Here some suggested organisations that offer expert advice on SN.

Desperately in need of a honk and a hug :(

(44 Posts)
moosemama Wed 21-Nov-12 20:16:23

That's about it really.

Ds is a mess, school was a disaster again today, they are still not doing remotely what they say they are and should be doing, are still doing things they most definitely shouldn't be doing and yet again have given his self-esteem a massive kick in the guts today. On top of that it's problem after problem with the TA they've assigned to him and he is too scared and totally refusing to tell anyone other than me how badly she's affecting him. sad

He came out of school today full of anger, frustration and despair and I know just how he feels.

My heart is breaking for my poor boy. I feel so worn down, like I can't even get up off the sofa. I just want to curl up and pretend it isn't happening, because I know I can't do anything about it all - nothing I try works - I am continually banging my head against a brick wall with all my exits blocked. sad BUT ignoring it isn't an option is it, I have to fight and stand up for him, because if I don't, who will?

Sat here in floods of tears, waiting for dh to finish bedtime routines so I can fill him in on today's disasters, but knowing that he won't fully get it even if I do. Marriage is falling apart as well at the moment and I no longer feel I know or can trust my dh, which is heartbreaking after 25 years together. sad

So sorry for the self-pitying post. I just needed to let it out somewhere.

Dev9aug Wed 21-Nov-12 20:28:16

No words really "moose". its disgraceful what the school are getting up to. I do wonder sometimes whether they realise that it is somebody's whole life they are playing with... hope it gets better for your son soon.

moosemama Wed 21-Nov-12 20:30:30

Thank you Dev. It's kind of you to reply.

I know I am wallowing, but all my fight seems to have left me today. sad

Lougle Wed 21-Nov-12 20:35:29

moosemama, one moment at a time, one minute at a time, one hour at a time, one day at a time, one week at a time, one month at a time, one term at a time. <hugs> <honks>

madwomanintheattic Wed 21-Nov-12 20:35:49

duvet day.

Get off the rollercoaster and give yourself permission to ignore them all. The fight can be resumed next week.

Tell him he looks peaky tomorrow and you think it would be best if he stayed at home. Invent a temperature.

You can't ignore it forever, but giving yourself time to reboot isn't going to make any difference in the longer term, and will help you get back to form.

Just say 'fuck 'em' for a day or two, and get boily mad.

Have you gone back to IPSEA?

moosemama Wed 21-Nov-12 20:54:47

Thanks guys. I know all I can do is fight each fight and not tackle the whole war in one go, but seriously, tonight I don't even have enough fight to face the school run in the morning. I need to deliver a reply slip to the school office and ridiculously I am too scared to go in there.

No change of getting him to take tomorrow off - it's cricket club. hmm

I haven't gone back to IPSEA, because I think I know what the options are and basically it's a case of getting the LA to enforce, or if not we're back to judicial review to force them to do it. First step is the meeting with inclusion boss and teacher, LEA officer, EP and SENCO, but while I'm waiting to hear when it will be and who has agreed to attend things just keep on getting worse - and of course there's absolutely nothing I can do about the teacher's attitude.

sannaville Wed 21-Nov-12 21:00:15

Oh moose sad I don't know your situation fully but is there anyway ds can be homeschooled until school agree to put everything in place that should be? Can doc sign him off with stress?

I agree have a duvet day buy yourself a box of chocs and do sod all for a day.

I sympathise with your difficulties with Dh. Myself and hubby are struggling after 9 yrs together mainly due to no support for dd2 and the fact she still sleeps in our bed doesn't help! But we are plodding on as he's my rock and is supportive.

Sending you a hug

TheLightPassenger Wed 21-Nov-12 21:02:57

I'm sorry it's got worse Moose, I don't know what to say, would your DS countenance home ed/flexi-schooling at all?

TheLightPassenger Wed 21-Nov-12 21:03:56

You need a break as well, you have been in pain for quite a few months now, constantly, on top of the ongoing neuro queries, so it must be exhausting for you on a physical level sad

madwomanintheattic Wed 21-Nov-12 21:06:31

God bless cricket club. smile

Tell him it's cancelled...?

<eek. No way I'd get away with it, but...>

Then eat crap, drink beer, and force yourself to watch something utterly meaningless on the box. Refuse to give any of it even a minute's headspace tonight.

