Our dd is now 9 months old and was diagnosed with a moderate hearing loss at birth - I posted about this at the time on MN. She was fitted with digital hearing aids at 11 weeks, but neither dh nor I ever felt they helped her, despite having them turned up a couple of times. Since she was 5 mo we've struggled to keep them in - they're pulled out almost as soon as they're put in, and I've found the whole thing quite negative. We've been for further hearing tests recently, and got no response from dd at quite loud levels, with the result that her moderate deafness is probably a severe - profound deafness. She's going to be fitted with a body-worn hearing aid tomorrow (more powerful), although I don't hold my breath for any response; I get my hopes up at each visit we have to the audiologist, only to have them dashed each time. Meanwhile she has been referred for cochlear implant assessment.
I'm feeling quite isolated at the moment, although we have a wonderful teacher for the deaf who visits, and without whom I would be really stuck (our HV is rubbish). Someone commented recently after I'd discussed dd's deafness with her that she feels almost guilty that her children do not have any problems, so I'm getting to the stage where I'm finding it hard to talk to people about it for fear they think I'm moaning or trying to make them feel bad (which is not the case!). Part of me feels I should be at home with dd spending time signing with her ( I work 3 days a week); we have a 3.5 yo ds as well who is great, but monopolises me when I am at home, so dd never gets much attention really.
Just wondering if anyone else out there has experience of cochlear implant and can give us a few more pointers as to what the assessment process involves? Has anyone's child actually been implanted? If so, what sort of effort does it involve on your part to help them learn to talk? (Just idly wondering if I should reduce my hours at work if necessary - or even stop altogether). Any comments or experiences would be gratefully received. Many thanks.
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Cochlear implants anyone?
15 replies
stringbean · 14/07/2005 11:43
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Feffi ·
17/07/2005 07:16
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