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Possible eye tracking problems

(38 Posts)
Erniesmum Tue 13-Mar-12 11:29:07

Just wondering if anybody has any experience of this. My DS (8 and in year 4) is doing well at school, consistently top in Maths and in areas where he can rely on verbal instructions. His reading however is very difficult. Individual words he reads well and his vocabulary is good but he is incredibibly slow at reading lines of text and complains often that he loses his place and that the words move about. He was assessed last year for special needs as the school felt that there was a sufficient gap between his verbal skills and his written/reading skills to be concerned however the assessment came back as appropriate reading skills for his age. As time has gone on his reading has not improved at all and it has been suggested to us that he possibly has problems tracking his eyes together. Nobody however seems to know what, if anything, we can do about this and I wondered if anybody had any experience of this? I have been ignoring this in the hope that it will resolve itself but I am becoming more and more concerned that it is going to hinder his development generally and that I ought if I can to try to do something about it.

Nigel1 Tue 13-Mar-12 12:03:16

Keith Holland Associates Cheltenahm or BABO - British Association of Behavioral Ophthalmologists

mrsbaffled Tue 13-Mar-12 12:10:32

Look here for a Behaviour Optometrist

mrsbaffled Tue 13-Mar-12 12:12:59

You need to see a proper behaviour optometrist rather than a hight street optician (who missed my DS's very obvious eye tracking and convergence problems on 4 occasions).

I go to one in Milton Keynes. DS has some glasses and is doing vision therapy.

You will not regret making an appointment x Let me know if you have any questions.

IndigoBell Tue 13-Mar-12 12:24:35

Kind of agree with the above.

You need to do vision therapy - which is normally offered by a behaviour optometrist. Trouble is that BOs differ wildly in effectiveness.

My DD did one course of vision therapy through a BO and it hardly helped at all.

Then she did Home Therapy System through Tinsley House and we finally managed to cure her eye tracking and convergence insufficiency problems.

(And her reading age went up 2 years in 2 months)

Eye tracking is a very common problem, and it's very likely your child has it. It's also very easy to treat - the hard thing is finding someone who will sell you Home Therapy System.

It is very unlikely to resolve itself.

MMUK Tue 13-Mar-12 14:46:16

Hi Indigo Bell.
You very much selling TH clinic on the net in every of your threads across special needs. All with links and even where to buy meds. Is it yours?

IndigoBell Tue 13-Mar-12 15:07:32

No.

I'm telling you what helped my DD. I don't want to name the BO I had a bad experience with, because that seems mean (although if anyone PMs me I tell them)

however saying what works is important to me.

I'm incredibly annoyed that the vision therapy we did at a behaviour optemtrist didn't work. I'd far rather say go to any behaviour optometrist and do vision therapy and it'll cure eye tracking problems.

If anybody knows a BO that does HTS I'd gladly recommend them. But so far I haven't found a UK one that does.

Btw if you search my threads you'll see how long I've been on MN, how many things I recommend, and how desperate I was a year ago.

If you want to. Else you can just disregard my helpful posts.

How would you cure eye tracking problems?

IndigoBell Tue 13-Mar-12 15:28:13

For example, Here's a thread I started Jan 2011 - Don't think DD will ever learn to read

IndigoBell Tue 13-Mar-12 15:44:39

Actually it looks like Sheinman Opticians sell HTS.

sneezecakesmum Netherlands Tue 13-Mar-12 15:49:57

He sounds dyslexic to me wrt the letters jumping around on the page. I'm not sure if that is the same as a visual tracking problem? Sometimes dyslexia is treatable with coloured overlays on the page or coloured glasses. nhs choices info here tells you where to get assessments etc.

Of course ignore me if you've already tried this route smile as I've no direct experience.

IndigoBell Tue 13-Mar-12 15:57:45

SneezeCake - eye tracking problems are frequently misdiagnosed as dyslexia.

It's not the words which are jumping round the page - it's his eyes.

Eye tracking problems are far, far more common than the fairly rare Irlen syndrome which coloured overlays help. However coloured overlays are frequently, and frequently wrongly, given to dyslexic children.

Jerbil Tue 13-Mar-12 16:22:44

DS1 was referred to an advanced optometrist via our GP. He is now doing visual exercises every day for visual tracking problems. He is also using an overlay to reduce glare off the page due to Irlen syndrome.

Erniesmum - where in the country are you? The reason our gp had to refer was because the service is in a different borough.

BTW I asked about Dyslexia, and the way it was put by the optometrist was that 60% of people with dyslexia have Visual Stress.

MMUK Tue 13-Mar-12 17:46:04

INDIGO BELL,
That was just a simple question! I thought how great it would be to have an advise of professional. Did not mean anything else! Sorry if offended you. Just asking cos I was told to go to BO with my DS and after reading your post I thought I ask, if you the person who deals with it. I do find all posts very helpful once again sorry Indigo Bell if sounded wrong.
Regardsblush

IndigoBell Tue 13-Mar-12 18:30:46

Sorry. I am a bit sensitive as I've been attacked many times for promoting TH.

