DS has just been diagnosed with hypermobility syndrome, particularly affecting his lower limbs. Thankfully we have a pro-active HV who referred him early for physio and he has started already. He is 15 months and doesn't try and pull himself up or cruise yet. When held in a standing position he isn't very happy, he gets a bit scared and tries to sit down. I think this is because he is very wobbly. He also has a fear of falling over and cries if he sees DD (4) falling over and also cries when someone on TV falls over (particularly you've been framed!).
I understand that children who have this often benefit from shoes/boots before they can walk to give them some grip and to gie their ankles some stability. So I took him to a good independent shoe shop to be fitted but they say he is only a C fitting and it is very very hard to get shoes in that fitting. Does anyone have any experience of hospital made shoes?
Also, generally does anyone else have a child with this hypermobility? What age did they walk and is there anything else I can do to encourage him in moving? He doesn't crawl but speed bottom shuffles around the place!
TIA
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Hypermobility Syndrome - Anyone with any experience?
15 replies
hockeypuck · 02/08/2007 18:30
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iwearflairs ·
14/08/2007 21:11
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