by you, DH and his doting GP's
Use your knowledge to your advantage. I do I am never rude I listen politely and say I may be talking out of my backside but---- they then listen. Mind you it took 3 years for "they" realised DD had an immune problem after me banging on.
Sleep well all you little scallywags ( haha mine are in respite grin)

Isitme1 Sun 13-Jan-13 16:23:27

Enjoy the break granny.

It started snowing here hmm
why??? Who wants slushy snow.
I dont fancy falling on my arse!

Mother is happy as she has had a show.
Im actually really excited for her. P.s
Things have been slightly better

Isitme1 Mon 14-Jan-13 17:27:29

Uterine inversion

Thats what I suffered from with ds.
Just seen the dr but they wont say if I canhave a ssection yet or not. They need notes from previous birth.
That really upset me. I can't do that again x

Giddypants Mon 14-Jan-13 19:33:54

isitme the way you bring your child into this world is your choice, they can suggest options which are available to you but ultimately if you requested to have a section they have to honour your request, just be firm!

2old I wouldn't really give up ICU, I went into work today to have some blood taken my colleagues are all lovely and supportive, consultants are approachable and like just chatting passing the time of day etc. and most of the patients are good to look after especially if they are sedated and can't ask you for this than and t'other

Isitme1 Mon 14-Jan-13 19:45:47

I said I can't go through that again. I was becoming teary eyed. It really did damage me.
I said I want a birth plan so I can relax.
She said we will probably induce you.
I said no I want section.
She wasn't the consultant so I hope I see her next month. I did request to see her but didn't get a chance to.
I've been told im high risk for pre eclampsia due to kidney problems, migraines, protein In urine etc and I want all hospital care. She said no.

Giddypants Mon 14-Jan-13 20:51:55

They tried to pull that on me, oh we can monitor your progress through labour, if there is any sign of distress we ca do a section then, I told her no I want a section, and only a section I already have one brain damaged child I don't want to risk anything going wrong with this one. She agreed and wrote on my note for ELCS at 39 weeks!
Stand your ground, you have very good reasons why you should have a section, it's not about too posh to push, it's about them providing the best care they can, which you are entitled to.

How's your mum doing?

2old2beamum Mon 14-Jan-13 21:06:33

DGS I am unable to advise you.BUT
I may be wrong but issue number 1 is my DGGS contracted meningitis at 9 weeks it must have been horrendous for you and because of my beautiful son I know your sadness.
But it was nothing to do with your delivery NOW from a midwive's view these are not connected medically But as a decrepid old midwife and a mum of 8 SN DC's I know where you are coming from. You are scared and I would be too. There is no way I would go through a normal delivery again not possible and you have rights so don't let them push you around.
Love to that little man
Hope this makes sense.XXX

2old2beamum Mon 14-Jan-13 21:13:15

Oh my god talk about cross posting (DS3 deciding to have a seizure)
giddypants is oldsneeze, hope you are ok

2old2beamum Mon 14-Jan-13 21:14:58

Bloody computer how is oldsneeze it was meant to say XX

Isitme1 Mon 14-Jan-13 22:10:16

Granny I know they aren't connected.
My point to the silly dr who wasnt understanding what I was saying was I almost died and if it wasn't for the male student Chinese midwife for pressing the emergency button I would of.
That's when the Chinese surgeon came in and screamed at the mws 'trying to put everything back and sew me back up' as 'blood waw squirting' and my bits 'crumbling like cottage cheese'
Sorry tmi but that was their words.

I physically and mentally can't do that again x

Isitme1 Mon 14-Jan-13 22:11:24

Sneeze I am going to stand my ground.
I will ask for a second opinion or go to gp who will defo back me up. He told me ro make compensation claim after ds.

2old2beamum Tue 15-Jan-13 07:45:30

Sorry DGD didn't realise you had been through so much. I totally agree ask no demand a second opinion
Back soon

Giddypants Tue 15-Jan-13 08:35:17

Hope DS3 is ok 2old.
Mum is fine its all 'q' word here at the mo.

Isitme did they have your old notes when you went to see them?

Isitme1 Tue 15-Jan-13 08:43:52

It was the mw at my last appt last month that suggested that as all I could remember was everything coming out with him. once I googled it I I realised that was everything that happened and the silly dr agreed with me too.
I said to her I was is labour from Monday til I had ds on Friday morning. Waters broke on Monday night. I was having contractions every 3 mins for all that time.
She said I want to correct you. We say someone is in labour when they start dilating. I told the stupid cow I had a lot of trouble dilating and I was supposed to be induced to help things. (Which the mw that swore at mum said I will make sure your last to go down to be induced).

Im sorry I keep blabing on about this. I haven't been able to talk about it properly for a long time.

Sneeze when did they sort out your birth plan.
I tried to convince her yesterday to sort it all out but jer argument was your only 13 weeks and its too early to say. I said I dont want to be stressing about it during pg.

On a different note h was an ass.
And still is.
I took him with me for support and I got nothing. He doesn't realise what happened. So ive got a h who isn't talking to me. Great.

Isitme1 Tue 15-Jan-13 08:46:21

Nope they didn't. Its a different hospital from where I had ds. Im now at st Marys womans hospital next to the royal children's hospital. They tried to get them last time but got nothing. I bet the last hosp will say we've lost the notes.

Giddypants Tue 15-Jan-13 08:57:17

Ha birth plan was in place before I conceived! I informed the consultant when I first saw her think at aroud 18 weeks.
Definitely before 20week scan.

Sounds like you had a horrendous time I agree you should go down the more planned route.

It would be great if all babies just popped out with no complications eh?

Isitme1 Tue 15-Jan-13 09:00:19

We would all love a nice and easy birth.
A family members water broke at 7pm. She went to hosp at 10 and had ds 12pm.
That's what id love.
How is ds x

2old2beamum Tue 15-Jan-13 11:48:13

Bloody midwives are right up their own arses You have reminded me why I got out when I did.
Ofcourse you need a birth plan don't they realise having a baby is a big thing
The trouble is midwives become hard, to my shame I found it hard not to cry
at any birth I dealt with.
Stick to your guns

Tell DH to think of you

Isitme1 Tue 15-Jan-13 14:57:58

Granny you are the mw so what does uterine inversion and uterine synaechia mean to you?
Please correct me if im wrong but has the second occurred becaus3 of the 1st?
Because of the scarring from the first?
From my knowledge dr Google thats what that means?
Dh has been a bit more understanding.
I told him he was like sisters hubby who is a bastard grin and now he has realised the wife has hormonal imbalance lol.

Isitme1 Tue 15-Jan-13 15:18:05


OBJECTIVE: Uterine synechiae have generally been considered benign findings in pregnancy. We used a large perinatal database to test the hypothesis that uterine synechiae are associated with pregnancy complications.METHODS: We performed a retrospective cohort study of women with singleton pregnancies presenting for routine ultrasonographic examinations at 17-22 weeks from 1990-2009. Pregnancies with multiple fetuses, amniotic bands, and congenital uterine anomalies were excluded. We compared pregnancy outcomes between women with and without uterine synechiae. Multivariable logistic regression was used to adjust for confounders.RESULTS: Of 65,518 pregnancies meeting inclusion criteria, 296 (0.45%) were diagnosed with uterine synechiae. Women with uterine synechiae were significantly more likely to have placental abruption (2.1% compared with 0.6%, adjusted odds ratio [OR] 3.25, 95% confidence interval [CI] 1.43-7.36), preterm premature rupture of membranes (PROM) (5.5% compared with 2.3%, adjusted OR 2.51, 95% CI 1.51-4.18), and cesarean delivery for malpresentation (5.1% compared with 3.0%, adjusted OR 1.75, 95% CI 1.04-2.95). The risks of placenta previa, fetal growth restriction, stillbirth, and preterm delivery were not significantly different.CONCLUSION: Uterine synechiae are associated with significant increase in the risk of preterm PROM, placental abruption, and cesarean delivery for malpresentation. The notion of uterine synechiae as benign findings in pregnancy should be re-evaluated*

Do you think I should stop consulting dr Google or do you think it's a good thing to be aware of this?? X

Isitme1 Tue 15-Jan-13 15:19:33

Ps this is the site

sneezecakesmum Tue 15-Jan-13 19:23:07

While granny is being the oracle of delphi and the font of all knowledge (yes 2old you!) someone I'm in touch with online asks this: Our 3 y/o daughter has been coughing consistently now for months. We have spoken to several doctors, pulmonologist, neurologist and gastronolgists, and they seem to think everything is fine. I have to tell you my ‘mommy’ gut feeling isn’t so sure. She is gagging and throwing up every morning. When she throws up she releases gas or has a bowel movement at the same time. She is on a GJ tube and she is fed through the J tube. Has anyone experienced this before? Is this common? Any ideas?

Will come back later to read all other posts!

Isitme1 Tue 15-Jan-13 19:56:12

I could be talking nonsense but you asked for any ideas so
-uncontrolled ashtma? At that age its hard to diagnose
- her way of realising stomach gases?? Does she get vented at all??

2old2beamum Tue 15-Jan-13 21:54:39

Sorry if I offended anyone this was not my intention, I admit I know nothng
just have a little knowledge and experience. However I am appalled the way people are treated by the NHS and pushed around by heartless staff.
My last post seemed to have vanished down the big black hole
Just trying to be helpful to the mum you mentioned I agree with itisme that medics are so reluctant to dx asthma at an early stage. I find aspirating the gstro tube X2 a day helps but no feed comes back. If she was my DD I would be very worried

Isitme1 Read your mail with interest I only saw one uterine inversion in my training and this was postdelivery. Will read your link tomorrow All 5 DC's stranded in city due to snow 2LO's arrived at 21 15 and still waiting for others

Sneezecakesmum I am so sorry you think I am cocky Believe you me I am a big wuss
Take care everybody

Isitme1 Wed 16-Jan-13 08:00:46

I think any where you go there's good and bad staff but with such poor conditions and being soo busy the nhs staff seem to be the worst.
Ive met some lovely nhs staff that have gone out of their way to help and ive met some awful people who honestly made me cry .

Thanks granny I thought someone was going to tell me to shut up lol.

Mums waters broke this morning. Been trying to reach her she was in a lot of pain. She had the sweep yesterday. Hope shes ok x

starfishmummy Wed 16-Jan-13 08:54:26

Hello!! I've been kluking and thought I needed to pop in!!

2old - what time did the kids get home yesterday? I saw your post on the snow thread. Every summer in Mundesley, I dream of moving there but have now gone off that idea - at least while ds is still at school!!

sneezecakesmum Wed 16-Jan-13 18:39:50

2old. I don't think you're cocky, just a lot cleverer than me especially wrt all your broods conditions, makes you the expert as far as I'm concerned. smile. Hope youre not offended? anyway Hope they all arrived home safely. I hate snow and ice for travelling and safety of LOs.

Isitme hope your mum is doing ok. Must feel a bit nerve wracking with all the focus on childbirth.

DGS is slowly putting weight back on with BD and the volumes gradually increasing. We are going to start toilet training!

Isitme1 Wed 16-Jan-13 20:38:58

Its horrible sneeze.
I feel like crying. Ive kept back the tears.
Its like im living a nightmare and I need to protect mum so it doesn't happen to mum.
Ive been backwards and forwards to hers and mine. Im sat with her atm.
I can't go with her when she goes in because of ds.

2old2beamum Wed 16-Jan-13 21:09:46

Oldsneeze thankyou and NO you did not offend me just put it down to my basic insecurity ( I come from a strange family bitch of a stepmother who
constantly put me down and ridiculed me. I am a tad sensitive my prob not yoursconfused) Know a little just through hands on and my passion for SN
Hope your little family are OK

All DC's home by 23.30 thank goodness the 2 fitters had anti convulsants at
school and day services. I have been bitten before. Many thanks to both taxi
drivers. All stayed at home today so nought done.

Starfish don't let the last few days put you off it does not happen very often
There is a brilliant school in Sheringham,, the only reason we do not use it is DS is deafblind better facilities for him in Norwich SO DD followed

DGD no time today to look at your link but an OLD colleague popped in she looked very blankly at me when I asked her NO help there Hope you are all

Take care and hope all scallywags sleep well (I should be so lucky old fart can sleep through a tsunami)

2old2beamum Wed 16-Jan-13 21:14:27

Don't know how I missed about your Mum hang on in there send her my love and you ofcourse Let us know and try not to worry.

Isitme1 Thu 17-Jan-13 08:26:19

Last night wasn't too bad because I was enjoying a mcflurry in bed
But then all again this morning.

