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   Our SN area is not a substitute for expert advice. While many Mumsnetters have a specialist knowledge of special needs, if they post here they are posting as members, not experts. There are, however, lots of organisations that can help - some suggestions are listed here. If you've come across an organisation that you've found helpful, please tell us. Go to Parents with disabilities, SN teens, SN legal, SN education, SN recommendations.

anyone know about cp??

(16 Posts)
Add message | Report | Contact poster By Sat 04-Jul-09 22:16:53  
Hi,
wonderd if anyone could help my DD is 17months she has been refered to hospital for developmental delay and also squints in both eyes. shes not yet standin,walking or crawling although she does bum shuffle and can say around 5 or 6 words. if i try to lift her to stand she doesnt bear weight on her legs and her left foot turns inshe was also late to sit just before her first birthday. had an op for pyloric stenosis at 4 wks and whilst in hosp a dr mentioned in passing that she doesnt use her left side as much? after gooleing symptons kept coming accross cerebral palsy. do these symptoms sound fermiller to anyone? thanks for reading Guys.
Add message | Report | Contact poster By Sun 05-Jul-09 09:49:22  
it could be cerebral palsy. CP is a motor disorder with added extras from the brain injury.
Generally if there's motor issues and they can't find anything else and an MRI shows brain damage you get a CP diagnosis.
My dd1 had an early diagnosis og hemiplegia - CP affecting her left side due to brain injury mainly in the right side of her brain. dd1 had a left sided squint, which has been corrected with surgery.

How soon is the hospital appt?
Add message | Report | Contact poster By Sun 05-Jul-09 14:32:35  
dd was diagnosed at birth cos the brain damage was clearly basal ganglia and motor cortex.
she never met any physical milestones so it was kind of obvious from 6 weeks or so.
Add message | Report | Contact poster By Sun 05-Jul-09 20:12:00  
Apart from the pyloric stenosis at 4 weeks you could have been talking about my DD2. Identical at 17 months (now just 2yrs). We've just had an MRI and are waiting to talk to someone about it but we're expecting a cp dx I think.
Add message | Report | Contact poster By Sun 05-Jul-09 22:48:06  
thanks guys have hosp 15th august, she had pretty straight forward delivery. but when she had the op for the pyloric stenosis she had a bad urine infection.. read somewhere before that a mothers urine infection could be possible cause for cp. is it possibilty babys infection could cause it?/
Sounds similar to my DS, he was diagnosed with diplegic CP at 19mo. You can get a referral from the GP.
Add message | Report | Contact poster By Sun 05-Jul-09 23:29:33  
thanks laumiere, gp has referred, we have the appointment 15th august. how long do you have to wait for diagnosis? not wishing anything on DD but rather know than keep wracking my brains. hows your DS doing?
Add message | Report | Contact poster By Mon 06-Jul-09 08:10:11  
My DS has CP also, but he was very prem, you are unlikely to get a firm diagnosis until after an MRI although that is not always the case. We knew there was damage from his first ultrasound of the brain at 5 days old so had a working diagnosis of CP from about then, only confirmed after an MRI at 1 year old.

I hope your referral is ok, even with no diagnosis your DD would benefit from physiotherapy and Occupational therapy, possibly speech therapy also. Make sure you ask for these when you see the paed if they are not mentioned, as there can be a waiting list.
Add message | Report | Contact poster By Mon 06-Jul-09 08:18:05  
One hopeful note is that the longer it takes to get a diagnosis the less severe the CP is IYSWIM. dd has severe quadraplegic CP and has less movement than a newborn. Diagnosed before 3 months. If they are using hands, talking, getting about, its much less severe and there's more chance of improvment in physical abilities cos there's something to work on.
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