If dh asks, just say 'life is unremittingly crap' and demand more beer/ gin.

Is this dh uncertainty part of the new job thing? I'm sure he's rock, moose. How come you're wobbling?

zzzzz Wed 21-Nov-12 21:15:08

Breath in breath out. Having a wobble here too. Must be something in the air eh?

What about wine

badgerparade Wed 21-Nov-12 21:16:00

HONK and << >> from me.
Hope things get better soon. Some days feel harder than others, I know. My ds was at home today because of all the anxiety sad. I think it's the guilt that makes you feel worse, thinking that you should be doing more to help them but knowing that practically you are already doing as much as you can. Tomorrow is another day.....

moosemama Wed 21-Nov-12 21:16:23

Sanna, unfortunately not. One of Ds's 'rules' is that he goes to school every day and there are things about school that he would miss, not least of all his best friend. I have discussed homeschooling with him a few times, but he flatly refuses to even consider it.

As the head of the inclusion team said to me yesterday, ds is one of the most severe 'black and white' thinkers they have on their roll and it makes him incredibly hard to deal with at times like these.

Thank you for the hug. smile

Hi TLP. I know and I'm really struggling neurologically at the moment, not to mention my flipping foot - well leg really. I had a really bad neuro episode while out with the kids last week that then got worse when I arrived home. I know I should have contacted my neurologist straight away, but I just couldn't, I had enough on my plate already and my usually supportive dh has decided to have his midlife crisis in the middle of all this and all but abandoned me to my fate, despite seeing the state I was in (unable to stand, talk or see properly). He said he assumed it was my medication, but seriously, I've been on the medication for months and he knows it doesn't do that to me. I think he's just had enough of me being constantly ill and is struggling with staring the reality of a future as dh in the face. sad

moosemama Wed 21-Nov-12 21:23:54

Madwoman, let's just say his response to my collapse and subsequent extremely out of character behaviour (even while I was really ill in bed) has given me enough reason to be suspicious and when confronted, he couldn't defend himself.

I don't doubt that he loves me, but I'm not sure that's enough for him to carry on 'coping' with our life as it is/has been any more, he feels cheated and wants more from life. The new job has been a catalyst for his mid-life crisis, new trendy clothes, shaving off his beard, monumental effort with his appearance, being secretive and generally behaving like the total opposite of the man I've known for 25 years. I feel like I don't have a clue who he is anymore and he's done a few specific things that make me genuinely suspicious about what he's up to.

madwomanintheattic Wed 21-Nov-12 21:33:25

Oh Lordy, he's normally so sensible. <sigh> might be something of nothing, dh here at one point bought tooth whitening kits. This is the guy who won't even go to the dentist, and wouldn't recognise moisturizer if accidentally fell into a vat of it. Are you sure it's secretive and not just avoiding talking about it because he doesn't want to harp on about what a great time he's having in his new job whilst you are feeling crap? <really don't want to ask but... What did you confront him about?>

Where's your mum? Any chance she can take over for a couple of days whilst you hide? Or do you not want to hide really, just get bloody angry with all the incompetents? (If you can summon the energy)

Head of inclusion team sounds very sensible. Can you use her more? Even if you have to beg? It is their job to be able to cope...

Ineedalife Wed 21-Nov-12 21:37:28

Hi moose sorry you are having to go through this.

I go through difficult patches with DP and have recently told him that Dd3 and I are going to leave if he isnt able to get on board with at least some of the strategies that work so well with Dd3.

I have big trust issues and and inclination towards walking away from complicated situations.

I really feel for you, you need your DH to be with you ATM not pulling away from yousad

Am honking, ((hugging)) and flapping like mad for you.

NoHaudinMaWheest Wed 21-Nov-12 21:39:40

Moose hugs and honks from me. It is no wonder you have run out of steam, you have had such a lot to cope with for ages now. Was this episode the collapse at the garden centre you mentioned on Friday night thread?

Don't know what to say about your DH. Mine has never been very supportive but it sounds as if yours has in the past so maybe he will be again once he gets his head round the changed situation.

As for school, I also have a Ds who is determined to go no matter what although sometimes his OCD is severe enough to prevent it (like today). If he is that determined maybe you can hang on until at least you have had the meeting. Maybe chase it stressing things are getting worse?

