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polymicrogyria

2 replies

twosofar · 02/10/2008 18:17

My friend's 10 month DS3 has been diagnosed with PMG (see thread title). Does anyone have experience of this or can offer any advice? She is aware that it varies wildly from child to child, but if anyone has anything they can share she'd be grateful.
Thanks

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saintvicsta · 02/10/2008 20:11

Sorry, no experience but didn't want thread to go unanswered. Googled it and, like pretty much anything to do with the brain, there's no definite prognosis. I can sympathise with this as I am currently watching and waiting too. I hope your friends DS is doing OK. Hopefully, someone more knowledgable will be along soon. Keep bumping the thread though - it will need to catch the right persons eye.

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FanjolinaJolly · 02/10/2008 23:56

Hi my little one has a form of lissencephaly.I believe PMG comes under the lissencephaly umberella.There are some lissencephaly support groups.
lissencephaly.org.uk

As you say the various conditions are wide ranging in severity and I scared myself Googling but I belive this is a reputable site.

Best wishes to your friend xx

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