Where in the country are you? The BO I linked to in northapmton looks good. As is Keith holland.

But the one I used near London was not good.

And if your child has bad dyslexia TH is the place to go. Whereas if they only have mild eye tracking / convergence problems a BO might be able to solve it.

It is so unfair. You should be able to go to any high street optician and get good advice. But you can't.

Erniesmum Tue 13-Mar-12 20:58:14

Thanks for all your replies I really appreciate it. Jerbil we are in Reading.

MMUK Tue 13-Mar-12 21:12:03

Hi, IB.
We are in London and already spend thousands £ in different clinics trying to get help. Our DS has not got label so it is OK on one site but not OK if you trying to get help (pros don't know what they are dealing with), feeling so alienated. Went to one OT clinic promoting them self's for changing the way kids brain work and working on reflexes and "curing" your kid in six to ten mths. It cost arm and a leg and result with them referring you to their "friends" BO and CO (nothing wrong with my DSs scull) and many more. It looks like big money making machine on worried parents! We are walking in a fog at the moment cos we are fighting LEA for SN school for our DS and don't know where to go. I have found myself (you gonna lough now) thinking I can not do it any more! Just want to live happily, don't need lots of money just health and my kids. To much to ask.. "System" has no kids, it's single and have no one to look after and worry about!!! I think I needwine and lots of it.
Glad we are ok Indigo Bell.
Speak soon.

plus3 Tue 13-Mar-12 21:31:07

My son has this problem & is being treated by a BO. We have completed 1 set of VT & were told that it was mostly successful but we started when DS was 6 (apparently harder to get good results?) He now has prism lenses, which despite him being excellent at reading, noticeably improve hs reading age.

The frustrating thing is the glasses dramatically impove his ability to concentrate, and I discovered this morning that he wasn't wearing them at all during hs ed psy assessment. aarggghh.

Jerbil Tue 13-Mar-12 22:07:03

Erniesmum I will ask our optician who suggested the referral in the first place tomorrow. Purely coincidentally we have an appt. Just in case she knows of anyone near you. It's just so frustrating. you think you're getting somewhere then some other problem occurs, namely the system!

Erniesmum Wed 14-Mar-12 11:09:49

Thanks Jerbil.

mrsbaffled Wed 14-Mar-12 12:29:13

plus3 LOL my DS wasn't wearning his at his assessment either! The one day he forgets to wear them they assessed him out of the blue wink

IndigoBell Wed 14-Mar-12 12:32:09

MMUK - lots of us have had great success with retained reflex therapy. Search the old threads. Was it David Mulhall you went to? I haven't been to him, but other people on this board have had good results with him.

Is CO Cranial Osteopath? That did help my DS.

Anyway, like you know, my top recommendation is Tinsley House. I have done all of the things you're talking about ( RRT, BO, CO and TH) and have found all of them worked to some degree, but that TH was/is the best (and BO was the least effective). What results you get will obviously depend on what problems your DS has.

Is That My Child explains TH. If you read that book, you'll know whether TH is right for you or not.

I've probably spent £2,000 - £3,000 on treatments for DS. I don't know. I haven't added it up. But I certainly don't regret a penny of it. He's going to go to secondary school in September - and I am not at all worried about him. Whereas 2 years ago I didn't think I'd be able to send him to secondary school at all.

The Tinsley House thread will tell you more about what the Tinsley House therapy is like to do.

I can 100% recommend the HTS vision therapy that TH prescribes. Both DD and DSs vision has improved out of sight with it.

MMUK Wed 14-Mar-12 13:41:36

Hi IndigoBell,
Thanks for that. I don't regret money I've spent on my boy, I regret that I had not found "working" therapy sooner. He has made progress, no doubt, slow but progress. I look into TH. Thank you.

auntevil Wed 14-Mar-12 18:14:23

Any recommendations for BO in London (South) /Surrey areas?

Jerbil Wed 14-Mar-12 19:37:32

Erniesmum I did ask but she didn't know anyone off the top of her head, and said unless she would have worked with them then she wouldn't feel right recommending an individual. sorry. But she sooo supports this service. The one who deals with DS1 in the SPLD clinic is called an Advanced Orthoptist and she works at the Dept of Opthalmic Surgery. I wonder if you can contact a similar dept at a hospital local to you. Keep in mind that not all areas are covered by this service. We have to travel 20 miles away from one of the largest cities in England to a much smaller borough that actually offer the service. So shop around and good luck.

plus3 Wed 14-Mar-12 22:47:59

We go to Paul Adler in St.Albans. Think he has 2 sites & does work for a hospital. Hth

IndigoBell Thu 15-Mar-12 08:04:49

AuntEvil - I have no recommendations, but can tell you more so that you know what questions to ask. (Hopefully people who are happy with their BO can add to this list / correct my misconceptions)

There are 3 types of things BOs recommend:

1. Computer vision therapy
2. Prism glasses
3. Manual vision therapy

Computer vision therapy is the most effective. It is widely used in the US. But I can only find one optician on the UK who uses it. Both DS and DD have done this, and there is no question it has been amazing. 20 mins every day for a month.