And handing in things at the office. I know how you feel. After Ds primary excluded him (illegally), I still had to go everyday with Dd and take Ds with me. It is easy for me to say now, but try to remember they are the ones in the wrong who should be afraid.

Probably none of that helps. Have another hug or two.

moosemama Wed 21-Nov-12 21:45:33

No, unfortunately not. We're talking emptying the cache on the computer and being glued to his phone secretive here. sad

Can't tell you what I confronted him about on here really, but it wasn't good and he didn't have an excuse.

Mum is off for a couple of days for her birthday as of this evening.

Dh and I are supposed to be going away for the weekend with all our uni mates to a boutiquey hotel and rock night this weekend, but I seriously don't feel like going - I don't want to be around him to be honest.

Head of inclusion is fab. We spent an hour on the phone yesterday, loads of off the record stuff and lots of support from her and she's offered to round up all the professionals for the meeting to end all meetings, as they are all more likely to go for her than they are if I ask. Basically she shares our anger and frustration but she too is pushing the limits of her power to make anything happen, not least of all because we've between us ascertained that the school has fed her a load of lies (often different to the ones they've fed us). She and his inclusion teacher are as upset as we are at how much damage the school has done to ds in such a short space of time, especially after they and we have worked so hard over the past three years to get him to where he was last school year (ie happy and achieving).

moosemama Wed 21-Nov-12 22:04:18

Ineed, thank you. smile I have never had trust issues with dh - we've been together since we were 16 and I always felt we had grown together and I knew him. Seems I was wrong. It feels so much worse because he's the only person I have ever been able to trust in my life and now I feel like that trust was naive and misplaced. sad

NoHaudin, yes, the collapse was at the garden centre. I had a really bad head all day, but we went to look at the christmas decorations with my Mum with the dcs, as we'd promised to.

I started to feel a bit ill on the way there - assumed it was just a bit of motion sickness, as I have a bit of a sinusey thing going on, but it didn't get better when the car stopped and then I suddenly felt really odd and my head pain got a lost worse. I was trying to tell my Mum that I felt ill, but couldn't get any words out properly and I was conscious of not upsetting the dcs. I am still on crutches at the moment, so with whatever was going on with me I couldn't co-ordinate myself to get to where Mum was and alert her, so I stood there swaying and clinging onto the crutches until she looked up and noticed something was wrong. Then I managed to let her know that I was going to try and head to the cafe (which was very nearby) and she should stay with the dcs, give me chance to recover and then follow on. I struggled to get there as my left leg (the one that I have CRPS in) kept dragging and wouldn't work. Got to the cafe and it was just so bright and loud and I felt like I was going to hit the deck, so I went in the loos instead and sat on a toilet for a while until I felt slightly better. When I came out Mum and the dcs were searching for me, dcs were oblivious, but Mum was panicked. She got me some water, I had a sit down for a while and then managed to get back to the car. Unfortunately, when I got home I lay on the sofa and within half an hour realised I couldn't get up and couldn't speak without slurring so badly that I couldn't be understood. Mum had an appointment to get to and had thought I was getting better so had left, the boys were on their computer time upstairs and dd was watching tv, so I just curled up and prayed for dh to get home from work quickly (he was due home in half an hour anyway). When dh got home I was no better and he helped me upstairs to bed. I have since found out that he assumed I'd taken mega cocodamol and that's why I was out of it.

I should have gone to hospital there and then, but I missed the opportunity and there's no point if they can't see it happening 'in action' as it were. Also, it seems no matter how bad the symptoms get they are never bad enough for the neuro to class them as serious neurological symptoms.

It was horrible and dh was really unsympathetic and supportive, although to be fair, I had to take mega co-codamol for my foot on Saturday and he was shocked when he realised I could hold a full on conversation about ds1 and school etc an hour and a half after taking them. So obviously the penny dropped that it couldn't have been cocodamol on Thursday after all. hmm

madwomanintheattic Wed 21-Nov-12 22:11:21


Kidneys? <dare I ask?>

Is your mum having the dcs this w/e?

I think you should go. It can't get any worse, and it might give you the opportunity to reconnect/ get some stuff out in the open. Might not be as bad as you fear?

