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SN children

just been told that in all probability dd has cerebral palsy.

18 replies

wrinklytum · 06/07/2007 12:50

Am in bits.

Hoping for some hugs and wise words.

My beautiful gorgeous little girl.I love her so much.

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moo · 06/07/2007 12:56

I don't have much by way of wise words - but I am sending you a very big virtual hug. I'm so sorry.

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NotReallyFlashGordon · 06/07/2007 12:58

{{{{{hugs}}}}}
how old is she? tell us a bit more when you're ready.

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Greensleeves · 06/07/2007 12:58

Oh, that must have been very hard to hear. I'm sending you a big hug too. I'm sure you'll get wise words too presently. xx

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anniemac · 06/07/2007 13:10

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Greensleeves · 06/07/2007 13:19

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wulfricsmummy · 06/07/2007 13:31

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anniemac · 06/07/2007 13:36

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Jenkeywoo · 06/07/2007 15:11

Wrinkly tum, hugs to you and to your dd and I guess in a way I feel a bit cross for you that your dd has got to 19 months and it is only you pushing that has got some idea of diagnosis. Why is it always down to the mummies to point out the obvious? I know right know you probably feel floored by this all but you will absorb it and it won't be as scary. My dd was only diagnosed a couple of months ago so it's all very fresh for us, one thing I don't think many of us realise is how wide-ranging CP is and that it can be very mild in some cases. I know your dd hasn't been officially diagnosed yet but there is a great early years booklet available from Scope which explains about CP in a very accesible way. It's funny because when she was first diagnosed I could barely say the words but know I'm cheerfully telling strangers in the swing park that dd has cerebral palsy and it doesn't cut me in two the way it first did. Keep in touch. xxx

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anniemac · 06/07/2007 15:18

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2shoes · 06/07/2007 17:43

wrinklytum can you please email me at [email protected] so that I can send you an invite to ttr.

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mymatemax · 06/07/2007 19:08

Wrinkleytum
myds2 has mild CP & although we were expecting the dx it totally floored me, once i'd got over the so many mixed emotions I can honestly say that getting the dx has helped ds enourmously.
He was born 3 months prem & so had a physio since birth but once he had the dx immediately his physio, put together more of a long term plan, OT were so supportive,parent CP workshops so helpful, we automatically went on the list for SALT assessment rather than waiting to see if language was a problem.
He is nearly 5 & he is very mobile, although his physio thought it unlikely he would walk.. he does unaided..
Really as the others have said CP is such a wide ranging umbrella term, use the benifits of the dx to get your dd the help she needs but part from those two letters she is your same gorgeous little girl.

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motherinferior · 06/07/2007 19:14

Wrinklytum: I don't have words of wisdom, but am also sending you a hug. Whatever the future holds, today must be so difficult for you.

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Califrau · 06/07/2007 19:18

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lou33 · 06/07/2007 19:21

ds2 has cp, i remember v well how i felt when i found out

it isnt the end of the world even if it feels like it now, i promise

she's still you perfect baby, my son is to me

feel free to cat me if you need a chat , or talk on here x

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wrinklytum · 06/07/2007 19:47

Thank you for your lovely replies.I had just about stopped crying but you have set me off again!!!

I really love mumsnet for times like these.It has really cheered me up to know that people have replied with kind words and thoughts

Dp has gone out drinking with friends(I think it has hit him harder than he will admit as dd is a real daddies girl and always saves the most gorgeous smiles exclusively for him,as well as babbling dadada at him,has never said mama)and ds has gone to gps so I am here with dd.

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wrinklytum · 06/07/2007 19:49

2shoes and Lou 33 I will get in touch,many thanks.

It may be in a few days when head is clearer.

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mymatemax · 06/07/2007 19:58

Wrinkley tum, can you pour yourself a glass of something nice if you have a quiet evening.
Look after yourself x

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sarah293 · 07/07/2007 15:48

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