Mumsnet Discussions - FAVOUR PLEASE MUMSNETTERS-Selective Mutism Awareness Week

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FAVOUR PLEASE MUMSNETTERS-Selective Mutism Awareness Week

(20 Posts)

By Fri 17-Oct-08 14:10:49 Add message | Report | Contact poster

My DS has Selective Mutism and SMIRA ,the Selective Mutism Information and Research Association was running an awareness week from october 5th -12th.although will continue to run until the end of October.

Would any mumsnetters be willing to e mail their local MP's please to ask them to sign the Early Days Motion to raise awareness of SM.

To e mail your local MP they all follow the same format,SURNAME THEN INITIAL (UPPER CASE)
For example a John Wilson MP would be

WILSONJ@parliament.uk

If you could urge them to sign the early days motion tabled by Mark Williams MP in support of Selective Mutism.
Further information can be found at
www.selectivemutism.co.uk

Thank you for your time in reading this and would really appreciate it if you could help.

Add message | Report | Contact poster By Sun 19-Oct-08 14:30:10

It was a pleasure Wasup. I'm hope that my Mp will sign up to this if he hasn't already. thanks too re the blog.

Add message | Report | Contact poster By Sun 19-Oct-08 12:26:57

Thanks TClanger your blog is very interesting!

Add message | Report | Contact poster By Sun 19-Oct-08 08:40:35

Thanks very much have written a post and will be writing to our MP

Add message | Report | Contact poster By Sat 18-Oct-08 14:28:59

Tclanger-have e mailed you the link to the downloads for the information on selective mutism. smile

Add message | Report | Contact poster By Sat 18-Oct-08 10:10:31

I'd love that link please devil Tclanger23@aol.com I'll do a blog post on the early bird motion and SM later today and will include a link to this thread.

Wasup we went down the autism route with DS, so many people had indicated he was on the spectrum, that it wa a shock when we were told it wasn't. We had to go down the independant route to get the Specific language impairment diagnosis. If either of you ladies would like write anthing on SM or recommend any good websites for the blog, please feel free to email also. sunshinetc.blogspot.com/

Add message | Report | Contact poster By Sat 18-Oct-08 06:31:03

wasuup3000, i love that poem, i dont have any knowledge of sm, but i sat reading those posts thinking how easy it would be for ds3 to have sm, had he been a less confident child, he is such a perfectionist and has speech and language disorder, and for the life of me i cant think how anyone could think 'only sm' really just wanted to say how good the poem was, but thanks for posting the info too.

Add message | Report | Contact poster By Fri 17-Oct-08 22:33:32

Your welcome devil

Add message | Report | Contact poster By Fri 17-Oct-08 22:11:56

Hi
Tclanger

Thanks for your reply. Another one of my children is getting assessed at the moment for aspergers, dyspraxia or possible communication disorder. So I know it is difficult. People don't quite understand selective mutism-it is good that you do.

Thank you

Add message | Report | Contact poster By Fri 17-Oct-08 21:50:39

Tclanger-I posted on that thread you mentioned also as it was close to home for me.

I have a link to a poster and hand outs with the above information that wasuup3000 posted.
It was kindly sent to me by Lindsay at SMIRA.

If you would like I could forward that e mail to you?

I myself am going to print them out and take into DS's school to raise awareness there.

My DS has a phonological disorder and we think that may be were his SM stems from as he is a perfectionist and hates to gets things wrong.
Hence not wanting to sound words incorrectly .

Like you say it is frustrating when people comment about "just his speech being affected"

Communicating is a big part of life.

Add message | Report | Contact poster By Fri 17-Oct-08 21:37:37

Wasup what an amazing post! People often comment that my son who has severe SLI, is lucky that it is just his speech that is effected. How little they understand. At four he was almost totally mute at school and still will not often answer if spoken to directly. I got angry on here recently when the Mum of a child with a speech disorder, posted how rude she thought children were, who didn't say hello, goodbye, please and thank you.

Thanks for raising the profile on here, I shall definately write a post on my blog, asking for people to write to their MPs too.

Fantastic poem DD "my words get stuck in a traffic jam" really hit the spot. M always says "my brain won't work properly today" when his speech gets scrambled.

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FAVOUR PLEASE MUMSNETTERS-Selective Mutism Awareness Week