Have you let the neuro know about the episode anyway? I think you need to make sure it is all documented. <and you know - call them next time - <weak smile> or make sure your mum and dh know they are to, and where the number is>

If dh did assume you were out of it on cocodamol, his reticence is possibly understandable? <not defending him, he seems to be being weaselly, but his realization on sat seems like a plausible reaction?>

madwomanintheattic Wed 21-Nov-12 22:12:38

I'm thinking possible TIA again - there might be new markers?

NoHaudinMaWheest Wed 21-Nov-12 22:13:14

Those symptoms sound so obviously neurological that I'm shocked the neurologist doesn't take them seriously. Any mileage in a second opinion though I can see that that might be the last route you want to take at the moment. It must be so frightening and worse if Dh is unsupportive.
FWIW my Dcs don't seem to really notice my symptoms even when they are bad beyond saying 'Mummy's a bit wobbly' and they are a lot older than yours.

Ineedalife Wed 21-Nov-12 22:15:32

Because of my age, I know quite a few men who have done the whole Midlife crisis thing.

I am not saying this is what your DH is doing but with the new job maybe he is just feeling like a change.

When I am stressed I see DP clicking off pages on the web and texting/whatsapping more than ususal and I make 2 and 2 add up to 22.

I know I am doing it but I can help myself.

You are under a huge amount of stress ATM pls try not to jump to conclusions.

Me and DP are meant to be together but sometimes we both go into self destruct and neither of us knows how to stop.

Luckily so far we have been able to sort it out before it goes too far but when there are SN's in the family it just makes it all soo much harder.

Please try to be kind to yourselfsad

moosemama Wed 21-Nov-12 22:15:47

Kidneys seem ok now thanks Madwoman. S'pose at least something got better! grin

Yep, Mum is supposed to be having the dcs this weekend. To be honest I considered sending dh away, the dcs to mums and having the house to myself for the weekend.

No, I haven't contacted the neuro <I know, I know> it just seemed pointless after the fact. Mum and dh have both told me to contact her, but I just can't face it. blush

Yes, dh's Saturday revelation was a plausible-ish excuse for that particular let-down - sadly not for others.

moosemama Wed 21-Nov-12 22:28:28

NoHaudin, it was video evidence of one of these attacks that launched the whole MRI (which found new lesions), lumbar puncture (which was negative) and evoked potentials (also negative) thing this time last year - although the attacks were actually in the spring and I hadn't had one for months by the time the tests took place.

They told me I was basically down as 'probably MS' and that wouldn't change until either I as dx with something else or there was more definitive clinical evidence for a full MS dx.

Then suddenly for no apparent reason, at the last appointment they did a turnaround, put me on 12 month instead of 6 month review and said def not MS - haven't a clue what it is - see you in 12 months. They did say I should contact them if I have any new 'serious' neuro symptoms, by which she said she meant, weakness on one side of the body or problems with the function of bladder or bowel. I'm guessing that, as I've had this type of attack before and the symptoms are all documented - nothing new, that there's no point in contacting her again. She said if nothing more significant arises, they will look at repeating the tests in two years. Well, actually they won't because I am NEVER having another brain MRI again in my life - two is two too many (seriously claustrophobic).

Lots of people, including my physio have suggested the Complex Regional Pain Syndrome, is connected, as it is a malfunction of the nervous system and that I should inform her that it's happened.

Oddly, when I was in hospital for blood tests during my recent kidney infection I saw her and thought I should perhaps go up and speak to her. Unfortunately I just felt too ill to get up and walk across the corridor to where she was standing. sad

Personally, I have feeling it's all connected to the hypermobility/EDS stuff we have going on in the family. Apparently my lesions are too vascular to be typically MS, but not vascular enough to be TIA or dementia related. confused The vascular element raises questions for me about EDS, especially as some of the symptoms of CRPS are also vascular in origin.

Unfortunately I think it is all such a tangled mess of connections that there's little hope of the NHS unpicking it all and coming up with potential treatment/solutions.

Ineed - he admitted he cleared the cache because he didn't want me - or the dcs to see what he'd been browsing - on the family laptop, while I was potentially seriously ill in bed upstairs! angry

madwomanintheattic Wed 21-Nov-12 22:28:58

Then I think you need to spend some time together. Without the dcs. And knowing that they are with someone who gets it. So that you can concentrate on what is going on with you two...