How is everyone x

gallivantsaregood Thu 17-Jan-13 10:22:05

HI folks. Sorry for my recent absence.... Busy busy here.

Isitme: huge hugs for you. Stick to your guns re birth plan and c-section. I had emergency c-section but had thankfully already had an epidural..... How is your mum?

Sneeze: re the lady asking for advice. My DD has always had issues with gagging/ retching. He dies not have a funding. However his insides are higgeldy-piggeldy with annotated gut, liver in lower abdomen and his stomach is sitting at a funny angle and is small. If he has wind, needs to poo, his bladder is full, his stomach is completely empy or if his clothes put ANY pressure on his tum at all he will gag or even vomit.As a baby we couldn't put his nappy on properly cos that would make him vomit. He has pretty bad reflux but thankfully doesn't aspirate.

Has the little girl ever had an MRI? Am thinking maybe some organs in odd place? Or really bad reflux? Maybe really sensitive to pressure from clothes/nappy around her middle?

Not sure how helpful that is but just a wee though

Giddy: Hello :-D

Haven't caught up with all that's going on but will try to over next day or so. Hope everyone us ok,,xxxxxx

Isitme1 Thu 17-Jan-13 18:33:19

Galli we want to know how you are too.
Hows everything going?
Mums in full blown labour.
Me n immature sister are taking it in turns to go and sit with her.
I explained to staff that I had a hard time in labour and mum has had mc sothe 3 of us would like to be with her but I just got a blank face.

Ds has been asking for mama. Feel bad that he won't see me til morning. Unless he wakes when I get in at 10.30ish

Isitme1 Thu 17-Jan-13 22:08:34

Mum has had a little boy!!
Hes gorgeous! !
They are both doing well x

gallivantsaregood Thu 17-Jan-13 23:00:28

That's fantastic. Congratulations!! thankswine

Giddypants Fri 18-Jan-13 07:26:55

Congratulations well done your mum x

Hello galli hope the bd is going well we have no complaints here all good

Mums Internet has gone down again waiting for a new thingymajig she has cold and the old fart has food poisoning I'm not going anywhere near them for a while!

2old2beamum Fri 18-Jan-13 13:48:31

Congratulations to itisme1's mum and welcome to her little boy .
DGS what a lovely daughter you are!!

Giddypannts!! Where is your compassion ? grin
Hope the dribblies feel better soon, don't tell them I said that. Perhaps I should name change

Isitme1 Fri 18-Jan-13 17:40:19

Thank you all.
Baby is spit of ds smile
And watching mum in labour has helped me a little x

Giddypants Fri 18-Jan-13 18:37:58

Ha ha they're old <ahem> enough to look after themselves, it will be my dads own fault he has the gallops, and mum doesn't think she has a cold anymore, she's probably been snoring like a train and made her throat dry.
<evil> grin

I have a whole day of entertaining DS tomorrow while the floor in the hall is being installed. What to do?

I had DSs annual statement review this morning, all quite good, but they want him to go more than 2 mornings a week, I've agreed to 3 staring next week, but they want 5 before they break up for the summer in preparation for him starting school in September, my baby is growing up sad TBH I have more issues with it than he does.

sneezecakesmum Fri 18-Jan-13 20:16:41

Hi all. internet behaving at the moment and waiting for new router as !maybe!!! putting the old on plus wires on the radiator had something to do with it?? <dumb moment>

Contratulations isitmes mum. thanks so please all went well for her. def not something i remember fondly!

thanks galli I will copy and paste to internet friend re the JJ tube (?) Hope all going well re the (hope) new little one.

2old. You are really knowledgeable, smile Lots of snow where you live according to pics from my Dsis! Youre welcome to it, its not too bad here yet but think it will be after the weekend!

My cold is not materialising and old fart is going to die if he leaves the loo in the mess he did yesterday. Think its food poisoning as he hasnt a clue about food hygiene. RAW MEAT ON A FLAMING PLATE IN FRIDGE PLEASE!!! etc etc. NOT a bug as I have been unaffected grin

gallivantsaregood Fri 18-Jan-13 20:24:38

Ah.......... Now I get it! Giddy is Sneeze's DD!!! . Bit dim I'm afraid!

sneezecakesmum Fri 18-Jan-13 21:01:08

no not at all! Giddy used to be sneezecake, and by unanimous MN decision I had to change to sneezecakesmum from something or other (forgot what!)

not bothering to reply to her as we speak most days and I help out at her house eating her food and enjoying her central heating grin

2old2beamum Fri 18-Jan-13 22:13:44

oldsneeze you do make me laugh so thanks.
I do know where you are coming from about old farts Mine I could throttle sometimes. I must be honest 50% of the time he is brilliant BUT tonight puts DS to bed at 6.30 DD downs has just said "dad why isn't the feed running" He is fed 23hrs/day WHY OH WHY do I have to check up on him!!!!Need to yell at him about hygiene what is wrong with them confusedangry
Hope you get better soon and computer

As you say weather is crap. All DC's have been home since Tuesday, not too bad really, but am wondering whether Monday is going to be an option.

Love to all especially DGD
Sleep well (DD awake 24.35 until 05.30)

Isitme1 Sun 20-Jan-13 09:03:51

Ds has a horrible cold so I can expect him to go back a few steps.
Baby has clear ulcers that are yellow inside in his mouth? ??
So mw is coming to check them x
How is everyone? ?

sneezecakesmum Sun 20-Jan-13 20:16:50

Internet is back, it was the router! talktalk tried to charge me £35 for a new one or £50 for an engineer. Told them to send me a free bleeding router! so they did grin

My old fart says he cant close the toilet lid in case he forgets to flush the toilet confused He is basically lazy! Think most men have a missing gene that means their head is in their backside most of the time looking for it grin

Poor tired DD 5 hours sleep! My giddy DD is 30 weeks now and entering the 'lumbering elephant' phase. Gone out of the blooming one now and just feels 'blooming' huge! Do not envy her one jot!

Snow down in 2old country is heading our way. so not looking forward to snow, cold wet and nasty.

Hi to galli and isitme and any others who pop in xxx

Isitme1 Sun 20-Jan-13 20:28:25

Aww, but she gets to meet baby soon!!!

Glad you got a free router!
Unless you ask you wont get lol.

Theres been bits of snow here. I hate it I cant get anything don3 out of the house or the washing as the dryer hose sticks out of the window and its too cold to have window open!!
Got a lovely smile of the little baba!!

sneezecakesmum Mon 21-Jan-13 21:39:45

I can see you are already bonding with your new baby brother smile So nice though to hand him back when he cries grin

Giddypants Tue 22-Jan-13 09:03:34

need to moan a bit why can't the feed pumps have a setting where when the feed has finished in the morning it just turns itself off quietly, why with all the beeping at 6:00 (not a morning person) which just wakes DS up, and then he's awake, and I'm like a zombie all day!


2old2beamum Tue 22-Jan-13 11:35:58

What a brilliant idea. Why don't you suggest it to your supplier. Mind you @ weekends I set feed at a slower rate so I can have a short lie in smile
Any way how are you How dare Oldsneeze call you a "lumbering elephant"
I would call you gracefully pregnant.

Oldsneeze wish I could find an automatic closing toilet seat and lid (may cause a painful accident blushgrin Hope you are both feeling better.

DGD hope you and LO are ok xx

Mine have just got back to school after 6 lazy days. DD has found out the cat is a good toy I am sure the cat grinned when the wheelchairs went out the front door.
BTW I did DD's infusion all on my own on Friday.
xx to all

Giddypants Tue 22-Jan-13 20:15:29

Yes old sneeze very rude (however an element of truth) grin

I may e mail the company see if they do one which just shuts off without all the bleeping.

DS is just settling off to sleep, I love watching so cute, I don't however love him waking up in the middle of the night to watch night garden!!

Isitme how are you getting on?

sneezecakesmum Wed 23-Jan-13 21:00:34

Gracefully pregnant? I swear she was picking fluff out of her bellybutton today saying she was looking at the kicking!! grin grin

Have finally got a computer to function again after weeks of hair pulling so DGS can have his lovely touchscreen monitor to play with again smile

Isitme1 Thu 24-Jan-13 08:31:44

I have no hesitation t6yyyyyc gggcxccggggdxszAaaa
Sorry d's 4hthgyt33 and the rest 44 jyoy8ihiiiiuik

Ds has decided he wants to join in. And his lion doee too.

Like I was saying. No info for bleeping machines in the morning as we dont do over night feeds.
Ds has been constipated for 7days+.
Gp said go a+e.
And the poo'd there. hmm
The movicol and lactulose hasn't helped.
He only did a bit but the gastric was happy with it.
His leak has started again.
And ive decided to keep food diary for him again
Ive got a horrible cold/sore throat and ds has had it. Feel pretty poo. Appetite gone again. And hormones raging all over the bloody place.

Well done granny for doing it yourself! !

Welcome back sneeze
How are you doing giddy? Ds?

sneezecakesmum Thu 24-Jan-13 09:38:00

Does DS eat enough orally now to have regular bowel movements? how much does he drink? Is that why he gets so constipated do you think? What does he have down the tube? Just trying to get a picture as DGS used to go up to 7 days too and it was awful to see the pain he was in. He now goes daily and nice and soft with the blended diet. Could you just give extra water down the tube if that's the problem. We have a prune feed for emergencies but have never needed it yet grin

Isitme1 Thu 24-Jan-13 10:34:35

I used to use prunes but it didn't help.
He has 700mls of neocate advance and about 500-600mls of water.
Hes on omperezole domperidone erthroymicin iron movicol and lactulose when needed.
He eats at nursery if its finger foods.
Hes hardly ate in the past week.

gallivantsaregood Thu 24-Jan-13 11:21:28

Isitme: when DS was on formula te would get' 'constipated' even though his poo was always liquid. His gut just didn't move. Movicol didn't work, actualize made him puke. The only Jed your ds is having that my ds didn't was the erythromycin.

What we had to do was give him Sennokot. Without it he didn't go at all. Not sure if the fact it was pure liquid, meant his gut which is slow anyway, didn't feel there was anything to push along?

Now with BD ge doesnt usually have any problems. If ge doesn't go 1 day he usually pukes everything the next. So now if he doesn't go a bit of flax seed in his breakfast gas him moving in hours :-D. You can buy it already ground up but nit sure if it would go down the tube as I always used the Vitamix. Xx

gallivantsaregood Thu 24-Jan-13 11:22:18

Sorry for the typos.....AGAIN!

Isitme1 Thu 24-Jan-13 12:07:31

The erthromycin helps.

Another question.
Ds had bm today and he had streaks pf old blood in his poo. A lot of them.
Its not because he has strained himself as when that happens its red blood.
He still has passed the block of stool but he has passed thick water like stool of that makes sense.
What do I do?
Dietician said up the movicol amd put cloudy pear juice down his tube.
I know gp will say go to hosp.
I will say make sure you ring to say hes coming up.
It is worrying. What do you alp recommend? ?

Isitme1 Thu 24-Jan-13 12:08:05

He also looks disgustingly pale today and has complained of bum hurting amd tummy x

Giddypants Thu 24-Jan-13 15:22:38

Isitme, I'm not sure re the blood, but the drugs (erythromycin and donperidone) that he is on is only to help the stomach and gut absorb the food, not make it mobile if you know what I mean?

DS. Would get constipated on the milk feeds, even if it had added fibre, and would go for 7days + very worrying, and harrowing when he did actually go because it was so painful for him.
Like galli the bd has done wonders for his bowels he goes every or every other day without any help from meds etc, maybe something to consider for the future?

Iron can also cause constipation, is he on any multi vitamins like ABIDEC?
The loose stool could be overflow because of the constipation. Is neocate the part processed milk? If so it may not be providing enough solids for him to pass on a regular basis and so it just builds up, also the longer that it's in the bowel the dryer it gets which causes constipation.

Hope he is feeling better soon x

Isitme1 Thu 24-Jan-13 17:34:09

Thats what the erthroymicin was prescribed for to help with reflux and the side effect of loose stool was supposed to be added bonus.
Overflow is still coming.
Im still waiting for the hard plug which hasnt come yet.
Rang gp he said suppositories are next on the list. I said hes a small child he wont sit for that and it will just create another aversion.
Rang cn she said ring gastrics sect.
They have booked him in for Wednesday and said if he gets 'ill' go yo a+e and dont let him go past sunday x

Giddypants Thu 24-Jan-13 17:59:22

Poor wee boy sad erythromycin can cause loose stools in some people, however I think it has to be the anti biotic dose, not the pro kinetic dose, (which is much reduced)but I suppose it depends on how sensitive the tummy is, I've had erythromycin and never had the trots! <constitution of an ox>

We had to go down the suppository route with DS a few times, must admit it did work, but he did panic with me fiddling around in his bum area when he was already uncomfortable down there.