Prism glasses. People on here who have them seem to be very happy with them. AFAIK they don't correct the eyes - ie you have to wear them forever. Hopefully someone who knows about them can tell you more.

Manual vision therapy. This is what DD and DS2 did and I was. Dry unhappy with it. It's the most expensive and the least effective. We had 5 sessions, and they did help - but you need an awful lot more than that for the therapy to be effective - which is why it is pricy. You are also reliant on your DC to tell u

IndigoBell Thu 15-Mar-12 08:06:38

AuntEvil - I have no recommendations, but can tell you more so that you know what questions to ask. (Hopefully people who are happy with their BO can add to this list / correct my misconceptions)

There are 3 types of things BOs recommend:

1. Computer vision therapy
2. Prism glasses
3. Manual vision therapy

Computer vision therapy is the most effective. It is widely used in the US. But I can only find one optician on the UK who uses it. Both DS and DD have done this, and there is no question it has been amazing. 20 mins every day for a month.

Prism glasses. People on here who have them seem to be very happy with them. AFAIK they don't correct the eyes - ie you have to wear them forever. Hopefully someone who knows about them can tell you more.

Manual vision therapy. This is what DD and DS2 did and I was. Dry unhappy with it. It's the most expensive and the least effective. We had 5 sessions, and they did help - but you need an awful lot more than that for the therapy to be effective - which is why it is pricy. You are also reliant on your DC to tell you if theyre doing it correctly (ie can they see one string or two) - and of course they quickly learn to tell you what you want to hear.

mrsbaffled Thu 15-Mar-12 09:25:57

Indigo did the manual VT you did start with RRT? As I understand it the eye exercises can't 'stick' if there are any retained reflexes. DS's VT has been 95% RRT/SIT so far (since Christmas) and just last week we have started on some eye tracking exercises (follwing thumb making circles, one eye at a time).

IndigoBell Thu 15-Mar-12 09:48:01

Yes. We did 5 weeks of RRT. Which as you can imagine wasn't as effective as the 18 months we did with the sound learning centre.

You are right that vision problems and retained reflexes are linked. Everyone with these vision problems also has retained reflexes.

Sounds like your BO is better than the one I went to.

mrsbaffled Thu 15-Mar-12 09:57:07

Well, I am certain the RRT is working (much more than 5 weeks, though). The spinal galant has gone completely, and he was bad on that one. The other reflexes were not as bad, so I guess that's why he's responding quickly.

As I say we have just started the eye exercises, and his eyes are all over the place at the moment. It makes me quite sad, really. I am sure he will improve quickly, though. DS has been working hard so far and has learnt to do things (like commando crawling backwards) which he just couldn't do when he started, so I am sure he will get better at this too x

IndigoBell Thu 15-Mar-12 10:10:37

How's his Moro reflex?

That's the most important one to get rid of (AFAIK)

mrsbaffled Thu 15-Mar-12 10:29:32

That was his lowest. Only 0.5 out of 5. We are doing the exercise for it at the moment (the "Moro Splat").

mrsbaffled Thu 15-Mar-12 18:57:04

Moro tested again today - gone smile

IndigoBell Thu 15-Mar-12 18:59:12

That's excellent! And very quick.

Does he seem less anxious, and stressed?

mrsbaffled Thu 15-Mar-12 20:36:23

Nope! (MInd you it was not a strong retention).

Quite the opposite, we've had a horrendous week (posted about it yesterday)! sad I do wonder if somehow he's reacting to having started the EPA and kindervital/saludynam?? I imagine it will settle....

popo23 Wed 26-Sep-12 13:36:52

I am just embarking on all this for my DD. I am in London and would love to hear where not to go.

DizzyHoneyBee Sun 14-Oct-12 11:51:49

My son had massive problems with learning to read, his school had one these which we borrowed, he used it all the time for a few months and it made a massive difference. He was having to have books about 2 years below his chronological age but now he's top of the class for reading (sorry to stealth boast but I wanted to explain how much of a difference it made).

goshua Fri 15-Feb-13 00:33:17

Hi my daughter now 22 had Many problems Hole in the Heat, Central nervous
system disfunctions, growth problems etc. She is OK now and in work copes with her disabilty's. Thing is we missed her EYE Problem, found out a few months ago. Aparent quite common in children such as ours RUGBY BALL eye's
caused her feeling sick, headache's, visual problem's , she is fine now ,. New glasses. Only found out due too her having problems doing her driving lessons, Has now passed her test. Feel guilt that we missed it.

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