It isn't a dictat, obv. grin but it might help you get your head straighter one way or another.

moosemama Wed 21-Nov-12 22:35:59

I have been considering that option Madwoman, but I am just so angry and hurt at this point that the last thing I want is to go away with friends and play the happy couple.

Everyone in our lives thinks we have such a perfect strong marriage, they would all be seriously shocked if they knew what a mess we are in at the moment.

I probably will end up going, just because I am too tired to argue about it. The daft thing is, it was me that suggested, planned and organised it. I was really looking forward to it and now I'm dreading going.

madwomanintheattic Wed 21-Nov-12 22:39:11

<soothes brow>

It'll be ok. And if they are your friends, they will understand that life isn't perfect 100% of the time, and will be there if you need them. You don't have to play act.

Take the time for the two of you, and see what happens x

coff33pot Wed 21-Nov-12 22:48:53

oh moosemama Honks and ((hugs)) x

Maybe this trip is meant to be to get anything and everything out in the open without the DCs being near to earshot or interrupting mid flow as dcs do.

It will be somewhere neutral and unfamiliar relaxing surroundings so you will both be on an even footing and maybe open up a bit on the feelings?

Perhaps its the 1 to 1 time that is needed to clear the air one way or another x

I am sorry you have this on your plate on top of everything else, your head must be exploding on which way to go next. It doesnt help being poorly and having emotional baggage to deal with on top of the school issue. Remember you are not a bionic woman and you can only do one thing at a time.

EllenJaneisstillnotmyname Thu 22-Nov-12 00:15:07

((((hugs)))) moose. I can't comment on your DH as my views would be really jaundiced. sad I really hope he gets over his mid life indulgence quickly. People can change, though, I'm afraid and the phone secrecy isn't on.

Anyway, when is your school meeting? I'm so glad your inclusion teachers are on side at least.

Look after yourself, moose. X

lisad123 Thu 22-Nov-12 00:41:21

Goodness me that sounds tough.
One fight at a time, it's too easy to think we need to fix everything at once, but we are only one person.
Do you have anyone for you? Not ds but you?

mariammma Thu 22-Nov-12 01:09:36

oh, moose sad

1)your health 2)ds and school 3)sort out marriage

Too much for anyone to do in one go. So it's really ok (essential?) to procrastinate, sulk, ignore or try to reduce your emotional involvement in whichever one or the three horrid areas which isn't top priority right now.

Could you enjoy the weekend without simultaneously trying to marriage-mend?

mariammma Thu 22-Nov-12 01:19:58

If the current dh situation is dodgy, blindly trusting dh right now would be incorrect. Even if you found out something unpleasant, all your previous years of trusting him were most probably well-founded and appropriate.

moosemama Thu 22-Nov-12 01:32:07

Can't sleep.

Coff, thank you. I'd like to think this weekend would be enough, but it doesn't feel that way at the moment.

Ellen, I've already been through him changing massively from when we first met. He had a head injury the year before ds1 was born and his personality changed overnight. He used to be lots of fun, very carefree and silly and really open and easy to communicate with. After the accident he stopped communicating, became obsessed with politics etc and really quite militant. He spent much of his recuperation time firing off letter after letter of complaint to everyone from Tescos to the Government. It was literally like suddenly being married to a stranger. We got through it and I thought we were ok, although I will admit to having struggled with losing my best friend after 15 years together, as since the accident he has never properly talked about anything, whereas before we constantly talked things through. In fact we got together after sitting up all night at a party just talking and we carried on doing that for months after we first got together and regularly throughout our lives after that. Now it's a fight to get him to talk and then when you finally think you have, you realise you are actually doing all the talking and he's just sitting there not contributing.

Don't know when the meeting is going to be yet, as she said it will be nightmare to get everyone to commit to going in the first instance and then they have to try and find a mutually convenient day/time.

Lisa, no not really. I spend pretty much all day every day alone at home. I see my Mum most days and she is often a big help when I am ill, but there are issues there (think of the "but we took you to stately homes" threads). Both my sisters live a long way away and don't really keep in touch much. Friends are joint friends with dh, most of whom we met when he was at Uni, so were his friends first, iyswim. We are seeing some of them this weekend, but there's no-one I could really talk to.