Your cn is not very helpful!

Isitme1 Fri 25-Jan-13 11:18:00

Hes straining so he defo is constipated.
He had black crystals in his overflow this morning? ?
Any idea why? ..

Giddypants Fri 25-Jan-13 12:26:42

Not sure with the black crystals, bananas give you what look like black worms, maybe have something to do with the iron supplement which can cause darker or black stools.

How is he in himself? Any temp or vomiting?

Isitme1 Fri 25-Jan-13 13:55:27

Thats what id read last night
Just been triaged and they are calling gastrics down to see him rather than an a+e doc.


Isitme1 Fri 25-Jan-13 13:56:09

Hes been refluxing more but its silent reflux. And hes got a low grade temp.
Lets see what they say x

2old2beamum Fri 25-Jan-13 14:16:25

Oh Grandaughter what an awful time you are having, poor little man. Sorry I have no words of wisdom but am pleased you are getting things sorted out in the right place with people who know him. Hope they see him quickly. Please let us know how things are or else I shall worry.
Take care X

Isitme1 Fri 25-Jan-13 14:33:39

We are still waiting.
Good thing I bought a sandwich from the canteen before I came in.
This time im all alone as h is being an asshole again and thinks he can treat me like shit. I told him to f off and if you do dont come back lol.

Isitme1 Fri 25-Jan-13 16:42:09

Well the black stones are what I thought they might of been.
Blood from the upper tract. They took blood to make sure hes not lost a lot and has follow up on Wednesday with his gastric.

Giddypants Fri 25-Jan-13 17:26:53

Are you waiting for the blood results or, will they tell you on Wednesday?
Poor little mite, do they know what has caused it?

Isitme1 Fri 25-Jan-13 17:58:55

They said they will ring me. Once I get home I will ring and ask if they've come back x

2old2beamum Fri 25-Jan-13 18:08:39

Poor boy, hope they will let you know results before you leave A & E. Do you think his reflux could be causing oesophageal or gastric bleeding?

DS had this when he was 9 and he was in a lot of pain
Just a thought. Don't forget to look after yourself even if DH doesn't.

Giddypants I hope the lady continues to bloom Note I am kinder than your mum, Bless her!!

2old2beamum Fri 25-Jan-13 18:09:26

Sorry Xposted

sneezecakesmum Fri 25-Jan-13 20:19:15

Poor isitme and little DS you both sound so frazzled. Not what you want when you are pg. This would worry the life out of me. Flaming PEG was supposed to make life easier, just hope it's something that will heal with time.

We keep shoving calorie rich food down the tube and forget to feed the actual mouth blush. But it's all so time consuming as we can't get the exercises fitted in as he needs to let the food settle or he might puke. 2 hourly feeds plus water means we need to be very regimented. Still it is early days and we are all getting used to BD. wondering if the night feed may be adding to the disturbed sleep as its not normal to be fed overnight and maybe causing reflux. Going to try raising the head of the cot and if no good gaviscon.

Love to all xxx

Giddypants Sat 26-Jan-13 16:48:31

How is DS today isitme?

2old definitely much kinder than mum, she's taken to calling me the 'fat controller'!
Had a bit of a fall yesterday, trying to stop DS from tipping his whizzy bug on its side by rallying up the patio doors! Jarred my pelvis a bit but its ok now, and DS is ok, he thought it was funny and kept saying again! Cheeky monkey! grin

This morning he told me he had a poo in his nappy, I knew he was doing it, but he shouted me and patted his bum when he had finished.
We had a little chat yesterday about how big boys use the toilet, and put Mickey and Donald on his potty, we might get somewhere with the potty training yay!

xxyymum Sat 26-Jan-13 18:28:50

just would like to say hi my ds has tube and has since he was 9 months , he dont eat much and has not on a milk diet he is on neocate , he is a fussey eater to and could not suck on bottle as a baby he only drunk 2oz of milk every few hrs , he has low mucle tone too

Isitme1 Sun 27-Jan-13 08:39:51

Aww thats brilliant that hes told you!

Ds has been complaining of tummy pain. Hope it settles soon.
We took him sledging yesterday in the park he absolutely loved it!
Ive goy blisters on my feet from where socks and wet uggs have beem rubbing.
I was shattered after all that we did yesterday.

Welcome xxyy. Your ds sounds a lot like mine. But never got round to thinking about that.
After all that we did yesterday I would've thought he'd be hungry but was he hell!
How is everyone x

gallivantsaregood Sun 27-Jan-13 10:19:09

Hi XXY smile

ISITME: Hope DS' sore tum goes away very quickly and docs get to the bottom of the problem and stop the bleeding. X

GIDDY: Hope you and bibs are ok after your fall. X

I did post yesterday, or so I thought but it's not here!

DS Bern quite ill this week. 2 trips yo hospital. Doc thought there was a problem with his kidneys but seems not. Temp still going up but not more than 38.5 now and getting longer out of the paracetamol. I think he's had scarlet fever. However he is now complaining his bottom is really sore. Especially if it's moved or he coughs or sneezes! They have swabbed it so hopefully if there is anything they'll find it. His jaw bone (lower) I'd also sore yo the touch! There seems to be a wee lump on the bone so need to get that checked soon if it doesnt go away!

Mum had her results after op to remove cancer lump from breast and it is in one of the lymph modes do she'll have extra radiotherapy. No chemo so thats good. Just radio and hormone therapy.

AND we go to panel this week so hopefully our little man will be coming home very soon.........


Isitme1 Sun 27-Jan-13 10:37:48

Oh god I didn't read giddys post properly. Hope you and little 1 are ok.
Gali good luck with panel.
Hope ds feels better soon too x

sneezecakesmum Sun 27-Jan-13 12:16:22

Good luck gali with the adoption. Finger x. Sorry little DS also not well. And also your mum. really hope all goes well for her. very worrying all round. Seems all the children are getting poorly at the moment. DGS seems to have got a bit of immunity from nursery bugs and I am sure his blended diet is helping as he probably has a healthier diet than the average 4 year old as it doesn't need to be eaten!

Isitme hope you DS tummy gets sorted soon. I suppose he is still in nappies? Problem with constipation is you can't toilet train because of all the problems. With BD DGS is very regular so we can make a start with it all.

Welcome xxy there is lots of pooled information on this thread smile

gallivantsaregood Sun 27-Jan-13 15:26:56

Thanks SNEEZE. Technically it's fostering, but permanent so he will be our 2nd son and wil always remain so. Judt means Highbury and we will have easier access to support along the way, should we need it. :-D

2old2beamum Sun 27-Jan-13 16:08:09

galli as much as it makes me feel sad I have slowly learnt our 5 (well 8 really) have missed out because they are adopted so I think you are making the best decision for your little man. I have had so little support from SS, my youngest 2 despite having very severe complex health needs hve had no SW involvement since 2009, Thank goodness for Continuing Health Care Plans.
Glad your new LO will have the support he needs
On the upside at least we had the choice to withdraw treatment on 2 and the other one decided to do it his way .
BTW I had breast cancer 20 years ago so tell your mum to keep positive (have adopted 3 since then)

Now the rest of my pals,
DGS hope you and your LO's are behaving and my DGGS's gut is feeling more comfy. I must be honest I feel a little envious regarding toilet training DS bless him managed to communicate when he wanted "to go" but unless he had his toilet seat to use (the size of a wheelchair) as he is so stiff we unable to deal with it when we were out sad

giddy be careful you silly girl

oldsneeze grin

XXY welcome to all the rubbish on this thread blame oldsneeze


gallivantsaregood Sun 27-Jan-13 18:56:01

2OLD: Thank you so much for affirming what we believed to be the best decisionsmile. And thank you too for your words of encouragement for mum. I will certainly pass them on. Xx

Def think DS has an infection in his peg site :-(

Hope everyone and their DCs and DGCs are well and happy x

sneezecakesmum Sun 27-Jan-13 21:05:29

2old. Congrats on managing the infusions for DD. What a bugger that SS don't continue to give support. I get what you mean about the toilet training. For DGS it will be a long road and he will have to have a man sized bladder for us to get him to a potty chair (not got one yet!) and organise safe seating. He goes rigid when anxious and arms and legs everywhere! Will be fun I think! Would love him out of nappies before school in september.

Rubbish! Rubbish!!! Not me guv grin

sneezecakesmum Mon 28-Jan-13 21:29:39

DGS gone from constipated and going once a week on formula to 3 times today with BD. A bit slushy so I have made low fibre snacks with tons of fat in them!!! DD gave him a mars bar/milk/peanut butter milkshake in the tube and it stayed down grin

gallivantsaregood Mon 28-Jan-13 21:45:06

SNEEZE that's fantastic. Watch out for the fats though, they can make for slimy poo too :-D. How amazing is it what a little food can do!

Ds has strep infection in hisvstoma!! I knew it. Obviously was scarlet fever and if they had given him antib's for the SF he wouldn't have this bloomin infection. Poor wee soul is in agony on the inside any time his button moves or is used! Moan over. Wish us luck for panel tomo:-D

How is everyone else? ISITME how is DS?

2old2beamum Mon 28-Jan-13 22:02:49

Tried to post earlier but computer decided to be menopausal
Read previous post-----I sound so callous NO I was just so relieved that we had parental rights to make what we felt was the right decision for our precious DC's.

Hi all hope you are all ok.
Re toilet training don't make the same mistake as me DS was nearly trained when we realised due to his hypermobility he needed a special toilet seat when we were out this was not possible and felt he was being given mixed messages, toilet at home/school piss your pants if you are out. Poor little bugger still signs. Sorry, what a miserable post
Hope you are all well.
Oldsneeze despite insults you cheer me up grin BTW do you know about Selective Dorsal Rhizotomyany advice would be appreciated.
DGD hope you are all ok xxx from DGGM

Giddypants Tue 29-Jan-13 03:53:39

Lol at 2olds hormonal computer! You sound anything but callous smile

A friend of mines little boy had the selective dorsal rhizotomy op in October, he went from needing baclofen and regular Botox injections to having virtually no tone in his legs, his walking is so much better, but still a lot of physio is needed.

galli good luck for tomorrow (today) everything crossed it all works out for you. Poor DS and his PEG site, hope he is feeling better soon.

isitme how is your DS And the rest of the family? Hope (D)H has started behaving himself!

All ok here, between DS and wee sprout I'm being kept up all night!
Made DH go into the loft to get DS old baby clothes down, can't believe we have so much! Getting hospital bag sorted now in a hope I won't need it for another 8 weeks! <wishful thinking>

Isitme1 Tue 29-Jan-13 08:59:22

Aww poor baba. Hope hes better soon gali.

Ds was sent home from nursery yesterday as he wasnt settling. When I was on the phone to the nursery I started tearing up.

Giddy I took ds old clothes out for mum. She wanted a few cardis for little one.
ds still has pain in his tummy. Drew a bit of blood and hes still got blood crystals in his poo. We're seeing the gastric tomorrow so not too bad.
How are you granny? ?

Good luck gali.
That soundw nice all them calories down the tube sneeze

Isitme1 Tue 29-Jan-13 08:59:45

Oo and yes dh is better now lol

sneezecakesmum Tue 29-Jan-13 19:44:00

Galli. Best of best luck tomorrow. Fingers and toes crossed xxx Drs are supposed to give abx for SF as the strep can (rarely) cause other problems. Saying that there are millions of children who dont get abx and are fine. Annoying though for DS to be suffering. DGS is lucky so far with the peg site as its pretty robust, as is he despite nursery bugs lurking.

