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SN children

Baby's head has stopped growing

13 replies

vicsta · 28/08/2008 15:41

baby Gabe 10 nearly 11 weeks and his head hasn't grown for the last 2 weeks. I am soooo sad. Is this it? Is this where is development ends? I am gutted as I have taken heart in his continued growth and his unbelievable development (considering he shouldn't really be here). Feel hopeless

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Tclanger · 28/08/2008 15:55

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Mitchell81 · 28/08/2008 15:59

Hope your baby Gabe is ok, Keep strong there is always hope!!!!! I wish I had answers for you.

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sarah293 · 28/08/2008 17:24

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Jacanne · 28/08/2008 17:47

I really hope all is well with your baby Gabe - just wanted to say that measuring babies' heads is considered quite difficult - our HVs don't do it now because it is so hard to get an accurate reading. My dd was referred to the GP because of her small head measurement - a different HV measured it a week later and lo and behold, it had "grown" by 2 cms.

I don't know what your story is but I hope he continues to do as well as it sounds that he has been.

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sarah293 · 28/08/2008 19:31

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FioFio · 28/08/2008 19:37

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wb · 28/08/2008 19:52

Obviously I don't know your situation but ds2 (now 6 mo) underwent extensive examinations b/w the ages of 6 weeks and 4 months because it was feared that his skull/brain weren't growing properly.

One of the things I learnt from this was that 2 weeks is a very small amount of time in which to detect and accurately measure skull growth, even at this age. Different people, different tape measures, the baby wriggling - all these things can throw a measurement out by a few millimeters and a few millimeters growth makes all the difference. (At one point ds2's head appeared to have shrunk b/w one reading and the next )

I won't tell you to stop worrying cause I know you can't but honestly, you cannot predict the future based on one head measurement (I know, I tried). Hope all is well with your little one.

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vicsta · 28/08/2008 20:19

Thanks all, am feeling a bit better now. Having a bit of a bad day generally, DS having more myoclonics than usual and is seriously grizzly too coz he's bloody constipated! Here's hoping for a better nights sleep and some relief for poor bunged up baby. Fio quite a lot else is worrying me but I do get your point. will try not to flap next week!

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sarah293 · 28/08/2008 20:55

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Cocodrillo · 29/08/2008 06:32

Vicsta, what a beautiful little boy. Congratulations.

Please try not to worry too much about the head thing, I wasted much of a year doing the same thing, and ultimately for no reason.

In the end I tried not to think of the future, and simply live in the moment. I'm not sure I managed it, but when a baby has SN it's so impossible to predict the future.

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vicsta · 29/08/2008 13:44

Riven, have appt with neuro on 10th Sept. when she last saw Gabe at about 7 weeks she told me to keep an eye on his jerjs re:infantile spasms. she said to look for arms and legs being thrown upwards repetatively esp on waking. She explained that it is an extremely serious condition, am so sorry your daughter suffered. Gabe very placid an waking and previous 2 EEGs confirmed ordinary myoclonics. Have my eyes peeled and fingers crossed over the next few weeks though. Thanks again.

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FioFio · 30/08/2008 13:47

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sarah293 · 30/08/2008 14:37

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