In fact that's what I am starting to realise. I really am on my own with all this. I feel like my world has been shaken because the one constant I've had across the past 25 years is that my marriage was strong and that even if dh is be a bit dopey sometimes, he was always there and he did love me and the dcs. Now I don't feel I even have that anymore. I have no clue what he's thinking or feeling - he won't talk and that just leaves me feeling even more unsafe and with no-one at all on my side. Not even counselling would help, because dh would just sit there and not speak. I have often described having a serious discussion or argument with dh as like punching a sponge, you can talk, rant, rave, shout and .... nothing, no response. It is so frustrating. I've tried not to get frustrated with it over the years, because he can't help it, it was the head injury that started him being like this and I knew that in spite of it he was always there, iyswim. Now though, I don't feel either like he is there - or even that he wants to be there anymore.

Oh I dunno, I'm rambling here. I'm ridiculously tired but can't sleep. Think I'd better try again though as I have to be up in 5 hours for the school run.

Thank you everyone for your support. I was really posting to let off steam, as I have no outlet for it in RL. I really appreciate all your support.

moosemama Thu 22-Nov-12 01:40:17

Cross posted maria.

Thank you. You talk a lot of sense.

Part of me knows that dh has always been a reliable and faithful husband and father and therefore my faith in him has been justified, but somehow all this is making me feel like there must have been at least a part of him that I never knew at all and that makes me feel like a fool. Yet on another level I do know that realistically we all have parts of ourselves that we hold back, although I don't think I have with him, because, as I said earlier, we grew up together. We are both 42 and have been together since we were 16 years old - our whole adult lives have been shared and we've been through so much together and survived that for him to screw it all up over a midlife crisis seems ... well I can't even think of the right word for it, but I do know I am hurt, incredulous and angry about it all at the same time. I know things are tough and messed up at the moment, but I still want to know why, why this time, why now. The only thing I can come up with is the mid-life crisis, years stretching ahead of him type thing and him realising that he just can't face it.

I guess it's a reminder that you should never take anything for granted.

Anyway, I am going to try and get some sleep again now.

Thank you for your kind thoughts.

madwomanintheattic Thu 22-Nov-12 01:57:44

Moose, there are a few of us on the brain injury thread in general health.

I know it seems like a long time ago (me too) but has he ever been in touch with Headway? I have to say I had never heard of them before the thread, but they do seem to have been quite useful for silent types...

I had forgotten that we had such a shared history!

Hope you manage some sleep x

moosemama Thu 22-Nov-12 10:42:50

I had forgotten we had that in common as well Madwoman.

I have never heard of Headway, I will look them up.

We had no help at the time. His treatment by the NHS was truly appalling, so there was no chance of them giving us any advice, we just had to muddle through on our own, with me nursing him without support. I was given compassionate leave, but then had to go back to work part time and try and hold down a job whilst nursing him and running the house etc. We were living the other end of the country to both families at the time and had very few 'real' friends up there as we were fairly new to the area. I hate thinking about that period in our life because it was truly awful. sad

I managed a couple of hours of fitful sleep, enough to be able to handle the school run.

I'm worrying about how ds1 is coping today. Apparently he refused to go with the TA yesterday morning and it sounds as if there was quite a battle. He can't stand being alone with her every morning and he loathes Thursdays anyway since the whole maths demotion thing. He still wants to go in, but only because of cricket club. Now Fridays are going to be a similar problem, because a good proportion of his literacy set are being taken out to be hothoused tutored by teachers from the secondary towards level 6 SATs. Of course that includes all his friends and he is left with the children he doesn't get on with during what is essentially the 'fun' part of Friday afternoon, where he usually works with his best friend. sad Of course this has tapped into his self-esteem issues as well as making Friday, yet another 'blacker than black' day. <sigh>

Bedtime last night was awful as well. Ds1 totally lost it with ds2, just because he said 'pardon me' when he broke wind. I was downstairs and it sounded like World War III had broken out up there. Poor ds2 was beside himself, in floods of tears. It was purely a verbal attack, but so bad that it left ds2 shaking. He went to dh, who was putting dd to bed, for help and asked if he could stay in their room with them for a few minutes and dh shouted at him and sent him back to his room. angry It was clear that the boys needed to put some space between them for a while, so ds1 could calm down and ds2 could recover, but as usual these days dh just wasn't invested in what was going on. Fortunately ds2 had the good sense to come downstairs to me - who daftly assumed that dh would have dealt with it, especially as I am not really able to dash up the stairs at the moment.