SDR previously done in the states now done in a few hospitals here!!! Brill. Leeds, Bristol (?) and others (?). One or more of the vertebrae are opened up to expose the spinal nerves and, using nerve conductors, they identify the nerve supply to muscles that are affected by spasticity in the legs. These are then cut and following months of intensive physio the child should have a much improved gait and permanent improvement to the spasticity. Only really good for spastic diplegia. Not sure about quad spasticity. No good for athetoid (DGS) - thank God! Its a scary op but very successful outcomes. Long selection process, best on children on the younger end of the scale. Friend had her DS 'done' and saw his feet flex for the first time ever smile Makes children far more comfortable if nothing else. Bet u wished u not asked grin

Thanks for info re toilet training and toilet selection. Its certainly not going to be easy. When DGS goes to school, main stream, he will have 1 to 1 and they will have (currently under construction) disabled facilities for DGS! He is currently pooing for england and it is lingering up my nose 8 hours later!! I have def overdone the fruit and vedge tube feeds. I chuck all sorts in if its got some nutritional value but we will ease off for a few days as nursery will be sending him home too when they see his nappies shock

Giddy showed me one of DGSs baby vests (for prem babies) it was about 5 inches long..tiny tiny, could not believe it, and still too big for the 4-1/2 lbs he weighed.

Isitme. Maybe little DS had a tummy pain at nursery, as he did enjoy it before. When they are poorly they only want mummy sad Do hope all goes smoothly and you get some answers from the gastro tomorrow. (more fingers x)

Old fart away for a few days. Heaven grin

2old2beamum Tue 29-Jan-13 22:10:45

Right starting backwards with oldsneeze's post

2old2beamum Tue 29-Jan-13 22:31:55

bloody technology will try again tomorrow
*goodnight girls*XX
But Galli good luck for tomorrow

gallivantsaregood Wed 30-Jan-13 19:59:15

Thanks everyone. It worked. Natch was ag
reed. Still a few weeks before he's with us but at least we know he's coming. Justvwsiting on decision makers rubber stamp before intros can begin. We are SO excited :-D DS is also really excited.X

The reg we saw at hosp wouldn't accept it was scarlet fever. His throat wasn't bad enough! Actually she couldn't see his throat properly fuel-wise to a) his oral aversion/phobia and b) hr can open wide enough and say Aaahh because he gags!
Palmed us off trying to day it was viral but that she thought he had glomusomething arthritis which is a possible complication of? You guessed it.... Scarlet fever!!! But if course mere plenty that I am I am not supposed to know that. When talking yo his consultant re the strep in his peg and he was askingv ow on eart he got strep, when I answered,' probably from the scarlet feveI was told he didn't have' he didn't say I was wrong! Rant over :-D

Site: how did it go with gastro? Any further forward? Xx

Hi everyone else. Hope you and dcs are all well, including bumps xx

sneezecakesmum Wed 30-Jan-13 20:26:48

Well done galli SO excited to have a new baby (hopefully with normal plumbing and not a puzzle to the medical community) grin It all sounds like there is no stopping it, but still fingers x! smile

Acute glomerular nephritis is, I think, a complication of untreated scarlet fever. ?? I know there are complications (which I kindly didnt name grin) so they should always give penicillin. Yours truly had it as an adult and it was the sorest throat and fever you can ever imagine!! Rant away!

DGS keeps farting and smells awful! DD delivered him to nursery with a apparent fart smell (but was not) and they took him straight off for a nappy change! blush BD is a work in progress!

xx to all

2old2beamum Wed 30-Jan-13 21:07:50

Well done galli I can feel your excitement smile I remember it well.
Hope you are all well.

Wanted to say oldsneeze you make me laugh hope "old fart" is ok mine is being helpful as my hyperparathyroidism is being a bugger at present. Seeing
surgeon next week so hopefully recovery is in sight. Do you think he may expect me trip the light fandango sod off say I .

Hope Giddypants is ok Please do not let DH pack your going home clothes lost count of husbands who forgot trousers/skirts and shoesconfused

Grandaughter are you OK you have been very quiet lately [worried]

Much love to all xxx

Isitme1 Thu 31-Jan-13 10:10:45

Im good granny. Just tired. Spd starting to kick in. Getting tummy ache too
Plus kidneys playing up should of had renal scan but consultant wants it next month.

Well done gali. Congrats! !
Very happy for you. Hope he arrives soon and hope ds is better soon too.

Sneeze made me lol. Destructive nappies smile
Ds is constipated again.
Gastric said that movicol isnt all tht good and hes prescribed docusol.
Hes had it twice and no effect as of yet.
I thought it was like lactulose?
Weve had to slow the flow rate and lower volume per feed but give more.

Start decorating soon ohh yh smile

Giddypants Thu 31-Jan-13 19:04:27

I have mostly got all of my hospital bag packed, apart from my going home clothes will shove some in tonight! TBH I'm quite lucky with DH, he's much more organised than I am, he just lacks the finesse and finishing touches! But he's a up and let's go kind of person, (drives me mad sometimes) I'm more laid back and drift into things (drives him mad)
Saw the midwife this morning, she wrote I was measuring correct for dates (she didn't measure me) also I have protein in my urine, which she didn't tell me about, and has repeated some bloods as my white cell count is slightly raised. (Always is even when not pregnant) and I'm starting with DS sore throat/ cough.

DS is fine, apart from the coughing we met a few friends from work today, sounds like either everyone is pregnant or trying to get pregnant!
He's still pooing for England, Ireland, Scotland and Wales! But at least not at nursery today, felt so bad, yesterday he pooed in the car on the way there thought it was just wind blush

galli congratulations on your little boy, my friend has just been approved to adopt a baby, so pleased for her, she can't have kids and is so desperate for them, has changed jobs, given up boyfriends (he was a dick head anyway) and going it alone. She's such a lovely person and deserves something good to happen.

isitme take it easy with the SPD try and rest as much as you can, when are you due?

gallivantsaregood Thu 31-Jan-13 20:59:00

Hugs to the ladies with bumps for the aching and the packing.....I gave obviously missed relevant info but when are you both due? :-D

Hope everyone is well.....quiet/Boring's good

I am off for a girlie night with fellow foster carers tomo night. We get treatment of choice ( massage, reflexology etc), dinner, drinkers and breakfast.... Can't wait. Had a rough week. Had words with DS' head teacher today after she left halfway through his CSP ( bit like statement) meeting to go to a music festival!!! Neither teacher nor 1:1 was at meeting either and she cant understand why any of this would make me feel like DS wasn't important!!!! So diet or no diet (4lbs off in 2 weeks :-D) I will be having a little tipple tomorrow :-D

Hope everyone has a good weekend xxx

Giddypants Fri 01-Feb-13 14:01:45

I'm due march 30th but will be having a section a week before. God what have I got myself into! grin

DS is still pooing its getting a bit runnier, (sorry TMI) I'm wondering if its a bug, his last one leaked out of his nappy and down his leg envy <--- vom!

I'm going to but some scrambled egg down his tube today, no veg just incase.
But today he ate 1/8th a cheese sandwich and 3/4 a small yogurt! So much improvement on nothing!

Feeling a bit rough Elliot shared his snotty germs, (how thoughtful) can't wait for DH to get home so I can go for a lie down!

sneezecakesmum Fri 01-Feb-13 16:08:40

Yep all got nursery snots! Think colds increase runniness of poos so all a bit poo obsessed on this thread!

2old. Typical.. hyperparathyroidism.. definitely a cut above the bog standard hypothyroid us oldies normally get grin. Seriously, hope surgeon can sort something out as sounds a bit scary! I can imagine a throat cutting surgery going on shock NOT something I would fancy.

Isitme. Hope pg settles down a bit for you. SPD this early on is not nice at all. Don't overdo it with the decorating. Just tell the young fart what to do grin Thought movicol was the med of choice these days. ? NICE have guidelines on constipation in children, and may be worth a look?

Galli. Hope you have/had a smashing girlie night out and are all relaxed and chilled smile You will be run ragged with a new babe so make the most of it grin

Giddy has outed Elliot grin (it is a seriously cute name though) Love him!

xxx lovely weekend to all tubie mums xx

Giddypants Fri 01-Feb-13 17:33:46

Ooopppps, ah well !

Isitme1 Fri 01-Feb-13 17:41:43

Enjoy yourself gali!
You deserve it.

Dh has been very gentlemen-y and did 99% of the work himself which includes a full room painted and glossed in 2 hours and carpet and rug washed by hand.
I gave him a peck on the cheek wink
Hes realising its not thay easy being pg and looking after him n ds.

Oooo giddy I bet your excited! ! Elliott is a lovely name.
Im due 20thish of july. Im 16weeks smile
Not felt this 1 move as much as ds did but on my last scan it seemed like I had amniotic bands somewhere on the sac?
Will know more after next scan.

Sneeze dh did most of the work. Its terrible sometimes when ive been up all day (hospital appointments mainly and a n e).

Hope everyone is well x

2old2beamum Fri 01-Feb-13 19:05:30

Grandaughter you have forgotten your Granny grin Glad things are on an evenish keel for you hope little man is ok.

Giddy not long now soppy smile Don't talk to me about poo Last night( the NHS provide a nurse to put LO's to bed X1 week) she showered DD and didn't put a new colostomy bag her, the old one got wet, fell off result a bed full of crap and all over her and her hair Not funny at 05.45. Appalling language
poured out of my mouth!!

Galli hope you are letting your hair down. Keep us posted next week.

oldsneeze yes typical of us dribblies but these bloody adenomas are quite common but GP's are slow at picking them. I was very lucky excellent GP

Have a peaceful w/e ladies confused

Isitme1 Sun 03-Feb-13 09:10:56

Stupid nurse.
I thought I mentioned everyone in my last post.
Sorry granny. How are you x

Isitme1 Mon 04-Feb-13 09:48:54

Hmmm is this the awkward silence lol

Is everyone ok??
Ds has been pretty bad with his tummy. Keeps complaining about tummy ache. Poor baba.

Isitme1 Mon 04-Feb-13 09:49:30

Ooo 10-16 feb is feeding tube awareness week 2013!!

sneezecakesmum Mon 04-Feb-13 17:47:29

No silence just full of colds and taking to our beds! DGS g ave it to us bur apart from a bit of coughing he is fit and well. I think nursery has given him some resistance to bugs but also convinced the healthy diet has contributed. He is so lively and full of energy and trying to do more its another good reason for BD. but the best is he now weighs 14 kg smile. Back to his weight pre vomiting.

Isitme. I've no suggestions for your little DS he is so complicated and you must be worried sick. Just wish something was sorted out for him. Would drive me mad sad

2old angry re colostomy. Awful for you and poor DD. you shouldn't need to chase around after people.

Feel tired ......

2old2beamum Mon 04-Feb-13 21:05:07

bloody computer contiuation from previous post
school are making gentle barbed comments.
Off now
Sleep well all including all little scallywags

2old2beamum Mon 04-Feb-13 21:08:33

Bloody hell what has happened now who has pinched my long boring post

Will try again tomorrow

gallivantsaregood Mon 04-Feb-13 21:45:37

Hi everyone. GIDDY: Elliot is a lovely name. My DS is LUUK. :-D

Hope all the cords, sore tundra, runny ya and naughty computers are all better now :-D

Night away was fab, but expensive. Had a great time xx

Isitme1 Tue 05-Feb-13 11:05:59

Glad all is well.
think im going to go upto hosp as ive been having pain and no movement but did have movement before that.

How is everyone x

Tootsandblanket Tue 05-Feb-13 12:36:42

Hello everyone, I lurk on this post but rarely join in. It seems everyone is busy adding to families !
I wanted to ask if any of your DC's had ever had Coliform on their gastrostomy sites? A swab has come back showing this on my DDs and having looked into it I feel awful! I have no idea how it got there! I think I am looking for a bit of solidarity so I don't feel so dirty! The GP was definitely a bit judgemental..

gallivantsaregood Tue 05-Feb-13 14:59:02

Isitme: How are you. Everything crossed all is well. Hugs

Toots: Hello and welcome. You are not bogging! These things happen. I learned something recently which has helped. It is none of my business what other people think of me..... Very empowering :-D

Tootsandblanket Tue 05-Feb-13 16:29:41

Nice one Galli I like that alot!
I've spoken to the CCNT who know us well and she has reassured me it happens and she is not concerned by our hygiene standards. Phew.
These gastrostomies are life saving but so hard to manage.

2old2beamum Tue 05-Feb-13 20:43:50

Hope computer behaves

Grandaughter Behave yourself I hope everything is OK try Yes I know it is difficult but try and take it easy. Hope both your LO's alright. Yes I forgiive you for forgetting me sad xx

Oldsneeze just to let you know surgery on 1st March on neck YIPEE
Hope you , Giddy and Elliot are all OK
My morning cry is bloody colostomy not pleasant;
Hope you all have a good night hmm xxx

sneezecakesmum Tue 05-Feb-13 21:39:30

Hello toots. It is my DGS (giddypants DS) ... Yes confusing! who has the PEG. He is 4 with CP. I don't think he has had an infection at the sit but it does get a bit red at times and coliform bacteria are very common in children. Usually a wee infection. Children are not the most careful when it comes to hygiene! And it's even floating in the air! A bit of deximethosone cream sorts it. Did read that these buddybutton things are good but no experience.

