Hi
my son had some difficulties at birth, and was born not breathing, had to be intubated and was in SCBU for about a week. Vague ideas on notes about him having HIE, various tests done, and has had follow up appts with paed every 3-6 months.He's now nearly 5, and paed is referring him to LEA for possible statementing.
He was delayed walking, has had some physio input (twice yearly), wears piedros, and has low muscle tone, wears glasses for squint. Paed did various blood tests to rule out things like muscular Dystrophy etc, but is adamant low muscle tone etc not due to birth. He has seen by a development paed (referred by first one) for griffiths assessment who said probably/possibly birth related, as did our GP. For various reasons I've lost confidence in our main paed and would like a second opinion, and so need to find a private paed. {we also do private OT as NHS OT was going to be 6 monthly, and we're doing it about weekly).
However, the GP was not much use in suggesting who it would be best to see. I don't know if the "expert" would be a development paed or a "neurodisability" paed or someone else.
Thanks for getting this far and any suggestions for best sort of person to see, or even better a specific name, preferably in London or herts/bucks area.
Also any idea about cost would be welcome,as I've no idea what a private consult would cost.
Hope you don't mind me posting here, as I'm sure to most of you my son's problems are relatively mild, but I thought that someone on this board would have seen the main people in this field.
Again many thanks.
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recommendation for good private developmental/neuro paed in london area and cost
15 replies
stillworrying · 06/05/2008 20:17
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