Then ds1 was an absolute nightmare this morning, which is pretty much to be expected. Poor ds2 caught out badly again. I've had a chat with him and explained that whilst we need to be sympathetic with ds1 because he is having a difficult time, I still won't stand for him upsetting or hurting people and that he should come to me if ds1's behaviour is distressing him and I will deal with it.

Today is odd, I am tired, flat and don't feel like doing anything, but at the same time bored witless from doing nothing. Have read some books with dd and she is now doing her own thing. Hence me being on here.

If it wasn't for this blooming foot I'd get on a bus and go into town when she goes to nursery, but there's not enough time to get there and back and hobble round the shops if I go on the bus. Very annoying, as if I am going away this weekend I quite fancy spending some of dh's money buying myself something I don't need, just so I've done something for myself. <daft I know>

NoHaudinMaWheest Thu 22-Nov-12 11:11:22

Moose I'm just replying so that you don't feel you are talking to the ether.

I'm sorry it is so tough on so many fronts. Didn't know about your back story re head injury but when I was recovering from severe ME 20+ years ago there was a chap at the work preparation unit I attended who had had a head injury and had a lot of help from Headway. It seemed like they were there for the long term so might be worth contacting. But I know its another thing for you to do.

I don't think its daft to buy something for yourself if you can manage it. Why not go the whole hog and get a taxi into town?

I really ought to get back to sorting out stuff for Ds's AR next week. It's an important one as it will decide post-16 provision. I knew my paperwork was in a mess but I am just discovering how much of a mess.

moosemama Thu 22-Nov-12 11:17:25

Thanks NoHaudin. I'm fine with talking to myself - it's often my only option! grin

To be honest it's just helping to let the thoughts out of my head and stop them all spinning around in there.

I don't think I will go into town, as I will just stress about getting back in time and have just remembered I have an additional school run today because of cricket club, so need to conserve my energy a bit.

Might order something online for next day delivery instead - now that really is extravagant.

NoHaudinMaWheest Thu 22-Nov-12 11:21:04

Yes go for it!

PolterGoose Thu 22-Nov-12 11:39:42

Honk, flap and (((((hugs)))))

Badvocsanta Thu 22-Nov-12 18:24:04

Hi moose.
Have nothing of any use to say other than I am here and listening (hugs)
Wrt your health I can empathise as you know. Still no answers for me either and I have come it the conclusion that until I have some sort of major attack/crisis I will get no help. I am so sorry you are no further forward either. Changing your review to yearly is nonsensical to me, but the NHS are running our of money after all angry
Wrt your dh...sigh. It's hard to know what to say. I think I am the one having a Mid life crisis in my relationship! I am unhappy and have been for some time but Dhs standard response is that he is happy, so everything must be ok.
He is working away a lot now which in some ways is good, but of course with my health it's hard.
Wrt your are right, you have to keep fighting. What's the alternative? Good luck with the AR.
Honk x

TheLightPassenger Thu 22-Nov-12 20:11:52

I'm sorry Dh is being an added source of stress. I would be inclined to give him benefit of doubt re:medication confusion (on the basis that I am merely mildly tireder than normal on 4 Piriton a day, whereas the rest of the world seems to be utterly non-functional) but sounds like the other stuff. well, you need more reassurance and TLC at the very least. I hope you manage to get some rest this weekend at the very least.

madwomanintheattic Thu 22-Nov-12 20:47:37

Spend an hour on s&b and get them to produce you a shopping list. smile

Did you ever get that cleaner with his wage increase?

My dcs can manage to create a real life end of world scenario with three Lego bricks, depending on which one is due a meltdown. <sigh> so tough when you are all on edge and can't defuse stuff before it escalates.

<call the neuro> <- just a little whisper. Do you think the neuro would pay more attention if your mum or dh called and explained the most recent crisis? Especially in a 'I thought she was off her head and she couldn't speak or walk' type of way...

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