Isitme. Hope all is well (worried) ? Pg is not nice imo. I'm in the 'hated every minute' camp sad

Galli. Love Luuk smile DD struggling to find next boys name for soon to be sprog. Your posts are hilarious with all the auto spellings, makes a weird sort of sense and as for 2old s Bolshevik .....bolshie....see what I mean ... Computer!!! grin. Ipad is the same for auto.

DGS still quite loose poo wise. What a reversal! Only just realised the overnight feed has 7.5 g of wonder. Will improvise by taking the feed out the bag and putting in 2 bottles of fresbini til dietician reorders plain. Dd thought he had a wee infection but not according to doc and of course he perked up and was fine all afternoon. Neuro appt re Botox tomorrow. Not having any but interesting what will be said.

Nite all xx

sneezecakesmum Tue 05-Feb-13 21:47:59

X post I slow or wot ? We are all snotty but ok. Dd is fed up to back teeth with pg! Still 7 or 8 weeks to go. Dont fancy having my throat cut ... Just hope it is not a big OP.? How will all your babies (inc old fart) cope without you keeping all the balls in the air. Can see lots of cooking and freezing going on. Do not exhaust yourself before u go in as u need strength to get better. Believe it or not hospitals are the last place on earth people can rest. I nearly murdered an old dear after one night. Ask for a side room and say you got typhoid! grin

2old2beamum Tue 05-Feb-13 22:28:37

OY OLDSNEEZE alright my computing skills may rubbish but I am an OAP grin Its not my fault computer has a mind of it's own!!!!!!

Bit worried about DGD

Will hopefully be in overnight (or less if I have my way) Yes will have to be a Mary Berry hmm Like the typhoid idea.
How will they cope,.... home nursing team have said they will help....we shall see.
NOW GOODNIGHT off to do meds etc xx

Giddypants Wed 06-Feb-13 08:12:17

Good morning all, feeling a bit better re cough and cold DS is still coughing over night, driving me mad, cough, cough, puke all night, he settles and goes back to sleep for five minutes then its the same cycle again, gggrrrr! Gave him some cough medicine last night but he kept shaking his head after every bit, wonder if it will work the same if it just went into the tube?

isitme hope you are ok, I had worryingly quiet periods with this one up until about 25 weeks or so, he still freaks me out when he's quiet in a morning, but I have to remind myself that he was active all night and probably just getting some rest.

galli Luuk is a lovely name is it Dutch? I'm stuck on a name for this one keep liking one then I go off it, I had loads of girls names!

welcome toots nice bunch here, (sneeze is my Dmum) so we repeat the same thing grin

2old an over night stay shouldn't be too bad, agree with trying to get a cubicle but make sure you rest and take it easy, lots of magazines and entertainment!

Hang on, do I smell poo? <sigh> just hope it's not down his leg or up his back this time!

Isitme1 Wed 06-Feb-13 13:56:27

Bit slow today. Granny are you in hosp??

Dc is well had a scan yesterday and that was fine. The only concern was pre eclampsia as ive had high blood pressure+ protein in urine plus headache and doddodgy eye sight so ive been advised to have bp and urine tested twice a week and have mw appt on tues and one with consultant on 25th. Dr said it starts after 20 weeks.
Hope everyone is well.
Giddy the cough syrup only works takeb orally. Thats what pharmacist told me once.

Giddypants Wed 06-Feb-13 19:59:17

yay isitme glad you and dc are ok, try to take it easy, pre eclampsia not good early on. You need to relax, feet up and drink plenty of water, make sure you are having enough calcium too, new studies have shown that it can reduce the risk of pre eclampsia.

Hoping for a restful, night xxxx

2old2beamum Wed 06-Feb-13 20:31:27

So glad you and yours are OK Grandaughter, Listen to Giddypants pre eclampsia is not good and I am glad they are seeing you biweekly. I had full blown eclampsia with 1st homegrown can't remember a bloody thing! And no am not in hosp I go in 1st March for a minor op on neck which will make a new but still old woman confused

Mixed day here DD immunology appt okish levels but wt down 1.5K over 6 weeks. Both DS's managed 5 seizures between them but heyho that's life

Have a peaceful night if possible xxx

Galli love the name Luuk too. Saw a lovely name the other day ( now no laughing) Stig

gallivantsaregood Wed 06-Feb-13 20:49:45

Hi everyone!

Isitme, so glad all is well. Hope the pre-eclampsis stays away.

2old...... Busy busy. Exhausted just reading your post, Hope the seizure monster buggers off and DD's immune results are better next time. Good luck with your op. Hope all goes smoothly.

Sneeze: Hope your snot dries up soon smile

Giddy: Hope you both feel better soon! Tip you are spot on, Luuk is indeed Dutch, as is he ( was born there).

Toots, how is DD s site looking now? Hope it clears soon

Well today was Luuk's 8 th birthday! I can't believe my miracle boy is 8! Docs said he wouldn't survive birth!!! Has been lovely and he is just fantastic!He had a Skylander cake! I love him sooooo much. He has turned my life upside down but shown me just what is important smile

Hope I haven't missed anyone blush

2old2beamum Wed 06-Feb-13 21:02:06


gallivantsaregood Wed 06-Feb-13 21:12:02

Thank you :-D

Giddypants Thu 07-Feb-13 08:15:04

Happy birthday Luuk !

Isitme1 Thu 07-Feb-13 08:43:16

Awww that bought tears to my eyes. I know he would of had a special birthday!

And I know its late but happy birthday to the beautiful lad.

Makes you remember everything you've been through but makes you appreciate the little things more.

Ds trying to pit 3 words together smile

Oooh right granny hope you feel better after it.

Giddy the dr I saw that day didnt say much about what to do but im sure cm mw will do.
Mum thought I had it with ds as I kept seeing black dots and all of a sudden I became swollen. It was that bad that I couldn't get legs into tracki bottoms that fit me the day before but as you've probably guessed the hospital didnt check anything.
The never did bp or urine!

Giddypants Thu 07-Feb-13 19:02:57

Finally got the dietitian to ring me back today, only took 3 days of messages!
Needed her to change to overnight bag to just plain feed (no added fibre)
She then went on to quiz me why his bowel movements had become so numerous all of a sudden, so told her about the BD think she took it better than expected, told her about all the good calories, fruit and veg that was going down and satay ing down.
She just said that she obviously couldn't advise it, and neither can the tube companies, which I understand they have to go by their guidelines.
But she didn't sound like she was 100% against it!
Said I've been keeping a food diary and I'll bring it with me along with some of the recipes that mum has concocted when we see her in march.

Otherwise fine here, had a scan this morning, baby appears to be growing well, and is head down, but still quite high up. The midwife said that he had a good covering, and not skinny! So going to be known as DSs fat little brother grin

gallivantsaregood Thu 07-Feb-13 19:50:16

Isitme: Whole sentences from DS. Very excited for you :-D Re docs, make sure you keep them on their toes!

Giddy: Great re dietician. Having her not 100%against is def a bonus. Hope little chubby isn't giving you too much discomfort.

Luuky-boy is not very well again. Antib's finished on Monday night ( strep inf in his button site). Yesterday, his birthday, temp started to go up. Today it's 38-38.5!! Waiting on ringback from consultant. Luuk is surprisingly hapoy though..... No puking!

sneezecakesmum Thu 07-Feb-13 21:50:52

Galli. Hope luukilad is not any worse and late happy birthday. Someone said manuka honey on the wound site? Should make him ill systemically tho. Hate temp rises but its how the child looks not the thermometer that is important. DGS was another of those 'not expected to survive' happy endings. Luckily they told us after he'd decided to survive grin

Isitme. DD has been on baby asprin since around 14 weeks because her private scan showed notches on the uterine arteries which MAY lead to pre eclampsia so her doc put her on the asprin. Think it is not advisable with kidney disease though, but just mention it to your cm mw as it seems to stop pre eclampsia. But at least you are being monitored.

2old. Wish something could be done about your DSs seizures, its no life for them to go through that crap sad Do not envy you having surgery, I'm sure you will be fretting about the LOs so apart from when you are anaesthetised you wont get much rest! Not looking forward to DDs c-section either. sad

Didnt post yesterday as cooking up more low fibre blends for DGS to stop him s***** through the eye of a needle! Think it is slowing down. Neuro yesterday said he had severe CP as he just flopped then did his impression of an ironing board! When he doesnt want to be somewhere he acts like he cant hold up his head and ignores everyone. Doesnt matter as they dont want to botox him and stick a baclofen pump in him. They are starting him on benzheoxol for a trial period to see is it stops the unwanted movements that interfere with the wanted ones. Looks good on paper but we shall see.shock

Also shock at dietician not being totally anti!!

Isitme1 Fri 08-Feb-13 17:17:02

I have to say we believe that there are 100s of things honey can cure.
Ive seen it too. While I was in ds homeland I kept getting big septic blisters on armpit. They were very painful amd full of puss. I had 3 lots of antibiotics plus had it scalped and what not but nothing worked it kept coming back. Dh had some 100% pure-just-collected honey and I put that on once on the thing and ive not got it since.
Do try it!

Giddy glad the dietician was okish with bd. Ive been giving ds 60mls every day of fresh or baby food with some added bits in. Bm a littlw better.
The other day I did chicken broccoli cauliflower tomato ketchup anf olive oil smile
Today was baby food plus olive oil.

Had bp anf urine checked yesterday and both were ok.

Sneeze I've got that much pressure on my kidneys its horrible. Will see what they say about it.

2old2beamum Fri 08-Feb-13 19:01:22

Can't believe it's Friday hectic week.

DS finally stopped fitting over night. Have had a load of bumff from Nottingham Hospital and an appt to attend clinic for an intrathecal baclofen pump or SDR. I am sure it will help us with his care but is this right for HIM.

Sorry to mention dieticians (ducks to avoid missiles) but she has mentioned Neocate for DD. Any views?

Grandaughter glad your BP and wee are ok. You mention kidney pressure you must get it checked.
smile for DGGS putting words together I am so envy

Oldsneeze to be honest I shall be glad to get it sorted. Have alerted the community team. Yes I will worry about my little treasures hmm but it is the seizures and colostomy that are my main concern, old fart will panic.

Giddypants hope you and Elliot and fetus are OK

Galli hope Luuk is a bit better, mucky gastrostomies are difficult to sort out.

Have a good night xxx

sneezecakesmum Fri 08-Feb-13 19:30:03

2old. Colostomy is just poo problem, the seizures would freak me out. Can shovel shit for England but hate fitting sad

Giddy was told foetus was well covered...obese newborn hmm. Nursery want photos of the kiddies as babies. Maybe a pic of DGS with tubes, machines etc and looking like a skinned rabbit will scar them for life so maybe not grin

No idea re neonate though. If DS is stiff and painful in his legs intrathecal baclofen is the best bet but SDR I think even better. IB takes a fair bit of management and has dire consequences if it runs out. My bet would be SDR. Think I remember u saying DS is not likely to be mobile? Or was that another DS? grin.

gallivantsaregood Fri 08-Feb-13 20:40:17

Sorry just quick reply- I now have to go to breast clinic after finding a rather large lump under my arm:-( Obviously don't want to tell mum since she's struggling just now. She's just started on the hormones and is crying at the drop of a hat and starts her radiotherapy next week

Don't have any idea what is happening with Luuky as his temp is spiking just once a day-to-day weird! Gas Manuka honey every day will try and get some medical grade stuff for his stoma :-D

Glad the seizure monster is getting tired Andes getting some relief 2old xxxx

2old2beamum Fri 08-Feb-13 21:08:52

Oh Galli what more! I am here if you want me!

Oldsneeze I am glad poo is easy for you!!!!! I find coming downstairs (LO's sleep downstairs) @05.45 to get them ready for transport @ 07.15 to find poo in hair, toes, ears and fingers not I repeat NOT pleasant but as you say 1000x
better than seizures!!grin

I am now switching off for a glass of wine

Isitme1 Fri 08-Feb-13 22:26:35

Granny you deserve the glass of wine
Im not too technical so cant help woth the sdr sorry.

Galli we r are here for you. Hope things are ok let us know.


sneezecakesmum Sat 09-Feb-13 09:56:34

Galli. Thinking of you too. I'm sure it is just something and nothing but can imagine how terrifying it can be. I had this years ago and it's very common. Fingers x though.

I love a G&T but get a headache next day after just 2 (small) glasses so never drink alcohol. sad and teed off. Would love that relaxation you get from being a bit tipsy! Does DD keep the colostomy bag on overnight?

gallivantsaregood Sat 09-Feb-13 11:32:06

Thanks everyone. Am hoping it us just extra muscle or something....... Thank you all so much. Means alot, especially since I don't really want to talk to my mum until I know its def nothing to worry about. Xxxxx

On a happy nite, going wedding dress shopping for mum today. X

2old2beamum Sat 09-Feb-13 14:50:32

Galli I am so glad you are being so upbeat. Hope the shopping goes well I am surprised you didn't ask me after all I am the fashion guru of East Anglia says her who lives in jeans and baggy sweaters grin Love to your Mum

2old2beamum Sat 09-Feb-13 15:03:30

Bloody computer I am sure it has SN.

Oldsneeze I do manage to keep bag on at night on madam but need a litre urine bag attatched to outlet as she sometimes passes 2 litres of wind overnight so we can let the wind out also can have liquid poos so that can drain into the bag! About 1x week the bag unsticks (when nurse comes and gets her ready for bed) DISASTER sad
Re alcohol Can no longer do it like I used to sad I just can't sleep

Hope you are all ok off to watch rugby.

sneezecakesmum Sat 09-Feb-13 20:55:37

Galli. the one stop breast clinics are brilliant. I think they tell you on the day what the crack is, and the majority are perfectly OK. cakking yourself with anxiety at the time (I was) but its usually good smile Congratulations to your Mum on getting married smile

2 Litres of wind! Sounds like my old man! Seriously, is it all dietary cos of the JPeg (think it is a DS with the Jpeg?) hmm It there nothing that can be done to ease it all. The colostomy was supposed to make life easier! Cant sleep well either, so take phenergan at night.

Rugby...6 Nations? Think England are doing quite well grin

Isitme1 Sat 09-Feb-13 21:39:05

Galli hope everything went ok. Congratulations on mum getting married. Did u try the honey?

Granny thats something I dont miss smile

Isitme1 Sat 09-Feb-13 22:36:04

Quite upset atm. Silly hormones.
Dh is out on a family errand and hes got the house keys! .

Isitme1 Tue 12-Feb-13 07:41:42

Heeeellllooooooooooooooo x X

giddypants Tue 12-Feb-13 08:04:06

hello sorry been a bit hectic here lately and not had chance to read.
silly hormones also make me break down at the slightest thing. eas crying at call the midwife last night. im normally emotionally constipated hard as nails!grin grin
nursery this morning so I better get the snotty little ratbag his breakfast x

Isitme1 Tue 12-Feb-13 14:47:02

Been to mw and I was sure they listened to baby heartbeat after 16 weeks (17+3) but she cba getting up to check me at all. She let student mw do everything which I was ok with but didn't want to bug her too much as she has meeting with pg sis and ss tomorrow.
Have another next week booked with sis so will make sure they do hb check then.

How is ds?
Ive been cheating and giving ds baby jars plus olive oil. Im waiting on getting some peanut butter and other stuff to use. We see gastric on Thursday. Im going to say tbat the only reason ds has put weight on is due to extra calories going down tube as he is having 'juice' which dietician advised to do to help constipation. she said give him cloudy pear juice down the tube
How is everyone else? Hes taken a liking to hersheys milky chocolate and almond bar lol. X

giddypants Wed 13-Feb-13 10:22:36

sat in the dentist waiting room. habing a mild panic attack I hate the dentist just taking my mind off the waiting and the going hot and cold feeling sick sensations. why cant they get a move on already over 15 minutes late!!!sad

Isitme1 Wed 13-Feb-13 10:54:19

Thatw dentists for you. And gps and hospitals. Always late. Never on time.
Dw about it. Not much they can do when your pg smile

gallivantsaregood Wed 13-Feb-13 11:17:04

Isitme: think you need to kick your me up the bum! Hope you and DS are ok.

Giddy: how'd it go at the dentist?

Everyone else 'Hello!'

Fantastic news here. Match approved and our LO will be home in the next couple of weeks. Can't wait to meet him. So excited xxx

giddypants Wed 13-Feb-13 11:29:13

dentist ok in and out spent more time waitinghmm
great news galli really pleased for you x
on mobile so cant post much x

Isitme1 Wed 13-Feb-13 11:56:31

Ooo thatw great gali!! Bet your looking forward to him coming home x

Glad it went ok giddy.
Gali dh has been great lately. Cooking, cleaning and what not. After the pre eclampsia scare hes trying more smile

sneezecakesmum Thu 14-Feb-13 21:08:34

Galli. that is wonderful news. You will be so busy in a lovely way smile Giddy will catch up with you in a few weeks time and also be busy in a lovely way nappies crying night waking hehehe. Giddys dentist asked her what she'd been doing...she said eating a lot of pies grin

isitme. Men are genetically programmed to not see housework, so you are doing good girl to get anything!! grin

nite all xx

Isitme1 Fri 15-Feb-13 14:13:29

Lol ta.
I have a bit of a confusing question here.
I looked at gastric drs letter and:
Ttg less tga 0.1 although lgA low at 0.6, lgG less than 0.1.

As far as im aware thats to do with coeliac disease?

Ps he had a different gastric appt and it was bollocks. Absolutely crap. They didn't give any advice at all
Hope all is well
Lol im starting to look like ive ate all the pies.

Tootsandblanket Fri 15-Feb-13 15:22:42

Hello all, I've missed quite a bit ! An 8th bday, sentence forming, baby matching, baby scans are all the positive things I've just scanned through and read. What lovely news for all of you!

We disappeared done the PICU time hole for a few days.... The coliform infection moved to her throat ( a foul foul smell coming from The mouth of a child who has nothing orally) then seemed to disappear .. But I think it was just gathering strength .. These pesky bacterias. Anyway one ambulance ride, numerous canulas, intubation, flapping consultants, hundreds of coffees,extubation and we are home ! Hooray!

We were given medi honey to use on her site, apparently it's wonderful. I will report back in a few days!

We had the worst 999 experience ever though - they couldn't turn on the O2 Or work the suction machine. My DD was choking and grey. It was awful. I am looking into how to complain so this never happens to anyone else. Previously, we have had great experiences with the ambulance crews, I have always trusted them 100%.

I have no idea what the readings mean itisme1 sorry.

How's everyone doing? I'm so pleased its Friday. DP will be home all weekend to help with the small monster we call DD !

Isitme1 Fri 15-Feb-13 16:57:06

Bloody hell. What a nightmare.
Hmm I dont know who you could complain to. Google might help.
Glad your at home now

I got this of a site
IgA deficiency is present in 2.3% of patients with coeliac disease, and in turn, this condition features a tenfold increased risk of coeliac disease. Other features of this condition are an increased risk of infections and autoimmune disease.[12]

?? Worth shouting about or not x

2old2beamum Fri 15-Feb-13 19:11:26

Sorry I have not written, absolutely barmy week.
Thankgoodness it is half term next week and NO appointments!!

Delighted to hear your news galli bet you can't wait. I am so excited for you.

giddy hope you are behaving yourself and your snotty little ratbag is improving. DD needs a JCB in the morning! Look after yourselves!

DGD my little snotbag's IgG is 9.9 which they say is low and if it doesn't rise her immunoglobulin infusion will need to increase. I am sure it is not the same as DGGS as DD does not have coeliac disease. Have they not investigated this?

Toots What a bloody ambulance nightmare! Stories like that scare the pants off me as we are over an hour from hospital. Glad she is ok now and hope she had a good birthday.

Hi oldsneeze hope you and old fart are well


Isitme1 Fri 15-Feb-13 20:05:07

Granny I was thinking coeliac but they haven't said anything. If dd is 9.9 and ds less than 0.1 isnt he supposed to be on something?
Hes not been diagnosed coeliac or anything else but ive read people with iga deficiency suffee from gastric problems (and other things too) too me its all a little confusing im sure by time dc2 comes I could be a gastric nurse at least!
Now if I ask gp he will say your depressed. Which has nothing to do with this.
The full results
Ferritin low less than 4
B12 316 whixh is normal
Serum folate 18
Hb 11.5
White cell 10.5
Platelets 379
Thyroid normal
Lfts normal
*TTG lesd than 0.1 although IgA is low at 0.6, lgG was less than0.1. Vitamin D was 68.8 which is normal. This means child has iron deficiency anaemia and start sytron for at least 3 months.

2old2beamum Fri 15-Feb-13 21:38:07

My lovely I am too old to offer much but I think you should be asking questions, if I get the opportunity I will ask a (much) younger excolleague when I see her next.
You are getting very knowledgable not grin clever Mum

Isitme1 Sat 16-Feb-13 07:57:13

Thank you.
It just seems like they are missing something.
Nd even if its nothing they should of let me know even though it makes no sense
Ds is full of cold and so am I.
Great British weather isnt it.

sneezecakesmum Sat 16-Feb-13 20:43:16

Toots! What a nightmare. If I even set foot near PICU I want to slit my wrists. It must have been so awful for you and DD. Is she on formula all the time.? Since we started DGS on blended diet he has been so much healthier generally. Still snotty with an ancient cold but happily wiping his nose on us. The peg site is fine so far. Is it a sign of below par health that it has spread to your DDs throat? Must have tracked upwards and one place she doesnt need mucus and swelling is in the throat. At least she is home again and you have help, no one needs this much excitement in their life sad. I would report the 999 ambulance because they need to put systems in place for checking oxygen and suction! Hope all is going well and enjoying lovely

Nooo idea what IgE readings are about, but at least little isitme can have the iron down his tube. DGS had it at 6 months and the screaming and spitting was horrid! Tastes foul apparently! Keep pushing to find out whats going on though.

2old. Quiet weekend wishes for you and hope DD is showing some improvement with her infusions. No mention of the dreaded ffs f*ts..get it right oldsneeze grin We are all fine. Cleaned car (!) cleaned house, sorted filing smile Going to watch TV, and so to bed smile

sneezecakesmum Sat 16-Feb-13 20:44:27

PS. DGS keeps eating his blended foods...korma one told him they are meant to go down the tube! Its cos I make them so yummy grin

Isitme1 Sun 17-Feb-13 08:36:20

Oo thats good he eating it.
Before peg and when he wouldnt eat food I used to blend his food and syringe it into his mouth. He used to think I was giving him his meds so it worked fine for a bit but gaatr turned round and said yiu shouldn't have to feed a child like that.

Hows the weather where everyone is?
It waa warm yesterday!
And looks like another nice day again woop x

sneezecakesmum Sun 17-Feb-13 11:09:31

Weather is lovely today and yesterday. Looking icy again for Wednesday though. Still make the most of it.

How stupid to say not to feed a child purée if that all he will eat. Children who've had neurological problems often develop sensory issues and are not keen on lumps in food. They just need to go at their own pace. DGS would not sleep on his own for 4 years as he just got scared. Now he's put in his own bed and he just snuggles down and is asleep in minutes. No controlled crying or other crap shite that's some advise!

Isitme1 Sun 17-Feb-13 12:07:22

That's good he sleeps well. Ds is in his cotbed at the high height so he can come into ours. 9/10 he gets scared and jumps in on my side. Bed now getting cramped as its me dh half cooked baby and ds.

I really fancy a chocolate. Mum said we might go thorntons smile

Isitme1 Mon 18-Feb-13 16:20:40

Ooo keeps goinf quite.
How is everyone?
Had a bit of a bleed today. Literally tiny amount and ive got mw appt tomorrow.

2old2beamum Mon 18-Feb-13 19:00:11

DGD hope you are OK good luck for tomorrow. How is your mum and her LO?

Thanks oldsneeze not too bad a weekend just 3 f.fits we all just slobbed about BUT I did find time to sort my knicker and bra drawer out....the excitement is just too much sad. Have pushed boat out and am having hall and landings done.
Do not understand "their" feeding regimen confused We always put blended diet down tubes if they didn't take it orally.Many moons ago.
Also can't get my head round 10 ml flushes between each drug poor DS would have 80mls flush 4X day

Have a peaceful night all

sneezecakesmum Mon 18-Feb-13 20:45:00

Dd(giddy) stuck in hospital all evening. Strong Brixton hicks we think. Baby is fine. Poor girl doesn't know what a normal pregnancy feels like! All freaked out but I think BH can get quite strong at 34 weeks? I can't remember lol. DGS bathed and fed and desperate for bed but think its best if he sees mummy first. Taking since 4 o'clock....I want to go home. Thank heavens for Disney junior! I just want life to be boring and do things like sort my knicker draw..... I remember I already did and all the size 10 frilly red pairs have been chucked. Big old lady knickers there now. grin

Hope all ok tomorrow isitme.. Sure it will be . Isn't pregnancy a pain in the butt?

2old2beamum Mon 18-Feb-13 21:04:26

Poor old Giddy but from my long distant memory I had Braxton Hicks from 33 weeks and went on to 43 weeks in hindsight they were different. So good vibes to her from me.

WHAT.... I have kept my red frillies in hope!

gallivantsaregood Mon 18-Feb-13 22:19:57

Hi everyone. Just a wick check in before we embark on our exciting journey to get to know DS2......

Isitme and Giddy everything crossed for some smooth pregnancy time for you both. Tell those babies that boring is GOOD!!!

Will check in soon when I am mummy to 2 :-D

sneezecakesmum Mon 18-Feb-13 23:51:44

Last cleared out knicker drawer 10 years ago so frilliies are from then!!

Galli. Thrilled about DS 2 you will be soooo busy now!

Dd on her way home. Not in labour . I am shattered ....need my bed and cocoa!

Isitme1 Tue 19-Feb-13 09:23:45

Sneeze glad giddy and baby are well.
I must admit I dont own a pair of red frilly undies lol
Ive been having a lot of pain lower abdomen which has me thinking bladder/kidney infection plus loadd of burning while urinating.
If mw says nothing I will scream at her!
Granny and gali boring is good but if our dc were boring we would have nothing to talk about lol.

Very excited for you gali

sneezecakesmum Wed 20-Feb-13 12:25:59

Isitme..take a urine sample and insist on a proper test. Urine infections in pg must always be tested. Also look into testing for group strep b. it can cause meningitis in newborns. Not wanting to worry you but it's easily avoidable if testing is done. Should be routine but that's me and my soapbox!

2old2beamum Wed 20-Feb-13 14:08:39

Well done oldsneeze someone needs to tell her. Seriously though don't they test lady's urine at every AN clinic or midwife visit? It is just as important as BP well it was in my day sad

LO's off to respite this afternoon and guess what I feel guilty.

Hope tou are all happy.

sneezecakesmum Wed 20-Feb-13 21:05:22

2old dont feel guilty. Hot bath, read a book in the bath (decadence ++) drinking your favourite wine grin

DGS has put on nearly a lb in a week on BD and looks rounder every day. Poo has nearly returned to normal smile

Will only be happy when baby is guaranteed a healthy life. DGSs CP is cured. Old fart learns to make a decision for himself that I dont disagree with and DS CLEANS OUT THE CAT LITTER TRAY DAILY NOT MONTHLY!! Actually will just settle for the sun to shine and warm my bones and birds sing in the leafy trees...falalala!

2old2beamum Wed 20-Feb-13 22:15:56

Oldsneeze you crack me up

Second what you say about a healthy life and may the birds sing etc traalaa.

What I really wanted to say was Dietician visited today and I mentioned about blended diet and she replied if she had a child tube fed she would definitely use blended dietshock But she is a gem!!


Alamaya Thu 21-Feb-13 08:32:29

Mummy to a 15 week old here who has had his NG tube for around 3 weeks.
He takes 1-2oz himself every 3 hours, but we have to top him up to make sure its 2oz using the bolus. On a really poor feed we use the pump.

Hes on Ranitidine, Domeperidone and Gaviscon for severe reflux.

At his worst he got malnourished and even at 15 weeks we are only at 8lb 9oz from a birth weight of 6lb 13oz. He still cant lift his head due to weakness.

Anyway heeeeey smile

Isitme1 Thu 21-Feb-13 09:56:55

Alamaya youve done brilliant in getting your dc help very quick.
My ds was 18 months before they took him seriously. The ranitidine didn't work for him but hes on a massive dose of omeperzole. He still refluxs a lot but we know that he's not damaging his oesophagus along the way.

Oh and welcome to the group smile

Sneeze and granny I took urine with me and it was almost red. She said it was fine. She said I should be induced because of my kidney problems.
Later on on the same day I rang gp for follow up results on urine done2 weeks ago. It showed I had infection. They did nothing because I was supposed to be on the nitrofurontin long term but the consultant changed it cephalexin and didn't inform gp. Well im only resistant to the bloody thing aren't I!! Gp receptionist said your resistant to that so it won't work and its only sensitive to the nitrofurontin. I cried my eyes out due to pain and left ddietician a nasty message because she wont put the y port on repeat delivery andds milk bag got stuck on the y port (kept doing it bbefore but managed to pull it off but on that same shit day it was proper stuck)
Cant complain about today. Ds kept waking up last night and wouldn't go back to sleep. I woke up made dh a cuppa and went back to sleep for an hour and half smile ds still asleep x

Isitme1 Sat 23-Feb-13 18:08:14

?????? .

giddypants Sat 23-Feb-13 19:26:53

Hello, hope everyone is ok.
All ok here except Elliot's peg site leaking a bit, just haemoserous fluid but looking a bit bloody and sore, going to dress it with dexamethasone and gauze which usually clears it up, just wondering if this is normal? I used to have to dress it once a month now it's dressed 4 days out of 7.

Will give the nurse a ring Monday anyway as the dexamethasone is running out anyway.
All ok here, had a bit of a scare Monday but just turned out to be braxton hicks, (mild contractions my ass!!)

DH turns 40 tomorrow so just been out for tea with a few friends.
So tired now though!

Isitme1 Sat 23-Feb-13 22:13:27

Giddy try orabase.
It stops a lot of leaks.
Happy birthday to your dh
Have had toothache this week. Arghh.
Find out on Monday what we're having smile.
Ds isnt too bad. Looks a lil pale but is ok.
How Is everyone?

Isitme1 Sun 24-Feb-13 17:00:53

Giddy did you everfeel insecure?
I just feel like a fat whale. And im only 19 weeks.
These past few days there was a family wedding going on and I just felt yuk
Dh never once said you look nice and I put an effort into it all.
That made me feel worse.

giddypants Sun 24-Feb-13 18:55:20

I get what you mean with the feeling like a whale! We went to a family wedding when I was about 19 weeks travelled the length of the country and stayed in a hotel etc. I spent a long time getting ready, just had clothes to put on and we had a massive argument because DH let DS roll off the bed, cue a lot of crying and me shouting at DH etc, so he never told me I looked nice etc.

I have found this pregnancy very hard with the tiredness and the sickness and of course the worry, and I just don't think other people get that, I'm sure DH thinks I'm being lazy when I need a bit of rest but I'm just exhausted.

I've been worrying about him wanting this baby, I knew he wanted a girl, (so did everyone) but when we found he was a boy I could feel his disappointment, he hasn't really wanted to feel him kick or move as much as when I was carrying El, not spoked to the bump, not really shown ant affection towards him, until last night. When we were going out to see a few friends, I was all dressed up waddling down the stairs, and he kissed the bump when I got near! I really could have cried. I just don't think it's very real for men until the baby arrives (especially the second, the novelty has worn off with the reality of the first lol)

I don't feel insecure in the way DH feels about me, I know my body has changed but we try and laugh about it, we were cleaning out my knicker draw and came across a receipt for some underwear he bought me when we first got together (10 years ago) it said size 8 fancy pants or something of the sort. We had to laugh because previously that day we'd popped into m&s and I bought some size22 full briefs for my hospital bag!
I think DH knows when I'm feeling down about myself or something and he tries to pull me out of it.
The insecurities I have are in my head and I try to keep them hidden, I know I'm a bit on the big side, but I'm putting myself through this for something so worth it in the end. (--And if DH doesn't appreciate it I'll be tanning his hide--)

Isitme1 Sun 24-Feb-13 20:01:48

I did what he liked and he still said nothing.
Hes never seen me this big as due ti visa problems he couldn't be with me. During the 1st pregnancy he saw me at 8weeks a nd then I came home and he came here when ds was a month old.
I just feel like hes uninterested and would rather be with ex. She was also at the wedding.
I dont want him to take it the wrong way if I mention it and if I don't it will eat away at me

Secretly I want a girl but wouldn't mind q boy as long as they are healthy. He put his hand on my bump himself for the first time today smile

giddypants Sun 24-Feb-13 21:20:03

Maybe just ask him how he's feeling about everything in general, don't mention how you feel about you and his ex, she's an ex for a reason and he is with you.
Try to be open and honest with him and let him know that your not feeling at your best right now and some reassurance from him would make you feel better.
I think having a baby can be quite daunting especially as he wasn't around for the first one.

DH (and everyone else) has come round to the babe being a boy, and like you say just hoping and praying that he is healthy and everything goes to plan.

Isitme1 Mon 25-Feb-13 08:49:09

We had a bit of a talk last night.
I asked him if this was the biggest hes seen me (when we met i was around 3stone lighter lol as I didn't lose much after ds1) he said he know being heavier is going to make my health worse and he can't say anything yet as im pg. He said once weve had baby we will both lose weight together. I already had my mind made up much more than last time as I know I will feel better after ive recovered then I can start thinking about losing weight. I used to eat a lot more than what I eat now when dh wasn't here out of comfort. Now I eat 3 meals a day and no snacks in between.
Thats how I quite smoking lol when I met dh as I didnt need the comfort any more. Sometimes I feel im being a fool.
Hes not very big on the whole showing emotions so it would be nice to hear I love you once in a while. .
Ah well.
Will see what his reaction is today at the scan. Might make it a bit more real for him smile .
Mw said due to kidney problems I will be induced so In guessing 38 weeks? And im putting foot down for c section.

giddypants Mon 25-Feb-13 18:12:48

Yes definitely state that you want a section, if that is what you'd feel most happy with!
Glad you and DH managed to have a chat, nothing worse than things praying on your mind.
How did the scan go? I have another one on Thursday, had whooping cough vaccine as well today, feeling a bit warm now so maybe having a bit of a reaction?
Busy all week, at least 1 appointment everyday, except Friday, and DS has started going 5 mornings a week to nursery so up early every morning.
DH had a good birthday but missed seeing his dad, he has terminal cancer and has good and bad days, the funny thing is the minute he turned 40 he did his back in lol (shouldn't laugh) x

Isitme1 Mon 25-Feb-13 19:22:40

Scan went well. Dc was a bugger. Kept covering face lol. Lady shook bump twice to get baby to move.
Giddy seems we are in same position lol.
Its a boy. I saw his tickle tackle lol

And she confirmed it smilestill nice as I have a few names in mind for a lad.

giddypants Mon 25-Feb-13 20:48:10

Aw that's lovely, at least we know what to do with boys lol x

sneezecakesmum Mon 25-Feb-13 22:01:41

This thread is officially renamed the tube fed/pregnant ladies thread!! grin

Hope little baby alamaya starts to put on weight soon. Reflux seems to be a big issue with small babies recently but at least it is being picked up better before babies becaome food averse. Have you been offered milk thickeners? Silly as it sounds it the milk is 'heavier' it doesnt reflux quite so much. We do blended diet smile real food down the tube..simples. 15 weeks is too young to wean i guess but we have folks on the fb tube feeding site who wean using tubes!

2old. I like the cut of your dieticians jib (whatever that means!) Can we have her?

Ten oclock...bedtime!

Isitme1 Tue 26-Feb-13 08:33:07

Lol. Hes been kicking most of the morning and when ever dh put his hand on bump he'd stop.
He kept covering his face yesterday while she was scanning me lol.

Sneeze you have to be pg to join in this convo wink
Hope granny is well. Not heard from her or gali in a while.

Ds got appointment to see surgeon tomorrow? Dont have a clue why but will go along to see what they say.

Its birthday on Friday and dh came from work yesterday and actually remembered about birthday and asked what I wanted.
I waa shocked he remembered lol. We've decided to go shopping to aa fancy shopping centre and a nice meal smilesounds good to me. Might fit cinemas in too lol.
How is everyone and dc?

Isitme1 Wed 27-Feb-13 19:23:58

Seem to be eating my own words recently. Haven't felt movements since last night early hours this morning. Slightly worried.
How is everyone?
Ds seems to be in more pain with reflux amd is bringing up food that je ate orally 12 before.

giddypants Wed 27-Feb-13 19:49:45

Try not to worry too much this one went quiet for a few days at a time, but I realised when I had a scan and gave me a really big kick and I couldn't feel it that he must just be in a well covered position IYKWIM. But if you haven't felt anything by the morning maybe give your mw a ring? I found that both mine woke up just as I was going to bed!

DS is ok 2 appointments down today, SALT was good and said that his understanding is good, it's just trying to find ways for him to demonstrate that he does know everything things.

Also had his MMR booster, they tried to make him have another MMR next month as he hasn't had the combined jab at 13 months, instead he had the single vaccines, they said that they don't recognise it! Well I do and so does my purse, didn't say that just stated that he will only be having the 1 booster. grin bless him he was very good, no crying.

Growth scan tomorrow morning for me and that should be it until Monday.

giddypants Wed 27-Feb-13 19:52:30

Does he take domperidone? As that is supposed to make his gut work a bit faster. Not as good as metaclopramide, but that's not recommended for children.

Isitme1 Wed 27-Feb-13 19:56:15

He used to take domp but I saw no effect with it and gastric said stop if it doesn't help.
Hes on erythromycin for gut.
Hes not ate a thing all day. He thinks he will be sick again.
Poor little baba.

Aww bless, it's bitter sweet when our dc are good for gps and nurses when being prodded as they've been poked so many times x

sneezecakesmum Wed 27-Feb-13 21:07:40

Happy birthday isitme! smile thanks. Hope DH makes it special with a nice relaxing day. I have no intention of getting pg. would make medical history and the news of the world!

Wonder why they want to see little DS surgically? Sounds quite scary but I am sure it is routine. DGS not put any more weight on despite killing everyone's back who lifts him confused. Will seriously up the volumes now...we mean business!!

Gali is busy with her new baby.

Love the blended diet fb page. It's a lifeline if you need info. Definitely recommend it to anyone smile

2old2beamum Wed 27-Feb-13 22:56:16

Happy birthday DGD smile and XXXXX
Oldsneeze PLEASE count me out on the pregnancy bit as well impossible thank god.
Life here is manic DD has suddenly decided she does not like spending !.5hrs in the taxi to school.
too many hospital appts, older girls have been summoned for "pill" check at GP's for goodness sake they see cardiologist X4 a year
Will post a more cheerful post tomorrow.

Take care my understanding mates XX

Isitme1 Thu 28-Feb-13 07:32:35

its birthday on Friday shh smile
Nice to hear from you granny anf sneeze x

Isitme1 Thu 28-Feb-13 09:10:01

Ds reflux has really been bad recently. He was sick 3 times yesterday. Proper projectile vomit. Dh has witnessed what I had to go through alone for so long. Hes not himself due to the pain. Hes not got diarrhoea or a bad throat or anything like that. Hes got a bad chest but its always bad (asthma+reflux) but hes not being sick with a cough.
We were in town yesterday and he was sick the lady at checkout freaked out. I had to explain that he didn't havr the norovirus annd that it was reflux. You should of seen her facr after I told her.

Hes cutting a tooth but has been for a while but thats nevee been a problem. Will have to watch his nappies. Going to ring gp so he prescribe diarolyt. His pump wont let me put the rate lower than volume? So of im giving 100 mls I would want to give it over an hour it won't let me?

giddypants Thu 28-Feb-13 17:52:22

Will the pump alarm when it has run out of feed? If it does just let it run out and set the volume to what you want.
Poor wee thing with the vomiting, I don't know what to suggest for him sad

2old, great to hear from you, are you sure you wouldn't want to be pregnant again!? Was discussing with mum that if they had taken my uterus after I had DS she would have to be a surrogate for me! <horrified face> that's if her bits haven't turned to dust grin

Scan today all ok, still growing on the average centile line, whatever that means, so section date booked for the 26th march eeeek! Just need everything to go smoothly until then

gallivantsaregood Thu 28-Feb-13 21:23:11

Hi folks just a quick check in and apologies for the short post.

Hugs to everyone who needs them. Seems like quite a few are needed. Hope all thebumps are behaving themselves and kicking their daddies into touch :-D

Things here are manic. Bern doing very intense intros with little DS. Things were delayed by a week because he got unwell.

Any advice for me re how I get a little chap, who is not motivated by food/drink at all and who has been fed by only 1 person for his whole little life, to drink his bottle for me? He is doing really welk accepting comfort, coming to me, playing, kissing but will not drink! Will only take it from fc. Help!!!!!!


sneezecakesmum Thu 28-Feb-13 21:28:57

AND I was going to sell my story to the newspapers...grandmother pregnant with her own grandchild! It would have been a labour of love (pun) and DD would have had to pay for my tummy tuck and boob job after the delivery AND it would have been me forever moaning discussing my back ache, SPD and on and on.... For me personally pregnancy was the most vile and hateful experience ever! The only thing good to come of it was DD and DS grin smile

Isitme...I think formula make kids with reflux worse. Did little DS have a fundo? I thought it stopped vomiting, but its seems so drastic.

2old2beamum Thu 28-Feb-13 22:46:15

Re fundoplication was useless with our beautiful boy could still hit the far wall with vomit.So sometimes they do not work sad

Galli glad your LO is with you, I am sure you will soon sort him out with love.

Oldsneeze you love it grin

Question for some, has anyone used Neocate Advance were there any problems.

I may be missing for a day or so, am going to hosp tomorrow for a miniscule op but they say I may have to stay overnight GRRRR. If you hear on the news an old naked woman crawling up the A140 IT WILL BE ME.

Take care all you lot and Giddypants and DGD look after yourselves OR ELSE.XXXXXX

giddypants Fri 01-Mar-13 03:54:01

good luck 2old (not that you'll need it)smile sorry no help with the neocate.

lovely to hear your little boy with you galli how okd is he I know mum has difficulty getting oral fluid into ds as he will only except a cup from meconfused
just keep persevering I think that is all you can do.

happy birthday isitme!!!!thanks thanks thanks
hoping you get spoilt by thoes boys!

Friday already, I really can't sleep ds has snuggled in to me so I'm all uncomfortable don't dare move him! and bump has been super active since his privacy was invaded earlier at the scan. just want him to take his foot out of my ribs hmm grin

gallivantsaregood Fri 01-Mar-13 08:13:59

Luuk had neocate advance. Firstly it is FOUL! He was doubly incontinent on it andhad huge malabsorption problems. However that was the same for every formula he was on. He only got healthy when we gave him real food down his tube..... Xx

gallivantsaregood Fri 01-Mar-13 08:16:35

2old: hope all goes smoothly ay hosp and you get home same day x

Isitme: Happy Birthday to you xxx

Everyone else: Speak soon and take care ( sorry I'm a wimp. Worry that if I name everyone I might forget someone) xxx

Isitme1 Fri 01-Mar-13 08:49:54

Good luck granny.

Giddy I know the feeling. Ds keeps climbing into our bed on my side nd In his sleep kicks bump. Dh on the other side rolls over nearly squashing bump lol. Tonight I might sleep in ds cot bed lol. Ive got heads ache as I've not slept properly in days. I can't turn over in bed due to lack of space.
Moan over.
Neocate stinks but is the easiest thing for ds to digest (even though hes not digesting it)
On a positive note ds woke up anf tried to sing happy birthday. Dh said happy birthday first thing too and baby kicked. All within 2 mins lol.

Isitme1 Fri 01-Mar-13 08:50:52

Oooh anf thank you very much.
happy birthday to me .smile

sneezecakesmum Fri 01-Mar-13 21:56:43

Think I x posted with gali. Congratulations on the little one tho I don't know what to suggest re drinking. Straw? Bottle, sippy cup? So lovely that he is affectionate.

20ld. Good wishes for the OP, try to rest a bit and no crawling anywhere! No idea re neocate!

Happy birthday isitme thanks. No more to say except email was hacked into and all my contacts were sent emails from'me' asking them for money! Hahaha. Maybe it was me in a fugue state as I'm skint. All day scanning computer but sorted now. Waste of a day. O well. Goodnight all tubettes grin

Alamaya Sat 02-Mar-13 06:16:43

having a low night tonight.
Only on wednesday consultant was saying she would hope in about 4-6 weeks we wouldnt need tube anymore as we only top up 2 times a day.

Yesterday we have nosedived. Not only did we have to top up every feed but a couple of them were 50ml out of 65ml. sad

Not sure if his reflux meds need upping due to his weight going up. Hes not being sick but this is what he was doing before the tube and meds, he messes around, big swallows and funny tastes.

Do you think if i rang gp on monday they would give me topped up doses over the phone as i cant actually get to the gp till tuesday.

What a sucky sucky day.

giddypants Sat 02-Mar-13 09:35:49

alamaya don't despair could he have picked up a bug or anything of the sort?
I don't know what else to suggest, maybe make a telephone appointment with the GP?
Tomorrow is another day and he might be better x

giddypants Sat 02-Mar-13 09:36:26

Sorry not a helpful post!

Alamaya Sat 02-Mar-13 09:53:13

lol @ giddy

He was projectile like sick after this post this morning.

But then at 9 hes took a full bottle by himself?


Isitme1 Sat 02-Mar-13 20:50:52

Im guessing dosage needs increasing.
Ds has been pretty bad lately with reflux but hes lost weight not gained.
He looks so fragile now sad
Hes tolerating around 300-400cals a day atm.

Hope all is going well granny.
Sneeze gali and giddy (sorry if ive missed anyone) hope all is good

2old2beamum Sat 02-Mar-13 20:58:41

Hi all I am home had to stay overnight as I was last on list sad But as so many people were cancelled I am very grateful to the anaethetist who fought my corner.

Giddy like you I am a big wuss (believe it or not) and am terrified of hurting peoples feelings.Hope you are ok look after yourself. How many weeks are you?

Galli hope your LO is feeding a bit better now but it can difficult. What does Luuk think of it all?
RE neocate advance Hope it is not too disgusting they think Annabel has a food intolerance as she has constant diarrhoea personally I think it is linked to her immune problems.

Alamaya hope your LO is improving Bloody puke!!

DGD Oh I remember 2 in a bed and a bump glad you had a good birthday hope your young fart is looking after you.

Oldsneeze No I haven't forgotten you......How could I? hope you are ready for the next little Giddy.How is your old fart, mine is being very helpfulconfused

Many thanks for all your good wishes Even just 24hrs on I am feeling so much better.
Take care all of you sleep well Love to all scallywags.

gallivantsaregood Sun 03-Mar-13 08:50:01

Almay, hope DS us ok. Upping meds sounds like a plan.

2old: Glad you are feeling better. Are they expecting Annabel to drink the Neocate? You do get flavour sachets but not sure how good they are. I do know done kids who like it but I accidentally tasted it and almost puked! Sorry

Little DS did fab yesterday and drank a whole bottle in 1go! During intros you are not supposed to change anything so I was a bit naughty. FC outs lots of baby rice in his bottle for no reason she can give. No swallow issues etc. So I bought smaller holed teats and didn't put any rice in. Result, relaxed, happy drinking!!!! I also got him todrink 90ml water from a doidy cup! A much happier boy yesterday. Even ate all his lunch and dinner. Lots of smiles and much more relaxAm feeling far more confident that he will settle and trust us fairly quickly. Poor wee soul us really confused right now. Especially when we are together with FC! Roll on Tuesday xx

sneezecakesmum Sun 03-Mar-13 10:27:07

20ld. Welcome home. Hope you managed to sleep in hospital. At least it's over and a weight off your mind. Glad you little tribe survived without you and OF coped without the Boss! Is it possible DDs diarrhoea could be the formula? Seems to be a big thing on BD Facebook..either that or constipation. But JTubes are different that pegs. sad. It's all so difficult.

Gali. So pleased little sweetie pie is drinking ok now. He Must be so confused but little ones are so adaptable and I think as long as he is loved he will make the adjustment to you.

Giddy is 36 weeks now and counting shock. Feeling anxious and just want him to arrive safely. SPD not much fun for her now.

Isitme1 Sun 03-Mar-13 11:53:32

Granny glad your feeling better.

Gali that sounds so rewarding and heart warming. It really is wonderful to hear hes starting to trust you.

Giddy its not much fun after 35weeks sad

Ds keeps bleeding fresh blood from anus.Its scary. Dont know what to do. Hes refluxing more and is complaining of a lot more tummy ache. He woke up and gave me hug and said mum (im no longermummy lol) tummy hurt. He looks pale isnt himself but it takes a lot to knock him down. Hes still playing but os very quite at times. The last time I took him to get checked he wasn't himself but clinically he was ok.
Might take him walk in centre to get urine checked. Any ideas? X